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Medical Forum / Diseases and Disorders / Prostatitis / June 2004chronic prostatitus
I was diagnosed with chronic prostatitus in 1968 and was told I would probably have to take low levels of antibiotics for the rest of my life. That was 36 years ago and I have had urinary tract infections on and off all during that time with long stretches between infections. These infections are always accompanied by muscle pain and severe joint pain in my knees, feet, hips and particularly my joints. I have never suffered with erectile dysfunction and would have what I would describe as an above average sex drive with extremely hard erections. I have stones in my prostate, gall bladder and kidneys. The problem was never serious until about 5 years ago when my urologist wanted to do a biopsey on my prostate even though my PSA tests etc were normal. All hell broke loose after that and I started having ecoli show up in my prostatic secretions and urine. The doctors for the most part never did cultures. The next to the last urologist I saw never even giving me a DRE during 3 years of treating me. I am now seeing a urologist at a teaching hospital and he has been giving me different antibiotics in an effort to eliminate the problem but always has stopped before entirely eliminating the bacteria since pus is still showing in my prostate secretion under a microscope and in cultures after a prostate massage. He is now suggesting that the only cure is to totally remove my prostate. I disagree the complications far outweighing the possible benefits. From everything I am reading on other sites, the Mayo Clinic, Cleveland Clinic etc, this is NOT recommended and in fact it is suggested the problem may be somewhere else in my system causing this infection. What do others think? i think the problem is probably coming from your stomach and bowels. have the drs even checked your gastrin levels.too much gastrin can cause a host of problems.it will cause severe back and groin pain, fatique.nausea, and a general feeling of sickness. > I was diagnosed with chronic prostatitus in 1968 and was told I would > probably have to take low levels of antibiotics for the rest of my life. [quoted text clipped - 25 lines] > > What do others think? Warner, this is not medical advise, but I do have some ideas for you. FIrts off, get off the anti biotics fr a while. NO one can handle 36 years of that. Then go to a health food store and get he following. A good multiple vitamin ( I use GNC gold) 1000 mg Vit C with Ester 500 mg Calcium Fish Oil Vitamin E And also a prostate vitamin like saw palmetto or one that has it all like http://www.raysahelian.com/prostastrong.html Okay, then after about two weeks, make an appoitment with Dr. Shokes at the Clevland Clinic in Florida. The rational is that you need to have all of the basics ruled out through a thorogh exame. http://www.dshoskes.com/cpclinic.html Dr. Shokes beleive stones can cause the symptoms you are having. Take it from someone who suffers. Also you may want to look at this although I haven't tried it yet, but I am about to and it is FREE. http://www.cleanprostate.com Keep me posted. JJC > I was diagnosed with chronic prostatitus in 1968 and was told I would > probably have to take low levels of antibiotics for the rest of my life. [quoted text clipped - 25 lines] > > What do others think? > And also a prostate vitamin like saw palmetto or one that has it all > like http://www.raysahelian.com/prostastrong.html > I am about to and it is FREE. http://www.cleanprostate.com I recently banned this person from the forum at http://www.chronicpelvicpain.us for promoting these websites. He will deny it it, of course, but the IPs are the same. Better information at: http://www.chronicprostatitis.com/ http://www.chronicpelvicpain.us . > > And also a prostate vitamin like saw palmetto or one that has it all > > like http://www.raysahelian.com/prostastrong.html [quoted text clipped - 7 lines] > http://www.chronicprostatitis.com/ > http://www.chronicpelvicpain.us This is GREAT. Finally get to respond in an arena where this jerk Mark can't control. Yes all, I was banned from Marks little communist board. And as you can see, he is wrong, I will not and do not deny it. The problem with his board, is he censors everything. I have no financial interest in any of the links I posted here. In fact one of them is free. On the other hand, Mark and the people at http://www.chronicpelvicpain.us and http://www.chronicprostatitis.com are PAID wholesalers of the products they promote. Lucky for me I don't need the money. You people must investigate