Medical Forum / Diseases and Disorders / Prostate BPH / March 2004
Retro Grade with No Ejaculation:
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Dean - 25 Feb 2004 21:43 GMT Has anyone had retrograde after PVP that didn't seem to reach a climax during sex and didn't expel any ejaculate in other word instead of reaching a climax the orgasm just faded out. Thanks for a reply, EDP
Ron - 26 Feb 2004 04:29 GMT Dean, Read my recent posts, where I described my post 2nd PVP sexual side effect. ron
> From: "Dean" <deanperkins@highstream.net> > Organization: [quoted text clipped - 7 lines] > a climax the orgasm just faded out. > Thanks for a reply, EDP c palmer - 26 Feb 2004 10:35 GMT hi dean - i believe this is part of those risks they don't want to tell us about.
i know that damaging the nerves can produce that effect, but allow me to take it one step further.
i had my prostate removed because of prostate cancer. i had nerve sparing done and able to have erections, but the orgasm part is very different. sometimes, it is nothing more than a speedbump in the road and you don't hardly know it's there. just a little feeling or something and then it's post orgasm feeling after that. is that what you're describing?
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Dean - 26 Feb 2004 15:48 GMT To C Palmer, Yes I think that is pretty well what I'm describing, however I only had a PVP it seem like it starts and then just fades away no ejaculation at all, nothing comes out in the urine afterwards. The first couple of times after PVP everything was find no retrograde ejaculation,reached an orgasm and was just like old times but since then things has went down hill to the point now that it is not worth the effort. Talked to my URO yesterday about it and he hadn't heard about it before. I think you are right there is some things they just don't want to tell us about.He also said there was nothing that could be done about it when I probed him further but you could see that he didn't seem to want to talk about it he said he would do some research on it but unless I mention it I don,t expect to hear anymore about it from him. I don't understand why sex would be just like always was the first couple of times after PVP and then go down hill from there, do you? Regards Dean,
> hi dean - i believe this is part of those risks they don't want to tell > us about. [quoted text clipped - 12 lines] > > knowledge is power - growing old is mandatory - growing wise is optional Ron - 26 Feb 2004 19:40 GMT Thank you to Dean and Curtis for describing the same experience that I posted about - post PVP sexual side effect. It seems that none of us were warned about this (which is different than retrograde). I'm sure that there are others out there also, who had no expectation of this life-changing loss. ron
> From: "Dean" <deanperkins@highstream.net> > Organization: [quoted text clipped - 34 lines] >> >> knowledge is power - growing old is mandatory - growing wise is optional nambucca - 26 Feb 2004 20:42 GMT Thats what retro is !!!!!!!! and yes I had it for 7 months after PVP but all is OK now
> Has anyone had retrograde after PVP that didn't seem to reach a climax > during sex and didn't expel any ejaculate in other word instead of reaching > a climax the orgasm just faded out. > Thanks for a reply, EDP Dean - 26 Feb 2004 22:18 GMT nambucca, Thanks for the reply but I just can't seem to understand, why the first couple times after PVP there was no retrograde Ejaculation every thing was just like old times I was very happy.Since then it has deteriorated to the point as soon as you get to the point when orgasm starts it just fades out and there is no ejaculation that I can tell and just clear urine shows up afterwards not cloudy at all. Perhaps you can enlighten me more on this issue. I was told by the URO that I would still have a climax, it would just be retro grade however I don't now think this is true. Thanks, Dean,
> Thats what retro is !!!!!!!! > and yes I had it for 7 months after PVP but all is OK now [quoted text clipped - 4 lines] > > a climax the orgasm just faded out. > > Thanks for a reply, EDP RossH - 26 Feb 2004 22:52 GMT I also have the same issue. No apparent ejaculate either at orgasm or in urine. However, two differences. One is I had a Holmium Laser TURP in June 2002. The other is that fortunately I still have a reasonable orgasm....not as good as before TURP but worth the effort! (reasonable sized speed bump!). I've been interested to follow this thread as I thought it was only me as I'd not seen this discussed before. My conclusion is that somehow the ducts have been blocked. Tried to discuss with Uro but he claimed that semen would be present in urine and did not seem inclined to discuss. It was not mentioned as a possible side effect prior to the operation nor have I seen it mentioned in any reading matter anywhere including net sites. For me its no longer a major issue...maybe an advantage given some of the description of retro I've seen here. Its not exclusive to PVP though although you don't see a lot of discussion anywhere. This has been quite an enlightening thread. Cheers RossH
Ron - 26 Feb 2004 23:09 GMT Ross, Thanks for adding to our information re: this side effect that no one was talking about before. I think that I was the first one to bring it up at this newsgroup. It seems that at least 3 causes can be occuring. 1) blocked seminal ducts 2) prostate too small to produce prostatic fluid 3) nerve damage from surgery effecting orgasm and satisfaction. Not everyone is affected the same way. Maybe in the future, surgeons will become more skilled at preventing this rare but serious side effect. ron
PS: Hoping that others who had PVP or other laser surgeries will share on this subject as Dean, Curtis, Ross and I have.
