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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2006

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highest PSA?

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Pete - 08 Jun 2006 16:06 GMT
Hi All
I have just met a chap who's PSA was recorded as over 200, has anyone ever
head of such a score?
This person is approx 57 years old and had radiotherapy treatment but the
cancer has got into his arms now (bones).
He is waiting to hear another PSA result tomorrow, but I was amazed that
anyone could have that high a score!!
Pete
Jason Johnson - 08 Jun 2006 18:06 GMT
Hi All
I have just met a chap who's PSA was recorded as over 200, has anyone ever
head of such a score?
This person is approx 57 years old and had radiotherapy treatment but the
cancer has got into his arms now (bones).
He is waiting to hear another PSA result tomorrow, but I was amazed that
anyone could have that high a score!!
Pete

Pete,
I wonder if his doctor or the patient is the one that is responsible for
not having the PSA levels checked several years ago while something could
have been
done to prevent this present sad situation.
Jason
Steve Jordan - 08 Jun 2006 18:31 GMT
On June 8, Pete inquired:
> I have just met a chap who's PSA was recorded as over 200, has anyone ever
> head of such a score?
[quoted text clipped - 3 lines]
> anyone could have that high a score!!
>  
While unusual, it is far from unheard-of. Such scores are relatively
rare in these days of widespread (but not wide enough!) PCa screening.

Robert Young, founder of the phoenix5.org website, was diagnosed in
November 1999 with a PSA of more than 1000 (yes, one thousand) and
widespread mets. He died in, I think, 2003, just about when I was
drafted into this war. Folks look upon him as a hero. I wish I had known
him.

Regards,

Steve J

"Never -- never -- never give up!  Never go gently.  There will be plenty of
gentle after we die, so until then -- fight -- control the rhythms and tempo
of the dance, even when you have to let the PCa dancing bear lead for awhile
-- even when you have to wear the lead suit as you dance -- never let the
bear set the rhythm and tempo of your dance with life -- when the bear
finally takes control, it will be a very hollow feeling for him, because I
will be gone -- dancing in a better place."
--E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate
Problems Mailing List
Thank you, Burns. Live long and prosper.
c palmer - 09 Jun 2006 01:41 GMT
From: sspeb@lboro.ac.uk (Pete)

Hi All
I have just met a chap who's PSA was recorded as over 200, has anyone
ever head of such a score?
This person is approx 57 years old and had radiotherapy treatment but
the cancer has got into his arms now (bones).
He is waiting to hear another PSA result tomorrow, but I was amazed that
anyone could have that high a score!!
Pete

=======

hi pete - 200 is high but nowhere near the highest psa readings.   where
to start???  hummmmm......   ok,  i'll start rambling and hope this all
makes sense.

we just lost a member of the club who was dx'ed with pca at age 40 with
a psa of 846.  he lived two years after being dx'ed.

of course, robert young had a psa of 1000 + and founded phoenix 5.

then we had a new member post that he was 53 and dx'ed with a psa of
2500.   he posted a couple more times after that, but then no more
postings.

berkey, the warrior, had a psa of 4900 i think.

we had a member over in india whose father had a psa of 8000.

and i've heard of one person having a psa of 11,000.

i seen the psa reading jump by hundreds by the hour - in the final day
of life.

of the flip side, i've seen people die FROM prostate cancer, whose psa
never got over 50.   my dad was one of them.

so, that kinda of gives you some idea of what's happening.

the bottom line - there is no one canned answer.  

hope this helps,

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Pete - 09 Jun 2006 15:51 GMT
Hi All
Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned a
bit about a raised count (2 > 2.7) maybe I am super cautious but I am
repeating the PSA in 2 months time.
With cancer in all my family I am a realist?
Kind regards
Pete

