heres what i think

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swantzswanson - 22 Nov 2003 03:09 GMT

i have had cp for 38 years.i have had some really bad times and a few
times
when it got better,one time for 18 months with hardly any pain.but it
always managed to come back.
my dr at the va said i had a pinched nerve in my spine that was
causing all the pain. the pain was not actually in my nuts,but is
deferred pain from my spine.
the va does not treat this condition with abx,s even though they do
seem to help
somewhat.my dr also said one of my main problems was my posture.
well i have been doing several back exercises for about 2 months now
and i am always conscious of my posture.i keep my back as straight as
i can,sleep with a pillow under my back,and a pillow between my
legs.if i have to sit for a while
i always place a firm rubber ball about the size of a baseball at the
base of my spine and this keeps my back straight while sitting.
my dr said there is absolutely nothing wrong with my nuts or my
back,except for the pinched nerve.
i also lay on the ball a couple times a day for about 30 minutes.i get
up early in the morning and do my back exercises.i take 1 diazipam at
bed time and
3 motrin when i go to work.i have taken ibuprofen before and it hasn't
done anything for me,but motrin seems to work pretty good for me.
well now i am feeling pretty good with mild pain and seem to be
geeting better
each week.my gut feeling is changing my posture and always keeping my
back straight,doing the exercises,laying on the ball,plus the diazipam
and motrin
is responsible for my improvement.
the improvement won't happen over night but keep at it,then maybe you
can feel better to.

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RiverMan - 22 Nov 2003 17:08 GMT

> i have had cp for 38 years.i have had some really bad times and a few
> times
[quoted text clipped - 27 lines]
> the improvement won't happen over night but keep at it,then maybe you
> can feel better to.

Some interesting comments and thank you for posting them. I will
admit that my posture could be much better than it is and I do spend
way too much time sitting at a desk everyday. A year or so ago I
found out that L4 and L5 in my lower back are bulging following an MRI
but for the most part this doesn't bother me so long as I keep doing
sit-ups. I wouldn't be surprised at all if the back were involved with
many of our symptoms.

Best Regards,

RM

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Idea Man - 22 Nov 2003 20:27 GMT

"RiverMan" wrote..

> Some interesting comments and thank you for posting them. I will
> admit that my posture could be much better than it is and I do spend
[quoted text clipped - 3 lines]
> sit-ups. I wouldn't be surprised at all if the back were involved with
> many of our symptoms.

Ya...thanks for the information guy's. If there is lower back stiffness that
is continual, my opinion is that it really can be a cause of certain
discomfort's either in the leg, scrotal, or pelvic region, and it shouldn't
be dismissed as a cause until someone really takes a good look and
evaluates. Even if your doc concludes lower back stiffness is not a source
of pain in the areas I mentioned, I wouldn't completely dismiss the notion
so quickly. That's actually what happened to me. I was having upper groin
pain for over a year and several doctors told me my back had nothing to do
with it. I thought differently however. This groin pain in my upper left leg
meeting my bottom torso was quite different from my familiar CPPS
discomfort, and that is something very important to know and worth noting
for anyone reading. But, irregardless of my complaint's, they kept telling
me my back had nothing to do with it. It wasn't until I went to see an
obscure general practitioner who also doubled as a sport's physician in
Europe, ( he looked after the city's soccer/football team ), that I began to
find answers to this dilemna. He told me this upper leg pain was a direct
cause of a pinched nerve in my back. He gave me a CT scan and X-ray to help
verify. Once he had enough evidence pointing towards a pinched nerve, I
received steroid injection's for four consecutive day's in that leg, ( right
at the sore spot ), and I was completely amazed when the pain went away! A
week after my last shot, I noticed a huge improvement. I can't tell you how
happy I was someone finally took my complaints regarding this groin pain
seriously, investigated, and took a chance with treatment! So, my experience
tells me that back pain can be involved in the areas I mentioned, and I hope
this information helps others. Now.....if I could only get rid of my AWful,
AWful, pelvic pain....( I gotta laugh )....but this one's a little harder to
figure out as we all know! I'm working on it though. I recently had the
dreaded cystoscopy with hydrodistention and found out I have IC as well as
CP. AAARRGHHH!!

Regard's
Derek

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