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Medical Forum / Diseases and Disorders / Prostatitis / May 2006

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This Damn Forum is Dead!!!

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Razor Face - 30 Apr 2006 14:26 GMT
Doesn't anyone have anything to post here anymore?

I guess prostatitis is not as common as we have heard on some websites.
Toby Runyon - 30 Apr 2006 15:06 GMT
> Doesn't anyone have anything to post here anymore?
>
> I guess prostatitis is not as common as we have heard on some websites.

No, it's just that very effective treatments have been found:
http://www.chronicprostatitis.com/
Razor Face - 01 May 2006 10:57 GMT
>> Doesn't anyone have anything to post here anymore?
>>
>> I guess prostatitis is not as common as we have heard on some websites.
>
> No, it's just that very effective treatments have been found:
> http://www.chronicprostatitis.com/

Oh please!  I have come to reject the pelvic myoneuropathy theory, the
predominent theory on that site.

Actually, it is not that I reject; it's just that there is no supporting
evidence for it and it's based on building one unproven theory on top of
another.

Face it:  chronic non-bacterial prostatitis is a wastebasket diagnosis.
Most of us who have been told we have it actually have something else that a
doctor has not yet detected.
Toby Runyon - 01 May 2006 14:03 GMT
> Oh please!  I have come to reject the pelvic myoneuropathy theory,
> the predominent theory on that site.

Ok, what's your theory then? That we all have different diseases that
the doctors have not yet discovered? lol

> Actually, it is not that I reject; it's just that there is no
> supporting evidence for it and it's based on building one unproven
> theory on top of another.

That's not true. There is a 2005 study showing a remarkable 72%
improvement rate in patients at http://www.geocities.com/prostatitis_home/

[first paper on the page]
Razor Face - 01 May 2006 16:50 GMT
>> Oh please!  I have come to reject the pelvic myoneuropathy theory,
>> the predominent theory on that site.
>
> Ok, what's your theory then? That we all have different diseases that the
> doctors have not yet discovered? lol

Why is it that no one in the medical community buys into the theory, if they
have even heard of it?  The idea that men's stress causes tension in pelvic
musscles and trigger points develop in those pelvic muscles and over time
and those trigger points cause referred pain in the groin is very ludicous.
The few doctors I've explained this to don't buy it at all and say it has no
place in a serious medical discussion and belongs is a book of fairy tails.

And why is it that they number of sufferers has been grossly overestimated?
If we were to believe the stats quoted by David Wise, Curtis Nickel, and
others, 5% - 15% of men would have the disease.  However, common sense
suggests that no where near this many men have the condition.

Prostatitis cannot be detected, indentified, or defined, so YES -- I believe
most of us have something else that has no been detected.  Do research on
"wastebasket diagnosis".

>> Actually, it is not that I reject; it's just that there is no
>> supporting evidence for it and it's based on building one unproven
[quoted text clipped - 4 lines]
>
> [first paper on the page]
Toby Runyon - 01 May 2006 16:59 GMT
> Why is it that no one in the medical community buys into the theory,
> if they have even heard of it?

What makes you think that? Make an appointment with Dr Anderson, one of
the theory's top proponents:
http://urology.stanford.edu/faculty/anderson.html

Just because your common-or-garden family doctor or your local uro (who
probably doesn't go to AUA meetings where the latest discoveries and
research are discussed) hasn't heard of it, does not mean it's not true. :)

> The idea that men's stress causes
> tension in pelvic musscles and trigger points develop in those pelvic
> muscles and over time and those trigger points cause referred pain in
> the groin is very ludicous. The few doctors I've explained this to
> don't buy it at all and say it has no place in a serious medical
> discussion and belongs is a book of fairy tails.

If you explain it like that, no wonder they think it's ludicrous!

> And why is it that they number of sufferers has been grossly
> overestimated? If we were to believe the stats quoted by David Wise,
> Curtis Nickel, and others, 5% - 15% of men would have the disease.
> However, common sense suggests that no where near this many men have
> the condition.

That's another subject entirely.

> Prostatitis cannot be detected, indentified, or defined, so YES -- I
> believe most of us have something else that has no been detected.  Do
> research on "wastebasket diagnosis".

Once again: there is a 2005 study showing a remarkable 72% improvement
rate in patients at http://www.geocities.com/prostatitis_home/
taterbug - 05 May 2006 01:33 GMT
> > Why is it that no one in the medical community buys into the theory,
> > if they have even heard of it?
[quoted text clipped - 30 lines]
> Once again: there is a 2005 study showing a remarkable 72% improvement
> rate in patients at http://www.geocities.com/prostatitis_home

 the reason this board has slowed down is that everybody has taken
fatty
  mawson's advice and laid off grains,taken digestive advantage ibs,
and in bad cases take amitriptylene.what is commonly referred to as
chronic prostatitis is nothing to do
 with the prostate gland at all.it is a problem in the bowels most
likely
 an adverse reaction to prolonged consumption of grains and the pain
is deferred into
 the rectum and groin.it takes about one week for a cp patient to get
better
after he stops consuming grains.some people have dual problems.adverse
reaction to grains and sciatic nerve problems which are amplified by
the comsumption of
grains which is the reason some patients must also take amitriptylene.
but nothing will work to relieve the pain of cp until you stop eating
grains.
you must treat cp one step at the time
stop grains.start a probiotic which will help a majority of patients.
this must be done before any treatment with amitriptylene will work.
in my opinion that 2005 study is t-total t-mortal jive.
NC - 05 May 2006 20:49 GMT
> > > Why is it that no one in the medical community buys into the theory,
> > > if they have even heard of it?
[quoted text clipped - 53 lines]
> this must be done before any treatment with amitriptylene will work.
> in my opinion that 2005 study is t-total t-mortal jive.

