Medical Forum / Diseases and Disorders / Prostate BPH / January 2004
TUMT Survivors
|
|
Thread rating:  |
Tony - 07 Jan 2004 18:02 GMT I would like to hear from only those who have had the TUMT procedure done. Would appreciate your starting with a detailed description of the problems that prompted you to have the procedure and the results, both positive and negative that you have experienced since. Thank you.
Tony
Patrick - 08 Jan 2004 03:16 GMT I had a TUMT. It didn't work as I had a large median lobe. Seven months later I had a PVP and that worked great.
In my opinion, TUMT is a waste of time and effort now that PVP is widely available.
Patrick
> I would like to hear from only those who have had the TUMT procedure done. > Would appreciate your starting with a detailed description of the problems > that prompted you to have the procedure and the results, both positive and > negative that you have experienced since. Thank you. > > Tony Midlife - 09 Jan 2004 07:32 GMT I had a TUMT almost 2 years ago, following several years of increasing BPH symptoms (frequency, recurring urinary infections, and rising PSAs). An immediate procedure was made necessary by the results of a an appendectomy, when my bladder was allowed to overfill, became distended and could no longer push my urine past the prostate easily. Luckily, I've never been awakened by the urinary urge at night. Now I wake myself once, just to help keep my bladder in good shape.
My symptoms subsided significantly after the TUMT, but the prostate has now grown back to even larger than it was before the TUMT (Uro says 170 grams, believe it or not). Biopsy was negative and symptoms are not significant at all......... however a further procedure is inevitable. My Uro says his group is gaining access to PVP equipment this month, and he will consider a procedure for me after they have some experience.
Had PVP been available 2 years ago, it would have been my only choice.
> I would like to hear from only those who have had the TUMT procedure done. > Would appreciate your starting with a detailed description of the problems > that prompted you to have the procedure and the results, both positive and > negative that you have experienced since. Thank you. > > Tony Richard - 10 Jan 2004 12:26 GMT I had TUMT (Targis) in July 2000. My main symptom was slow flow, with some evidence of retention and raised bladder pressure. I have never had urgency under normal circumstances, and only mildly increased frequency.
After TUMT the flow gradually increased over the first few months, stayed at an acceptable 15 ml/sec for a year or so, then began to decline. By the end of 2001 I needed a TUIP. As regularly readers will know, that didn't work either in the longer term (despite excellent flow rates initially), and I've recently had PVP done.
If you look at the archives for this group you will see several other reports of only limited durability for TUMT. However, as I've remarked before, anyone for whom it *did* work is much less likely still to be monitoring the group postings, so we may not be getting a true picture of overall success rates.
Even so, while it's too early to judge the success of my own PVP treatment, on balance I'd still be inclined to agree with Patrick that it would be better to go for PVP - very little more traumatic, as quick to recover from, and likely to be more effective because it removes more tissue. If I were starting my surgical treatment of BPH now, I think I'd be going for PVP straightaway (in 2000, it was in its early trial stages, and I suspect no-one on this group had even heard of it).
Richard Slessor
FK - 12 Jan 2004 19:22 GMT Had TUMT in 1990 never did any good,in fact it was the most painful post treatment time I ever had ,including a full gallbladder surgery.
Frank I had TUMT (Targis) in July 2000. My main symptom was slow flow, with some evidence of retention and raised bladder pressure. I have never had urgency under normal circumstances, and only mildly increased frequency.
After TUMT the flow gradually increased over the first few months, stayed at an acceptable 15 ml/sec for a year or so, then began to decline. By the end of 2001 I needed a TUIP. As regularly readers will know, that didn't work either in the longer term (despite excellent flow rates initially), and I've recently had PVP done.
If you look at the archives for this group you will see several other reports of only limited durability for TUMT. However, as I've remarked before, anyone for whom it *did* work is much less likely still to be monitoring the group postings, so we may not be getting a true picture of overall success rates.
Even so, while it's too early to judge the success of my own PVP treatment, on balance I'd still be inclined to agree with Patrick that it would be better to go for PVP - very little more traumatic, as quick to recover from, and likely to be more effective because it removes more tissue. If I were starting my surgical treatment of BPH now, I think I'd be going for PVP straightaway (in 2000, it was in its early trial stages, and I suspect no-one on this group had even heard of it).
