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Medical Forum / Diseases and Disorders / Prostatitis / October 2005

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Advice, please

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cp - 15 Sep 2005 16:51 GMT
Hi,

I am in my forties, very physically fit. I have had CP since my late
teens. Went to a urologist, who did a few tests and declared that
there was nothing wrong with me. Toppers was, the stiff rod cystoscopy
he used damn near killed me, and he refused to give me pain meds. Had
to drive 300 miles to get home on my own. Only urologist I was allowed
to use at that time with my employer. Passed out in the bathroom of a
Denny's from the pain when I tried to urinate. Didn't try that again
for the better part of 24 hours, even with the agony I was in. In
other words, that experience 'cured' me of complaining for 25 years. I
got by on lots of drugs, legal and illegal, self prescribed and self
applied. Got Hep C (and now on combo treatment) as a  little present
with that lifestyle. 5 years ago turned myself around, substituted
LOTS of exercise, lots of vitamins & minerals for the drugs, and
pain-wise, while still living in misery, at least I'm getting no more
misery now than when I laid around on my a.s and used drugs to mask
the pain.

Fast forward to 2005. Finally got the nerve to go to a urologist
again. Very nice gentleman. Did the usual tests, tried to see if maybe
it was IC instead of CP. No such luck. At least the cystoscopy device
he used was very tolerable. No worse than the catheter the nurse used
to apply the potassium solution when testing for IC. And I got some
Vicodin for the pain if I needed it. (Still sitting in the medicine
cabinet).

Anyway, here's where I'm at. I've had it, and want this damn thing
fixed, and I'm willing to accept a certain amount (maybe even a lot)
of risk or trade offs to get it done. In my opinion, after 25 years, I
know this: The irritation is in my prostate. It is, at this point,
irrelevant to me why my prostate is being irritated. I want the damn
thing removed. The current urologist says he'd lose his license if he
did it, while at the same time discussing the subject with me very
candidly, even letting me know that absent cancer, he could be
especially careful in regards to nerve sparing, thus limiting the risk
of long term impotence (which, by the way, along with incontinence,
does not scare me in the least). He is seriously considering my
request to at least 'scoop out' the prostate (as he described it), the
treatment used for BPH. I'm willing to give it a try, while knowing
that it would most likely not eliminate the irritation. What it might
do, is allow me to get a stream started and maintained without having
to enter some kind of friggin meditative zen state to get it done
without severe straining. 'Meditative zen states' are hard to come by
in a crowded men's room, and straining, I learned long ago, is a sure
request for LOTS more misery. So I stay home a lot.

What I would like to know is: Has anyone out there had any experience,
good or bad, with complete removal of the prostate. And most
importantly, what reasonably proficient surgeon could someone
recommend who can do such a thing for a CP sufferer? I speak Spanish
reasonably well, and read and write it very well, so I'm considering
looking to Mexico, or further south, if necessary to find someone.
Hell, people where I live routinely go there for dental work, why not
prostate removal:)

ANY input would be appreciated.
Razrbak - 15 Sep 2005 21:13 GMT
Drink 6 oz cranberry juice twice a day for 2 weeks. That will cure you
completely! Then send me $20 for my services, which is cheaper than
what a Urologist charges. LOL
joe - 15 Sep 2005 21:53 GMT
>Drink 6 oz cranberry juice twice a day for 2 weeks. That will cure you
>completely! Then send me $20 for my services, which is cheaper than
>what a Urologist charges. LOL

Cranberry juice is full of acid and will just aggravate your symptoms.
Razrbak - 15 Sep 2005 22:58 GMT
I was once full of acid at a Grateful Dead concert.
BO L. - 20 Sep 2005 17:18 GMT
>I was once full of acid at a Grateful Dead concert.

Get lost, troll!
Rob Carroll - 20 Sep 2005 13:45 GMT
Just as a side note... be glad it ISN'T interstitial cystitis.

Unless you know something I don't....
Pete - 27 Sep 2005 22:27 GMT
> Hi,
>
[quoted text clipped - 53 lines]
>
> ANY input would be appreciated.