for yourself. Dont listen to people like this fool who think they have all the answers. Investigate yourself. Go to a solid clinic like the Clevland Clinic in Florida and see Dr. Shoskes. That is what I reccomend. Yes, read cpps.com they do have good info there. But study yourself. The guy that started that site is a NAZI who will edit posts, even his own moderators who have been emailing me about him. Oh and you all will love this, he threatened to tell everyone that I owned some adult video stores and suffered from this horible effliction we call prostatitis if I continued down the path I was going which was to sue him ( which I might just have to do) If you don't beleive me, attatched here is his email. He asks for a big donation, then he will let me continue posting. See for this guy it's all about the money. Read and decide yourself people. First he write this. To: JJC Fr: cp_cpps@yahoo.com The most recent and best studies, using sensitive CR techniques do NOT support bacteria as a cause of male chronic pelvic pain. That's a simple fact. I sure you will find doctors like Polacheck who say they will not post on our board, and frankly, that is fine with us. We don't want them there. We see them as impediments to progress. You say you are a rich man. Good. If you donate a substantial sum to our forum I will make myself and my considerable knowledge of this topic available to you privately to discuss your health situation whenever you need it, and I will allow you to post your views on the forum and take the flack from the others there. http://www.chronicpelvicpain.us/donate/donate.html Mark See that, all about the money. The Dr. I was talking about wasn't even Polacheck, who I never talked to. As he admited in his post here , he banned me and many others just for posting links to other vitamin places other then his beloved and kick back Prosta Q. I think Prosta Q is great, but it's not the only one out there. MArk doesn't get the fact that there are many forms of Prostatitis, not just cpps. The facts are right here on this page folks. Then after I don't send him his "substantial sum" he sends this next email. To: JJC Fr: cp_cpps@yahoo.com Please confine your energies to promoting your pornography businesses! 1) Our policy regarding bacterial chit-chat is clearly stated on the website. http://www.chronicpelvicpain.us/viewtopic.php?t=1642 Unfortunately you are not a great reader, it seems! 2) Legal threats: we run a private website. As such we may ban whomsoever we please, and delete their posts if we so wish. THERE IS NO LAW AGAINST IT! If you wish to discuss bacteria then go to the google group for prostatitis. If I hear any more threats from your quarter, I will publicise your medical condition and your threats to the Georgian authorities, your competitors, and the entire email list culled from one of your family websites. Well folks, there it is. Two emails from him. The first asking for money, the second, after no money arrives, a threat to tell my family and friends about my medical condition! Now, how much respect do you have for http://www.chronicpelvicpain.us ? Research on your own, study learn, don't be taken by guys like Mark, thank god for this board. A new board is comming soon, one that is user friendly ( his is at least that) has a ton of research, and is not edited by a man like him. Even some of his own people are comming over. I will keep you posted. In the mean time here are some links, read for and make a decision yourself. http://www.geocities.com/iastr/eindex.htm http://www.dshoskes.com/ http://www.prostatitis.org/ http://cpmcnet.columbia.edu/dept/urology/prostatitis.html#treated http://www.paruresis.org/ http://www.geocities.com/bill3320/hormones.html A NEW BOARD IS COMMING SOON > . > This is GREAT. Finally get to respond in an arena where this jerk Mark > can't control. Yes all, I was banned from Marks little communist Now I'm a communist? I thought I was a "nazi" in your last email? LOL > board. And as you can see, he is wrong, I will not and do not deny it. > The problem with his board, is he censors everything. Yes, we do, so that rank idiots like you get the boot quick-smart. > I have no financial interest in any of > the links I posted here. Unlikely. You have a string of sordid businesses, most of them peddling smut and barely legal trash. I wouldn't be surprised if your shady interests extend to knock-offs of legit products. > Mark and the people at > http://www.chronicpelvicpain.us and > http://www.chronicprostatitis.com are PAID wholesalers We wholesale products to the public? That's news to me! If your brain was chocolate, it wouldn't