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Medical Forum / Diseases and Disorders / Prostate BPH / March 2004PVP + 5 weeks: Celebration!
Five weeks after PVP (and 6 since last 'event'), first time: no retro ejac! <g>. (Urine) flow still disappointing, though perhaps just slightly better. (Wonder if this might be because the uro did less than he might after I specifically asked to try to avoid retro...) No sign whatsoever of blood since 3-day aberration a week ago. Maurice Batey (Retired in Hampshire, UK) http://www.maurice.eurobell.co.uk (Change "no.spam" to "." in E-mail address.) Five weeks after PVP (and 6 since last 'event'), first time: no retro ejac! <g>. (Urine) flow still disappointing, though perhaps just slightly better. (Wonder if this might be because the uro did less than he might after I specifically asked to try to avoid retro...) No sign whatsoever of blood since 3-day aberration a week ago. Maurice Batey (Retired in Hampshire, UK) http://www.maurice.eurobell.co.uk (Change "no.spam" to "." in E-mail address.) Its odd that your urine flow is little better If Gordon Muir did your op he would want to know why Have you had a follow up appointment ? As for retro I had it for 7 months but its reversed itself now and the flow is fantastic but then it has been from straight after the op nambucca, When you had the retro, Was there semen coming out in the urine via prostate into bladder. Or was there no semen at all visible in urine? Can PVP seal off [block] the semen ducts in the prostate? And if so, can this be undone? > From: "nambucca" <nambucca@nospam.com> > Organization: BT Openworld > Newsgroups: sci.med.prostate.bph > Date: Wed, 18 Feb 2004 23:00:54 +0000 (UTC) > Subject: Re: PVP + 5 weeks: Celebration! > ...As for retro I had it for 7 months but its reversed itself now and the flow > is fantastic but then it has been from straight after the op... > nambucca, > [quoted text clipped - 12 lines] > > > Cant tell you .....didnt look but certainly had dry orgasm ......soon noticed when the retro reversed though Thanks for reply. If anyone else had post PVP, no semen at all (& none coming out in urine - so not considered retrograde), please share experience. > From: "nambucca" <nambucca@nospam.com> > Organization: BT Openworld [quoted text clipped - 23 lines] > but certainly had dry orgasm ......soon noticed when the retro reversed > though > Its odd that your urine flow is little better > If Gordon Muir did your op he would want to know why > > Have you had a follow up appointment ? I've discussed this with Larner (he gave me his mobile/cellphone number!). His reply: "Patience!". He routinely does the follow up at PVP + 3 months. Maurice Batey (Retired in Hampshire, UK) http://www.maurice.eurobell.co.uk (Change "no.spam" to "." in E-mail address.) On Sun, 18 Feb 3904 23:00:54, "nambucca" <nambucca@nospam.com> wrote: > Its odd that your urine flow is little better > If Gordon Muir did your op he would want to know why > > Have you had a follow up appointment ? I've discussed this with Larner (he gave me his mobile/cellphone number!). His reply: "Patience!". He routinely does the follow up at PVP + 3 months. Maurice Batey (Retired in Hampshire, UK) http://www.maurice.eurobell.co.uk (Change "no.spam" to "." in E-mail address.) Hmmmmmmm.........Gordon Muir does his follow up at 6 weeks I guess Larner could be right if some kind of inflamation is still causing the poor urine flow but mine was totally amazing from straight after the op ..... >I've discussed this with Larner (he gave me his mobile/cellphone >number!). >His reply: "Patience!". > >He routinely does the follow up at PVP + 3 months. Glad to hear you're celebrating, Maurice ! I've just got around to my follow-up with Mr Larner, at PVP+ 4 months or so. He's happy with my flow rate, but wants to see us at PVP+ 12 months to do proper longitudinal assessment of the technique and compare PSA. I didn't score zero on the AUA, but I reckon "1" is quite an improvement on "23". He has noted all my problems post-PVP during the first couple of months.... acute retention, blood clots, and is presenting a paper to fellow surgeons on a warts-and-all appraisal of PVP. That doesn't mean he isn't happy with the operation, but he doesn't think that advertising it as totally straightforward and problem-free is right. To go back to a well-discussed topic, when Laserscope talk of a 30-minute op, I'll bet it is problem-free! My prostate was probably that small 30 years ago. But having removed 185 ml of material from mine, Larner says there's no way a major op like that wouldn't take time to recover from. Chris, Do you realize that you can't do a regular TURP on a 185 gram prostate because of the real possiblity of major bleeding. The only options for a 185 gram prostate is open prosectomy or PVP. You should be very happy you had this choice. Patrick > >I've discussed this with Larner (he gave me his mobile/cellphone > >number!). [quoted text clipped - 23 lines] > mine, Larner says there's no way a major op like that wouldn't take > time to recover from. Chris wrote: > > He has noted all my problems post-PVP during the first couple of > > months.... acute retention, blood clots, ......... CHRIS, Am I right in thinking from your post that you had acute retention after PVP!? (If I think this is the first time it has been reported from anyone here.) How long after? and did Tim Larner give you specific instructions on what to do if it happened and what were they? Regards, Magna No it isn't the first time that someone in this NG had acute retention following PVP! The day after my surgery, back in November, I went into retention and had to be taken to the emergency room via ambulance later that night. I had a thread up on the newsgroup called "PVP nightmare", but it has miraculously disappeared! Just wondering who is the little guy behind the screen monitoring this group? My prostate was 88 grams and after two months I had urgency, frequency and a hell of a lot of pain. Thankfully, acupuncture has made life bearable. It's been 3 months post, for me and I'm still having some post-urination irritaion, but the urgency is way down and that makes it possible to function reasonably well. Marcus > Chris wrote: > [quoted text clipped - 13 lines] > > Regards, Magna Marcus wrote: > I had a thread up on the newsgroup called "PVP nightmare", but it has > miraculously disappeared! Just wondering who is the little guy behind the > screen monitoring this group? I don't think there was anything very miraculous about the 'disappearance' of the 'PVP nightmare' thread. All ISPs, in my experience, only carry the more recent postings in any newsgroup. Some keep older postings up a little longer than others, but they quite quickly disappear -that's why archives like the Google one exist. I did a quick search in Google Groups for 'PVP nightmare', and lo and behold, a nice little thread with six postings came up on the first page. So if there is a 'little guy' somewhere waiting to censor Marcus's postings, he's probably to be found in the offices of his ISP! Richard Slessor Interesting.....why would the "little man" at the ISP delete that particular listing? Perhaps we should do a search for "littlemanan@ISP.com? > Marcus wrote: > [quoted text clipped - 15 lines] > > Richard Slessor I also went into retention the day after my first PVP and several other times thereafter, with bloodclots and dark red urine for 7 and a half weeks after that. I had to repeat the PVP 14 months later. This one left me with problems as well. This surgery is not a picnic for everyone, though those who try to warn, are often picked on. > From: "Sasha Gottfried" <sashago@comcast.net> > Newsgroups: sci.med.prostate.bph [quoted text clipped - 33 lines] >> >> Regards, Magna Ron, When and where did you have your PVP surgery? Marcus > I also went into retention the day after my first PVP and several other > times thereafter, with bloodclots and dark red urine for 7 and a half weeks [quoted text clipped - 39 lines] > >> > >> Regards, Magna I'm not wanting to point the finger and to blame. I just want people to be aware that they might have side effects from the PVP that they did not anticipate. For example: overwheming urgencies to pee that come very suddenly, and sexual side effects that destroy orgasm and sexual satisfaction. Other than that, I don't want to be more specific at this time. But I will say that my first PVP was Oct '02, and my second, mid - Dec '03. > From: "Sasha Gottfried" <sashago@comcast.net> > Newsgroups: sci.med.prostate.bph [quoted text clipped - 57 lines] >>>> >>>> Regards, Magna > I'm not wanting to point the finger and to blame. > I just want people to be aware that they might have side effects from the [quoted text clipped - 67 lines] > >> > > A bad workman blames his tools !!!!!! Maybe people sould know which area you are in because your problems could just as well be user error or of course they could be connected with some other medical condition which complicated things There was no other medical condition. The doctor was an experienced surgeon. My point is that there are risks anyway, and some might be unanticipated (as it was for me). Ask your surgeon if he can guarantee that you will not have the side effects. See what he says. Those willing to take the risks should go ahead. > From: "nambucca" <nambucca@nospam.com> > Organization: BT Openworld > Newsgroups: sci.med.prostate.bph > Date: Mon, 23 Feb 2004 17:26:58 +0000 (UTC) > Subject: Re: PVP + 5 weeks: Celebration! >...Maybe people sould know which area you are in because your problems could > just as well be user error or of course they could be connected with some > other medical condition which complicated things > There was no other medical condition. > The doctor was an experienced surgeon. My point is that there are risks [quoted text clipped - 11 lines] > > just as well be user error or of course they could be connected with some > > other medical condition which complicated things Actually my surgeon assured me that there theorectically was a slight risk of incontinance but