Hello to all,
I've been suffering from what I guess is prostatitis for over 6 months now. I
will tell you my story as brief as I can and maybe  someone out there can offer
me some good advice or something I should ask my Dr.’s. I’ve been fighting
this disease relentlessly  for over 6 months with severe symptoms and can’t
take it anymore.
Here it goes:
It started off about  1 week after having oral and vaginal sex with a woman I
picked up in a bar. This happened after 13 years of a monogamous marriage. I
don’t need to be flamed for the cheating as one Dr.
Already  cited verses from the Bible at me. 1 week after the sexual encounter I
started having burning pain
On the shaft of my penis. I went to the local health dept. and got tested for
all the std’s. The nurse there said
My urine had some whit blood cells in it so she treated me for chlamydia. Of
course  the test results take a few days but she treated me anyway and gave me
a solution to drink and a pill I think it was zithromax.
Well the next day I felt fine no symptoms, but the day after that the pain came
back with a vengeance. I went
To the local E.R. told them the story and they did a urethral swab and gave me
some kind of a shot and put me on doxy for 10 days. Well after a week I get
worse now pins and needles pain in thighs. There was never
Any discharge or visible signs and it didn’t burn when I voided but it still
didn’t feel right. So I go to Uro # 1. He says my urine is clean, looks me
over , says I look fine and gives me some flowmax samples and tells me to
finish out the doxy and should be fine. Well a week later and still in bad
shape. Go back to Uro and he says urine is clean you look fine and gives me
Amytriptolyn. (Forgive any spelling errors I didn’t go to med school ) Well
that wasn’t working so I try a Dermatologist. He says I have scrotodynia and
puts me on neurotin. Well none of this works so I seek out another Uro. I go to
Uro #2 he says my urine is clean but puts me on cipro for 4 weeks then come
back and see me. Well the symptoms start to get worse now with severe lower
back pain. I call for emergency visits with Uro#2 and he says stick with the
cipro. He wouldn’t give me any thing for pain because he said he "doesn’t
go there" even though I was eating Motrin, Aspirin,
Tylenol like crazy and none of them touched the pain. The pain was so bad I
would call the office Dr. on call over the weekends. One put me on Bactrim
,paridium and Urised. Then finally Uro#2 gives me a prescription for Lydocain
ointment because now the pain increased to  what felt like a piece of glass
lodged in the tip of my penis. Pain is getting  excruciating so I go into uro#2
for another emergency visit. He throws
His hands up in the air and says I don’t know what’s wrong with you so I am
going to send you in for a CT scan for stones and then I am  going to scope
your bladder.  The following day I was still in severe pain and
Couldn’t stand it (The burning, the pinching feeling at the tip, The lower
back pain) Uro#2 wasn’t going to do anything for my pain (I refer to him now
as Dr. Frankenstein) So off to the E.R. I go again. I tell my story
And they take blood and urine I wait there for results and they can’t find
anything . The E.R. doc said some of the tests would take a few days ex: Auto
Immune Ghoneria and the like and that if anything bad turned up they would call
me.
In the meantime they sent me home with a prescription  for a Prendizone
pack(steroids) You take 6 the first day then 5 then 4 and so on. It seemed to
help the first couple of days then back Downhill. I go in for the CT scan for
stones, of course it comes back normal. I seek out a new Uro but have to wait 4
weeks to get in.
So I try a family Dr. Tell him the story and he does another  swab for
chlamydia puts me on  Flagyl and Zithromax plus I am still taking the Cipro. I
quit the bactrim because it made me sick. While I was waiting on Dr.
Frankenstein to do my cystoscopy I called the soon to be Uro #3 Office. I
forgot to tell you that I had posted a question on Medhelp.ORG earlier and that
DR. told me to get a prostate secretion test. I pleaded with Dr. Frankenstein
to do this procedure but he kept on saying it was unwarranted because my urine
kept coming up clean.
So now Uro#3. I called the nurse there and asked if I could get a prostate
secretion test performed so the results would be in for my first app. With
Uro#3. They said come on in. I get there they have me void in
Two different cups then they did the prostate massage they put secretions on
some slides then I voided a final time. It was in that last urine sample they I
had a white blood cell count called TNT or too many to count. They immediately
sent me to the hospital for a CT scan of my prostate checking for an abscess.
And put me on Arithmiocyn Or  ERY-TABs And Lortab 7.5 for the pain. The CT scan
comes back showing Inflammation And Lots of Pustules in my prostate. They were
unable to grow anything on my culture (Maybe because of all the Drugs I was
taking?) But At least I finally stopped 80% of the pain with the lortab. Uro#3
says my symptoms should be signifantly better in seven days. Well you guessed
it, NOT! So he does a cystoscope and says my sphincter muscle The on you can
control to stop and start urine flow was in a spasming state. So he puts me
On Baclofin. A week of this and it makes me sick so they take me off the
baclofin and put me on Valium.
Well weeks of this goes by and nothing changes so he thinks it my be nerve
related. Back to the hospital I go this time for a MRI of my back. This comes
back showing a herniated disk at L5 or L4 I forget so he sends me to a
Neurologist now. This dr. looks at my films and says no way  is the herniated
disk causing your penis problems and try’s to  refer me to an Infectious
disease Dr. who refuses to see me unless they Identify that I have an
Infectious disease. So now Its Off to Uro#4. This Dr. is at a major university
teaching hospital. He’s a great Dr. willing to try anything. We tried
Lydocain  injections directly into the nerves of my prostate along with
massage. Transrectal ultrasound. Another Cystoscope which revealed my Sphincter
was fine so he took me off the valium. We tried 1 gram Vancomyocin IV with
steroids directly into my prostate.
That seemed to help some so ten days later we Tried  1 Gram Vanco IV with 20ml
of Gentomyicin Injected
Directly into my prostate. I go off all the drugs for a week and I start
climbing the walls with pain.
So My wife picks up the phone and gets me an appointment into the Cleveland
Clinic. So Here I am
Had my first appointment down here in Florida. I voided into a machine and that
checked out ok. On the exam the Dr. pushed on my left and right pelvic floor
muscles and I almost dropped to the floor in pain. It takes 7 days to try and
grow the cultures So I am in a hotel awaiting my follow up appointment tomorrow
the 20th Oct. They took me off the lortab put me on Ultram which seems not to
make me feel drugged up and works almost as good as lortab. So all I am taking
now is Ultram 2 times a day Prosta Q for a week and a half now and Senna lax so
I can make a bowel movement. I know this huge post is allot to read but I am in
desperate need of help as I know allot of my fellow sufferers are too but maybe
there is someone out there lurking with the same story as mine and
Is cured and can help me. Thanks for letting me Rant!

Please help: