Medical Forum / Diseases and Disorders / Prostatitis / August 2008
What Has Happened to This Newsgroup?
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Robert E. Yorke - 20 Jul 2008 06:04 GMT This NG has been BLANK for an extraordinarily long time; apparently there are no interested parties in this topic....I wonder why?
Bob Eld - 20 Jul 2008 19:13 GMT > This NG has been BLANK for an extraordinarily long time; apparently > there are no interested parties in this topic....I wonder why? News groups in general are dying. There are fewer and fewer people posting on all of the groups these days and they seems to be disappearing as we speak. There are over 100,000 news groups and 98% of them have no posters period, maybe one or two a year. Many groups are archaic being set up 20 years ago and never updated or maintained
The average internet user doesn't even know news groups exist and doesn't know how to get to them.
ISP's are dropping whole categories of groups like alt.binaries, some ISP's have dropped all alt groups altogether. The public doesn't seem to care.
News groups are an archaic low bandwidth form of communication. Many posters have moved to blogs or Yahoo and Google groups to get more action and wider bandwidth where they can post pics and so on.
Many of the remaining groups are filled with spam and unsolicited adds for all kinds of crap and porn. Some groups are moderated to limit this but then they get sluggish and opinionated and often sensor content.
Then there are newsgroup services that charge money over and above the normal internet connection to subscribe to groups usually with limited storage and increasing dollars for more of nothing. Paying an extra $15 a month for 90,000 empty groups and other groups with one posting a month and endless binaries with the same Brazilian tranny over and over seems a bit ridiculous. I wont do it.
News groups are dying and nobody seems interested in forming a modern up to date news group service.
Robert E. Yorke - 21 Jul 2008 03:53 GMT Thanks for your reply!
I think you are quite correct; I believe I've been enlightened...!
>> This NG has been BLANK for an extraordinarily long time; apparently >> there are no interested parties in this topic....I wonder why? [quoted text clipped - 28 lines] >News groups are dying and nobody seems interested in forming a modern up to >date news group service. Jim Worthey - 23 Jul 2008 18:22 GMT > This NG has been BLANK for an extraordinarily long time; apparently > there are no interested parties in this topic....I wonder why? I remember when the group started, 1995 October 19. It was instigated by the Hennenfents, who also started the Prostatitis Foundation that year. The newsgroup gave many of us the first glimmers of information when we had nothing. The big news was the one patient who had a successful treatment by Dr. A. E. Feliciano in the Philippines, and a web site about surgery put up by Dr. Ivo Tarfusser in the German-speaking part of Italy.
The NIH welcomed the Prostatitis Foundation's efforts to raise awareness, and the first little topical meeting was held on the NIH campus, 1995 December 7 and 8. Hope was high in the first couple years of the newsgroup. Then we found that a few lucky cures could not be duplicated for other patients. As the researchers dug deeper for bugs and molecules, the results became harder to follow.
In 1996 and over the next several years, I had a version of the Feliciano treatment, and also a version of Tarfusser's treatment, in particular a surgery that is used for infertility treatment. I have used many other remedies that I learned about in the group: rooibos tea and other sources of quercetin; fish oil pills; allopurinol; saw palmetto; probably some other things that I'm forgetting. Those are the things that I'd especially recommend.
Jim Worthey http://www.jimworthey.com
Robert E. Yorke - 24 Jul 2008 07:23 GMT Jim:
Thanks for this information! I myself have tried 2 or 3 bottles of Q-UROL, but I don't think it did a thing for me. My condition seems to be very, very slowly abating, since I got completely off caffeine, chocolate, and Popeyes spicy fried chicken and other stuff like it. I still have some problems and I may try Trigger Point therapy if I experience any flares of this. I met with a PT earlier today who has a good reputation for this and was advised to wait 'till a flare to occur, then maybe commence with treatment.
I have found chronicprostatitis.com to be a powerful source for information, but it hasn't been hugely helpful for actually ridding myself of this. Most if not all the forum members have horrible stories to tell. My current urologist at a nearby medical school advised me to bear in mind that most of those forum contributors are people who have really bad, long standing difficulties.
How has your condition progressed? Are you still afflicted after all this time?
