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Medical Forum / Diseases and Disorders / Prostate BPH / August 2003

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PVP at Princess Royal Hospital

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William - 20 Aug 2003 13:45 GMT
There are two hospitals in the U.K. which offer the Laserscope PVP
treatment, one of them is Princess Royal Hospital in Sussex.  There
are 2 urologists carrying out PVP at Princess Royal and I made an
appointment with Mr Tim Larner.  At the consultation Mr Larner
established the following bio:
Age 60; BPH 5 years; Flomax 2 years; Flow rate Qmax 7.7 mls/sec,
Qaverage 2.8 mls/sec; voided volume 211 mls, residual volume 116 mls;
IPSS score 26, QOL score 5.  Rectal examination showed large prostate
of about 80 gms.
My PVP operation was carried out at Princess Royal on 16 August, I was
the last of 3 patients operated on that morning.  Mr Larner advised
that because my prostate was greater than 70 gms I would be kept at
the hospital overnight. The nurses took me into the operating theatre
at noon and I woke up at 2pm in the afternoon. I felt clear headed and
in no pain.  A catheter had been fitted and also a saline drip.  The
catheter bag filled up and was a dark red wine colour.  The nurse
advised that the bleeding would have to be less before they would
release me.  I drank a carafe of water and in the morning the colour
had changed to a light rose and the nurse removed the catheter.  Mr
Larner visited and advised that the operation had gone well and that
he had removed a lot from the prostate, he thought that I would notice
a big improvement.  I left the hospital at 11 am and my wife drove me
home.  I am slightly amazed at how easy it has all been, anyone who
met me on Sunday afternoon would have had no idea that I'd had just
come back from surgery.
These are early days but here are my initial impressions.  Flow rate
has improved markedly and from memory is back to where it was before
BPH.  The urgency has increased, when I go now I have to go - no
waiting.  Surprisingly to me the frequency is about the same as when I
had BPH.  As an experiment I drank a pint of water quickly and then
had to go to the toilet 3 times at 20 minute intervals to void what I
guess was about 1/3 of a pint each time. So I am going to the toilet
as much as before but spending a lot less time there.  Overnight is a
big improvement and I'm getting up 1/2 times compared with 3/4 times
before.  I am a little puzzled about the frequency, was the bladder
damaged over the years of BPH or does the bladder take some time to
'learn about' the new situation?
Overall I'm very pleased with the results, taking it easy this week
but plan to start normal activities next week.
Jack - 20 Aug 2003 16:42 GMT
William

Glad to hear that you are feeling so well just a couple of days after
a PVP.  Pre op I had just about the same numbers you quoted, just
reverse your voided and residual numbers.  I had a large medial lobe
that was well up in the neck of the bladder.

The only numbers that are somewhat odd to me are your day time
frequency numbers after the PVP.  Hopefully they will improve
considerably within the next week.  I would say most of us were able
to void 150 to 200 mL at a time a few days after the op and be going
only every 1.5 to 2 hrs.  Your night time numbers are typical and may
improve to only once/night within a couple of weeks.  Your "bleeding"
(it really only takes a few drops to color the urine pink) should
completely stop within a week of the operation, although a few have
had some bleeding for up to three weeks.

Glad you had it done, as I know you are now that it is over.  Good
luck with your continued recovery.  It takes at least 3 months before
you have your final Qmax, Qavg and retention numbers.
Jack

> There are two hospitals in the U.K. which offer the Laserscope PVP
> treatment, one of them is Princess Royal Hospital in Sussex.  There
[quoted text clipped - 35 lines]
> Overall I'm very pleased with the results, taking it easy this week
> but plan to start normal activities next week.
Tom - 20 Aug 2003 23:27 GMT
Thank you for your report. Was your op done privately or via the NHS? Also,
could you let us know what was the delay between first contact and the op?