Richard Slessor
M. Gregg Smith - 25 Jan 2004 05:12 GMT I have not looked at the prostate newsgroups for years, but decided to do so tonight. I saw Tony's request for replies from "TUMT survivors."
I don't know what a "TUMT survivor" is. I had TUMT about five years ago and was thrilled to be able to avoid TURP with its near-certain retrograde ejaculation and high rate of negative outcomes.
I wrote up a report and posted it on the internet years ago. It is below.
I'm very pleased with the results of my TUMT and would highly recommend the procedure. But.....as with any medical procedure the key is having a knowledgeable, skilled urologist. I did and had a great outcome.
By the way, I'm a retired real estate developer, age 63.
Gregg Smith Salem, Oregon USA
(P.S. Some of the phone numbers, addresses, etc. below may have changed since 1998.)
++++++++++
My Experience With Transurethral Microwave Thermotherapy (TUMT)
For men suffering from serious BPH (benign prostatic hyperplasia), or prostatic obstruction, and facing the possibility of the surgical procedure known as a TURP (transurethral resection of the prostate), I would like to describe my experience with BPH and an obstructed bladder and how I
reached a decision to cancel a scheduled TURP and select a non-surgical
alternative therapy called a TUMT (transurethral microwave thermotherapy).
For approximately 18 years I had what my personal physician and my urologist described as a 'moderately enlarged prostate.' I had symptoms of BPH, but I was treating it successfully with the herb saw palmetto (which Merck reportedly synthesized to create Proscar). I had more-frequent-than-normal urination, low volume, a weak stream and occasional urgency, but I seldom had to get up more than once at night to urinate. Things seemed under control and I thought that perhaps in 15 - 20 years I would have to have some sort of prostate procedure.
On November 13, 1997, I had major knee surgery under general anesthesia. Anesthesia and narcotic-based, pain-killing drugs given to a patient during and immediately after surgery may cause the prostate to swell and the bladder's smooth muscle tissue to weaken. This is what happened in my case. In the 48 hours following my knee surgery, my prostate swelled and obstructed the bladder outlet. My bladder was too weak to push the rising volume of urine past the prostatic obstruction and it became distended. I went into retention (that is, I completely lost the ability to urinate) and I had to be catheterized. I was placed on Cipro and Flomax (.8 mg). Over the next month four separate attempts to come off the catheter were unsuccessful and I was scheduled for a TURP on December 19, 1997.
I did not want a TURP because of the near-certainty of retrograde ejaculation following surgery and the possibility, although admittedly small, of impotence, incontinence, internal bleeding and strictures, the latter two of which would require further surgery. However, I saw no alternative to a TUPR other than wearing a catheter for the rest of my life.
Days before my planned TURP I read a magazine article on new medical technologies in Newsweek Extra, Winter 1997-98, page 78. The article contained a reference to a new microwave technique for treating BPH. I cancelled my TURP and got on the Internet. I downloaded a number of files on what I came to understand was called a TUMT (transurethral microwave thermotherapy). I discovered that this technique had been used in Europe and Canada since 1990. In May, 1996, the FDA approved the first TUMT device for use in the U.S., the Prostatron 2.0 protocol. The device is manufactured by
EDAP Technomed, Inc. of Norcross, Georgia, phone (770) 446-9950.
(see www.edaptechnomed.com.). The Prostatron 2.0 protocol is designed for
normal BPH. The Prostatron 2.5 protocol, approved by the FDA in November,
1997, is designed for serious obstruction cases, such as I had.
Through EDAP Technomed I identified a physician in Canada, Dr. Ronald
Sorensen, (phone: 800-668-8868) with several years experience using the
Prostatron, including 300 procedures with the 2.5 protocol. I was aware that
the 2.5 protocol would be available in the U.S. early in 1998, but I did not want
to be the first patient through the gate as the new 2.5 protocol was implemented
at a U.S. medical facility. I felt it best to obtain the treatment from someone with
substantial experience in the specific protocol I needed. Consequently I flew to
Canada and Dr. Sorensen performed the TUMT on me on January 18, 1998.
