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Medical Forum / Diseases and Disorders / Prostate BPH / July 2003PVP
Greetings, Visited the urologist this week, I have asked fro a referral to Kings College hospital in London for a consultation with Dr Muir regarding a PVP op, unfortunately he does not believe the PVP op will be any better than the BNI (TUIP) that he has recommended I have, I have refused to have the incision for fear of its complications. I think I will have to have a word with my GP, to se if he can help me to get a referral. Regards, Peter peter@hull-me.co.uk > Greetings, > [quoted text clipped - 12 lines] > > peter@hull-me.co.uk Keep pushing, Peter. I had similar problems though in my case the uro initially agreed to refer me for Laserscope (he thought I meant one of the other laser procedures which is available in Scotland), then clearly had second thoughts and attempted to have me jump through hoops. My GP said it was out of the question. Didn't work because these are tactics I have employed myself in the past to get rid of nuisances! I suggest you contact some of the patient advisory groups and find out what your rights are. I suspect your uro will have to present a clear case why he will not refer you. I am pretty sure you have the right to alternative treatment if it is available (which it is) and suitable for your case. Things within the NHS have changed dramatically in recent years. Offer to hand out leaflets and parade outside the hospital with a banner after tipping off the media and I guarantee things will happen!<G> You could even right to Our Leader. Derry My own method is to demonstrate that life will be easier Greetings, "Derry Argue" > Keep pushing, Peter. I had similar problems though in my case the uro > initially agreed to refer me for Laserscope (he thought I meant one of the > other laser procedures which is available in Scotland), then clearly had > second thoughts and attempted to have me jump through hoops. My GP said it > was out of the question. Didn't work because these are tactics I have > employed myself in the past to get rid of nuisances! What is your position Derek, have you had a referral yet? or the op you were waiting for last time I was on, I have not been around for a while because of other health problems. I am definitely going to see my GP again and see if he is able to do anything at all, the Urologist pushed for his speciality a BNI, he dismisses the side effects as minimal, I have learnt otherwise. At present I have to use a sheath and leg bag if I go anywhere because of the frequency and urgency, I would rather continue with this because at least my other functions are normal, rather than have a BNI and suffer the rest of my life.  SignatureRegards, Peter peter@hull-me.co.uk Peter, I've had two Tuip's. I had a small amount of retrograde ejaculation. A Turp couldn't be done since there was no blockage. There was also a bit of surgery on a bladder neck resection. I'm waiting until laserscope comes to Eugene. I too would prefer any laser surgery be done with a laserscope PVP, but since I've already had two Tuip's I don't think there would be much difference, but why take the chance. > Greetings, > [quoted text clipped - 12 lines] > > peter@hull-me.co.uk Greetings, > Peter, I've had two Tuip's. I had a small amount of retrograde ejaculation. > A Turp couldn't be done since there was no blockage. There was also a bit > of surgery on a bladder neck resection. I'm waiting until laserscope comes > to Eugene. I too would prefer any laser surgery be done with a laserscope > PVP, but since I've already had two Tuip's I don't think there would be much > difference, but why take the chance. Ah! you seem to have a similar problem to me, a restriction in the bladder neck/prostate? The consultant is adamant about carrying out a BNI or TUIP, even though he agrees that there is some chance of the three problems we all dread after surgery. I will pursue the matter with my GP at the earliest opportunity, I need to have some kind of surgery done because of the problems I am having, but preferably not with a hot knife! so the PVP is the alternative I would like, even though the Urologist suggested that it is not perfected, he also suggests that it has been tried before and not been successful, but that was before PVP laserscope came on the scene. How is your problems now Tony? do you still have frequency, urgency, retrograde ejaculation? what is your age? SignatureRegards Peter peter@kissag.co.uk www.speakingout.org.uk www.hull-me.co.uk > Greetings, > [quoted text clipped - 24 lines] > How is your problems now Tony? do you still have frequency, urgency, > retrograde ejaculation? what is your age? drink fluids, say in an hour after 8 oz of water. No urgency whatsoever. The slight retrograde ejacuation is no problem to be. I would estimate my ejaculate is 90% of prior to surgery. I'm 60. I also need longer to initiate urination about 30 seconds compared to 10 seconds after surgery. I don't believe there is much chance of incontinence or impotence after a TUIP or TURP. Retro is another matter. I would guess it's about 70% with TURP, 40% with PVP. But the way I look at it, I have no choice due to the frequency. > peter@kissag.co.uk > > www.speakingout.org.uk > www.hull-me.co.uk Hi, I'm real sorry for you guys in the UK. If I understand right, the NHS is free but you don't have a choice of treatment? From reading this NG, I think, PVP is cheaper than TURP. Certainly the recovery is much cheaper because there is less hospital stay involved. Maybe this an argument you can pitch to your uros. My PVP cost about $ 16,000 which was covered almost entirely by Medicare (US national Health equivalent for seniors) and supplemental insurance. Good luck Fred Henzi > Greetings, > [quoted text clipped - 12 lines] > > peter@hull-me.co.uk Greetings, > My PVP cost > about $ 16,000 which was covered almost entirely by Medicare (US national > Health equivalent for seniors) and supplemental insurance. The cost I have been advised by BUPA is ?4,200.00 for the operation and hospital stay. they have been very helpful, unfortunately the Uro has not, but as I said I will be pursuing the matter soon with my GP. SignatureRegards Peter peter@kissag.co.uk www.speakingout.org.uk www.hull-me.co.uk > Greetings, > [quoted text clipped - 5 lines] > hospital stay. they have been very helpful, unfortunately the Uro has not, > but as I said I will be pursuing the matter soon with my GP. Of the 50 or so PVP's done at King's, London, by Muir's team, it is my understanding that none have had to stay in over night though some have had to go home wearing a catheter which is removed the next day. In my case, I had all the flow tests, biopsy, etc. at my local regional hospital, then went to King's for what was more-or-less an interview. I'm scheduled for a "pre-assessment" shortly (presumably for final tests and checks by the anaesthetist), then (finally, at last!) the operation in October. I gather there may be some follow up visits to make sure everything is OK. Yes, I heard "around £4,000" too but we still have no figures for a TURP or the other alternatives. A good economist would surely add in/deduct the cost-benefit associated the patient's time off work before making a comparison between the various procedures. I wonder if the NHS does? Derry > peter@kissag.co.uk > > www.speakingout.org.uk > www.hull-me.co.uk |
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