You see responses like this and you don't need to wonder why this forum is
dead. Too many hard headed opinions with no latitude for the possibility
that there may be many different problems that people call prostatitis.
taterbug - 05 May 2006 22:03 GMT
well well well mr. nc when you have proven me wrong i will gladly
switch to what you recommend.
i haven't seen any of your opinions posted
what do you recommend?
my previous post has helped many people.
maybe you are too hardheaded to try anything.
maybe you just want to sit on your a.s and hurt
if you han't tried don't kick it
there is only 2 things that cause cp
one is the consumption of grain and the other is the sciatic nerve
or combination of both in some people.
i run the most successful clinic in the country for the treatment of
disabled veterans with cp.
the first thing we do is take them off grains, give them probiotics,
then amitriptylene or
or oxycodone or both depending on how bad their sciatic nerve is
damaged
they all get better
what do you run ?
i think the only thing you run is your mouth.
signed  fatty mawsom
Borked Pseudo Mailed - 06 May 2006 20:01 GMT
taterbug said

> well well well mr. nc when you have proven me wrong i will gladly
> switch to what you recommend.
[quoted text clipped - 17 lines]
> i think the only thing you run is your mouth.
> signed  fatty mawsom

Quack quack quack
Razor Face - 06 May 2006 20:34 GMT
> You see responses like this and you don't need to wonder why this forum is
> dead. Too many hard headed opinions with no latitude for the possibility
> that there may be many different problems that people call prostatitis.

Which is what I have been trying to tell Toby.  "Prostatitis" is just a
wastsebasket diagnosis given by a doctor who does not know the cause of your
pain or just does not care to find out.  That's why so few doctors seem to
know anything about it and why there is no public awareness of this
condition despite claims if 10% incidence.

Toby also seems to support the Stanford Protocol.  The Idea of spending
$3500+ to have these so-called "trigger points" stretched in a six day
clinic, then spend $1000s more on physical theorapy in hopes that I'll get
some relief 1 year from now is just not a responsible investment, in my
opinion.


Toby Runyon - 06 May 2006 22:14 GMT
> Which is what I have been trying to tell Toby.  "Prostatitis" is just
> a wastsebasket diagnosis given by a doctor who does not know the
[quoted text clipped - 7 lines]
> hopes that I'll get some relief 1 year from now is just not a
> responsible investment, in my opinion.

Ok then, Razor, then if you've decided that trigger points and
myofascial dysfunction are not the cause for you, and you've tried all
the uros and clinics, what else is there for you?

Why not give us a list of everything YOU have tried, and how those
things worked out for you.
Razor Face - 07 May 2006 14:46 GMT
> Ok then, Razor, then if you've decided that trigger points and
> myofascial dysfunction are not the cause for you, and you've tried all
> the uros and clinics, what else is there for you?

Never said that I tried all uros.  In fact, I've only seen two.  The first
was a general uro who did not want to listen to me and did not take the
needed time to examine me closely.  When he said I had "prostatitis", I had
never heard of the condition, but I knew that this really meant that he did
not know and was just making a guess.  However, I made the costly mistake of
not getting a second opinion for a more expirienced and less arrogant uro.
Instead, I went to a prostatitis specialist, Dr. Zeitlin in Sherman Oaks,
who used to share an office and still follows the protocals of Dr. Shoskes.
I'm going to see another uro this week and hopefully get some answers.

> Why not give us a list of everything YOU have tried, and how those
> things worked out for you.

Cipro, which did squat since there is no bacterial infection.  I was also
put on Elavil, which just put me to sleep for 24 hours a day.  What I need
to try now is something that will get to the root of the problem and not
some expirmental trigger point therapy or some worthless PEENUTS product.
Toby Runyon - 07 May 2006 20:47 GMT
> Instead, I went to a prostatitis specialist, Dr. Zeitlin in Sherman Oaks,

If he didn't help you then there's little point seeing any more uros.

> Cipro ... Elavil... PEENUTS

Tell you what, you keep looking and if you have no success, come and get
some help at http://www.chronicprostatitis.com/forum/
Razor Face - 09 May 2006 06:54 GMT
>> Instead, I went to a prostatitis specialist, Dr. Zeitlin in Sherman Oaks,
>
[quoted text clipped - 4 lines]
> Tell you what, you keep looking and if you have no success, come and get
> some help at http://www.chronicprostatitis.com/forum/

Maybe.  But you can't blame me for wishing that there is some condition that
can be identified and corrected.  That's what I was hoping for -- some other
than CPPS that some doctor missed through carelessness.  Pelvic pain is a
living hell and robs one of life.

I'm not saying that SP does not work.  I think Wise and Anderson are very
devoted to helping people.  I'm just saying it is a lot of money spend if
you are not sure that it is the proper treatment for one's problem.  Even
though it may be based on the studies of credible doctors, it is not yet
recognized by the medical community.

I'm willing to try attacking this from a few different ends, since these
UROS are getting me nowhere.  Dieting, stretching... I just don't know where
to begin.
 
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