> From: sspeb@lboro.ac.uk (Pete)
>
[quoted text clipped - 46 lines]
> invariably fatal. Prostate cancer is only sometimes so."
> http://community.webtv.net/PALMER_ENT/doc
Jason Johnson - 09 Jun 2006 17:42 GMT
Hi All
Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned a
bit about a raised count (2 > 2.7) maybe I am super cautious but I am
repeating the PSA in 2 months time.
With cancer in all my family I am a realist?
Kind regards
Pete


Pete,
I found some information in a book related to this subject. Upon request,
I'll provide the title and author. It states in the book that when there
is a "jump" from your "normal" levels that it could be significant.
This is the example that the author discussed:
The reading on various PSA tests were 2 to 2.8 but it
jumped to 4.2 on one of the tests.
The author stated that such a jump was significant.
At the very least, I agree that a repeat PSA test in 2 months is a great idea.
In addition, you may want to request a PSA II test.
I am not a doctor.

Jason
Pete - 12 Jun 2006 11:39 GMT
Hi Again
Yes please email the author and title I am keen to know more about this
area.]I am not sure if my GP does a PSA 11 test.  Is it more time/cost
consuming?
Regards
Peter
sspeb@lboro.ac.uk

> Hi All
> Thanks for your answers, so 200+ doesn't sound that unique, I am aconcrned
[quoted text clipped - 19 lines]
>
> Jason
Jason Johnson - 12 Jun 2006 17:16 GMT
Hi Again
Yes please email the author and title I am keen to know more about this
area.]I am not sure if my GP does a PSA 11 test.  Is it more time/cost
consuming?
Regards
Peter
sspeb@lboro.ac.uk

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Peter,
This the the title of the book and the name of the author:
"Normal Blood Test Scores Aren't Good Enough!"
by Ellie Cullen (registered nurse)
The book was written to help anyone to understand blood tests. It
also provides advice related to how to make changes in our diet
to make certain levels go up or down.
PSA scores are discussed on pages 172 to 173

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Peter Headland - 16 Jun 2006 02:21 GMT
> I am aconcrned a
>  bit about a raised count (2 > 2.7) maybe I am super cautious but I am
>  repeating the PSA in 2 months time.
>  With cancer in all my family I am a realist?

You don't say how old you are, nor what the interval between the two
tests was. If your father, uncle, or brother had PCa (other cancers are
not relevant), you are under 55, and the tests were just one year
apart, those readings are worrisome. If you are 70 with no history of
PCa in an immediate relative, and the tests were 5 years apart, I would
not be very concerned at all.

Bottom line - by all means have the repeat test, but don't worry too
much about it. A one-off rise from 2->2.7 could be due to any number of
other reasons (sex, bicycle riding, a mild infection, etc.). Expect the
best outcome until proven otherwise.

Signature

Peter Headland

Peter Headland - 16 Jun 2006 02:23 GMT
Sorry - misattributed quote. Jason was quoting Pete.

Signature

Peter Headland

Peter Headland - 16 Jun 2006 02:39 GMT
> You don't say how old you are, nor what the interval between the two
> tests was.

OK, now I figured out which guy I was responding to, I found the other
thread where you said all of my negative factors were combined (brother
with PCa, <55 yo, 2->2.7 PSA rise in 12 months). So you are not being
paranoid, you definitely have good cause for concern and the repeat
test is absolutely the right thing to be doing.

If things come to the worst and it turns out that you do have PCa, the
good news is that you are young and you will have caught it very early,
so with the right treatment your chances of beating this and
maintaining a good quality of life will be good. Put bluntly, no way is
this a death sentence, plan on it being just a bump in the road.

Signature

Peter Headland

Pete - 23 Jun 2006 14:30 GMT
Hi Peter
Thnaks for your input I talked with my GP a week or so ago and he is keen to
retest in a month's time so watch this space.
My brother is having 3 montly follow up tests too.
Thanks
Pete

>> You don't say how old you are, nor what the interval between the two
>> tests was.
[quoted text clipped - 10 lines]
> maintaining a good quality of life will be good. Put bluntly, no way is
> this a death sentence, plan on it being just a bump in the road.
 
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