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Medical Forum / Diseases and Disorders / Prostatitis / May 2005

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Pete - 19 May 2005 00:58 GMT
This post I wrote was buried in another thread, but I thought you all should
see it.  No offense to all the good, kind, caring doctors in the world, and
especially those who volunteer their valuable time if they participate in a
newsgroup, or any other forum (which is greatly appreciated)...Pete

jrh...How in the world would you ever get a doctor to agree with what you
recommended below.  He or she would dismiss you and toss you out on your
ear.  My new primary doctor, who I just asked for prednisone (and he
refused - it's in one of my posts above) immediately sent me a certified
letter saying he was dropping me and didn't even give me a reason why (my
heart fell to my feet, since I am already totally distraught with my current
prostatitis problem).  I immediately called his office, and after insisting
to talk to him (it is very rare if you can get a doctor to talk to you on
the phone anymore), he got on the phone and told me he dropped me because he
thought I was trying to force him to give me the prednisone against his
training.  I humbly apologized and begged for his forgiveness (because I
really did like him) and he agreed that it is was a misunderstanding and
said he would forget the certified letter and keep me as a patient.  I have
to have a primary (in case I get bronchitis, etc.), and I just lost my other
one since he left his practice, and I can't take any more doctors right now.

I thought this new primary doctor (only been to him 3 times - foreign decent
but spoke good English, and very friendly) was the nicest doctor I have ever
been to, and I told him that during our first meeting. I have been to over
75 doctors in my life and most of them are prima donnas, who won't call you
by your first name and you are just a chart to them, and who don't respect
your right to study or research your disease, and they will dismiss you
quickly if you are not careful how you word things to them, especially
anything that may imply you know more than they do).  This new doctor was
not like that - he called me Peter when he came in the room and we had a
very relaxed talk and he said the patient always comes first when I told him
you have to be able to communicate with your doctor, and he said the patient
has every right to study their disease or condition.  So I really liked this
guy and I felt I lucked out.  So you can imagine how I felt when I got the
certified letter, especially after having the worst time of my life with
this prostatitis problem.  Anyway I salvaged it, which means he must be a
pretty good guy (most doctors would never reverse their decision if they
dropped you, and most people would not want to go back anyway - but that is
not the case here).  I have been dropped by doctors, and dropped other
doctors on my own in the past due to personality conflicts.  The bitch is
they all band together in one group (5 or 6 doctors), so when you lose one
you lose them all, and then you may have to go to the nearest city for
another one (especially for the specialists).

My point in writing that long explanation is that there is no way any doctor
in the world would let you come into his/her office and give him/her the
diagnostic procedure you recommended below.  First of all they wouldn't do
it themselves- it would have to be done in a hospital/lab environment
probably by some technician, and the doctor would have to spell it out what
to do.  How the hell did you have this done and what particular type of
bacteria or fungus or whatever were you looking for and what did they find.

Pete

"jrh" <no@spam.com> wrote in message news:IlBie.41854$fx3.1635@okepread02...
> In article <Pnvhe.213747$cg1.11305@bgtnsc04-news.ops.worldnet.att.net>,
> petesworkshop@nospam.att.net says...
>
> clip
>
>> I asked the surgeon how does he know I don't have proctitis
>> or a massive yeast infection
>> and he said if I had proctitis I should be bleeding and he
>> has never seen yeast in the rectum
>
> If you are brave, ask your Doctor about this Diagnostic procedure:
>
> 1. After a bowel movement wash the colon several times with
>   water.
> 2. Insert 10ml of 50-95% ethanol into the rectum.
>   (be prepared it will burn like hell)
> 3. After 3 to 5 minutes expel the alcohol and mucus into a cup.
>   (20-50ml?)
> 4. Examine the mucus under a 10-50x stereo microscope for
>   any particles and red or amber(fibrinogen?) streaks.
> 5. Isolate and examine anything found at 100-2000x
>   especially anything amber.
> 6. Disolve the remaining mucus in 10% NaOH solution.
> 7. After the mucus has disolved (softly shake for 2-5 minutes?)
>   neutralize the solution and centrifuge.
> 8. Remove the liquid, stain the remainder (for fungi) and place
>   on a slide.
> 9. Examine at 500-2000x.
>
> jrh
jrh - 20 May 2005 10:18 GMT
>jrh...How in the world would you ever get a doctor to agree
<clip>
you wouldn't and neither will you get any help if you try to
tell your Doctor what to prescribe, or what you think you have.

