Medical Forum / Diseases and Disorders / Prostate BPH / December 2005
8 mos. post PVP and still having problems
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Buford R - 31 Oct 2005 04:34 GMT I had my PVP on 2/28/05. From day one after the surgery, I had problems with urine retention and the flow. It has now been 8 mos. and no change. It is as if I never had the procedure done. If I go one day without Flomax it is as if you shut the water faucet off. Anyone else had similar symptoms this far out from the PVP?
Ed - 31 Oct 2005 07:56 GMT >I had my PVP on 2/28/05. From day one after the surgery, I had problems with >urine retention and the flow. It has now been 8 mos. and no change. It is as >if I never had the procedure done. If I go one day without Flomax it is as if >you shut the water faucet off. Anyone else had similar symptoms this far out >from the PVP? Thanks for your report.
How big was your prostate? What does your uro say?
Ed
Buford R - 01 Nov 2005 12:50 GMT I'm not sure of the size of the prostate. I was never told. On follow up to the uro he just said that this surgery helped about 90% of his patients and I might be one of the 10% that the surgery will not help.
>>I had my PVP on 2/28/05. From day one after the surgery, I had problems with >>urine retention and the flow. It has now been 8 mos. and no change. It is as [quoted text clipped - 7 lines] > >Ed Pat C - 31 Oct 2005 20:36 GMT before my pvp on August, I can tell the big difference if I miss Flomax for one day. After pvp, I took no medicine ever since and flow is great. My size was 100g with median lobe and took medicine for BPH for 6 years. Your situation is not common.
>I had my PVP on 2/28/05. From day one after the surgery, I had problems with >urine retention and the flow. It has now been 8 mos. and no change. It is as >if I never had the procedure done. Spread_deMocracy - 02 Nov 2005 00:56 GMT Buford R. Sorry to hear of the problems you are having. By now you must have had a follow-up Cystoscopy? What did the doctor say? Since PVP merely burns a channel through the prostate, (and does not reduce the prostate), size of prostate is almost irrelevant, in my opinion. The urologist would clearly see that he has successfully burned a channel right through to the bladder muscle...and that would mean you should have no problem urinating. So, I'd go see the urologist or, maybe to get a second opinion, a different urologist and determine the success of the "channel". You should not need to stay on FLOMAX. If for some reason your prostate immediately collapsed around the PVP channel and has immediately begun obstructing it, then you may need to go for a prostate reduction procedure...TURP. The prostate tends to be somewhat stubborn to treat since it kinda acts like clay and flows a bit after the surgery. Doctors need to be largely surgeon but part artist to get that right. Wishing you all the best.
>I had my PVP on 2/28/05. From day one after the surgery, I had problems >[SNIP]... Derek F - 02 Nov 2005 18:04 GMT So far as I am aware from my reading, from my urologist and from the Laserscope video both TURP and PVP do the same job and remove tissue from the prostate capsule rather than just boring a hole. If it just bored a new channel through the urethra and did not remove the prostate, pressure from the median and lateral lobes would still affect the bladder. If just a hole were being bored it would surely make no difference on how big a patients prostate happened to be. Derek.
> Buford R. Sorry to hear of the problems you are having. By now you > must have had a follow-up Cystoscopy? What did the doctor say? Since PVP [quoted text clipped - 14 lines] >>I had my PVP on 2/28/05. From day one after the surgery, I had problems >>[SNIP]... Ed - 02 Nov 2005 20:55 GMT >So far as I am aware from my reading, from my urologist and from the >Laserscope video both TURP and PVP do the same job and remove tissue from [quoted text clipped - 6 lines] >happened to be. >Derek. I was told by a uro that a PVP _is_ a TURP... just done differently. PVPs and TURPs carry the same code (namely S655) in Ontario... the code is used by the health system for paying the health practitioners.
Whether by cutting or vaporizing, the procedures remove prostate tissue (and urethra lining). And that is why there are potential problems with bleeding during the procedure and afterwards.
Ed
Rich256 - 03 Nov 2005 00:18 GMT > >So far as I am aware from my reading, from my urologist and from the > >Laserscope video both TURP and PVP do the same job and remove tissue from [quoted text clipped - 16 lines] > > Ed But, as I understand the PVP usually cauterizes the cut thus minimizing the bleeding.