CP - I know what you are going through and can not find anyone to help
me.  Uro's won't remove your prostate unless you have cancer.  It is
very difficult for me to go on with the pain and discomfort I have.  I
don't have any one to help me and I feel that I know more than the
doctor's in most cases.  I have been studying this stuff (along with my
other maladies) for 15 years, and I hate doctors.  I may write more
later.  I used to frequent this group in 1997 and it has gone downhill
since then....Pete
jrh - 03 Oct 2005 09:18 GMT
>> Hi,

>> I am in my forties, very physically fit. I have had CP since my late
>> teens.

<clip>

>> What I would like to know is: Has anyone out there had any experience,
>> good or bad, with complete removal of the prostate.

It is my belief the cause of CP-CPPS is not centered in the prostate
although the symptoms are centered there. CP-CPPS can be very painful,
what you are asking in desperation would, if you could find a
doctor stupid enough to do it would most likely make things even worse.

<clip>

> CP - I know what you are going through and can not find anyone to help
> me.  Uro's won't remove your prostate unless you have cancer.  It is
[quoted text clipped - 4 lines]
> later.  I used to frequent this group in 1997 and it has gone downhill
> since then....Pete

Something different to try would be to go to a fertility clinic.
They sould beable to determine if there is a reproductive tract infection
that is causing the prostrate to become inflamed.  Also there are several
anorectal disorders that can cause CP-CPPS like symptoms, some of them
are almost imposible to detect, even when they are specifically looking
for them.

good luck

jrh
Pete - 03 Oct 2005 19:34 GMT
>>> Hi,
>
[quoted text clipped - 32 lines]
>
> jrh

Thanks jrh...I live in small city (approx 30,000) and I don't go to other
cities (no one to help me in case I need procedure,etc).  There are no
fertility clinics where I live.  I just had a TURP in April (to clean out
previous tissue regrowth from 1995 TUIP) and all that did was exacerbate my
prostatitis.  I see the uro factory's PA (all six uro's in the city are in
one room, so your screwed if you don't get along with your doctor) for
massages, but it doesn't seem to help.  I asked for a potassium sensitivity
test (which will be upcoming) out of desperation, to help rule out cystitis,
and I know the damn catheter will just exacerbate things again.

I also have ano-rectal discomfort and I asked for a hemorroidectomy (in
august) to rule out that causing my pain.  Surgeon did it, and it didn't
seem to help (just suffered more after the surgery - it was my 3rd hem job),
other than to spawn more little hems (lol).  I asked for a yeast check on
the pathology and it was negative.  Don't know if its the prostrate or the
bladder or what.  I like to say I have (or could have) all the itis's
(prostatitis, urethritis, and cystitis) and maybe proctitis (but gen surgeon
said no - but he didn't look up in there far enough - only used speculum).

I can't handle the prep for a colonoscopy right now (last one in 2002), the
damn prep for just the anal rectal surgery was just as bad and totally
uneccessary - a couple fleet enemas what have been enough - damn doctors are
like robots - they have their little protocols that are often not
necessary - I told him I didn't need to tear myself up with 40 trips to the
commode just for lower rectal surgery, and he agreed.  Had 4 EGD's in the
last year, but those are easy.

I have a serious T-4 cell immune deficieciency (cause unknown - non hiv -
just found out in 2002, but could have had it for many years - I also have
sarcoidosis), and I know that is related to my recurrent and mostly constant
prostrate/uro problems.  Sorry for rattling on.  I see the group doesn't do
much business these days (it was roaring in 1997- with several doctor's
inputting).  I have a hard time living by my self and dealing with this
crap.  I will check the group from time to time, along with the BPH group
(the two do go hand in hand, and you can definitely have both - my problem
is mostly non bacterial prostatitis, or cpps for a more general term).
Thanks again.

Pete
countinsheep@yahoo.com - 15 Oct 2005 06:14 GMT
Pete,

Hope you are getting along ok. You are having a tough time of it.  Keep
looking, keep trying, that's what I do. I hurt everyday but always hope
for improvement.

II
Pete - 16 Oct 2005 18:44 GMT
Thanks so much for the encouragement.  It's good to hear...Pete

> Pete,
>
[quoted text clipped - 3 lines]
>
> II
 
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