> From: "RossH" <rhearne@nospam.ozemail.com.au> > Organization: BigPond Internet Services [quoted text clipped - 18 lines] > Cheers > RossH Dean - 26 Feb 2004 23:42 GMT Hi Ron and Ross, You may be right about the ducks being blocked but mine sure wasn't blocked the first couple of times.I had a three months follow up yesterday, Actually its been over 4months. I asked my URO about the plugged seminal ducks and he kind of passed over it and I let him get by with it because I was more interested in discussing overactive bladder but I have another appointment in two weeks and he won't get by with it this time. I'm going to print some of your posts and take them with me as a reminder. again thanks for the very interesting information. Dean,
> I also have the same issue. No apparent ejaculate either at orgasm or in > urine. However, two differences. One is I had a Holmium Laser TURP in June [quoted text clipped - 12 lines] > Cheers > RossH Dean - 26 Feb 2004 23:53 GMT I'm glad to hear it reversed itself, that is great news. I doubt that I will be that lucky, at least my URO said I wouldn't. Thanks for letting us know that all things are possible. Dean,
> Thats what retro is !!!!!!!! > and yes I had it for 7 months after PVP but all is OK now [quoted text clipped - 4 lines] > > a climax the orgasm just faded out. > > Thanks for a reply, EDP c palmer - 27 Feb 2004 06:20 GMT hi guys - i'm going to shot at this (ooooh, that could be a bad choice of words :)
getting serious - you might want to see if there is some similarities in what i'm going to describe and what you are experiencing. i have been through it all. the prostatitis, the BPH, the complications from BPH, like forming a ring in the bottom of your bladder - BPH tissue growing into the bladder forming a flapper valve shuting down the output port, and finally prostate cancer and removal.
i never had the PVP, TURP, or any other treatment while i was the owner of that prostate, but i did have a TURP afterwards because of excessive scarring as a result of the RRP. the TURP didn't change any changes of the feelings i had before the TURP because the changes had taken place from the RRP. those changes in the orgasm were immediate after the surgery.
i have a very good relationship with my surgeon and he knows that i know a lot about the prostate. so, when i asked him point blank about the feelings of orgasm now as compared to before, he explains things in a lot more detail. so he finally told me the rest of the story.
in my case, when they removed the prostate, they cut the micro nerves around the prostate. he said that you can not see these nerves. you can see the nerve bundles for erections and he was able to save them, but he said that no one knows where the micro nerves are or which ones control what. my surgeon went on to explain that the prostate is the orgasm center because these micro nerves give feedback loops to the main nervous system. for example, you can have the orgasm, which is mental, but the feeling of the prostate contractions, and feelings of fluids flowing are the feedback loops and in my case, all that is gone - forever.
applying that to the person who still has a prostate and gets any kind of treatment for the BPH. since the person is doing the treatment won't be able to see the micro nerves could cut them and what ever he cuts would be what's missing in your part of the orgasm. as to everything coming back after 7 months, my surgeon did say that micro nerves do grow back, which may explain why you are able to feel again. also, that means there is hope for the rest of everyone. only in my case where it is gone is there no hope, but all is not lost, i'm creating new ways to intensify the feelings that i have and am glad to say that they are close to the originals. so, there you have it. a very frank discussion about a very sensitive subject.
one will find out that prostate cancer removes all inhibitions in this dept. i certainly didn't think i would ever be this open, but now, it just doesn't make any difference and if i can help someone, then i feel very good about it.