The urethra is left with one hell of a sunburn.
Pete - 05 Nov 2005 01:42 GMT > Buford R. Sorry to hear of the problems you are having. By now > you must have had a follow-up Cystoscopy? What did the doctor say? Since > PVP merely burns a channel through the prostate, (and does not > reduce the prostate), size of prostate is almost irrelevant, in my > opinion. I think you guys are missing something here. You can not burn a channel through the prostate without removing prostate tissue - HUH!. The prostate forms the urethra - i.e. the prostatic urethra is a channel, tube, pipe, conduit (or whatever you want to call it), that runs through the prostate gland. It's like drilling a whole through a baseball, or a chestnut (for better size comparison). Just look at the chart on the wall the next time you're at the uro's office (or google it). The same applies to the urethra that extends through the penis. The urethra is not like a blood vessel in your body, but is formed by a channel in the tissue that it is running through (penis/prostate) and then the adjunct to the bladder neck.
Just thought I would try to clear that up...Pete
The urologist would clearly see that he has successfully
> burned a channel right through to the bladder muscle...and that would > mean you should have no problem urinating. So, I'd go see the [quoted text clipped - 9 lines] >> I had my PVP on 2/28/05. From day one after the surgery, I had >> problems [SNIP]... Spread_deMocracy - 05 Nov 2005 14:16 GMT Burford... I'd strongly suggest you get yourself back to the urologist or select a different one for a second opinion.
Pete did a good job in clearing up my comments. So, I will build on Pete's posting a wee bit more. Before I do there is one additional thought that was not in my original response to you...if you waited too long to have the operation you may have some bladder wall contraction issues. If the urologist concludes that is the case, then you may need to use a catheter for a very long period to let the walls come back to nearly their original elasticity. But read on. I have more to say associated to my original post.
Certainly there is some prostate tissue that is broken down during a PVP. Indeed, I pissed out chunks of tissue, some from urethra and some from prostate, just like other PVP patients. That was not the point I was making. The "R" in TURP stands for "Reduction", and my urologist was clear to point out that the SIZE of my prostate was little affected since the PVP is not intended to be a 'Reduction Procedure"...and he clearly stated the procedure was more like burning a channel through, not grinding down or reducing the size of the prostate. As Pete points out, a PVP must have cut done some of the urethra and prostate...and for me it was certain that it did. The point I tried to make, though, is a PVP is sufficient and highly effective for many prostates, but not all since a PVP is going to do less to the Prostate than a TURP does. And, if you read about the prostate, you will discover that the Prostate is more like a moldable lump of clay than a solid structure like a chestnut, though it is typically compared to the size of a chestnut. The moldability is not something that is discussed on this NG so I thought I would raise that as well. Yours may have flowed more than some others? Regardless, the formability, moldability, does add a further complication to the surgeon. But for whatever reason, it appears that your procedure was insufficient. This newsgroup will not be able to answer why, for your particular case. It could be that your sugeon was not skilled enough, the PVP may not have removed SUFFICIENT Prostate tissue, or your prostate flowed back somewhat... and maybe other reasons. In your case you may need a better urologist; another PVP; the more aggressive TURP, (reduction procedure); or, there is something more important going on that needs to be tended to right away. Nonetheless, your follow-up Cystoscopy will tell most of the story or you may need a biopsy. If they find that the PVP was not successful, maybe they need to try again. Or, they may conclude that PVPs or TURPS won't work for you. Or, there is something uglier going on. But don't wait any longer...GO GET A SECOND OPINION, RIGHT NOW!!!...or at least get your original urologist to look inside, (Cytoscopy), RIGHT NOW, and see what the heck is going on in there... Here's wishing you well.
>I had my PVP on 2/28/05. From day one after the surgery, I had problems >with > urine retention and the flow. [SNIP] Pete - 05 Nov 2005 22:28 GMT Just for clarification, the "R" in "TURP" usually stands for "resection", but I don't doubt the word "reduction" is also used loosely.
I had a TURP last April and it just exacerbated my prostatitis, and didn't help. Now I know I have prostatitis, urethritis and cystitis (its all related - there ain't no doubt in my mind). I don't know what to do. Antis don't help, and there are no more uro's where I live (there all in one office which is a factory), and I don't have anyone to help me.