>> This NG has been BLANK for an extraordinarily long time; apparently >> there are no interested parties in this topic....I wonder why? [quoted text clipped - 24 lines] >Jim Worthey >http://www.jimworthey.com Jim Worthey - 25 Jul 2008 06:20 GMT > Jim: > [quoted text clipped - 16 lines] > How has your condition progressed? Are you still afflicted after all > this time? I assume that Q-UROL is a type of quercetin pills? I would still suggest that you try apple juice, red or yellow onions, and rooibos tea. Rooibos was always discussed on the net as a source of quercetin, but I think it goes beyond that.
I do not avoid coffee or spicy food. In fact, I think good nutrition is important. Every Wednesday my son and I make a Thai dinner called Kaprow Gai, or Basil Chicken. You can look up a recipe, but we make it with fresh basil, fresh hot peppers, and 1.5 pounds of red bell peppers. So it is spicy, but with a fresh taste, no pepper sauce from a bottle or anything like that. It makes me feel better just to write about it.
How have I progressed? The background is that I had been getting sicker and sicker for about 30 years when I found a urologist who would put some effort into my treatment in 1996. So I was really sick, and then went through 100s of steps of feeling "better" but far from cured. Now I feel truly better in a list of ways. In April, I won a contest run by the Boingo company, and part of winning was to ride busses and subways to numerous places, as well as driving the car on some days. I couldn't have done that when I felt awful day and night and needed to pee constantly.
I had a severe UTI in 1970. One research finding is that if a guy has a UTI, then later prostatitis, the prostatitis will respond to antibiotics. Cipro was released in 1986, and I have reason to think it might have been more effective then, but I got it 10 years later.
I don't guzzle rooibos, or aspirin, or anything, but various things have been helpful in turn, and I go back to them. I may not have mentioned cherry juice before. It is real good. If you have Trader Joe's you can get it there. If cherry juice helps, then also try the prescription drug, allopurinol. Glad to hear from you!
Jim Worthey http://www.jimworthey.com
Robert E. Yorke - 25 Jul 2008 08:18 GMT Jim:
It's late out here in SoCal, so I'll make this post short, with a later follow up tomorrow.
Thank you for the recommendations; I intend making a listing of what you've described, then maybe ask a few questions of you regarding what notable effects you may have experienced with them...
And yeah, Q-UROL is a type of quercetin, along with other ingredients. It's touted by the moderators of chronicprostatitis.com. It's expensive stuff, but I tried it anyway....
Hoping to discuss with you later.....
>> Jim: >> [quoted text clipped - 51 lines] >Jim Worthey >http://www.jimworthey.com Robert E. Yorke - 26 Jul 2008 01:58 GMT Jim:
Can you ascribe any noticeable benefits to the Rooibos Tea, as well as the cherry Juce, and the amount of time it took to notice any benefits? Would you have any recommendations regarding what brand of cherry juice? There is a Trader Joe's near me; I intend stopping by there this evening...
My condition still seems to be lessening, but still there, as I write this. I had a consutation with a Trigger Point physical therapist this week and it was decided I should wait 'till any flares ocurr before starting out with any therapy. Hopefully I won't have to start that kind of thing....
>> Jim: >> [quoted text clipped - 51 lines] >Jim Worthey >http://www.jimworthey.com Jim Worthey - 27 Jul 2008 21:40 GMT Robert, Let me say that the whole category of foods with quercetin have always been active in my body. When I was a college student during the Kennedy and Johnson administrations, fresh apples made me sleepy.
One rooibos teabag or a couple spoons of the leaves will make a fairly large amount of tea. I like to drink one big mug of it or a little more. Then, yes, I get an immediate effect. It reduces the local inflammation and the tension over a wider region. It will help me to empty my bladder and urinate more normally. If I'm tired-but-tense, it will help me go to sleep.
The cherry juice is somewhat the same. I don't think that it's the same molecules acting in the same way. But when I drink it, my body says "Hey this is nutritious!" The cherry juice is perhaps the one thing that was partly my innovation. Years ago, there was a lot of discussion of allopurinol, the gout drug. It kind of makes sense, if urine is getting into the prostate, and uric acid is an irritant, etc. Cherry juice is used as a remedy for gout. So the cherry juice is an anti-inflammatory and may go to the root of the trouble, while acting differently from rooibos or other sources of quercetin.
I'm a fan of physical therapy, but as far as special therapy for prostatitis, I always felt that my problem was biological and chemical and not due to muscles alone. That said, I swim every day during the outdoor swimming season and consider exercise an important means to feel healthier.
