Medical Forum / Diseases and Disorders / Prostate Cancer / June 2006
highest PSA?
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Pete - 08 Jun 2006 16:06 GMT Hi All I have just met a chap who's PSA was recorded as over 200, has anyone ever head of such a score? This person is approx 57 years old and had radiotherapy treatment but the cancer has got into his arms now (bones). He is waiting to hear another PSA result tomorrow, but I was amazed that anyone could have that high a score!! Pete
Jason Johnson - 08 Jun 2006 18:06 GMT Hi All I have just met a chap who's PSA was recorded as over 200, has anyone ever head of such a score? This person is approx 57 years old and had radiotherapy treatment but the cancer has got into his arms now (bones). He is waiting to hear another PSA result tomorrow, but I was amazed that anyone could have that high a score!! Pete
Pete, I wonder if his doctor or the patient is the one that is responsible for not having the PSA levels checked several years ago while something could have been done to prevent this present sad situation. Jason
Steve Jordan - 08 Jun 2006 18:31 GMT On June 8, Pete inquired:
> I have just met a chap who's PSA was recorded as over 200, has anyone ever > head of such a score? [quoted text clipped - 3 lines] > anyone could have that high a score!! > While unusual, it is far from unheard-of. Such scores are relatively rare in these days of widespread (but not wide enough!) PCa screening.
Robert Young, founder of the phoenix5.org website, was diagnosed in November 1999 with a PSA of more than 1000 (yes, one thousand) and widespread mets. He died in, I think, 2003, just about when I was drafted into this war. Folks look upon him as a hero. I wish I had known him.
Regards,
Steve J
"Never -- never -- never give up! Never go gently. There will be plenty of gentle after we die, so until then -- fight -- control the rhythms and tempo of the dance, even when you have to let the PCa dancing bear lead for awhile -- even when you have to wear the lead suit as you dance -- never let the bear set the rhythm and tempo of your dance with life -- when the bear finally takes control, it will be a very hollow feeling for him, because I will be gone -- dancing in a better place." --E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate Problems Mailing List Thank you, Burns. Live long and prosper.
c palmer - 09 Jun 2006 01:41 GMT From: sspeb@lboro.ac.uk (Pete)
Hi All I have just met a chap who's PSA was recorded as over 200, has anyone ever head of such a score? This person is approx 57 years old and had radiotherapy treatment but the cancer has got into his arms now (bones). He is waiting to hear another PSA result tomorrow, but I was amazed that anyone could have that high a score!! Pete
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hi pete - 200 is high but nowhere near the highest psa readings. where to start??? hummmmm...... ok, i'll start rambling and hope this all makes sense.
we just lost a member of the club who was dx'ed with pca at age 40 with a psa of 846. he lived two years after being dx'ed.
of course, robert young had a psa of 1000 + and founded phoenix 5.
then we had a new member post that he was 53 and dx'ed with a psa of 2500. he posted a couple more times after that, but then no more postings.
berkey, the warrior, had a psa of 4900 i think.
we had a member over in india whose father had a psa of 8000.
and i've heard of one person having a psa of 11,000.
i seen the psa reading jump by hundreds by the hour - in the final day of life.
of the flip side, i've seen people die FROM prostate cancer, whose psa never got over 50. my dad was one of them.
so, that kinda of gives you some idea of what's happening.
the bottom line - there is no one canned answer.
hope this helps,
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
Pete - 09 Jun 2006 15:51 GMT Hi All Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned a bit about a raised count (2 > 2.7) maybe I am super cautious but I am repeating the PSA in 2 months time. With cancer in all my family I am a realist? Kind regards Pete
> From: sspeb@lboro.ac.uk (Pete) > [quoted text clipped - 46 lines] > invariably fatal. Prostate cancer is only sometimes so." > http://community.webtv.net/PALMER_ENT/doc Jason Johnson - 09 Jun 2006 17:42 GMT Hi All Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned a bit about a raised count (2 > 2.7) maybe I am super cautious but I am repeating the PSA in 2 months time. With cancer in all my family I am a realist? Kind regards Pete
Pete, I found some information in a book related to this subject. Upon request, I'll provide the title and author. It states in the book that when there is a "jump" from your "normal" levels that it could be significant. This is the example that the author discussed: The reading on various PSA tests were 2 to 2.8 but it jumped to 4.2 on one of the tests. The author stated that such a jump was significant. At the very least, I agree that a repeat PSA test in 2 months is a great idea. In addition, you may want to request a PSA II test. I am not a doctor.
Jason
Pete - 12 Jun 2006 11:39 GMT Hi Again Yes please email the author and title I am keen to know more about this area.]I am not sure if my GP does a PSA 11 test. Is it more time/cost consuming? Regards Peter sspeb@lboro.ac.uk
> Hi All > Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned [quoted text clipped - 19 lines] > > Jason Jason Johnson - 12 Jun 2006 17:16 GMT Hi Again Yes please email the author and title I am keen to know more about this area.]I am not sure if my GP does a PSA 11 test. Is it more time/cost consuming? Regards Peter sspeb@lboro.ac.uk
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Peter, This the the title of the book and the name of the author: "Normal Blood Test Scores Aren't Good Enough!" by Ellie Cullen (registered nurse) The book was written to help anyone to understand blood tests. It also provides advice related to how to make changes in our diet to make certain levels go up or down. PSA scores are discussed on pages 172 to 173
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Peter Headland - 16 Jun 2006 02:21 GMT > I am aconcrned a > bit about a raised count (2 > 2.7) maybe I am super cautious but I am > repeating the PSA in 2 months time. > With cancer in all my family I am a realist? You don't say how old you are, nor what the interval between the two tests was. If your father, uncle, or brother had PCa (other cancers are not relevant), you are under 55, and the tests were just one year apart, those readings are worrisome. If you are 70 with no history of PCa in an immediate relative, and the tests were 5 years apart, I would not be very concerned at all.
Bottom line - by all means have the repeat test, but don't worry too much about it. A one-off rise from 2->2.7 could be due to any number of other reasons (sex, bicycle riding, a mild infection, etc.). Expect the best outcome until proven otherwise.
 Signature Peter Headland
Peter Headland - 16 Jun 2006 02:23 GMT Sorry - misattributed quote. Jason was quoting Pete.
 Signature Peter Headland
Peter Headland - 16 Jun 2006 02:39 GMT > You don't say how old you are, nor what the interval between the two > tests was. OK, now I figured out which guy I was responding to, I found the other thread where you said all of my negative factors were combined (brother with PCa, <55 yo, 2->2.7 PSA rise in 12 months). So you are not being paranoid, you definitely have good cause for concern and the repeat test is absolutely the right thing to be doing.
If things come to the worst and it turns out that you do have PCa, the good news is that you are young and you will have caught it very early, so with the right treatment your chances of beating this and maintaining a good quality of life will be good. Put bluntly, no way is this a death sentence, plan on it being just a bump in the road.
 Signature Peter Headland
Pete - 23 Jun 2006 14:30 GMT Hi Peter Thnaks for your input I talked with my GP a week or so ago and he is keen to retest in a month's time so watch this space. My brother is having 3 montly follow up tests too. Thanks Pete
>> You don't say how old you are, nor what the interval between the two >> tests was. [quoted text clipped - 10 lines] > maintaining a good quality of life will be good. Put bluntly, no way is > this a death sentence, plan on it being just a bump in the road.
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