Take care...Pete
> Burford... I'd strongly suggest you get yourself back to the > urologist or select a different one for a second opinion. [quoted text clipped - 46 lines] >> problems with >> urine retention and the flow. [SNIP] Spread_deMocracy - 05 Nov 2005 22:46 GMT Pete: thanks for clarifying the "r", re: resection. I don't know if this would be of any help to you, but I found that I had to go "over the heads" of the urologists in my area and I had to make my own appointments, travel arrangements, and revovery accomodations. I made my own contacts and lined up my own appointments despite my locals doctors telling me not to do that. [When all was said and done, several remarked about my professionalism in "managing my own case"!] I was able to find urologists (surgeons) willing to help me, but I had to travel well over 2.5 hours to get to the nearest. Maybe there is somebody willing to take on your case who is out of state, or even in state, but a ways away from you. Sounds to me like you had a urologist who did a very bad job by causing the infection associated to prostatits to spread even further into the prostate and surrounding area. I don't support the legal profession, but am wondering if you migh even want to talk to a legal guy about your situation. That legal stuff, and prostatitis are both way out of my league, but the thought crossed my mind when I read your comment. Wish I could be of more help, but I'm not a pro in any of this. Just a guy who was pissed off for the lack of answers out there when so many millions of us suffer with this problem--BPH or Prostatititis. I did what I needed to do to get myself squared away, despite the prostestations of the local doctors. All the best to you.
> Just for clarification, the "R" in "TURP" usually stands for "resection", > but I don't doubt the word "reduction" is also used loosely. > > I had a TURP last April and it just exacerbated my prostatitis, and didn't > help. Now I know I have prostatitis, urethritis and cystitis (its all > related - [SNIP] Pete - 06 Nov 2005 01:08 GMT > Pete: thanks for clarifying the "r", re: resection. I don't know > if this would be of any help to you, but I found that I had to go [quoted text clipped - 19 lines] > away, despite the prostestations of the local doctors. All the > best to you. I appreciate your concern, but like I said I have no one to help me - traveling is out of the question. And forget about trying to sue a doctor (he would have to operate on the wrong side of your body or leave a scalpel in you - literally). Take care...Pete
>> Just for clarification, the "R" in "TURP" usually stands for >> "resection", but I don't doubt the word "reduction" is also used >> loosely. I had a TURP last April and it just exacerbated my prostatitis, >> and >> didn't help. Now I know I have prostatitis, urethritis and cystitis >> (its all related - [SNIP] Buford R - 10 Nov 2005 00:46 GMT Thanks for all the answers. I have an appointment on Monday for a follow up. I guess I will see what he says at that time and if not satisfied then I will find another URO. He did mention several months ago about doing another cysto but it was never mentioned again. This URO came highly recommended although I think he was more experienced in the TUNA treatment. Thanks again.
Buford
>Just for clarification, the "R" in "TURP" usually stands for "resection", >but I don't doubt the word "reduction" is also used loosely. [quoted text clipped - 12 lines] >>> problems with >>> urine retention and the flow. [SNIP] Derek F - 06 Nov 2005 00:26 GMT > Burford... I'd strongly suggest you get yourself back to the urologist or > select a different one for a second opinion. [quoted text clipped - 11 lines] > Indeed, I pissed out chunks of tissue, some from urethra and some from > prostate, just like other PVP patients. What difference is there in the tissue from the urethra and from the prostate?? Many people seem not to pass chunks. All I have passed are "brown bread like crumbs" My urologist said that by being immersed in urine for weeks the scabs get bleached by the urine. He compares the effect with the look of your fingers and toes if you soak in a bath for a long time, they absorb water and look wrinkly.
That was not the point I was
> making. The "R" in TURP stands for "Reduction", The "R" stands for resection.
and my urologist was clear
> to point out that the SIZE of my prostate was little affected since the > PVP is not intended to be a 'Reduction Procedure"...and he clearly stated > the procedure was more like burning a channel through, not grinding down > or reducing the size of the prostate. Like you I did my own research and found my own urologist, a more difficult task than yours here in the U.K. where very few N.H.S. hospitals do PVP and it is frowned on to refer a patient to an other Health Authority Area. With only a hole bored in your urethra I think that you must have had PVP Light:-) Derek.