Concentrate on communicating your symptoms, not your conclusions.
Believe it or not, your Doctor knows more about medicine than you do.

If you think your problem might be caused by something else,
perhaps if you wrote down the symptoms you are experiencing it would
help you to explain them to the Doctor more clearly.  Give him a chance
to help you, the odds of you figuring it out your self are less than
winning the lottery.

jrh  
Pete - 20 May 2005 22:11 GMT
jrh...what you wrote is total crap and a reversal of what you wrote before
(which you did not include below).  I can see you know nothing about doctors
and haven't been to too many of them (remember I have been to over 75 of
them in my life and really have nothing to show for it), even though you
wrote a lot of medical type lingo in your posts in the DR Guercini threads.
I hope the hell I can go to my primary or uro and tell him I am suffering
from prostatitis or tell my primary I am getting bronchitis again.  You are
talking about the doctors who are not the kind, caring (good bedside
manners) that I referred to before (i.e. you have to kiss up to them).

Any doctor who doesn't respect your right to study your disease and discuss
it with him/her and ask him/her for a possible Rx is not a good doctor.  Did
you ever see the stupid pharmaceutical commercials that say ask your doctor
if such and such is right for you (naturally that is pure marketing but I
hope you get my point). And I always take a list of questions in with me,
but its hard to finish asking them.  I have been studying medicine for about
15 years now and I hate it when a doctor tries to undermine my intelligence.
They need to recognize which patients are medically smart, versus the poor
old lady that comes in and says which pill should I take.

You are the one who wrote me to ask my doctor about the weird diagnostic
procedure you proposed in the Dr. Guercini thread (and conveniently left out
of this post), and now you are telling me not to ask my doctor - make up
your mind.  I told you their was no way I would ask any doctor something
that bizarre.

And you are wrong about a doctor always being smarter than the patient.
That is definitely not true.  It should be true for the vast majority of
things.  But if a person studies a particular disease or medical condition
for hundreds of hours (whether it be Internet, library, etc.) and the doctor
(especially a generalist) might have spent 10 or 20 hours studying it in med
school, who do you think is going to know more.  The answer is the patient.
I have had previous primary physicians tell me that I know as much (or more)
then they do about certain things, for example my T4 cell immune deficiency
(non HIV - cause unknown), which is heavy stuff.  I have also studied
sarcoidosis, upper GI stuff, prostatitis, and prescription drugs, for
hundreds of hours each over the years, as well as the human anatomy in
general.

Unfortunately you are right about one thing which I stated before and you
did not include below.  You have to be very careful about what you say, or
how you say it to a doctor, or you will be dismissed, like I said.  I could
write a book about bad doctors.  Like I said my heart goes out to the kind,
caring ones who will listen to you and not get mad if you tell them you
studied or read something.  There are very few of them, and you are just a
chart to most of them (they don't even know your name).  They're booking
patients at 10 minute intervals these days, its like a factory (six doctors
in one office with 15 to 20 admin assistants).  Its a joke, the doc is
walking away from you while you're still trying to ask him your questions.

This discussion irritates me to hell.  God bless the good doctors, and the
bad ones shouldn't be practicing medicine.  I have been to more than a dozen
bad doctors in my life, and then there are the intermediate ones, but the
good, kind, caring ones who will talk to you, and respect your right to
research your condition, and call you by your first name, are hard to find
these days...Pete

>>jrh...How in the world would you ever get a doctor to agree
> <clip>
[quoted text clipped - 11 lines]
>
> jrh
jrh - 21 May 2005 02:31 GMT
>jrh...what you wrote is total crap and a reversal of what you wrote before
>(which you did not include below).

It is not a reversal, it is a different point of view.  I agree with
much of what you have said, but it is not the Doctors, it is the system.

The current system of Medicine is not a democracy, when you
go to a Doctor, the Doctor becomes responsible for your treatment,
not you.  If he doesn't follow standard practice he can be sued
or even loose his licence.

