Medical Forum / Diseases and Disorders / Prostatitis / August 2004
Help! Dr.pressuring me to have biopsy
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tenzzi - 26 Jul 2004 21:27 GMT .I guess that I'm new to the protstatitis game and don't know what to do....can anyone please councel me on the wisdom of having a biopsy done ? I'm afriad that this intrusive test might make things worse, AND even IF I had cancer I would almost certianly not opt for surgery,chemo, nor radiation....so I wonder what the point would be...thanks greatly to anyone who could shed some light on this predicament...tenzzi PS..my psa was 2 3yrs ago, 5.1 6 months ago, 6.2 3months ago, and 7.0 2 weeks ago.....I have all the symptoms of prostatitis,( and my regular Dr agrees, but says he does not know what to do about it).....the urologist does not even seem to want to discuss prostatitis.....all he can seem to think about is Cancer...and tell me that the option to treatment is death....he seemed disgusted with me today when I would not agree to a biopsy right away.... also what it is worth he insisted the same thing when I kept telling Drs that I had a hernia 3 yrs ago......turned out I was right, but he had pressured me then to have a biopsy......he says my prostate is about the size of a lemon and one side of my prostate is Boggy and the otherside is hard as a rock....he said the hardness would NOT be prostatitis would anyone be kind enough to share some thoughts on this with me, I sure would appreciate it ...as going against the Drs alone is tough.....thanks..10-Z
MisterSkippy - 27 Jul 2004 23:32 GMT >.I guess that I'm new to the >protstatitis game and don't know what to do....can anyone please [quoted text clipped - 18 lines] >me, I sure would appreciate it ...as going against the Drs alone is >tough.....thanks..10-Z I think your uro is being straight with you. If you do have PCa and have any intention of doing anything about it you need to get moving, at least with a biopsy. Your PSA went up too far too fast to be ignored. The fact that your prostate is not smooth and symmetrical is also a cause for some concern. My PSA was always under 1.9 but rose to 4.2 in January, down to 1.4 upon retest in March. and up to 4.3 last week. I'm getting the biopsy Thursday based upon my uro's advice. My PSA jump is probably due to a couple of bitching bouts of prostatitis recently but why take the chance. The biopsy isn't that bad I am told. My brother has had a couple of them for the same reason. He survived them and he's a pussy. You'll do as you see fit, of course, but I see no reason to tempt fate about a condition which is more or less curable if attended to in a timely manner. FWIW YMMV DFB For email remove "_no_spam_"
tenzzi - 28 Jul 2004 19:53 GMT > >.I guess that I'm new to the > >protstatitis game and don't know what to do....can anyone please [quoted text clipped - 36 lines] > YMMV > DFB , I was hoping to hear from someone who would say "Nah, sounds MUCH more like prostatitis than cancer....just take some herbs and see what happens...! My age is 57.....but you mention the psa rise..doesn't prostatitis cause psa to rise sharply ..? Can't prostatitis cause a hard prostate or is it only a "boggy" prostate that is caused by prostatitis..? all my symptoms including the psa rise began all at once when I got a really hideous cold....these symptoms began just as the cold was clearing up......testicle pain, burning on urination and ejac, frequency, general pain and discomfort below the belt, butt hurting, ED, very low sperm volume........most of the pain went right away when I began taking antibotic, but the most of the other things persist including and intolerable backache....anyone have any thoughts..? does the fact that the symptoms came on with a cold AND responded quickly to ABX give me sufficent reason to realistically hope that this is NOT cancer,, but infact an infection in the prostate..............??? Hate to sound so "needy", but the Drs, son't seem to be willing to devote a great deal of time to talking to me about this...any thoughts would be appreciated...10-Z
MisterSkippy - 28 Jul 2004 21:06 GMT >> >.I guess that I'm new to the >> >protstatitis game and don't know what to do....can anyone please [quoted text clipped - 61 lines] >be willing to devote a great deal of time to talking to >me about this...any thoughts would be appreciated...10-Z Sorry that I can't agree with you and tell you what you would wish to hear. It's true that prostatitis can cause a PSA rise but you had a rather substantial rise over a short time period. Anything over 2 points in a year is a warning bell. You mentioned that you have no intention of seeking any treatment should it turn out that you have PCa. That is your right. I am of the opinion that it is best to have all the facts before making such a decision, otherwise one is just whistling in the dark. I'm a year older than you and over the years many things have tried to take my life such as accidents, a mugger, and the NVA. They didn't succeed and tomorrow I get a biopsy to make sure PCa doesn't do the job if I can help it. It is possible to have both prostatitis and PCa. They are not incompatible conditions. The fact that the ABX helped the