Medical Forum / Diseases and Disorders / Prostate BPH / September 2004
seeking information and help
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Lubro - 13 Sep 2004 14:15 GMT Hi, I am a 59 yr old male with bph. I am new at this, and just want to get as much information as possible and to try to make the best decisions concerning my health. My first experiences were just enlarged prostate, and the discomfort it presented when sitting for long periods of time. Saw a urologist, had me on flomax for 3 months and suggested saw palmetto. Symptoms improved after about 4 months or so, and I was fine for about a yr. Started having problems again, this time with increased frequency of urination, especially at night, feelings of not emptying, having to force it, not a good flow, up 2 or 3 times a night saw the same urologist, was diagnosed as having a prostate infection (prostatitis SP?)..put me on doxycycline seemed to improve things after a while, on revisit, he said that the bladder was emptying better. seemed to improve.
Started having problems again early this summer. Went back to the same urologist. I was in his office with him for what seemed like about 45 seconds
told him my symptoms
he just told me it sounded like that darn prostate infection was back
prescribed Leviquin
didn't even examine me
just left and said see him in about 4 to 6 weeks?
I started having some weird things happen. Dizziness, disorientation
went to my GP, who told me to throw away the leviquin He prescribed me doxycycline, since it had seemed to work before ..he felt it was a more stable drug than Leviquin
(at this time, we discussed avodart & flomax) tried the doxycycline for about 3 weeks or so..but saw no change. At this point, I was still experiencing the discomforts, but my urine flow, although not great, was ok..no where near blockage or anything like that. My GP checked the prostate and said it was enlarged and he thought I should go on avodart and flomax. I agreed, and started these about 2 weeks ago. I'm not so sure I like altering my chemical balance this way. No severe side effects yet, but I'm very concerned about what will happen to my body overall.
I have since discovered this newsgroup and have read quite a bit thru these posts. I guess what I'm looking for here is advice and information. I have a Thousand questions, and would like any and all help I can get. My GP wants to do some blood work wants to check colosteral and triglycerides, as well as PSA count..( shouldn't PSA count have been done before starting avodart?) Is there anything else in the blood work I should ask him for? I'm not sure what to do. Should I seek out another urologist? I'm not happy with the one I have. Should I stay on the avodart and flomax? My symptoms aren't critical, in that I usually only get up once at night, but I'm feeling the pressures when I sit, and I'm having throbbing little pains in the pubic area ( could this be bladder symptoms?) just things going on that I need to find out about. I have noticed that since I started the avodart and flomax, I seem to be urinating more frequently
now getting up more than once a night
maybe I was better off before
If anyone out there has any suggestions or information to share with me, please let me know. I work for USAirways, and may be losing my job and health insurance soon (like I need this unnecessary stress ) But I do need to consider this need that health insurance I'm certain that stress plays an active role in all this. I also wonder about the long term effects of drugs like avodart and flomax..so far, no real serious problems. If this drug inhibits testerone production, how does this affect the rest of the body? Like I said, I've got a lot of questions? If you've gotten this far, I appreciate you for reading this. Any information you can offer will be greatly appreciated. I'm just trying to figure this all out and get as much information as I can. Any ideas,comments, references, feedback, etc..will give me a better chance at deciding what to do. Any other web sites or forums like this one? Please let me know? Thanks for your concern, and thanks for forums like this.