hopefully, none of you will have prostate cancer, but allow me to say while no one here has it, that if you were the one who drew the "cancer" card. i had the surgery and it was a cake walk. i thought it would be painful, and it wasn't. the surgeon told me that there is that many nerves in that area. other than the change in the orgasms, i feel 100% back to where i was before surgery 10 months ago. i can pee like a race horse, occasionally get up once in the night after drinking a lot of diet cokes, but most of time i don't. far cry from the three times a night before hand. i thought it would be a lot different and while it has changed by life, a lot of my life is still the same.
low psa's to everyone.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Zork - 27 Feb 2004 12:39 GMT You speak of creating 'other ways to create satisfaction'. I am enduring the same problem and would be most appreciative if you could elaborate on this.....yes.....sensitive problem Gary ---------- -In article <27861-403EE1BF-258@storefull-3195.bay.webtv.net>, PALMER_ENT@webtv.net says...
>hi guys - i'm going to shot at this (ooooh, that could be a bad choice >of words :) [quoted text clipped - 63 lines] > >knowledge is power - growing old is mandatory - growing wise is optional c palmer - 27 Feb 2004 18:07 GMT hi gary - i will extend this invitation to you and everyone else. i do not mind discussing this in private because of the sensitivity of how personal it is. this is one of those subjects where other folks have the same problem, but are afraid to say anything to anyone else, because they think they are the oddball. that is not true. i've found that there are a lot of people like myself who got put into this boat. i didn't realize that the folks at this newsgroup were getting putting on the same boat, but for a different reason.
maybe these treatments for BPH have a higher incident of orgasm causalities but unless we speak out, nobody will know.
let me say this for the sake of putting some peace of mind with everyone. the erections nerves and the orgasm nerves travel along two separate routes. they told me that i could still have orgasms, and that i would "feel" the sensations, but nothing else would happen because all the plumbing would be gone. what they didn't tell me is the quality of the sensations would be gone and it wasn't until i hit my surgeon with point blank questions, did i find out the rest of the story. and that is what you guys are saying here, basically, the same story, but for a different reason.
as i've said in the previous post, i've learned to regain most of what i've lost. i feel that it can be done, but i couldn't put in a newsgroup post.
i hope this information has helped.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Ron - 27 Feb 2004 23:03 GMT Thanks Curtis for an honest & courageous post. I never knew about the 2 separate routes. ron
> From: PALMER_ENT@webtv.net (c palmer) > Organization: WebTV Subscriber [quoted text clipped - 33 lines] > > knowledge is power - growing old is mandatory - growing wise is optional MB - 28 Feb 2004 00:39 GMT Curtis:
Just curious --- how did you get dx. with pc?? By this I mean what made you suspect PC. Was it a rising or high PSA??
Also, did you also have to undergo any treatments in addition to the surgery??
Just curious.
Mel
> hi guys - i'm going to shot at this (ooooh, that could be a bad choice > of words :) [quoted text clipped - 63 lines] > > knowledge is power - growing old is mandatory - growing wise is optional c palmer - 28 Feb 2004 04:18 GMT hi mel - no problem. i don't mind discussing all this. in fact, i feel like this part of our lives is what gets us into trouble.
i'm a vietnam vet. i've been as healthy as a horse all my life. no hospitals, surgeries, nothing. as i was aging, i was noticing the usual aging problems, the knee joints giving out, the aches and pains and getting around, but still stayed active.
in the sexual dept, i didn't notice much difference with the exception of the amount and force, but there is a little thing called, "male menopause" that we don't know that much about. if you do a google on it, you should turn up something on it. but it tells how a man will not sleep as well as they age, that they will start getting up at night, that the force and amount of ejaculate would be reduced (really it is due to the reduction in testosterone) you see, testosterone causes muscle mass. remember the weigh builders who want to bulk up with the shots? and when you were a child and became and man, the testes kicked in and you got muscles. well, it's going to other way, the hormone is waning and the amount of fluid is going down and the muscle group that causes the ejaculation process is getting weaker, etc, etc.