All the best for your recovery

Tom

> There are two hospitals in the U.K. which offer the Laserscope PVP
> treatment, one of them is Princess Royal Hospital in Sussex.  There
[quoted text clipped - 35 lines]
> Overall I'm very pleased with the results, taking it easy this week
> but plan to start normal activities next week.
William - 22 Aug 2003 11:01 GMT
Tom,
My op was done privately.  Initially I tried to go through the NHS and
asked for a referral from my GP.  He advised that he could only refer
me to the one of the 6 hospitals which surround his practice but none
of these hospitals offer PVP.  The GP said that he could give me a
referral to a local urologist who could then give me a referral to a
hospital outside the area which does PVP.  However the GP was
pessimistic that any local urologist would give such a referral for
PVP because the procedure is so new to the U.K.

I decided to cut past the bureaucracy and arranged a private
consultation with Mr Larner, who is performing PVP at Princess Royal
in Sussex which is about 1.5 hours drive from my home.  The costs, for
anyone thinking of going the same route, are:
Initial Consultation   £125.  (This was very thorough, it included a
flow test and an ultrasound of the bladder and lasted 45 minutes.)
PSA blood test   £50
Hospital charge    £2138  (This included the Laserscope fibre which I
understand costs about £750.)
Surgeon's fee   £619
Anaesthetist's fee  £275
Total   £3207
(This is about $5,100 at an exchange rate of £1=$1.6).
I am not covered by private insurance and paid this from my own
resources.  I think now that it was money well spent, the BPH was
becoming a misery and now that it is over I feel that a weight has
been lifted off my shoulders.  For example I slept like a log last
night and only got up once at 4 am, with BPH I was getting up 3 or 4
times and this affected the quality of my sleep.
If you go privately then things move fast and I would guess that
currently you can probably be operated on within one month of the
initial consultation.


> Thank you for your report. Was your op done privately or via the NHS? Also,
> could you let us know what was the delay between first contact and the op?
[quoted text clipped - 42 lines]
> > Overall I'm very pleased with the results, taking it easy this week
> > but plan to start normal activities next week.
Frederic E Henzi - 23 Aug 2003 06:14 GMT
William,

You got a bargain. Here in the US, my PVP cost $16000. Fortunately for me,
it was paid mainly by Medicare insurance and supplemental insurance. Of
course, I had to pay for years into these insurances, so, it is really not
as "free" as it sounds. Then I had to travel thousand miles to Santa Barbara
and spend four nights at a hotel at my expense. I fully agree with you, all
expenses is money well spent in this instance.
With Medicare, we can choose a doctor, anywhere in the country. It is
incredible to me, that there is a serious movement to change this system and
go to a NHS or Canadian style system where services are "completely free".

Good luck with your recovery.

Fred Henzi

I hope you are doing good progress
> Tom,
> My op was done privately.  Initially I tried to go through the NHS and
[quoted text clipped - 28 lines]
> currently you can probably be operated on within one month of the
> initial consultation.
Lee M. - 24 Aug 2003 00:21 GMT
$16K sounds awfully high for an out-patient procedure to me.  My
mother-in-law was in the hospital for 4 days and had surgery for a broken
hip and that's what her bill was.

> William,
>
[quoted text clipped - 45 lines]
> > currently you can probably be operated on within one month of the
> > initial consultation.
Tom - 23 Aug 2003 23:05 GMT
William
Thanks for all the info.

Since my last post 3 days ago, my current uro has agreed to refer (through
the NHS) my case to the site of my choice, ie King's College or Princess
Royal! It's only taken me 3 uros and 9 months to get to this stage, but I'm
here at last.

I've been in touch with King's and the Princess Royal and both sites are
prepared to take new cases, so now I have to make up my mind where to go.
What a wonderful situation to find oneself in!

King's has a slightly longer track record - October of last year - but it is
a teaching situation and I might have a trainee surgeon perform the op,
albeit under Mr Muir's supervision. As far as I know, the Princess Royal
started PVP in February of this year and just have the 2 surgeons who must
have built up quite some experience in that time.