fill an M&M. > Go to a solid clinic like the Clevland Clinic > in Florida and see Dr. Shoskes. That > is what I reccomend. Let me take this opportunity to warn Dr Shoskes not to see this man: John J. Cornetta of Georgia, owner of a string of pornography shops and someone who has threatened to make "my life a living hell" (actual quote from one of his insane emails) because I banned him for constantly telling new posters that they had infections (in contravention of our stated guidelines) and ignoring warnings to desist. > Yes, read cpps.com they do have good info there. Unfortunately, you can't understand most of it, dumbass. > But study yourself. The guy that started that site is a NAZI who will > edit posts Communist, nazi .. make up your mind, if you have one. The only time you open your mouth is to change feet. > even his own moderators who have been emailing me about > him. Proof of that? > Oh and you all will love this, he threatened to tell everyone > that I owned some adult video stores and suffered from this horible > effliction we call prostatitis if I continued down the path I was > going which was to sue him ( which I might just have to do) Bring it on, you blowhard. Keep talking, someday you'll say something intelligent. > If you > don't beleive me, attatched here is his email. He asks for a big > donation, then he will let me continue posting. Of course I asked you to make a big donation! It's the best way to get rid of you. Always boasting about your money, but probably in the red. With all this money, you still can't afford a decent urologist, and have to start stalking me? How did you get here? Did someone leave your cage open? I submit here the email I received from you, Cornetta, in which you threaten to use your alleged money, gleaned from peddling porn, to sue me and "make my life a living hell". Of course I shall publicize both your condition and your threats to all and sundry, including your unsuspecting family (we can all make others' lives "living hell", can't we?): From: "John J. Cornetta" <john@johnjcornetta.com> aka masterjohn2u@yahoo.com aka john@firstcinema.com To: webmaster@chronicprostatitis.com Delivery-date: Mon, 31 May 2004 13:14:57 -0400 Subject: get ready to roll Trust me, I am going to find out who you are, and then I am going to instruct my attorneys to make your life a living hell one way or another. Within in all legal means. I am sure they will find an angle. What you are doing amounts to what the Nazi propaganda machine did and I will not stand back and have free speech stepped on. I am so glad you are from the USA it makes it that much easier for me. You delete posts if you don't agree with them etc. Even if they could help people. I am so over your " I am better then all" attitude and it is time to teach you a lesson. Conviction and lots of money, tend to enable that. Regards, John J. Cornetta ------ Post subject: A new Board is needed From: John J Cornetta This post will not last long. But one of you will read it. Then you will know. I have downloaded the entire member list and have or will under other names and ip servers email or send each one a PM about a brad new board that I am creating. I became a wealthy beyond my needs at 28. Have over 300 employees. Let me tell you something. This board sucks. I have been banned three times just for saying, " hey also check for Mycoplasma etc. I have had at least three doctors email me to say they will no longer post here because of the treatment they get. I have a phrase for the people who run this board FREE SPEECH! If anyone says anything about infections, you guys FREEEEEK out. It is all non bactirial CPPS or nothing for you guys. You are not helping the cause. All avenues should be explored. Believe me, I will spend 100,000 USD just to promote the board and get ranked on google. The site will dwarf yours. Not to win, but to have an areana where ALL ideas can be discussed. How dare you remove any posts, any thoughts, any person. That is what Hitler did. You guys are a Joke. My name is John J. Cornetta my email is john@johnjcornetta.com I am out in the open. I dont care. , and you guys have pissed off the wrong person. Someone with cash, time and an attitude. You should be ashamed of yourselves for only promoting one view. > Research on your own, study learn, don't be taken by guys like Mark, > thank god for this board. A new board is comming soon, one that is > user friendly ( his is at least that) has a ton of research, and is > not edited by a man like him. Even some of his own people are comming > over. I will keep you posted. In the mean time here are some links, > read