With best regards, Jim Worthey
> Jim: > [quoted text clipped - 9 lines] > before starting out with any therapy. Hopefully I won't have to start > that kind of thing.... Jim Worthey http://www.jimworthey.com
John W. Polacheck, M.D. - 29 Jul 2008 19:14 GMT In my humble opinion, this Newsgroup has been sabotaged by a very opinionated "flamer". He is a disabled lawyer who lives in Portland.
I am sure that if the "flames have been extinguished", many more patients and providers would again participate.
I personally would like to share some of my personal experiences with this group, having treated over 1,000 patients with Chronic Prostatitis over the past 10 years.
Perhaps, I will consider this a test to see whether or not I am welcomed back to participate.
Yours, John Polacheck, M.D.
Medical Director Prostatitis Center Tucson, Arizona
E-mail Address: jpolach@dakotacom.net
> This NG has been BLANK for an extraordinarily long time; apparently > there are no interested parties in this topic....I wonder why? Steve Malthus - 30 Jul 2008 07:11 GMT > I personally would like to share some of my personal experiences with this > group, having treated over 1,000 patients with Chronic Prostatitis over > the past 10 years. I've read reports from several men who were treated by you on various forums on the internet, Dr Polachek, including this one, and none of them have anything positive to say. None were cured, and none of them knew any other man that was cured by you.
Maybe you're in the wrong field?
John W. Polacheck, M.D. - 30 Jul 2008 10:39 GMT Regarding the previous posting by Mr. Steve Malthus (smalth@aol.com):
Approximately 80% of the men who have come to our Prostatitis Center here in Tucson, Arizona, have been cured, and the great majority of the others have improved greatly. Very few of our patients have remained the same, and virtually no patient has worsened. Therefore, I believe that I am indeed in the correct field..... JWP
The following was posted by Steve Malthus (smalth@aol.com):
>> I personally would like to share some of my personal experiences with >> this group, having treated over 1,000 patients with Chronic [quoted text clipped - 6 lines] > > Maybe you're in the wrong field? Steve Malthus - 30 Jul 2008 14:08 GMT > Regarding the previous posting by Mr. Steve Malthus (smalth@aol.com): > [quoted text clipped - 3 lines] > and virtually no patient has worsened. Therefore, I believe that I am > indeed in the correct field..... JWP Then I'll start re-posting the words of your patients. Here's the first one:
Polacheck ex-patient wrote:
"No I didn't get cured, and the massage irritated the prostate. I did the massage both ways every day, Polacheck said to do this every day...I personally don't think Dr. Polacheck can cure a person that's had prostatitis for a while, although he can help the symptoms quite a bit with Pmassage and ab's, but this in my book is not a cure. Not to bad mouth Polacheck but I am a little upset because he keeps giving high doses of ab's as long as it takes for the symptoms to go away. I've asked him a lot of times how long will this be for the symptoms to go away? He always evades the question and says everybody is different, and then I will ask what's the average time in all the patients for the symptoms to go away? Polacheck goes on to say there is no average and everybody's different. Now come on, everything that has volume has average to this area....He told me he has a 85 % cure rate. How does he get that if there's no average? And I know for a fact that Polacheck has volume, I was there. If he can't cure you in 3 months I don't think he can. I met a guy there from the UK and he's had it for I think for 10 years he just emailed me and said Polacheck did not make any difference and in despair of what he should do. To sum it up, Dr. Polacheck is offering hope for desperate people by keeping them on high doses of ab's for long periods of time in hope of a cure. Rob was on them for 2 years with Dr. Polacheck. And I asked Dr. Polacheck can I be on ab's for five years and he said highly unlikely but not unheard of. All I can say is be careful.
My stomach still has problems from all the ab's. Dr. Polacheck hasn't given me any names of people he's cured has he giving you any Boston?
Polacheck's business side the way I see it- Always putting a carrot in front of your face: Let me try and put the Polacheck protocol into perspective. If he told every desperate patient in the beginning that it would be at least 2 years of high dose AB's (doses that a pharmacist shakes his head at) and then tell the patient that a small percentage of people are healed by it, do you think people would go to him? Do you think he would have a business? I think absolutely not!
