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Medical Forum / Diseases and Disorders / Prostatitis / February 2004Stanford Protocol
Just an excerpt from "A Headache in the Pelvis: A New Understanding and treatment for Prostatitis and Chronic Pelvic Pain Syndromes" "When the treatments are successful and participants comply with the home practice portion of the protocol, some clear reduction of symptoms is usually seen within a period of three to four months. Stable reduction or abatement of symptoms can take up to two years. The tools of the protocol need to be used on an ongoing basis to maintain the reduction or abatement of symptoms." ----- Interesting, Stable reduction can take up to two years, Can this also be a remission that was going to take place anyway? Does this protocol really cure if you need to use the tools on an on-going basis to maintain a reduction of symptoms???? Just food for thought. > ----- Interesting, Stable reduction can take up to two years, Can > this also be a remission that was going to take place anyway? Does > this protocol really cure if you need to use the tools on an on-going > basis to maintain a reduction of symptoms???? > > Just food for thought. That's a valid criticism, which is why I want to see proper studies into this protocol funded by the NIH/NIDDK. Only science can answer these questions. We have quite a few amazing anecdotes and case histories from men, but it remains an unproven strategy until we get the supporting studies. > > ----- Interesting, Stable reduction can take up to two years, Can > > this also be a remission that was going to take place anyway? Does [quoted text clipped - 8 lines] > men, but it remains an unproven strategy until we get the supporting > studies. For those interested in more on Stanford protocol, including clinics, see www.pelvicpainhelp.com > > > ----- Interesting, Stable reduction can take up to two years, Can > > > this also be a remission that was going to take place anyway? Does [quoted text clipped - 11 lines] > For those interested in more on Stanford protocol, including clinics, see > www.pelvicpainhelp.com I agree with the need for the formal studies. For those readers who are just browsing and not posting, you can see by this weeks postings that this whole thing is still a mess, with no one definitive treatment process. I personally think there are sufferers who have pelvic muscle problems and I'm glad there are docs pursuing this line of thinking. I am also thankful to the clinics who are pursuing the bacterial causes. Also, thanks to the webmaster of this website for putting up with the rest of us. Some great discussion going on here. Both sides need to get together and discuss their findings. Not sure if your aware, but there is a lot of "in-fighting" among the Doctors. Suggestions for the new reader, Try the ABX and Massages, Try the Stanford Protocol, try prayer if that works. This is a debilitating disease which deserves major attention and in depth discussion. Dont forget the financial support to this webmaster as well as the prostatitis foundation! Side note - There was a new study released today showing the Placebo effect does have a chemical effect on the brain and does reduce pain msg's. "Cameron" wrote.. > I personally think there are sufferers who have > pelvic muscle problems and I'm glad there are docs pursuing this line [quoted text clipped - 3 lines] > > Both sides need to get together and discuss their findings. Ya, but many of these people just don't get it? I for one believe that an infection can initiate this condition and it can remain and live in the human body undetected causing disease. Investigate this with PCR and a hundred patients you freakin' boneheads! OK. I'll calm down, sorry. But, I also believe that various trauma can and does create muscular tension and muscular dysfunction in sufferers too. We know that both of these instances happen because studies prove both microbrial and muscular etiologies. The problem is that there are groups that won't tie the two together and as a result we have millions of men out there suffering waiting in limbo and hundreds of doctors treating in silence because they don't want to be criticized by their own peers. Why is it so hard for so many of you to put the two of these together? Both of these abnormalities are seen in so many sufferer's! You'll scratch and claw with all your being just to avoid admitting that perhaps this is right, won't you? But why? It's just so much of your energy wasted and so many uncertain answers for your patients! Look! For many, it's all the same disease process! And as far as the emotional aspect of CPPS, it is these real physical symptoms of pelvic bactomuscular syndrome, ( Hey! A new word combining bacteria & muscular ), that causes any emotional distress. All kidding aside, until the whole urological community comes together and begins to work at least as a partial unit researching this, we'll never gain ground on this condition. The urological world will remain a bunch of guarded cliques infighting with each other in an effort to see who's protocol or belief will become most recognized and it will be all to the demise of the patient. I guess everyone wants to be in the cool circle? Let me ask you doctors something, ( and I truly respect many of you irregardless of my harsh criticism ), what good is recognition and fame for a protocol with no absolute answer and a lot of guesswork? Why would you push and support a treatment when you see so many of your patients leave you feeling the same way they did when they first walked in the door? In all fairness, I know many of you don't have the money or tools to accurately do what you want to do, but we need to find answers not more friends and fame. "º-- Idea Man --º" wrote... > The problem is that there are groups that won't tie the > two together and as a result we have millions of men out there suffering [quoted text clipped - 5 lines] > just so much of your energy wasted and so many uncertain answers for your > patients! Look! For many, it's all the same disease process! As a follow-up to what I wrote the other day, lo and behold, I came across this study thanks in part to a poster called MS and our friends at http://www.chronicpelvicpain.us/viewtopic.php?t=1447 I hope you don't mind guys? Boy, it's like I wrote this study myself! But, I didn't. The smart doc Moldwin get's the credit, ( applause ) 1: Curr Urol Rep. 2002 Aug;3(4):313-8. Related Articles, Links Similarities between interstitial cystitis and male chronic pelvic pain syndrome. Moldwin RM. Department of Urology, Long Island Jewish Medical Center, 170-5 76th Avenue, New Hyde Park, NY 11040, USA. Few clinical conditions encountered by the urologist cause more patient and clinician frustration than interstitial cystitis and male chronic pelvic pain syndrome, also know as nonbacterial prostatitis. This frustration is fueled by the chronicity of often disabling urogenital (and often associated systemic) symptoms coupled with delayed care, misdiagnosis, and suboptimal clinical responses. Basic research and therapeutic trials for these syndromes have historically taken two separate paths. However, mounting evidence suggests that significant overlap may exist between them in epidemiology, pathophysiology, and even therapy. This discussion reviews some of the common features of these clinical problems and makes a case that they might in fact represent different manifestations of the same disease process. Publication Types: Review Review, Tutorial PMID: 12149163 [PubMed - indexed for MEDLINE] > > ----- Interesting, Stable reduction can take up to two years, Can > > this also be a remission that was going to take place anyway? Does [quoted text clipped - 8 lines] > men, but it remains an unproven strategy until we get the supporting > studies. So, you have somebody saying they were "cured" and you question that outcome? Bring on the purse carrying, pussy whipped, men out there complaining about spending 4 K on going to Stanford. How many hats and bags could that buy? That is the real evidence accepted by this newsgroup. |
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