The system works ok when a disorder has a known cause and an
effective treatment, but the cause of CP-CPPS is not known, and
there is no effective treatment in the majority of cases, so
where does that leave you?.

One thing to consider is how can you be absolutely sure you
even have prostatitis when there is no difinitive way of
diagnosing it?

I can't even tell if you are looking for support,
Alt.Support.Prostate.Prostatitis

or giving your opinion as to the state of the medical science.
Sci.Med.Prostate.Prostatitis

> I can see you know nothing about doctors and haven't been to too
> many of them

I can see you know too much about doctors, and too little about
diplomacy.

> (remember I have been to over 75 of them in my life and really
> have nothing to show for it),

If you have "nothing to show for it", why do you "hope the hell" you
can still go see one?

> even though you wrote a lot of medical type lingo in your posts
> in the DR Guercini threads. I hope the hell I can go to my primary
> or uro and tell him I am suffering from prostatitis or tell my
> primary I am getting bronchitis again.  

> You are talking about the doctors who are not the kind, caring
> (good bedside manners) that I referred to before
> (i.e. you have to kiss up to them).

> Any doctor who doesn't respect your right to study your disease
> and discuss it with him/her and ask him/her for a possible Rx is
> not a good doctor.

Doctors diagnose based on symptoms, not on patient's opinions!
Symptoms are verifiable, opinions are not.  Doctors are not into
research, they are attempting to apply tested treatments for
known disease.

The system:

For each Disease this process occurs.

Funding -> Research -> Treatment -> Teaching -> Prescribing -> Cure

All the Doctor can do is prescribe for known disease.

Established medicine does not recognize that yeast/fungi can
cause problems in people with healthy immune systems.
Many advocates of alternate medicine believe yeast/fungi is the
cause of just about all chronic disease.
 
> Did you ever see the stupid pharmaceutical commercials that say
> ask your doctor if such and such is right for you
[quoted text clipped - 3 lines]
> 15 years now and I hate it when a doctor tries to undermine my
> intelligence.

That is not what they are trying to do, they are trying to make
a living, by helping people with medical problems. I know there
is a lot of arrogance, but your attitude is enough to upset a saint.

> They need to recognize which patients are medically smart,
> versus the poor old lady that comes in and says which pill
> should I take.

It's easy to see what others should recognize but hard to see
what you don't.

> You are the one who wrote me to ask my doctor about the
> weird diagnostic procedure you proposed in the Dr. Guercini thread
> (and conveniently left out of this post),

conveniently?

it's already on the server,
no criticism but "wierd" to respond to,
no reason to quote.

You obviously never scraped mucus off a stool sample,
to be sent to a lab for diagnosis.

Do you know the diagnostic procedure fertility clinics use
to detect male reproductive tract problems such as a prostate
infection?  

Would the details be "wierd" to you?

> and now you are telling me not to ask my doctor - make up
> your mind.  I told you their was no way I would ask any
> doctor something that bizarre.

You have made it clear you/re not interested in and can do
nothing with anything unconventional.  
That is why the subject is dropped and you are advised to find a
Doctor you can trust.

> And you are wrong about a doctor always being smarter than the patient.

That is not what was writen.

Your experience is limited to one patient.  Doctors have the experience of
treating hundreds of patients, and they can network and consult with other
doctors.  

> That is definitely not true.  It should be true for the vast majority of
> things.  But if a person studies a particular disease or medical condition
[quoted text clipped - 7 lines]
> hundreds of hours each over the years, as well as the human anatomy in
> general.

So what is your theory?  

What are your conclusions?

What kind of tests do you think should be done?

What information do you need?

How are you going to procede?

> Unfortunately you are right about one thing which I stated
> before and you  id not include below.  You have to be very
> careful about what you say, or how you say it to a doctor,
> or you will be dismissed,
> like I said.  I could  write a book about bad doctors.

Bad system, Doctors are just people.

> Like I said my heart goes out to the kind, caring ones who will
> listen to you and not get mad if you tell them you studied or read
[quoted text clipped - 5 lines]
> assistants).  Its a joke, the doc is walking away from you
> while you're still trying to ask him your questions.