Now, in order to build his business he would need to tell his patient he needs you to commit to 21 days of therapy and testing but if you aren't cured in the 21 days, he feeds you the carrot and gets you to stay another 7 days. He tells you there is good progress and the 7 days will put you on the right track. He sends you home with the hope that the AB's will heal you in 60-90 days. When your symptoms are still present after the 60 days, you call him and he feeds you another carrot and tells you he needs to change your AB's to fight the infection with another AB. He reminds you that you need to continue prostate/machine massage because this is going to push out the infection. He feeds you another carrot and tells you it sounds like you're doing better but the change in AB's will fight the bacteria from a different direction. You go another 60 days and you still have symptoms so you call and he gives you another 60 days of high dose AB's and feeds you another carrot and tells you that you're about there and keep up the massages. Your symptoms will be better because AB's act like an anti-inflammatory as long as you're on them. You're getting more frustrated because now when you call him he is too busy to talk with you or he forgets your chart when asked to bring it home. Is this because he needs to avoid phone conversation because there's not much more he can offer you but high doses of AB's for a long period of time? Am I painting a picture yet?
Remember, this is from my experience only. Maybe he has healed people, but I have not talked to anyone that has been healed by him, I have not read anywhere on his website that a patient has been healed nor has anyone on this forum told me they have been healed by him. I think my biggest frustration is the damage the high dose of AB's could have caused (or has caused) me. He feeds this to you like candy and never calls to see how you're doing. .... I have probably spent close to $10,000 when you consider the Polacheck treatment costs, lab tests, lodging, gas, monthly spending on AB's, massage supplies, Polacheck follow-up, etc. If I continue with this protocol, how much money do I have invested after 12 months? After 24 months?
I don't want to discourage anyone to go (or not go) to Polacheck. This is just my own story from my own observations. Though, I would advise you to write down on a piece of paper when "enough is enough" so you don't get sucked into the AB nightmare for years down the road."
Steve Malthus - 30 Jul 2008 14:15 GMT >> Approximately 80% of the men who have come to our Prostatitis Center here >> in Tucson, Arizona, have been cured, and the great majority of the others [quoted text clipped - 4 lines] > Then I'll start re-posting the words of your patients. Here's the first > one: And here's another:
From: <-----@aol.com> To: <MastCells@aol.com> Sent: Thursday, February 19, 2004 4:14 AM Subject: Re: The Tucson Clinic Cure
I am saddened to learn that Dr. Polacheck is still in business.
I lived on campus at Arizona in school housing (by telling them I was doing research) and stayed for just over three weeks - maybe it was four, I don't really remember. Cost of housing, food and treatment was just under $5,000. Fortunately, my insurance paid for a substantial portion of the treatment.
Polacheck did not cure me. In my opinion, he read a couple of books on prostate drainage and proceeded from there. At the time, he was not particularly adept at producing fluid from my prostate like my urologist at home was. He virtually ignored my speculation regarding yeast as a factor (although I have since learned that he has explored this as a factor). I don't even think he has an M.D. You would think that this place out in Tucson would be a great place to meet other sufferers yet strangely, regardless of the fact that we were all out there alone - appointments were set up so that our paths never crossed. I actually waited outside of the office one day and met another guy with prostatitis. He was not cured either. He had met others who had also not been cured. Polacheck only talked of one persone he "cured." He said the rest continued with problems.
While I recognize and appreciate that Polachek is making an effort to help others, I do not recommend the treatment.
For what its worth - if you are looking for a message of hope - over time, my prostatitis faded. Today, I have VERY few symptoms. Many days it is hardly something I think about. I cannot point to which treatment did this - but it was probably the combination of the appropriate diet and time.
I hope this helps. [Name Suppressed]
John W. Polacheck, M.D. - 31 Jul 2008 04:27 GMT Steve, if I may call you that:
As you well know very well, there have been several reports from men who have been to our Prostatitis Center posted on this Newsgroup who have indeed been helped or cured. Also, every time a former patient of mine attempts to post anything favorable on your "comercial" Newsgroup/Website (http://www.chronicprostatitis.com/forum/), he is immediately baned from further postings and all his previous postings are expunged.
The truly vitriolic attacks which you have reposted is the reason why I personally do not participate in this Newsgroup.
But, perhaps I can put forth a challenge to you and your readers regarding the cause of Chronic Prostatitis. How many of you believe that you "contracted" it sexually (vaginally, orally, or rectally) ? I believe that an appreciable number of men, but certainly not all, have done so. That means trying to remember what occurred a few days or a few weeks prior to your very first symptom.
Furthermore, I believe that this has great implications for prevention. If the very first episode can be adequately treated, that will prevent the disease from becoming a chronic "syndrome".