Lou
bnd777 - 13 Sep 2004 18:04 GMT > Hi, I am a 59 yr old male with bph. I am new at this, and just want to > get as much information as possible and to try to make the best [quoted text clipped - 80 lines] > > Lou Seek out a doctor who does PVP fast .......the longer you wait the more bladder damage you will incur and the longer and more difficult the recovery
Your story is similar to miine and I thank my lucky stars I found this group and Gordon Muir at Kings College Hospital London and had PVP ......I had run a mile from 2 uros who insisted TURP was the gold standard
Gutbuster - 14 Sep 2004 22:43 GMT >> Hi, I am a 59 yr old male with bph. I am new at this, and just want to >> get as much information as possible and to try to make the best [quoted text clipped - 84 lines] > bladder damage you will incur and the longer and more difficult the > recovery Sorry mate but my symptoms are worse than described and I strongly disagree with you. I gave up going to the doctor because of other health problems I have that drove me away from them and I dont have bladder damage and am doing reasonaly given that CP is one of my two worst health problems. Other problems include severe sleep apnea, CFS brought on by the untreated severe sleep apnea, mild MS, IBS, Graves Disease (in remission) and other things that are auto immune. Interestingly, a mild keloid condition, too so I wonder if that is actually helping? :)
bnd777 - 17 Sep 2004 19:53 GMT > >> Hi, I am a 59 yr old male with bph. I am new at this, and just want to > >> get as much information as possible and to try to make the best [quoted text clipped - 95 lines] > > Gutbuster chances are that you actually are Hypothyroid ..........that causes sleep apnea /MS/CFS/IBS/and a host of symptoms
Graves Disease seldom goes into total remission especially in men and often Hashimotos runs in tandem
Gutbuster - 20 Sep 2004 04:59 GMT >> >> Hi, I am a 59 yr old male with bph. I am new at this, and just want to >> >> get as much information as possible and to try to make the best [quoted text clipped - 104 lines] > often > Hashimotos runs in tandem It went into remission with me thank goodness. Went into remission in 1986 and been there ever since to the best of my knowledge.
Oh and no, I didn't go hypo after being hyperthyroid.
Gutbuster - 20 Sep 2004 05:01 GMT >> >> Hi, I am a 59 yr old male with bph. I am new at this, and just want to >> >> get as much information as possible and to try to make the best [quoted text clipped - 104 lines] > often > Hashimotos runs in tandem P.S. it isn't quite fair to say that hypothyroid is caused by sleep apnea. There has been no conclusive study I have read that has proven that sleep apnea IS caused by it or it is caused by sleep apnea. Eg, it could be the other way around.
Al - 14 Sep 2004 01:55 GMT Lou,
I would definitely find another urologist. You will find that many of us on this newsgroup have had to do that (I left two before being satisfied and comfortable with the third one). Your symptoms may or may not be BPH, which is what most of us in this group have been diagnoised with. You need to be properly evaluated before anyone can determine what is best for you. You could be dealing with BPH, Prostatitis, cancer, bladder problems, or any number of more or less serious problems.
> Hi, I am a 59 yr old male with bph. I am new at this, and just want to > get as much information as possible and to try to make the best [quoted text clipped - 80 lines] > > Lou MB - 14 Sep 2004 04:37 GMT Welcome to the wonderful world of BPH!!!
I think you need to see another urologist. You need someone who will LISTEN to you, spend some time, and ANSWER your questions.
Too bad about US Airways. I hope you keep your job. Try to find another urologist ASAP before your insurance runs out.
MB
> Hi, I am a 59 yr old male with bph. I am new at this, and just want to > get as much information as possible and to try to make the best [quoted text clipped - 80 lines] > > Lou Gutbuster - 14 Sep 2004 22:39 GMT > Hi, I am a 59 yr old male with bph. I am new at this, and just want to > get as much information as possible and to try to make the best [quoted text clipped - 3 lines] > and suggested saw palmetto. Symptoms improved after about 4 months or > so, and I was fine for about a yr. Snipped the rest of it. So far as sitting, take my advice. I have a camp chair - like a director's chair with calico that you sit on that is suspended, the type of chair you can fold up when you want to put it away (like when visitors come) and it makes one HELL of a lot of difference.
As to taking doxy all the time - don't do it. I kept taking it as directed by the doctor and unfortunately, not only does it do bad things to your skin which can then be badly affected by sunlight, it also works less and less the more you take it. I believe your body starts to build up some sort of resistance to it. I would rather let my body get better from infection if that should happen in the future and I am hospitalised than take that chance away because I am attacking the prostate problem with something that works less each time I take it.
Frequency of peeing - it can be exacerbated by many things. I *HAVE* to take a lot of strong caffeine in the morning to work the day. I have no choice. However, as caffeine is a diuretic, it actually helps me pee and poop easier, both of which are a blessing to my prostate problem. Do *NOT* have ANY caffeine product after 7PM at night if you go to be around 11PM of a night. Earlier if you go to be earlier. Don't have much water after about 9PM.
Lastly, when I am flat out at my job, I often don't get time to pee after leaving home in the morning until later afternoon. It can be 8 hours without a toilet visit. This was extremely hard on me at first but it got better over time. I have a feeling things expanded to cope over time but I have no proof I can offer anyone to say it is true. You may try NOT peeing for as long as you can and make it a bit longer each day. That way your prostate and bladder may be happy enough to let you get a better night's sleep.