Four hours in the waiting room at the Mayo, unable to sit without pain,
filling out a lenghty form with a carefully crafted description of the
symptoms.  Then the Doctor says he never reads them, they are only for
the file.  After a few minutes of questions we have a diagnoses of
levator-ani syndrone and a valium prescription. He moves on to his next
appointment as I'am trying to say it can't be, because I've had
the diagnosis and prescption before and it did nothing....but

That's the way the system works. Standard practice, try first
things first, then if it doesn't get better, try something else.

> This discussion irritates me to hell.  God bless the good doctors,
> and the bad ones shouldn't be practicing medicine.  I have been to
> more than a dozen bad doctors in my life, and then there are the
> intermediate ones, but the good, kind, caring ones who will talk
> to you, and respect your right to research your condition, and
> call you by your first name, are hard to find these days...Pete

The medical industry is self regulated. (ie.unregulated)
Clinics are exempt from just about everything but malpractice,
which is defined as not following standard practice.
This stifles inovation and enables clinics to advertise services
they don't provide.  

For example a pamphlet at the Mayo proclaiming the patent can
direct his treatment, and then being told by a Doctor, you
do what I say, or leave the clinic...

bye bye

jrh
Pete - 21 May 2005 04:42 GMT
jrh...Who the hell are you, and what is your medical problem and what is
your purpose in this group.  I do not like you.  I could talk to you for
hours about how I have been screwed and abused by doctors, and I am not the
kind of person to be intimidated.  A perfect example is you get a CT or an
MRI and the specialist who ordered it doesn't even look at it (they used to
not too many years ago -surgeons are the obvious exception - if they are
going to cut you they have to see the damn scan).

The ordering doctor just gets a copy of the radiologists report (which I
always get also) and his nurse files it in your chart.  And then if you try
to get the radiologist to show you the enlarged lymph nodes or whatever you
have that shows up, you can't get to see him.  I insisted on meeting the
chief radiologist at a facility where I live and I thought he was going to
show me the enlarged lymph nodes on my scans and all he did was quote me the
report results which I already had, and if you ask your doctor who ordered
the scan to show it to you he will say he is not a radiologist.  That is
bullshit.  A pulmonologist or gastroenterologist should be able to read the
films which pertain to their area (which are all on discs these days -but
they can always print a hard copy) just as good as the radiologist.  But
they don't even look at them.

My good pulmonologist (my favorite of all the 75 doctors I mentioned) that I
had back in the early and mid 90's used to go over the hard copy films with
me each time and said I could read them almost as good as him - LOL, and I
am awesome at spinal MRI's.  I had one radiologist say no adenopathy in a
2002 chest scan, and the scan I had in 2004 a different radiologist
mentioned large lymph nodes (over 2 cm) that he said were unchanged since
the last scan in 2002 (each radiologists reads and reports something
different).  I am not saying they are Gods, but I have the right to see the
discrepancy.  I tried to get them to show me the nodes and I could not get
any help.

This is just one tiny example of how one doctor will pass the buck onto
another.  Each doctor will say he's not a gastro or a uro or a pulmonologist
or a radiologist etc., as soon as you ask him a question about something
that may not be directly related to his field.  It is getting out of hand.
And if you ask your gp or internest anything at all they send you to a
specialist, who will tell you he's not a radiologist when the scans are
done.  If it is something they think is serious obviously further tests are
done (biopsies, etc.).

The doctors today are much different then they were 10 or 15 years ago, and
in my opinion it is not for the better of mankind (even though we are
supposed to be living longer).  I do not like them and I hate going to them,
and hate it when they treat you like you are just another chart number, and
probably should not have gone to as many as I have, but I have several
problems that they can't help me with so I used to waste my time on
quarterly visits and all you do is talk, and the doc charges you for a level
IV office visit for 10 or 15 minutes and does nothing (sorry for the run on
sentence).

Good bye jrh whoever you are.  I do not want to bicker with you any
more..Pete

>>jrh...what you wrote is total crap and a reversal of what you wrote before
>>(which you did not include below).
[quoted text clipped - 197 lines]
>
> jrh
 
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