it had not happened in any of the other 100 plus ops he had done and there was a risk of retro but that no other side effects or risks had been encountered or could be envisaged Having been treated abominably by a previous Uro who wanted to do a TURP and had the audacity to INSIST that there were NO SIDE effects from a TURP and then slipped in but you will have retro I I had run a mile from him ...........hence was very careful indeed to ask a million questions before having PVP I was aware that there was a slight risk of retrograde (about 9%). Since my second PVP (after the fact), I've been old that the risk of retro is 30 to 40 %. But what I have now is not retro. No semen is coming out from penis or in urine via bladder. So there is no climax feeling - no release or satisfaction. I had experienced temporary retro when I was on flomax. This is a very different experience: One that I was not warned about. I just think that those considering this surgery should be aware of this possibility - which I did not get from my first surgery (didn't even get retro). I'm still hoping that it's not permanent. But at 10 wks post OP, I'm not too optimistic. I'm still waiting that maybe someone else had this experience, which they would share with us, and I'm hoping that after a few months, things returned to normal. One can hope, but then one must accept. > From: "nambucca" <nambucca@nospam.com> > Organization: BT Openworld [quoted text clipped - 31 lines] > ...........hence was very careful indeed to ask a million questions before > having PVP I think what you are experiencing is retro. A very bad case. When I took one Flomax I had retro, but it wasn't that bad. Occasionally ejaculated and good amount of feeling. With two Flomax, it was very similar to your current situation. Hope it improves. With Retro, the semen goes into the bladder coming out in urine. I have no semen coming out in urine. Either the sperm was blocked by PVP, so no longer coming into prostate, or so much prostate was destroyed so the fluid of the prostate is not produced, or both. Very different than my Flomax experience of Retro. Thanks for your good wishes. ron > From: sky321@yahoo.com (sky) > Organization: http://groups.google.com [quoted text clipped - 6 lines] > ejaculated and good amount of feeling. With two Flomax, it was very > similar to your current situation. Hope it improves. Ron: Assuming what you say is true, it would be helpful to know a bit more. I know one person's bad experience led me to not see that particular doctor. Fortunately, there are a few more NOW in my area. Mel > I'm not wanting to point the finger and to blame. > I just want people to be aware that they might have side effects from the [quoted text clipped - 65 lines] > >>>> > >>>> Regards, Magna Sorry to hear you have had problems. So many guys (me included) have reported excellent PVP results that we know the Laserscope machine can do a good (maybe even miraculous)job. But the machine does not work automatically, a trained surgeon has to use it. And it can't reverse damage that has already occurred or fix unrelated secondary health problems. I have noticed that those of us with successful procedures don't hesitate to name their doctors, and we have seen those names over and over. But some of you guys with unsuccessful experiences don't seem willing to disclose who the surgeon was or where the procedure was performed. You mention "warning" others, it seems to me the best warning would be letting other guys know where not to go. Al > I also went into retention the day after my first PVP and several other > times thereafter, with bloodclots and dark red urine for 7 and a half weeks [quoted text clipped - 39 lines] >>> >>>Regards, Magna I found the post "PVP Nightmare" on previous page #7, so you can find it if you search. I don't think anyone is editing or censoring posts which are on topic. Please continue to post and just tell it as you see it. As I've said before, my experience with PVP was mildly, but not wildly successful. What I did like about it was the relatively mild (for me) after effects. Catheter time was short, very little bleeding, and mild pain. Recovery time was about two weeks before I could resume lifting anything over 10 lbs. At PVP + 4 months, I have retro, but I had that after the TUIP. I get up twice a night and I can go for about two hours between daytime urinations unless I drink a lot of coffee, to which I admit being mildly addicted. I could give up caffeine, but I prefer not to. I am 70 years old with a PSA of 0.3 and have had BPH for about 15 years or so, although it's hard to pinpoint the onset. -- Try the German news server news.individual.net. You have to register with them but they keep posting for a very long time. All of your PVP nightmares are there. Derek. > No it isn't the first time that someone in this NG had acute retention > following PVP! The day after my surgery, back in November, I went into [quoted text clipped - 28 lines] > > > > Regards, Magna |
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