(Note: If I were to have a TUMT today, I would have it an a U.S. medical facility
now that they have ample experience in both the 2.0 and the 2.5 protocols.)
The FDA has now approved two additional TUMT devices for use in the U.S. They are the Urologix T3 / Targis system (see www.urologix.com),
and the Dornier Urowave system (see www.dornier.com). For FDA TUMT
approval information call (301) 594-2194.
Below is a comparison of the TURP with the TUMT. I have gleaned the data from a number of sources. Don't hold me to any specific number since there are a variety of studies with differing results. Nonetheless, the general trend shown in the data seems reasonably accurate.
TURP: General anesthesia or spinal anesthesia. TUMT: Local anesthesia in urethra.
TURP: Two - three days hospitalization for surgery and post-operative recovery. TUMT: Outpatient procedure - three hours for preparation, procedure and recovery.
TURP: Two or more weeks of inactivity following release from hospital. TUMT: Resumption of normal activity the day following the procedure.
TURP: Retrograde ejaculation: more than 90% TUMT: Retrograde ejaculation: 2.0 protocol: 0% 2.5 protocol: 20%-40%
TURP: Impotence: +/- 5% TUMT: Impotence: 0%
TURP: Incontinence: +/- 1% TUMT: Incontinence: 0%
TURP: Internal bleeding, serious, requiring intervention: +/- 4% TUMT: Internal bleeding, minor, self limiting: 10%-20%
TURP: Strictures: 4.5%-11% TUMT: Strictures: 0%
TURP: Post -TURP syndrome: +/- 2% TUMT: Post-TUMT syndrome: N. A.
TURP: Retreatment required: 12%-15% TUMT: Retreatment required: less than 10%
I did not want to subject myself to any of the risk factors associated with a TURP when a "TUMT produces subjective and objective improvements of BPH symptoms in a comparable range to a TURP." Quoted from "High Energy Thermotherapy versus Transurethral Resection in the Treatment of Benign Prostatic Hyperplasia: Results of a Prospective Randomized Study with 1Year Follow-up." Journal of Urology, 158:120-125, 1997. A synopsis of this article and others may be found on the Internet at: http://www.uroweb.org/literature/index.html.
A TUMT is not surgery. It uses a catheter inserted up the urethra to direct microwaves into the center of the prostate gland killing a small number of cells. As the dead cells collapse and are absorbed, the gland shrinks toward its center, relieving pressure on the urethra. The shrinkage occurs relatively
slowly, with maximum shrinkage being achieved around three months but
with symptoms sometimes improving for up to a year.
I had been catheterized for two months prior to my TUMT procedure. It was also necessary for me to be re-catheterized following the procedure to allow the swelling of the microwave-treated prostate to recede. I was instructed to leave the catheter in for about two weeks. Out of superstition I chose to go three weeks and removed the catheter on February 9, 1998, my 58th birthday. (I believe catheterization after treatment with the 2.0 protocol may be unnecessary in some cases, or only be necessary for a day or two.) As soon as I removed the catheter I was able to urinate. I was ecstatic. It was my first successful urination in three months. Over the next several weeks
I experienced steady improvement in the strength and volume of my urination.
Following my TUMT I was advised that I might have to intermittently
self-catheterize after I removed the catheter. That proved to be my experience upon rising in the morning with a full bladder. The bladder fullness apparently
put unfamiliar pressure on the system and caused urine flow to nearly cease.
However, I only had to self-catheterize upon rising the first two mornings after
I removed the catheter. By the third morning I had a good flow. I was also
advised that after removing the catheter I should self-catheterize several times
to do voiding tests. These tests were to ascertain the residual volume of urine
in my bladder following urination. If the residual was over 200cc I was told I
would need to intermittently self-catheterize during the day to keep the volume
of urine in the bladder below 500cc. If the residual was under 100cc I was told I could stop self-catheterizing. I tested three times after urination and in
each case my residual was under 90cc, so I stopped self-catheterizing.
