I'm new to the group, so forgive me if this post is too long or not on
topic.
I'm a 43 yo male. At a routine physical a few months ago, a urine sample
came back positive for microscopic hematuria. The family doc ordered an IVP,
which came back clean, except that it showed a small trabecular pattern on
the bladder. Doc refered me to a urologist. Did a prostate exam, which was
normal. He ordered a kidney ultrasound, which was fine, except the
radiologist questioned the way one of the kidneys looked. Back to the
urologist who then ordered a CT scan, which showed everything was fine.
After my fourth visit to the urologist, he indicated he wanted to do a
cystoscopy. He also indicated that he didn't want to do it in the usual way
(flex scope in office) because he felt the opening of the urethra needed to
be enlarged with a metasaphy ?(basically enlarging the opening). He said he
would do it under general anesthetic with a rigid scope. He indicated that
this procedure would improve my "flow" which I never knew I had a problem
with--seem to have a nice, steady stream. Today, I canceled the test for
several reasons.
1) I'm just physcially, emotionally, and financially spent from this run
around and can't think straight about this.
2)After doing some research on the subject, I have begun to question if
microscopic hematuria has any predictive value at all. Many studies don't
even recommend testing for it.
3)The four urine samples I have given at the urologist over the past couple
of months have all been clean. I should also add that doing research on this
led me to discover how to properly give a "clean catch" urine sample. The
one that tested positive for microscopic hematuria was not done that way.
Also, it took two weeks to get this sample back from the hospital lab,
whereas the samples in the urologist's office were all tested immediately.
4) Coincidentally, my father had the same diagnosis in a routine urine test
40 years ago; he is in his 70's now. My brother (46)had the same diagnosis
some 20 years ago and continues to have it on occasion in his urine tests.
My father had a cysto done which showed nothing, but my brother did not (he
may have had some radiographic studies, however--all clean).
5) I have no symptons, no irregularities in type or frequency of urination.
Two years ago, I had the same thing happen to me on a routine urine test
with a different family doc, who recommended doing the test again and it
came back clean, so we didn't pursue it. I've questioned the urologist about
doing culures or microscopic analysis of the urine to see if there is any
blood, which I guess there wouldn't be, since they all came back clean since
I have been going there. His response is that it isn't "standard of care."
Any thoughts from anyone with similar experiences? I am just going crazy
with this thing.
Matthew Emme - 02 Jul 2004 03:24 GMT
On 7/1/04 2:27 PM, in article
pAZEc.31271$eH1.14854086@newssvr28.news.prodigy.com, "mm" <nospam@here.com>
wrote:
> I'm new to the group, so forgive me if this post is too long or not on
> topic.
[quoted text clipped - 39 lines]
> Any thoughts from anyone with similar experiences? I am just going crazy
> with this thing.
I can not say much to the need to do something to your urethra that your doc
is talking about, but for any amount of blood in your urine (>/=3 blood
cells per high power field on a micro) you need to have at least a IVP and
and cysto. The IVP looks at the kidney and ureters and the cysto looks at
the bladder to make sure you do not have a tumor that is causing the blood.
If all this is negative than some people would look again in your bladder in
6 months to 1 year where others would just check a urine and a voided
cytology from time to time.
Any less than this is not good medicine.
Take care,
ME
Failasuf - 02 Jul 2004 03:26 GMT
> I'm new to the group, so forgive me if this post is too long or not on
> topic.
[quoted text clipped - 39 lines]
> Any thoughts from anyone with similar experiences? I am just going crazy
> with this thing.
I have had similar experiences to say the least. I'm 65 years old and
31 years ago was my first episode of hematuria.
After undergoing numerous cystoscopies, IVPs, urine analyses in three
major cities, NO ONE knows what the problem is... my suggestion is NOT
to worry. I'm very fit and active and hope the same to you.
Worrying will solve NOTHING!