prostatitis symptoms is typical. Also typical is a recurrence of symptoms after stopping the ABX. I don't think you can infer from the success of the ABX that your DRE result and PSA numbers are due to prostatitis. Hopefully they are, but the downside to guessing wrong is too significant to test. Your doctors spent as much time with you regarding the prostatitis as they had advice to give. Doctors don't seem to like to admit they are stymied and with prostatitis they are. Nobody has a real handle on the cause or cure. For most of us it seems to come and go then come back again, ABX or not. I've been following this group for years and I don't think there are any reports of "cures" that can be duplicated. I've tried them all. In your place, which I am, I'd heed your uro's advice. At least then you will know where you stand. PCa is serious disease but not a death sentence. Check out sci.med.prostate.cancer in the newsgroups. You can find a lot of resources there to educate yourself further. I'm not a doctor. I'm a decorating contractor with a sore prostate who intends to find out if he has another problem and deal with it as necessary. FWIW YMMV DFB
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MisterSkippy - 29 Jul 2004 17:29 GMT >>> >.I guess that I'm new to the >>> >protstatitis game and don't know what to do....can anyone please [quoted text clipped - 101 lines] > >For email remove "_no_spam_" I'm going to follow-up on my previous post. I just came back from the biopsy and, while certainly less fun than a day at the beach, it wasn't as bad as I anticipated. There was certainly some discomfort but nothing that I would classify as pain. FWIW, while the doc was back there messing around with the various tools of the trade I said to him, "Does this mean we're engaged?" I thought the ultrasound tech was going to wet his pants laughing. You really have nothing to fear about going for a biopsy. It just isn't that bad. I'll get final results Tuesday and will post them for you. FWIW YMMV DFB For email remove "_no_spam_"
MisterSkippy - 04 Aug 2004 00:36 GMT >>>> >.I guess that I'm new to the >>>> >protstatitis game and don't know what to do....can anyone please [quoted text clipped - 116 lines] >DFB >For email remove "_no_spam_" Well, I'm going to follow up on my own post. No prostate cancer, per se, but something called PIN, Prostatic Intraepithelial Neoplasia, which apparently may be a precursor to PCa. Uro wants me to take 400 units vitamin E and 250 mcg of selenium daily. Apparently there is some possibility this may head off further developments. I checked VitaminShoppe.com and they have this exact formulation in gel cap form. What the hell. I don't suppose it can hurt. If it makes my johnson fall of , I'll post back. If not, I'll post back in 6 months after my next trip around the block. Tenzzi, if you are seeing this, don't get thee to a nunnery, get thee to thine uro! FWIW YMMV DFB
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RICSER555 - 16 Aug 2004 19:06 GMT Mister Skippy, Hi I'am Richie
*I'am going to make a long story short,and you need to trust me !!! *There is one Urologist who is the best. His name is Dr.Antonio Novak Feliciano (His clinic is in the Phillipines)(I hope I spelled that right).Look him up in the internet if I forget to get back to you to give you some extra info.
*I'll get back to you, so hold off, OK. Richie ricser555@aol.com 8-16-04 2:06 PM
NorthernSpy1 - 29 Aug 2004 15:48 GMT What's the problem with biopsy?
Isn't it minally invasive? If there's little downside (which I assume, but don't know) then why not get it done?
The more you know, the more you know.
- Charles
Jim Thomas - 20 Aug 2004 03:32 GMT I don't know what you've done since this post, but you really need to get on alt.support.cancer.prostate and bring up your problem. Just lurk (as I've done) or ask questions.
From what you've said, you really, really need a biopsy. It is an easy procedure, and will put your mind to rest: either you have cancer, or you don't. Best to know your enemy...
Your UR is right: the option to treatment is death.
Jim Thomas Positive biopsy 8/6/04
> .I guess that I'm new to the > protstatitis game and don't know what to do....can anyone please [quoted text clipped - 18 lines] > me, I sure would appreciate it ...as going against the Drs alone is > tough.....thanks..10-Z Matthew Emme - 22 Aug 2004 16:27 GMT On 8/19/04 9:32 PM, in article a08cc259.0408191832.626b8146@posting.google.com, "Jim Thomas" <jimndiane@sbcglobal.net> wrote:
> I don't know what you've done since this post, but you really need to > get on alt.support.cancer.prostate and bring up your problem. Just [quoted text clipped - 26 lines] >> yrs ago......turned out I was right, but he had pressured me then to >> have a biopsy.....
>>he says my prostate is about the size of a lemon >> and one side of my prostate is Boggy and the otherside is hard as a >> rock....he said the hardness would NOT be prostatitis Hard as a rock prostate with a increasing PSA. In the average person who is less than 80 years old this is kind of a no-brainer, you probably need a biopsy. If you had a normal gland on exam, symptoms of prostatitis and just a elevated PSA, then it is not as clear cut.