As Pete points out, a PVP must have
> cut done some of the urethra and prostate...and for me it was certain that > it did. The point I tried to make, though, is a PVP is sufficient and [quoted text clipped - 25 lines] >>with >> urine retention and the flow. [SNIP] Buford R - 10 Nov 2005 00:50 GMT I did wait a long time before getting the PVP. I have been bothered with urinary retention for over 10 years and have been on Flomax at least 8 years. This is the first I have ever heard of the bladder wall contraction issue. Thanks.
Buford
>Burford... I'd strongly suggest you get yourself back to the urologist or >select a different one for a second opinion. [quoted text clipped - 44 lines] >>with >> urine retention and the flow. [SNIP] Buford R - 11 Nov 2005 00:07 GMT Just a short followup. I have had the biopsy with negative results. I will talk to him Monday after the second Cysto.
>Burford... I'd strongly suggest you get yourself back to the urologist or >select a different one for a second opinion. [quoted text clipped - 44 lines] >>with >> urine retention and the flow. [SNIP] Buford R - 15 Nov 2005 01:14 GMT Well, I visited my URO today and came home in sort of disbelief. He told me that he thought everything was fine and he would see me in a year. When I questioned him about the need for a second Cysto, he said that was sort of an individual decision. He said the bottom line was if I was happy taking the Flomax and could urinate well taking the Flomax, he saw no need for a second cysto, however, he said if my goal was to come completely off the Flomax then a second cysto may be justified. He said that would mean if the second cysto showed the channel needed to be opened more then I could elect for another PVP or a TURP. He wanted me to think about it and let him know if I wanted the second cysto. Isn't he the doctor? I guess I need to get a second opinion because I seem to be getting nowhere with this one since he thinks everything is o.k.
>Burford... I'd strongly suggest you get yourself back to the urologist or >select a different one for a second opinion. [quoted text clipped - 44 lines] >>with >> urine retention and the flow. [SNIP] Rich256 - 15 Nov 2005 03:19 GMT > Well, I visited my URO today and came home in sort of disbelief. He told me > that he thought everything was fine and he would see me in a year. When I [quoted text clipped - 8 lines] > because I seem to be getting nowhere with this one since he thinks everything > is o.k. Agree on a second opinion. Be sure to get one that does PVP.
You can find a list of doctors on the Laserscope site.
Flomax worked for me for a while and then I began to have all the possible side effects. I really don't think that stuff is good for the body.
I had a TUMT a few months ago with marginal results. The URO suggested I try the TUMT first and I went along with him He said he has had great results with PVP but called it "more invasive". I think it was a money thing. The TUMT done in his office and the PVP in the hospital. I got some relief but think I need more. I may go for the PVP in a few months.
Buford R - 16 Nov 2005 01:47 GMT I have already had one PVP.
>> Well, I visited my URO today and came home in sort of disbelief. He told me >> that he thought everything was fine and he would see me in a year. When I [quoted text clipped - 14 lines] >thing. The TUMT done in his office and the PVP in the hospital. I got >some relief but think I need more. I may go for the PVP in a few months. Rich256 - 16 Nov 2005 03:49 GMT OH, I remember you saying that now. I still think I would get another opinion from another PVP doctor. The more I watch this group I get the opinion that some UROs are much more proficient at using the laser.
> I have already had one PVP. > [quoted text clipped - 16 lines] > >thing. The TUMT done in his office and the PVP in the hospital. I got > >some relief but think I need more. I may go for the PVP in a few months. Buford R - 17 Nov 2005 00:11 GMT That's the way it appears. Right now, I am extremely disappointed in the PVP and the URO's response to my disappointment.
>OH, I remember you saying that now. I still think I would get another >opinion from another PVP doctor. The more I watch this group I get the [quoted text clipped - 5 lines] >> >thing. The TUMT done in his office and the PVP in the hospital. I got >> >some relief but think I need more. I may go for the PVP in a few months. Al - 17 Nov 2005 02:38 GMT Did you mention who your uro was so that others can consider your experience before choosing him? It often seems to me that those of us who have had excellent results and are completely satisfied mention our Dr's name over and over, but the guys who are not satisfied keep quiet about who it was.