Will keep you posted on my progress and thanks to everyone on this group for
the help.

Tom

> Tom,
> My op was done privately.  Initially I tried to go through the NHS and
[quoted text clipped - 75 lines]
> > > Overall I'm very pleased with the results, taking it easy this week
> > > but plan to start normal activities next week.
Derry Argue - 24 Aug 2003 10:11 GMT
> It's only taken me 3 uros and 9 months to get to this stage, but I'm
> here at last.

Ah, so only 12 months to go then!

Neither the law nor the NHS can be hastened. One way to reduce the waiting
lists is to hope we all die off from old age before they have to operate.

Derry
Frederic E Henzi - 22 Aug 2003 05:27 GMT
William,
From other posts, I conclude that recovery is quite individual. I had also
sudden urgency and two hour frequency after PVP. Both improved with time and
after 3 month I can hold for 5 hours and there is no urgency nor burning
after urination. I noticed that my frequency was partly psychological. Pre
PVP, fear of acute closure drove me to void at the slightest sensation in
the bladder. It took me about two month to get over this habit. And even
now, when I step up to a crowded urinal, I have some phobia that I won't be
able to cut loose. It works every time though.

Relax, think positive and let time heal. PVP may be a rather quick surgery,
but in my humble opinion it is still full blown surgery. Maybe you need some
painkiller for a while.

Good luck

Fred Henzi
William - 25 Aug 2003 10:38 GMT
Jack and Frederic,
Thanks for your comments, it is reassuring to get advice from
experienced men who have been down the PVP trail before you.  Mr.
Larner has notified me of a follow up appointment on 18 November where
he will measure again the readings recorded at the initial
consultation.  I will relax and go with the flow, so to speak, until
then.
Derry,
I would not plan to drive the next day.  If your experience is the
same as mine you will not sleep well in the hospital because of
catheter, strange surroundings and the monitoring activities of the
nurses.  Also you will have had a general anasthetic which knocked you
out cold for 2 to 3 hours the day before.  I nodded off on the drive
home and I don't think that I would have been alert enough to deal
safely with the heavy London traffic.
Allow 7 to 10 days to fully recover.  Frederic's comment is right, PVP
is full blown surgery albeit of short duration.
Tom,
Princess Royal have been carrying out PVP since March 2003.  There are
2 urologists doing the PVP operation Mr Nawrocki and Mr Larner.  Mr
Larner has now completed about 30 PVP operations, he does 3 PVP's in
one session and I think that currently he operates 3 times a week.
Princess Royal is doing a prospective trial on PVP for the NHS.  While
I was there the hospital placed an order for a further 100 Laserscope
fibres.
Discussed PVP with the nurses who told me that both consultants are
keen on the PVP procedure.  PVP patients stay 1 night in hospital
compared with 3 to 4 nights for TURP patients.  Also PVP patients
require less nursing care than the TURP patients.  The catheter for
PVP is single tube whereas the TURP catheter is triple tube to allow
for irrigation.  One of the nurses described TURP as "the old
fashioned procedure" which just about says it all.
Good luck, either Kings College or Princess Royal will do a good job
for you.
> William,
> From other posts, I conclude that recovery is quite individual. I had also
[quoted text clipped - 13 lines]
>
> Fred Henzi
Derry Argue - 25 Aug 2003 18:04 GMT
> Derry,
> I would not plan to drive the next day.  

Thanks, William. My brother lives just ten minutes walk from King's and I
have a neice a step or two further away. The admissions nurse has told me
that I will only be released into the care of a responsible adult! (Not
sure if my brother qualifies!<VBG>). So I am planning to stay the night
with one of these then possibly visit my sister for a couple of days in
Reading (an hour by rail?). I'll then travel home (500 miles) by rail or
air.

My concern is about how much I can do when I get home. I am a bachelor
farmer and have livestock to attend to. I can arrange to get away for a few
days but anything more than that is a problem. At least October is a quiet
month!

Your advice is much appreciated.

Derry
 
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