It is not wrong to talk to another urology doc if you do not like what you hear, but for the most part this is not a complex urology problem. Abnormal rectal exam (even with normal PSA) equals prostate biopsy in any person less than around 75-80.
Good luck,
ME
c palmer - 23 Aug 2004 09:32 GMT hi - the below is your post and i took a post from the alt.prostate,support.cancer newsgroup from a gentleman who was told not worry about it. now, one year later - since they found out about his high psa and his high gleason score are telling him that he has a 50% chance of living for three years.
hope this info helps.
~ curtis
tenzzi@ragingbull.com (tenzzi) wrote in message news:<ff0e4bc4.0407261227.46fe22b5@posting.google.com>...
I guess that I'm new to the protstatitis game and don't know what to do....can anyone please councel me on the wisdom of having a biopsy done ? I'm afriad that this intrusive test might make things worse, AND even IF I had cancer I would almost certianly not opt for surgery,chemo, nor radiation....so I wonder what the point would be...thanks greatly to anyone who could shed some light on this predicament...tenzzi PS..my psa was 2 3yrs ago, 5.1 6 months ago, 6.2 3months ago, and 7.0 2 weeks ago.....I have all the symptoms of prostatitis,( and my regular Dr agrees, but says he does not know what to do about it).....the urologist does not even seem to want to discuss prostatitis.....all he can seem to think about is Cancer...and tell me that the option to treatment is death....he seemed disgusted with me today when I would not agree to a biopsy right away.... also what it is worth he insisted the same thing when I kept telling Drs that I had a hernia 3 yrs ago......turned out I was right, but he had pressured me then to have a biopsy......he says my prostate is about the size of a lemon and one side of my prostate is Boggy and the otherside is hard as a rock....he said the hardness would NOT be prostatitis would anyone be kind enough to share some thoughts on this with me, I sure would appreciate it ...as going against the Drs alone is tough.....thanks..10-Z Re: Anything else like Saw palmetto that messes up PSA readings? Group: alt.support.cancer.prostate Date: Sat, Aug 21, 2004, 10:20pm (CDT+1) From: himselfhimselfMYPANTS@juno.com (Pat) In article <20577-4127DB4E-50@storefull-3153.bay.webtv.net>, PALMER_ENT@webtv.net says...
hi pat - did they tell him not to ejaculate for 48 hours before the psa test? this can mess up the readings and make them higher. it various by how much depending on how soon the test is ran after the ejaculation. also, prostate infection can with the psa numbers more so natural drugs. a severe prostatitis can shoot the number into the teens or higher.
you say that he had a discouraging biopsy. what were the results? did he have a high PIN or was he told he had pca?
~ curtis
Hello-
A year ago he had psa of 10 but his % free was higher than the cutoff so he felt fairly safe. Six months later he wanted another psa test but that doctor disueded him, "come back in a year from the original PSA of 10".
Good God- he now got PSA 150. I told him about the NEJM velocity study and he quickly go biopsied at a major institution and--- Gleason 10! He is now under the care of different doctors, leading specialists, and they are doing bone scans, and x-rays. Meanwhile, he is on Casodex and something that acts like Lupron but seems to start with an X or Z.
The doctor's nurse advised him to take selenium, Vitamins, lypocene, garlic, red grapes and other stuff. He read the list to me and when I heard that it included the Saw Palmetto- I told him to refer that to the doctor because of the PSA warping effect. I also told him I would post the question whether there were any other PSA warping supplements that he should first clear with the doctor.
He has good medical insurance and contacts with leading medical institutions. The slides were read in institution 1, and then he carried them to institution 2. Institution 2 was told what institution 1 had diagnosed the slides as, which seems inappropriate. He also noted that the second institution had the slides for only 10 minutes before they did their report.
He is not in denial, but is asking for more people to read the slides.
Thank you.
Pat
(To respond by email please remove "MYPANTS" from the email address at the top.)
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so."
wrkg_onit - 29 Aug 2004 20:25 GMT Tenzzi -
From my doc who is hep to prostatitis: "I see a lot of co-morbidity of prostatitis with prostate cancer" The symptoms you have described raise suspicions of cancer.
My prostate biopsy was painless.
In any case - you do NOT want to die of prostate cancer if you have a chance for successful treatment. No one is going to claim treatment options are fun, but as cancer goes they are not too bad either. You can opt for radioactive seeds and have an excellent chance of retaining your potency and continence. Or, you can opt for radical prostatectomy and get rid of the prostatitis while you are at it. If all this sounds frightening - dying of metastasized PC is a whole lot worse.
Cancer aside, for prostatitis, most Uros are not good at treating it - best to find a doc who specializies in this ailment.
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