Finally, it is not known how many men who are treated for STDs go onto develop Chronic Prostatitis. Perhaps the standard treatment protocols, promulgated the the CDC, are not adequate to prevent Chronic Prostatitis in some men. And, it is not unreasonable to postulate that in some men there may be multiple bacterial (and "bacterial-like") organisms present. A few good epidemiological studies could easily answer these questions. Etc., etc., etc.......
Yours, John W. Polacheck, M.D. Medical Director Prostatitis Center Tucson, Arizona
>> I personally would like to share some of my personal experiences with >> this group, having treated over 1,000 patients with Chronic [quoted text clipped - 6 lines] > > Maybe you're in the wrong field? Steve Malthus - 01 Aug 2008 07:25 GMT > As you well know very well, there have been several reports from men who > have been to our Prostatitis Center posted on this Newsgroup who have > indeed been helped or cured. One or two anonymous guys perhaps, one of whom seems to live very near to you, so I guess he could be your buddy. But if you are indeed curing 80-85%, as you have claimed for years now, this and other prostatitis groups and forums would be chock-full of success stories. Where are they? Where are they?
Emperor John has no clothes.
> The truly vitriolic attacks which you have reposted is the reason why I > personally do not participate in this Newsgroup. I did not find those patient testimonies "vitriolic", John, just honest, if a little bitter.
> But, perhaps I can put forth a challenge to you and your readers regarding > the cause of Chronic Prostatitis. How many of you believe that you > "contracted" it sexually (vaginally, orally, or rectally) ? Let's not ask silly questions like that. It really is absurd when we start asking patients what they believe made them ill, and ignoring the science because we don't like what the science is telling us.
Human beings have sexual relations frequently. It is not difficult to think back a few days from any event at all in anyone's life and find a sexual encounter on which to hang blame. We could equally blame it on diet, because we are sure to have eaten something the day we had our first symptoms.
In those few men who did get symptoms for the first time after sex with a prostitute, for instance, infection could possibly be a trigger. But when the infection (if there is one) gets cured - and that can be tested - the symptoms typically remain, due to things like allodynia and neural wind-up. These are foreign concepts to you, John.
> Furthermore, I believe that this has great implications for prevention. If > the very first episode can be adequately treated, that will prevent the > disease from becoming a chronic "syndrome". But treated how? If infection can be a trigger, and supposedly it can be in a minority, what is the way to abort the development of intransigent symptoms? We know that killing the bugs does not help. So we need strategies to combat the underling muscle and nerve problems that the infection brought to the surface.
> And, it is not unreasonable to postulate that in some men there may be > multiple bacterial (and "bacterial-like") organisms present. I'm afraid is IS unreasonable to postulate this, since existing high powered PCR and culture studies from major centers do not support it.
John W. Polacheck, M.D. - 02 Aug 2008 04:15 GMT Dear Mr. Steve Malthus,
I certainly do not have time to address all the issues which you have raised. But, this evening I reply to one:
You wrote: ".....It really is absurd when we start asking patients what they believe made them ill....."
Nothing could be further from the truth. I was trained always to ask patients what they belied caused their illness. A particular cause, of course, can have great implications regarding treatment. For example, a laceration of the hand would be treated differently depending on what caused the cut (a dirty knife, a clean knife, a scalpel in the OR during surgery, a fish scaler, an animal bite, a human bite, etc., etc., etc.......).
Steve, you may be surprised how often patients have a good idea what caused their illness, and that patient input can have a profound effect not only in their specific treatment, but also in learning about their disease process in general as it pertains to other patients.
I believe, personally, that by asking this one simple question of sufferers of Chronic Prostatitis ("How do you think you got your illness"), a provider or a researcher will get "clue" that he/she needs to solve the "mystery" of Chronic Prostatitis. Patients are indeed intelligent, and most of them have spent a great deal of time contemplating the specific cause of their own illness. I find it hard to imagine that you would disagree with this and call if "absurd"!
Perhaps later this weekend I can find the time to address some of the ironies in patient reports which you have posted. Until then, I hope that you have a good weekend.
Yours, John Polacheck, M.D.
Medical Director Prostatitis Center Tucson, Arizona
>> As you well know very well, there have been several reports from men >> who have been to our Prostatitis Center posted on this Newsgroup who [quoted text clipped - 49 lines] > I'm afraid is IS unreasonable to postulate this, since existing high > powered PCR and culture studies from major centers do not support it. c palmer - 06 Aug 2008 23:57 GMT From: jpolacheck@earthlink.net (John W. Polacheck, M.D.)
