"Prostate Cancer" Data needed

Thread view:

Enable EMail Alerts

Start New Thread

Thread rating:

Joseph Awad - 20 Jan 2004 00:02 GMT

Hello,

I'm graduate student and my research area is "diagnosing of prostate cancer
"

I'm looking for data such as:

1.. Biopsies results.
2.. Ultrasound images
3.. PSA blood level
4.. PSA density
5.. PSA Velocity
6.. Age Specific PSA
7.. Free to total PSA
8.. Prostate volume
9.. Age
10.. Digital Rectal Examination
11.. Family History

Does anyone know how can I get some of these data?

I really appreciate your kind help.

Best Wishes,

Joseph

Reply to this Message

Wakeley Purple - 20 Jan 2004 03:41 GMT

> Hello,
>
[quoted text clipped - 22 lines]
>
> Joseph

For starters, it would be either "Diagnosis of Prostate Cancer", or
"Diagnosing Prostate Cancer".

Particularly with recent HIPPA regulations I guess either 1) you'd have to
get a release from every person from whom you got data, or 2) you'd have to
be formally associated with an existing research group that has already
collected this type of data.

Maybe try the American Urological Association?

Signature

Wake

Age 58
PSA 3.8
Biopsy positive 5% in 1 of 10 cores
Gleason 3+3
T1c
RRP 1/12/04
Pathology agrees with biopsy
Negative margins

Reply to this Message

Steve Kramer - 20 Jan 2004 11:57 GMT

Prostate cancer books. One is a Guide to Surviving Prostate Cancer by Dr.
Patrick Walsh. Another is called, I think, a Prostate Cancer Primer by Dr.
Stephen Strum.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .3 .4 .8
EBRT 05-07/2002 @ 47
PSA .3 .2 .2 .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .1
Lupron 7/03, 8/03, 12/03

>
> > Hello,
[quoted text clipped - 33 lines]
>
> Maybe try the American Urological Association?

Reply to this Message

Leonard Evens - 20 Jan 2004 12:47 GMT

> Hello,
>
[quoted text clipped - 16 lines]
>
> Does anyone know how can I get some of these data?

Read 'Guide to Surviving Prostate Cancer' by Patrick Walsh to start.

Do a Medline/PubMed search of abstracts. If you are doing this at a
university with a medical school, you can probably get access to the
actual text of the articles as opposed to just the abstracts. You can
find a search engine for Medline at the National Library of Medicine
website and other places, but you might do better by asking your local
university library to help you. They may also be able to help you get
raw data if that is what you need, but that is usually not available in
articles. You have to get in touch with the researchers and ask them
if they will provide it. Your supervising professor may have more luck
at that than you would.

But I am a bit perplexed about how a graduate student in any relevant
field could get far enough along without having been taught how to do
this sort of thing.

> I really appreciate your kind help.
>
> Best Wishes,
>
> Joseph

Reply to this Message

Joseph Awad - 20 Jan 2004 17:33 GMT

Hello,

First I would like to thank you for your kind reply. I really appreciate the
data that you sent, Thank you again.

Referring to the security issue of patients? data, I don?t need the patient?
s name or any personal information.

I already have a small data set from a hospital. But the data, that I have,
is not enough. And as you know, Doctors are always busy and they don?t have
much time to set to collect data for research purpose. This is pretty
normal, because curing a patient is important than anything else. I really
want to do very good research and I wish my research would help many
patients. I?m working in early detection of prostate cancer, which is very
essential for the success of the treatment. I will be very lucky, if I found
an organization, which collects the data needed for the research purpose. I
will also be lucky, if I found other researchers who are working in similar
researches to exchange the data with them because helping each other can
save the life of many patients.

Thank you for your kind help.

I wish you all the best.

Joseph

> Hello,
>
[quoted text clipped - 22 lines]
>
> Joseph

Reply to this Message

Leonard Evens - 20 Jan 2004 18:42 GMT

> Hello,
>
[quoted text clipped - 15 lines]
> researches to exchange the data with them because helping each other can
> save the life of many patients.

Joseph,

From your posts, it appears that you are not aware of the large amount
of research done in these matters. One graduate student working alone
is unlikely to be able to do a significant study of this kind. You
really have to start with a search of the relevant literature, which I'm
sure you will find is very extensive.

> Thank you for your kind help.
>
[quoted text clipped - 31 lines]
>>
>>Joseph

Reply to this Message

Marlin Mixon - 27 Jan 2004 23:10 GMT

> Hello,

> Referring to the security issue of patients? data, I don?t need the patient?
> s name or any personal information.

I realize that you are in Canada and may not be subject to quite the
same regulations, but for us in the U.S. HIPAA goes beyond just names.
It regulates anything that may lead a person to make a connection to a
patient. Thus, you may not include dates of treatment, nor even
Medical Record Numbers--even if arbitrarily assigned. We get around
this by using the date of the Radical Prostatectomy as the base date
and give relative days for all treatments and lab results, thus a PSA
drawn at time point -60 is a pre-op PSA about two months prior to the
RRP.

> I already have a small data set from a hospital. But the data, that I have,
> is not enough. And as you know, Doctors are always busy and they don?t have
[quoted text clipped - 7 lines]
> researches to exchange the data with them because helping each other can
> save the life of many patients.

That all sounds good. I suggest you look at www.CancerDB.org. At that
website is excellent free software that you can implement at your
location that provides a framework for storing prostatic data. The
database system, which is similar to an EMR, was written at Memorial
Sloan Kettering Cancer Center and we are using it here at Baylor
College of Medicine. No, it's not trivial to implement this software,
in fact it requires a full-time person (for us, at least) doing the
daily maintenence and data-entry, but the advantages are that the
clinicians are integrating it into their practice because it provides
them with high-quality data on demand and they don't have to hassle
with trying to get a quick picture from the paper charts. When the
clinicians are happy, you start to get good and accurate data for your
research side.

Marlin Mixon

/// See our prostate cancer nomogram that predicts cancer outcome at
www.drslawin.com/nomogram ///

Reply to this Message

Alan Meyer - 27 Jan 2004 21:27 GMT

> Hello,
>
> I'm graduate student and my research area is "diagnosing of prostate cancer

...

Joseph,

What are you studying? Social work, public health, medicine?

And what school are you at? What country?

Reply to this Message