so, i hadn't had a check up in a few years and thought i better pull in to the old doc and have him raise the hood and check the oil. they took my blood and i flunked four out of five blood tests. whoa!!!! what the hell??? and one of them was the psa test. got myself a 5.79 the first thing they did was put me on an antibiotic and checked me in two weeks. came back 4.8. hey, that's looking a lot better, but they said, no, they wanted me to go see the uro man. so, off to the uro i go. he looked at my records, my butt, my prostate, and my family history, and sat down and told me, "you've got a 25% chance of having prostate cancer right now. we are going to pull a psa today and if it comes back 3.99999999999999999, then we won't do anything, but if it comes back 4.000000000000, then we are going to do a biopsy." they pulled the psa.....came back 6.35. holy sh.t!!!!!!!
well, got the probe in the butt trick and that was an experience. you are laying on your side and can't see what they are doing and the surgeon is calling people you've never met - to look at all this and you aren't invited. and the surgeon is saying such phrases as, "see how clear and define that is" and "see how black and white that is" now, that makes you wonder all the while this is going on. so, when he got done firing those needles and getting the samples, i ask him if he saw anything.
now, let me stop here for a second. he and i have hit it off pretty good and he knows that my knowledge is pretty deep in this area as well as my background, so he wasn't trying to stone wall me.
now, back to the question. when i ask him about what he saw, he said i was full of prostate stones. hell, i didn't even know that much about prostate stones. he said, "sure, let me get some pictures for you" and with that, he went over and ran off four photos of my prostate taken at various angles. he took the time to explain what direction he was looking at and you could see the prostate stones quite easily. i've still got the photos. don't know if i will frame them though.
after 3 weeks of pacing the floor i get to meet with the surgeon for the news. 1/3 of the cores came back positive with prostate cancer. given the stage of T1c, a gleason score of 6 (3 + 3) i'm half way shocked, but not totally losing it. i thought i could explain away the psa reading by the infection and the BPH. he said i was a good candidate for surgery, but he could arrange the meeting with radiology if i wanted.
i asked him how long would i live if i did watchful waiting? he looked at my records and said, "you will not see 70 and the last three years will be in pain." i knew he was right because i walked my dad all the way through to the end.
so, in the next month, i did my homework and research, research, research and kicked around the options with surgery always coming out the on top. i didn't want it but the facts were there. so, i opted for surgery with nerve sparing.
the surgery was a piece of cake. hardly any pain, the waiting for the surgery was the bitch and i mean it is any sense of the word. to lay there and wonder at night. the not knowing. afterwards, you are so relieved to know it is out of you.
the path report came back. all gland contained, negative margins - meaning the cancer didn't get out. reconnective tissue was clear of cancer. so all i had to do was heal.
erections came back before the catheter was pulled out 22 days later.
i'm 10 months post op now. still leak a little, but either i've accepted it or it's not a big deal. normally, i don't have to wear any pads now.
i did have complications. 6 months worth. i scarred up from where they sewed everything back together. the first surgery after my RRP was with the cystoscopy and to dilatation of the scar tissue. boy, that hurt worst than the surgery itself. less than two weeks later, i'm down to a dribble. this time, the surgeon tells me he's going to do a TURP and that it will take about 20 minutes to do. now, i'm have been getting no more than 90 minutes of rest at any time - day or night for 6 months. and i have gotten up as much as 16 times to go to the bathroom in a period of 90 minutes. as soon as my bladder starts filling up, it is all or nothing. i'm like that gotta go, gotta go commercial.
so, when he did the TURP, i got on the operation table at 10am and was put into the recovery room at 12:30. when the surgeon came by, he asked me how i was feeling and we told a couple of jokes to each other. then i said, "hey! you said it would be about 20 minutes and here it is 2 and half hours later. is there something i need to know?" he laughed and said, "how long does it take a sniper with one bullet to do the job? the rest of the time was set up time."
well, anyway, since then, i'm back to normal. my bladder fills up and feels like it do before cancer, i pee like a race horse, and i getting my energy back. i would say i'm 99% back to where i was only without the cancer.
now here's the scary part........ my prostate weighed in on the path at 55 grams and had pushed ring into the floor of my bladder. the surgery took care of that problem, but they said when they got in there, there was a piece of BPH growth tissue that had grown out of the prostate and pushing into the bladder and was forming a flapper valve over the urine output of the bladder itself. in other words, total shutdown. he said, "you were going to see us, one way or the other, but it's all taken care of now."