Al PVP Dec 03 - Dr Te
> That's the way it appears. Right now, I am extremely disappointed in the PVP > and the URO's response to my disappointment. Pat C - 18 Nov 2005 17:18 GMT Buford, for yourself go to another uro who did pvp with good reputation . Also, Al is right that for others please share this NG with part of this uro's name and name of the city.
Pat, PVP Aug 05 - Dr. Te, NY city
>Did you mention who your uro was so that others can consider your >experience before choosing him? >
>PVP Dec 03 - Dr Te > >> That's the way it appears. Right now, I am extremely disappointed in the PVP >> and the URO's response to my disappointment. Buford R - 02 Dec 2005 04:09 GMT PVP Feb 05-Dr. Lewis, Jax, FL
>Buford, for yourself go to another uro who did pvp with good reputation . >Also, Al is right that for others please share this NG with part of this [quoted text clipped - 9 lines] >>> That's the way it appears. Right now, I am extremely disappointed in the PVP >>> and the URO's response to my disappointment. Buford R - 02 Dec 2005 04:11 GMT I did check out my URO first and he has an excellent reputation. I'm just not sure how many PVP's he has done.
>PVP Feb 05-Dr. Lewis, Jax, FL > [quoted text clipped - 3 lines] >>>> That's the way it appears. Right now, I am extremely disappointed in the PVP >>>> and the URO's response to my disappointment. Pat C - 02 Dec 2005 13:42 GMT Buford, Thank you for sharing dr information. Please search "PVP 4 week Journal" or "pvp with Dr Lin", ... etc. in this NG. You may find some helpful info. You could visit another uro for 2nd opinion. Dr. W. Lin is in FL with phone # 904-797-2921. My 2 cents opinion. Good luck.
>I did check out my URO first and he has an excellent reputation. I'm just not >sure how many PVP's he has done. [quoted text clipped - 4 lines] >>>>> That's the way it appears. Right now, I am extremely disappointed in the PVP >>>>> and the URO's response to my disappointment. Buford R - 19 Dec 2005 02:44 GMT Thanks, I have an appointment with Dr. Lin on 12/27 and surgery scheduled for 12/28.
>Buford, Thank you for sharing dr information. Please search "PVP 4 week >Journal" or "pvp with Dr Lin", ... etc. in this NG. You may find some [quoted text clipped - 7 lines] >>>>>> That's the way it appears. Right now, I am extremely disappointed in the PVP >>>>>> and the URO's response to my disappointment. Pat C - 19 Dec 2005 15:52 GMT Buford, What Dr. Lin said about your situation? Does he want to do another pvp to fix your prolem? Good luck!! Happy holiday!
>Thanks, I have an appointment with Dr. Lin on 12/27 and surgery scheduled for >12/28. Clarence Crow - 10 Nov 2005 22:11 GMT On Mon, 31 Oct 2005 03:34:19 GMT, "Buford R via MedKB.com" <u5432@uwe> wrote: 'a raft of problems".
I, too, have urinary problems inherited from HDR Brachytherapy for advanced Prostate Cancer, performed in mid July this year. I had to wear a Foley Catheter for almost 4 wks post discharge from hospital. I'm on 1Flomax/day and still have probs voiding, from zero at night (Nocturia) to about 80% at high noon, plus retain approx 250ml on a post void Bladder scan.
Going into the HDRB, my prostate was 65cc and had previously had some "easing" done 16 yrs ago by a General Surgeon. So, in essence, I got Prostate Cancer on top of an old BPH complaint.
Just yesterday, I saw the Uro who did the HDRB implant and discussed either another TURP or PVP. He opted for the TURP as he said it was more reliable, the Gold Standard, easier to remove the correct amount of tissue, and there were some problems showing up from the newer Laser treatments.
Anyway, he won't do a thing until he has a look at another Cystoscopy he scheduled for me in a few wks time. He did comment that any re-sectioning would need to possibly wait another 3 months for the tissue damaged by the HDRB to re-stabilize.
I'm not too confident on any of these things, but will have to "bite the bullet" eventually dependent on his opinion/s....
Anyone else in here with a similar story?
PS: I do post more regularly in alt.support.cancer.prostate
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