for and make a decision yourself. I can't wait to see your board, you great flaming idiot. For those wanting a good laugh, here's the background to John Cornetta, sleaze merchant: http://www.ainews.com/Archives/Story2214.phtml http://atlanta.creativeloafing.com/2003-10-23/cover_news.html http://atlanta.creativeloafing.com/2001-09-26/news_brief2.html http://www.sovo.com/2003/8-22/news/localnews/sexstore.cfm http://www.ocgnews.com/article.asp?id=2678 http://www.thexmasters.com/modules.php?name=News&file=print&sid=19 http://template.ajc.com/thursday/content/epaper/editions/thursday/gwinnett_f3276 8f4d666a1370098.html The guy also fancies himself as an actor ( ROTFL ) : http://www.johnjcornetta.com/ Talk about delusions of grandeur! More fun: http://www.loveshackonline.com/ http://www.xcitementatlanta.com/ (Cornetta's high class magazine LOL ) http://www.cornettafamily.com/ --- Keep it up, John! We need the entertainment. Mark, I think your a really smart guy. I think you know a lot more about this than many of the ppl that post. I think your intentions and heart is in the right place, however, you do not always do a good job of helping ppl with information. You make ppl feel stupid sometimes, and making fun of them on a public forum does not make you look good either. Especially if your trying to be a leader. If your only supporting non-bacterial prostatitis, then say so, and everyone who has the bacterial will not visit your site. But there are ppl who have the bacterial prostatitis. mak > Mark, > I think your a really smart guy. I think you know a lot more about [quoted text clipped - 3 lines] > making fun of them on a public forum does not make you look good > either. Especially if your trying to be a leader. I'm not trying to be a leader, and some people are impossible to please. Others imply /have to/ be banned because they, like you, simply will not read guidelines and follow protocol. > If your only supporting non-bacterial prostatitis, then say so, and > everyone who has the bacterial will not visit your site. But there are > ppl who have the bacterial prostatitis. Here you give a perfect example of not reading guidelines and following protocol. Our website CLEARLY STATES that, and I quote: Q: May I post my thoughts on CP being an active infection? A: Many hypotheses have been formulated in attempts to explain the cause of CPPS/PM. This forum welcomes discussion of all of them, except for the hypothesis that CPPS is an active infection, which has been disproved by recent research. So please, if you would like to discuss bacteria, fungi, STDs, etc., go to this newsgroup: sci.med.prostate.prostatitis . Everyone else, welcome to our forum! Basic info about bacteria: http://www.chronicpelvicpain.us/viewtopic.php?t=1095 > I'm not trying to be a leader, and some people are impossible to please. > Others imply /have to/ be banned because they, like you, simply will > not read guidelines and follow protocol. Thats true, i didnt read the guidelines. But how long is one banned for? > > If your only supporting non-bacterial prostatitis, then say so, and > > everyone who has the bacterial will not visit your site. But there are > > ppl who have the bacterial prostatitis. > Here you give a perfect example of not reading guidelines and following > protocol. [quoted text clipped - 7 lines] > the hypothesis that CPPS is an active infection, which has been > disproved by recent research. I dont agree here. From what I have read have NOT discounted CPPS being caused by an infection. What about the 5-10% you were talking about. It still exists. Truth is, there are a variety of causes and not everyone has the same problem. > So please, if you would like to discuss bacteria, fungi, STDs, etc., go > to this newsgroup: sci.med.prostate.prostatitis . Everyone else, welcome > to our forum! I would like discuss it all. Those who have bacteria as their problem, I would like to share what I learned with them. Those whose problem is not bacteria, I would like to try to help them with what I know too. > Basic info about bacteria: > http://www.chronicpelvicpain.us/viewtopic.php?t=1095 So , if we dont rant about infections can we get back in? > From what I have read have NOT discounted CPPS > being caused by an infection. What about the 5-10% you were talking > about. It still exists. Truth is, there are a variety of causes and > not everyone has the same problem. Yes, the 5-10% exists, but because of the dynamics of the debate over the last 20 years, this 5% has come to dominate the debate to the detriment of all other sufferers. Those who have testable and persistent low-grade infections are not