>>> But such questions should be asked of the medics, not of lay people on
>>> the 'net.
I suspect Steve may agree that the "not" should be changed to "and". The
more I see in these forums, the less confident I become in what our
doctors are -- and are not -- telling us. As one example among scores,
if I had "asked the internet", I'd have gotten a biopsy 2-3 years
sooner, may have avoided SVI, could JUST POSSIBLY have pre-empted my
Gleason 4 samples, and may be far less likely now to die of this disease.
I.P.
pc55 - 08 Nov 2006 17:36 GMT
> The more I see in these forums, the less confident I become in what our
> doctors are -- and are not -- telling us. As one example among scores,
> if I had "asked the internet", I'd have gotten a biopsy 2-3 years
> sooner, may have avoided SVI, could JUST POSSIBLY have pre-empted my
> Gleason 4 samples, and may be far less likely now to die of this disease.
Absolutely correct! I had a small nodule & a negative biopsy when my
PSA was only 0.8. Six months later, the reading was 1.3. My urologist
said "let's wait another 6 months." So I ultimately end up with
Gleason 4+3 & treatment failure. And yet the concept of the rate of
change being more important than the actual PSA had been kicking around
for a while.
The collective wisdom of this forum might have made a 20 year survival
difference, but I'm not really complaining. Although many of us will
be dead before today's research ends up in the treatment protocols, we
are lucky to be diseased in an age where there is a huge amount of
research - all available on the internet. It's up to us to keep
abreast of it - our doctors don't have the time.
And while I'm ranting, why is the profession so in thrall to
Huggins&Hodges, who got their Nobel 5 years before I was born?
Castration isn't much more effective today than it was 60 years ago.
-Patrick