I have been a sufferer of CP for approx 5 yrs now...(I am a 46yr old male)
I am a lay person who has no interest in any treatment, medicine sales or
any other theories...I am merely posting my tale to enlighten, and perhaps
help fellow sufferers.
I have been on several antibiotics including a 1 yr stretch of 2 X 500 mg of
Biaxin a day....(I suffer from alergies and found that I could not tolerate
antibiotics in the "floxin" family)...and for some reason, though not the
antibiotic of choice by physicians, Biaxin seemed to aleviate my symptoms
...with the unpleasant side effects of violent diarrhea and the wierd
metalic taste in my mouth.
BTW in the early stages of my affliction I was not aware that perhaps the
antibiotics were not working due to their antibacterial properties, but
rather due to their anti-inflamatory affect...
In retrospect, probably, my initial bacterial infection was treated in the
first few weeks of my antibiotic regimen...and then their anti-inflamatory
properties kept the symptoms at bay. (I am a firm believer in the theory
that the initial infection irritated and inflamed the nerves in the prostate
and now they are hypersensitive)...
Antibiotics would work for a while and then for no apparent reason the pain
and the constant urge to void would return...and I would visit the local
walk in clinic and the Dr and I would pour over his chart of antibiotics and
attempt to find one that I had not yet tried.
(thank goodness for my drug plan from work).
I was seen by Dr. Nickel in Kingston Ont and he prescribed/suggested Prosta
Q. I tried the one month sample he gave me and then got a second month free
sample from the distributer in the U.S.
Prosta Q did nothing for me.
I tried various prostate herbal medications incl Prostease and Saw Palmetto
and they did not help.
I switched to Naprosyn E and that alleviated the symptoms for a couple of
months and then the symptoms returned again.
Thank goodness for our socialized medicine in Ontario, as I was visiting my
local "walk in clininc" for twice weekly prostatic massage by a sympathetic
Dr....this combined with the Naprosyn E and antibiotics kept the symptoms at
bay...however, I knew my ailment has not been cured as the symptoms would
return, within hours of a skipped dose of the aforementioned.
The sympathetic Dr. from the walk in clinic referred me to the "Murray
Koffler Centre for Urologic Wellness" at the Mount Sinai Hospital in
Toronto...
http://www.mountsinai.on.ca/mkuwc/about.htm
Here is the treatment that I have received at Mt Sinai:
My expressed prostatic secretions were examined under a microscope and they
say they saw clumps of white blood cells ie pus.
I was put on a low carb diet and prescribed a fungicide - Diflucan (the one
prescribed to aids patients for yeast infections) - the Dr. suggested I
might have a yeast infection in my prostate which was causing/aggrivating my
condition. I was also put on an "alpha blocker" Xatral Sr 10mg. ..and told
to take the Naprosyn E that I had been taking ONLY WHEN NECESSARY...
I was told to eat lots of plain yogourt with ACTIVE bacterial cultures, as
there was a theory that I had screwed up my body chemistry with the
prolonged antibiotic use.
I was warned that a side effect of a severe yeast infection, was influenza
like symptoms for a couple of days as the dying yeast released toxins into
my body. ( the Dr was correct...within two days of starting the treatment, I
developed a fever and headache which passed after a couple of days)...
I followed the diet and took the fungicide (diflucan) & the alpha blocker as
prescribed...in addition to losing 15 lbs (a pleasant side effect of the low
carb diet)...my symptoms have been aleviated to the point that I am no
longer on Naprosyn E, have ceased taking the fungicide and I have relaxed my
observance of the low carb diet somewhat...
I still take one 10 mg Xatral per day. (which the Dr tells me is no big deal
as millions of men take it for symptoms of enlarged prostate every day)
Examination of the expressed prostatic secretions, now show little if any
abnormal white blood cells...
My symptoms are significantly reduced to the point that I sleep nights with
no urge to void, I have no pain in my perineum, no testicular pain and no
post ejaculatory pain (all previous symptoms)...
I am not suggesting that the treatment I have received is the "be all or end
all"...but no other physician I had seen, has brought me the relief that I
have gotten by following the treatment prescribed by the Dr at the Mount
Sinai.
Best of luck to you all...
nobody - 10 Dec 2003 16:43 GMT
BTW as part of my treatment/diagnosis at Mt Sinai Hospital in Toronto, I
received a full gamut of blood tests incl tests for testosterone levels in
the blood...and a 48 hr urine test (where I voided into a 2 gal plastic
jerry can for 2 days as they wanted to see the chemical composition of my
urine)
Other than a slightly depressed level of testosterone in my blood stream,
everything else checked out as within normal range for my age group and
gender,
> I have been a sufferer of CP for approx 5 yrs now...(I am a 46yr old male)
>
[quoted text clipped - 87 lines]
>
> Best of luck to you all...