highly symptomatic usually, do not usually have their lives ruined by pain, and deserve much less of our sympathy and attention than the true PELVIC PAIN patients. For that reason we say: stay on this newsgroup if you want to jabber about bacteria. > I would like discuss it all. Those who have bacteria as their problem, > I would like to share what I learned with them. Those whose problem is > not bacteria, I would like to try to help them with what I know too. > So , if we dont rant about infections can we get back in? Yes. I have unbanned you. But please keep your bug-talk on this group. Mark to put it midly you are misinformed relative to chronic bacterial prostatitis patients not feeling pelvic pain. I not only have that but severe pain in my shoulders, hips, knees and bottoms of my feet. It comes at irregular intervals depending on the severity of my prostate infection. tom > > From what I have read have NOT discounted CPPS > > being caused by an infection. What about the 5-10% you were talking [quoted text clipped - 15 lines] > > Yes. I have unbanned you. But please keep your bug-talk on this group. >> Mark, >> I think your a really smart guy. I think you know a lot more about [quoted text clipped - 30 lines] >Basic info about bacteria: >http://www.chronicpelvicpain.us/viewtopic.php?t=1095 What strikes me is you willingness to accept the arrogant proclamations of the medical community. How many times has medical science done an about face, contradicting their earlier findings completely. Give it some time, they'll be backpedaling on their latest proclamations about bacteria not being the cause. Minds are like parachutes, They only work when open". > > This is GREAT. Finally get to respond in an arena where this jerk Mark > > can't control. Yes all, I was banned from Marks little communist [quoted text clipped - 148 lines] > --- > Keep it up, John! We need the entertainment. Well as you all can see Mark needs no one to make a fool of himself. Just read his posts full of profanity and threats. Yes John J. Cornetta is my name, yes I own a string of adult stores, yes I suffer from this thing. But can you all believe Mark threatened to tell the world that, and to say I had this horrible condition? Like I care, I just told you all here. It just shows how far he will go. and that cpps.com is run by a Nazi Communist ( better Mark) Thank you for posting my links Mark, it dosen't matter to me. You have shown your true colors here. Now the world knows. I am not hiding who I am. I am very proud of everything I have ever done, my family is behind me 100%. At least I am not hiding like a coward. Just using the name Mark and registering my sites in South Africa so no one will know who I am. The fact remains that your own people are turning against you, people here and on your own board are growing tired of you, and you act like your smarter then anyone alive. Your not. I appreciate what you have done by creating your board, but you have changed as anyone can see by looking at your fist posts and your most recent. Also, please do not make people think I was banned for talking " bug stuff" I beleive many forms of CPPS are not bacteria related. You booted one guy just for posting a link to another vitamin site that you didn't get a kick back from. You know so much about me, you say that you do, I am not hiding anything Mark, pull up my tax return, last year it was over 5 million, so grow up, tell the truth, learn from this and move on. Also Mark, if your not on anti depresents, I would talk to your doctor as it seams you are obsessive in regards to me. I wish you health and happiness. John J. Cornetta A NEW BOARD IS ON THE WAY FOR ALL TO SAY WHAT THEY WANT TO SAY! [snip self-justifying twaddle] > A NEW BOARD IS ON THE WAY FOR ALL TO > SAY WHAT THEY WANT TO SAY! Put up or shut up, SmutMan! Where's the new board? Mr Cornetta, you seem to be misinformed about a few things: A "Nazi" is a member of the German fascist party that controlled Germany from 1933 to 1945. The Nazis were led by Adolph Hitler, who, in his warped vision, attempted to "purify" the world of Jews, and ordered his police force to round up his of political opponents, and detain them without trial in concentration camps. Do you really understand what kind of comparison you are making when you throw around such insults? Do you comprehend how foolish you sound to others who are here to learn about a horrible medical condition they are suffering from? A "Communist" is a member of a political party that believes in the elimination of private property, and a totalitarian system of government in which the state ensures that