Steve, if I may call you that: As you well know very well, there have been several reports from men who have been to our Prostatitis Center posted on this Newsgroup who have indeed been helped or cured. Also, every time a former patient of mine attempts to post anything favorable on your "commercial" Newsgroup/Website (http://www.chronicprostatitis.com/forum/), he is immediately baned from further postings and all his previous postings are expunged. The truly vitriolic attacks which you have reposted is the reason why I personally do not participate in this Newsgroup. But, perhaps I can put forth a challenge to you and your readers regarding the cause of Chronic Prostatitis. How many of you believe that you "contracted" it sexually (vaginally, orally, or rectally) ? I believe that an appreciable number of men, but certainly not all, have done so. That means trying to remember what occurred a few days or a few weeks prior to your very first symptom. Furthermore, I believe that this has great implications for prevention. If the very first episode can be adequately treated, that will prevent the disease from becoming a chronic "syndrome". Finally, it is not known how many men who are treated for STDs go onto develop Chronic Prostatitis. Perhaps the standard treatment protocols, promulgated the the CDC, are not adequate to prevent Chronic Prostatitis in some men. And, it is not unreasonable to postulate that in some men there may be multiple bacterial (and "bacterial-like") organisms present. A few good epidemiological studies could easily answer these questions. Etc., etc., etc....... Yours, John W. Polacheck, M.D. Medical Director Prostatitis Center Tucson, Arizona
===> hi dr. polacheck - my hat's off to you in trying to put forth the effort of breathing life back into a somewhat, dead newsgroup.
i've just dropped by to see what was going on and read some of the posts. as a long time viewer of this newsgroup which dates back into the 1990's, i have seen this newsgroup go from where people cared and would share their experiences and findings, to where it was controlled by one person who made some pretty out languish claims.
i say the word, 'viewer' for a reason.
you see, i have no prostate. it became cancerous and was removed, so i don't "qualify" for prostatitis, so to speak. the good news is that my psa's are coming back 'undetectable', so i am quite happy.
but i have talked with many men who have prostate problems and know that most can be cured.
i think that a good start would be to explain that the prostate is one of the hardest organs to treat because of trying to get medicine to the location of the problem.
i will add this to the mix. if one were to look at the prostate, not as a unit, but as a bunch of grapes, each inputting into the whole.. if one grape goes bad, you don't throw out the whole bunch. but, how do you treat the one grape? that is the question...
again, all the best,
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
John W. Polacheck, M.D. - 03 Aug 2008 23:09 GMT Dear Mr. Dear Mr. Steve Malthus,
Perhaps it will surprise you that an appreciable number on men whom I have treated do indeed believe that their Chronic Prostatitis began following a sexual contact. Most often, that was a "different" kind of contact. By that I mean it was frequently with a casual partner who likely had multiple previous partners. And the contact may have been only oral. Also, patients have reported to me that their disease began with one single episode of anal/rectal sex, unprotected.
I am making no "judgments", but only reporting what I have been told. It is not surprising that men can contract bacteria via such activities.
Clearly, large epidemiological studies need to be done.
John Polacheck, M.D. Medical Director Prostatitis Center Tucson, Arizona
Previously, John Polacheck wrote:
>But, perhaps I can put forth a challenge to you and your readers regarding the cause of Chronic Prostatitis. How many of you believe that you "contracted" it sexually (vaginally, orally, or rectally) ?
And Mr. Steve Malthus replied:
>Let's not ask silly questions like that. It really is absurd when we start asking patients what they believe made them ill, and ignoring the science because we don't like what the science is telling us.
>Human beings have sexual relations frequently. It is not difficult to think back a few days from any event at all in anyone's life and find a sexual encounter on which to hang blame. We could equally blame it on diet, because we are sure to have eaten something the day we had our first symptoms.
>In those few men who did get symptoms for the first time after sex with a prostitute, for instance, infection could possibly be a trigger. But when the infection (if there is one) gets cured - and that can be tested - the symptoms typically remain, due to things like allodynia and neural wind-up. These are foreign concepts to you, John.
> Furthermore, I believe that this has great implications for prevention. If the very first episode can be adequately treated, that will prevent the disease from becoming a chronic "syndrome".
AND:
> In my humble opinion, this Newsgroup has been sabotaged by a very > opinionated "flamer". He is a disabled lawyer who lives in Portland. [quoted text clipped - 22 lines] >> This NG has been BLANK for an extraordinarily long time; apparently >> there are no interested parties in this topic....I wonder why?
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