Oldbie - 10 Dec 2003 17:29 GMT
>BTW as part of my treatment/diagnosis at Mt Sinai Hospital in Toronto,
Do you mind revealing the doctor's name - I am leaving Asia and returning to the Toronto area next
month, and as soon as I get back on somebody's medical insurance I'd like to go and see him.
nobody - 11 Dec 2003 13:26 GMT
You require a referral from your urologist to be accepted...
There are several physicians who work there....my guy was named Illya (sorry
never did get his last name)
> >BTW as part of my treatment/diagnosis at Mt Sinai Hospital in Toronto,
>
> Do you mind revealing the doctor's name - I am leaving Asia and returning to the Toronto area next
> month, and as soon as I get back on somebody's medical insurance I'd like to go and see him.
K3PIO - 12 Dec 2003 02:10 GMT
I am 34 years old. I started getting pain in the
groin while running and doing almost any physical ,
sexual activity about 2 years ago. To make the long
story short, after going thru 5 Urologists I finally
decided to settle on a uro that I was comfortable with
in July 2003. Semen culture indicated enteroccocus
bacteria in July 2003. The uro
did prostate massages for 3 weeks ( twice a week,
August 2003) since my prostate was mildly boggy and
put me on Cipro while doing the massage. Pain the the
groin subsided a lot after the massage. The last 2
prostate massages did not bring out any fluid so we
stopped and finished with Cipro about 10 days later
(in early September 2003) after the final prostate
massage.
I started getting (extreme) frequent urination and
dribbling a week (in early Sept 2003) after I finished
the prostate massages. I did not have dribbling before
the prostate massages. I started getting a lot of
itching sensation in the urinary tract after
completing the Cipro and prostate massage treatment.
I went to another Uro in November 2003. I went thru
another semen culture about a month ago. I was
prescribed Geocillin for 50 days for enteroccocus
bacteria found in my semen culture. I am on Geocillin
now. It seems like although the prior prostate
drainages helped a lot, Cipro was not able to
penetrate to get rid of the bacteria completely. While
on geocillin I went for prostate massages again for
about 2 weeks. I also went thru UroDynamics,
Cystoscopy, Prostate Ultrasound and was told yesterday
that I had a narrow bladder neck. He also mentioned
that I had a small prostate. My only options
according to the uro was to either take Uroxatral for
the rest of my life or invasive surgical procedure
(which he advised against cuz of me being young).
I went back to the Uro who had done prostate massages
in August 2003. He said, he would have to do
cystoscopy again with a hard scope and
that he could dilate the bladder neck during the
cystoscopy that could relieve my frequent urination
and dribbling symptoms. I have researched dilation on
the net and people who have their bladder neck
dilated seem to be happy with it.
My groin pain has significantly subsided to almost
zero and I can run and have sex again without pain but
I will be on geocillin for another 20 days.
Do you think that the prostate massages could have
caused the narrow bladder neck (due to trauma from the
the massages) since the onset of frequent urination
coincided with the finishing of prostate massages?
Or I may have always had a tight bladder neck but
frequent urination and dribbling may have been due to
trauma associated with prostate massages ?
What do you think about dilation of the bladder neck?
Considering that I still have about 10 days till the
next cystoscopy, I hope my urination symptoms get
better. The next cystoscopy will be with rigid scope
since dilation cannot be done witha flexible scope. I
dont want another cystoscopy (since it is with a rigid
scope and the side effects could be bad). Should I
wait and see how my symptoms are afte a few months or
so?
Can you please help and advise?
Thanks
jrh - 17 Dec 2003 01:16 GMT
>I have been a sufferer of CP for approx 5 yrs now...(I am a 46yr old male)
>
[quoted text clipped - 80 lines]
>no urge to void, I have no pain in my perineum, no testicular pain and no
>post ejaculatory pain (all previous symptoms)...
>I am not suggesting that the treatment I have received is the "be all or end
>all"...but no other physician I had seen, has brought me the relief that I
>have gotten by following the treatment prescribed by the Dr at the Mount
>Sinai.
>Best of luck to you all...
Interesting and good news. I have long suspected fungi is involved
and have seen steady improvement using raw garlic which is reported
to be an effective anti fungal.
jrh