economic goods are distributed equitably amongst its population. You think that the cp.us discussion is controlled by a foreign government? Do you understand what you are writing? So since you use the word "communist," somehow you gain credibility? So communists are deciding whether prostatitis is bacterial or not. Someone disagrees with you and you label them as a communist? "Censorship" is an oppressive means that *governments* use to examine and suppress or eliminate anything considered objectionable. Governments. Evil dictators censor material they think is inappropriate for their population to view. Do you think that the US government is "censoring" your opinions on discussion forums? Do you believe that the cp.us website is controlled by a government that doesn't like the content of your posts? Do understand the comparisons you are making? Do the personal attacks make you feel better? Are the Nazis, Communists and censors preventing you from expressing your thoughts about prostatitis on this usergroup? In fact, you should write a letter to editor of the NY Times and express your thoughts about prostatitis. They HAVE TO print your letter, because you are a citizen of the United States and the first amendment guarantees your right to free speech! If they do not print your letter-well, it's time to call your attorneys so they can make the NY Times print your letter because you are so concerned about all the poor people suffering from chronic pelvic pain syndrome and they all must get thier antibiotics. Remember, if anyone disagrees with Cornetta, they are evil... If you are so passionate about your opinions, you really should start your own discussion forum. Allow all topics to be posted. DO NOT put a FAQ or a posting guidelines section. Make it available to ALL people. Wait a minute! That's what sci.med.prostate.prostatitis is... MS cp.us Moderator >A NEW BOARD IS ON THE WAY FOR ALL TO SAY WHAT THEY WANT TO SAY! >I was diagnosed with chronic prostatitus in 1968 and was told I would >probably have to take low levels of antibiotics for the rest of my life. [quoted text clipped - 25 lines] > >What do others think? Every time the doctors can't make a concrete diagnosis they resort to removal. when my prostate/bladder problems started in my forties and ABX's didn't eliminate the symptoms they tried to get me to undergo a a TURP. I told them hell no, no way I'm going through the rest of my life with no sexual function. They have better luck just putting me down. Don't let them remove your prostate just because they can't figure out the root of the problem. As long as it's not life threatening better to wait until medical science(Hah!) finally figures out the answers. It's even possible that given enough time the body itself will either remedy the problem or make adjustments so you can live with it. I've found that while I still suffer from chronic infections that after the first few years the overall pain seems to have diminished somewhat. At least get a second opinion. I'm hearing that the French are making real headway in treatment and surgeries regarding the prostate. Especially in regards to nerve sparing so at least sexual function is retained. Always seems to take 10 years or so for clinical medicine in this country to catch up to the rest of the world. If it is shown that my prostate is causing the problem then it will be removed, that does not bother me. However I will have it removed laproscopically similarly to the procedure advocated by Dr Konrad: http://krongrad-urology.com/pdf/lrp_technical_manual.pdf hope this helps, tom > >I was diagnosed with chronic prostatitus in 1968 and was told I would > >probably have to take low levels of antibiotics for the rest of my life. [quoted text clipped - 49 lines] > Always seems to take 10 years or so for clinical medicine in this > country to catch up to the rest of the world. On 6/22/04 3:13 PM, in article otadnYL9YPSZDkXdRVn-iQ@thebiz.net, > I was diagnosed with chronic prostatitus in 1968 and was told I would > probably have to take low levels of antibiotics for the rest of my life. [quoted text clipped - 25 lines] > > What do others think? It sounds as if you have been having a bad time and have a complex problem. My only comment is that taking out a prostate for prostatitis is almost never ever the right thing to do. This is a big operation that has its own set of problems. If pain is your main problem make sure that you have seen a good pain clinic before you go down the road of surgical treatment for what is for the most part a non-surgical problem Good luck. ME |
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