Spread deMocracy - 17 Sep 2004 01:14 GMT Sorry to see that you, too, had to join the BPH-ers!! This e-mail is going to be a LONG ANSWER. Before you read on, I want to point out: .I am NOT a doctor...I simply became very serious about researching this stuff when my doctors couldn't answer my questions.... If you want to skip to anything of importance...skip down to the BLOODWORK since doctors often don't do it.
Doctors often get off easy with this 4-step plan:
Step 1: ....Alpha Blockers relax the urinary channel to help the flow, but does nothing for the growth of the prostate. Some guys can manage, others have to do more. Alpha Blockers: Terazosin (Hytrin), Doxazosin (Cardura), Tamsolosin (Flomax), Alfuzosin (Uraoxatrol or Xatrol). Alpha blockers lower blood pressure, can cause dizziness and drowsiness in some people. The worst side effect, in my opinion, is retro-ejaculation--nothing comes out and orgasm feels about 1/4 as wonderful as it was. Alfuzosin (Xatrol) has been good for me because it minimizes my retro-ejaculation-- alot more comes out, whereas Flomax was totally retro-ejaculation. Step 2: DHT blockers. It is believed that DHT causes enlarged prostate. DHT blockers: Finasteride (Proscar) and Dutasteride (Avodart). It takes as much as 6 months to a year in some cases for this to work. Side effects may be decreased libido--won't care about retro-ejaculation because you won't want to have sex anyways! And man-boobs. Step 3: sometimes doctors will prescribe BOTH an Alpha Blocker and a DHT inhibitor...when they think you are sufficiently inconvenienced by the BPH. Hopefully, the patient still has time and is able to pee while the DHT inhibitor slowly--months--starts to work, if it works at all. But, the key question is why is the DHT high? Doctors will say "old age". If that's good enough for you, then party on! But what causes it? Doctors have to dig deeper with blood work to find out. And they typically don't do the bloodwork. Some of the blood work takes about 30 days to be analyzed, so, if you are thinking of the bloodwork, then get it done right away, especially if it is covered by your medical plan...sometimes the hormone stuff is not covered. Step 4: the roto-rooter!!
BLOODWORK: when your doctor does the test you mentioned, you will likely get the following results unless you have an aberration: PSA "normal", Cholesterol (LDL--the bad cholesterol) HIGH. What a surprise!!!??? Duh. If your DHT is out of whack, your cholesterol will LIKELY be high. So you can end up taking medication for DHT and one for Cholesterol and yet, you still may not be tackling the root cause. That's OK, says the doctor. And when sufficiently challenged the doctor will admit he/she doesn't have to try to cure you...merely to provide symptomatic relief. Yahoo!
Hopefully, your doctor is doing a DHT blood test. Because, if your DHT is seriously outside the upper range, in my humble opinion as a non-doctor, he ought to then refer you to an ENDOCRINOLOGIST--a gland guy. Your bloodwork, (in my humble, non-medical opinion), needs to also be tested for the following: Serum Estradiol, (you'd know this as estrogen); prolactin, gonadotropin, Free-T and Total-T ("T"=testosterone); DHEA, and Sex Hormone Binding Globulin (SHBG) in addition to Cholesterol, Blood sugars, etc. When I did mine, my urologist admitted he could not interpret the results. After 4 sessions, 3 blood workups, and a lot of badgering from me he admitted it was all outside of his expertise and finally got me into an endocrinologist, who immediately ordered a series of blood workups since he didn't trust any outside labs, or is making money of the lab he wants me to be tested by?
NOTE: if your estradiols are high, give up meats, don't play with pesticides or play on greens with lots of pesticides, watch the alcohol--generates estrogens-- and start eating lots of Tofu. OR, be discuss the possibility of an "aminoglutethimide"--an aromatase inhibiting drug....BECAUSE the estrogens will contribute to man boobs.
Reminder: I am not a doctor and these are not medical opinions....so, FIND A QUALIFIED doctor and if your DHT is too high, get into an endocrinologist.
Best of luck!!
> Hi, I am a 59 yr old male with bph. I am new at this, and just want to > get as much information as possible and to try to make the best
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