i have no treatments to take and all they are doing is the taking of blood every six months to make sure it comes back as undetectable.
so, that's my story and i'm sticking to it. would i do again, given everything i've went through? in a heartbeat and with no reservations.
right now, my life is bright and there's a sunrise, where there was a sunset. all of this was nothing more than a speed bump in the road of life. i've got a whole of lot of living to do.
i hope this will provide answers to some of your questions.
my advice......take a close watch on your prostate. if you notice changes, don't take them lightly. and watch that psa reading. if you get a .75 rise in a one year period, that is a warning sign. so if you have a psa of 1.5 and it jumps to 2.7, that is telling you something even though they are using 4.0 as a cutoff point.
i want to wish everyone low psa's
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
nambucca - 28 Feb 2004 08:52 GMT > hi mel - no problem. i don't mind discussing all this. in fact, i feel > like this part of our lives is what gets us into trouble. [quoted text clipped - 141 lines] > > knowledge is power - growing old is mandatory - growing wise is optional Trust you know about the number of Vietnam vets who all have/got cancer of the prostate ...............along with a host of other agent orange induced diseases
c palmer - 28 Feb 2004 10:32 GMT hi nambucca - i didn't tell the rest of the story because this newsgroup is for BPH and i was trying to stay on topic and offer support where i can.
the truth of the matter, is that i had two cancers, prostate cancer and skin cancer. i had a total of 5 surgeries last year and up to last year, i was, as i said before, healthy as a horse.
i have tried to get compensation from the gov't because prostate cancer is one of the diseases they will admit to. i filed and got compensation for my hearing because he fired 54 lbs of gun powder without hearing protection of any kind. i've been hard of hearing ever since i came back.
since i filed, i'm now told that i never set foot in vietnam and that i didn't serve in country. granted, i was in the navy, but we were doing all those things that the gov't said doesn't happen. they took all the pictures, log books, anything to do with certain events and now are telling me to prove my case.
my DD 214 is just as screwed up. in one area, it states that i did not serve in indochina, yet the next line shows all the vietnam metals and navy unit commendations.
luckily, i still have my cruise book, the cover page is a letter written from my commanding officer, stating that it will be years before the true story of our mission is ever told. it has some of the action photos of what we saw in it. but also at the end of the book is the ports of call we visited. and low and behold, i have two full pages of da nang, vietnam. they still say that's not good enough. that i wasn't there.
i had gone to my congressman and launched an investigation and they were so bold as to tell them the same thing. i then ask my congressman for one more request - the log book entries for the ship. and bingo!!! it is now declassified, but there is 1/4th of a page of dates on is just eye witness accounts of events of action alone. our position was special ops - that's all it says and the ship's log show that we were in port not once, but twice in da nang. it has been a year fighting for any compensation, and has not received anything. the gov't did my surgery at scott air force. i had military doctors do the operations and it has not cost me one cent, yet they say i wasn't there. go figure.
also keep in mind that when i came back home, i was called, "baby killer", had my uniform spit on, had people walk up to me and say, "nothing personal" and give me the finger, lived near the base, where signs were posted "dogs and sailors, keep off the grass" or "dogs and sailors, keep out" was taking a class at a college in california and during class discussion, students found out i was in the military, when i went out to get into my car, my tire had been knifed, and my windshield broken.
so, i guess my next question is this - who's the real casualties of the war?
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
nambucca - 29 Feb 2004 21:24 GMT > hi nambucca - i didn't tell the rest of the story because this newsgroup > is for BPH and i was trying to stay on topic and offer support where i [quoted text clipped - 55 lines] > > knowledge is power - growing old is mandatory - growing wise is optional thats funny our good friend was in special forces and in Cambodia but was not in Cambodia !!!!!!!!!!! He is part of a huge web site of people like you do you know about it ??????
c palmer - 01 Mar 2004 00:53 GMT hi nambucca - i'm not aware of it, but am interested in the web site.
people don't know how frustrating it is when you try to get something done on you and they said you weren't there and then everything has either been deleted or classified.
best vietnam movie i ever saw that showed what was going on was "flight of the intruder"
the pilot took matters into his own hands and blew the hell out of sam city and was going to be court martial him, but the gov't dropped the charges because they would have to admit that sam city existed in order to do that, and the gov't has always said it didn't.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
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