I experienced no pain following the TUMT, although in the 24 hours after
the procedure there were episodes when I felt extreme urgency to urinate.
This was the only discomfort I experienced. There was very minor bleeding
after the procedure, which tinged my urine a rosy color. This lasted for
several weeks and is normal.
At exactly two months after my TUMT my urinary flow weakened and the frequency of urination increased. For a few days I was very concerned that something was not right. One day I self-catheterized to check the residual level in my bladder. I was relieved to find that it was minimal. I called my Canadian urologist's staff and was told that this event was normal. When the 2.5 protocol is used on a serious obstruction, such as I had, the heat at the center of the prostate gland reaches such a level that it kills cells as far out as the urethra lining. As these cells die and are sloughed off, they may obstruct the urethra somewhat and reduce urinary flow. I passed small flecks of dead tissue for about one month. By three months after the TUMT there was no more dead tissue in my urine and my urinary flow was excellent.
My sexual performance has been normal, or actually improving several months after the TUMT. I now produce seminal fluid upon ejaculation at four-to-five
times the volume as before the procedure.
In summary, I had a fully-obstructed bladder and had been catheterized for two months prior to my TUMT. The new Prostatron 2.5 protocol was specifically designed for cases like mine and it seems to have worked very well. The cost seemed reasonable to me, but it will vary from place to place. I paid $5,000 for my TUMT, of which my health insurance will cover
only a portion since this was an out-of-country procedure.
If you want a consider having a TUMT you will need to shop around for a
medical facility near you offering this service. Most U.S. urologists do not
yet have experience with the TUMT. Furthermore, some urologists may be
resistant to the TUMT. The capital cost of the equipment and the necessity
for learning a new technology may cause some urologists to stick to what the
urology profession calls its "gold standard" - the TURP. However, based on
my personal experience I would echo a second quote from the above-cited
article "High Energy Thermotherapy versus Transurethral Resection in the
Treatment of Benign Prostatic Hyperplasia etc." To wit:
"...looking...at the results presented by the authors, one might doubt that TURP is a gold standard treatment for BPH. Indeed, with only 43% of patients being improved both in flow and BPH symptoms and 78% when considered symptoms only, we could be more cautious when stating unanimously that TURP, even performed by experienced urologists as in this study, is unequivocally the gold standard (maybe for the urologists, but not necessarily for the patient...)."
I would be happy to correspond with any man interested in my personal experience with a TUMT. If you wish to contact me, my e-mail address is:
mgreggsmith@attbi.com
One final note. There has been a lot of discussion about laser treatment of BPH. I would say only one thing. Most lasers are just different kinds of knives. They cut. Surgery may be necessary and appropriate for many men, depending on their specific cases. However, I suggest any man considering surgery ask a lot of questions, read everything available and explore all the options. There is a great deal of information on the Internet on the TUMT. Just put "TUMT" into your search engine and hit "search." Some articles you may want to read are:
1. D'Ancona, FCH; Francisca, EAE; et al; "High Energy Thermotherapy versus Transurethral Resection in the Treatment of Benign Prostatic Hyperplasia: Results of a Prospective Randomized Study with 1 Year Follow-up,"
Journal of Urology, 1997:158:120-125
2. Blute, M. and de Wildt, M; "Transurethral microwave thermotherapy for BPH," Contemporary Urology,1996:8:10
3. Dahlstrand, C.; Geirsson, G.; et al; "Transurethral Microwave Thermotherapy versus Transurethral Resection for Benign Prostatic Hyperplasia:
Preliminary Results of a Randomized Study," European Urology, 1993:23:292-298
4. Oesterline, Joseph E., M.D., "Benign, Prostatic Hyperplasia, Medical and Minimally Invasive Treatment Options," The New England Journal of Medicine,"
January 12, 1995, Vol. 332, No. 2.
5. Politis, G; Pardalidis, N; "Transurethral Microwave Thermotherapy (TUMT) in Benign Prostatic Hyperplasia (BPH) Three Years Later," paper presented at 1996 EAU Congress in Paris, see Internet: http://www.uroweb.org/posters/paris96/98/index.html
M. Gregg Smith Salem, Oregon November 8, 1998
|
|
|