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Medical Forum / Diseases and Disorders / Prostate BPH / April 2005

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To nambucca  (was Going abroad for PVP)

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forlorn hope - 23 Apr 2005 11:33 GMT
I took your advice and contacted Gordon Muir.  After some email
correspondence I went down to London to see him at the Lister hospital
yesterday and I'm now booked in for PVP with him on 15th June at Kings
College Hospital.

He did a scan which showed my prostate was 42g but pushing up into the
bladder so causing retention.  Interesting to see this image.  He said he
has now done 100s of PVPs and out of 100 retention patients only 2 are
failing to void totally, and they had been retaining huge amounts for many
years.  He thought I should be able to void completely and say goodbye to
ISC.  He also said that there was no reason why I shouldn't be ok for my
Himalayas trip on 14th August, no matter how strenuous it may be.

I agree with your comments about his character and thanks to you and others
who pointed me in this direction.
Huw
Magna - 24 Apr 2005 08:35 GMT
Hi folorn, did you mention your problem with Cipro to Gordon Muir?
does he use Cipro as an antibiotic and if so is there an alternative
he could give you as I presume you will be reluctant to take cipro
again?
Magna - 24 Apr 2005 09:49 GMT
As a matter of interest why are you going to King's, I thought Gordon
Muir did all his private ops at the Lister. Do you know if he does a
biopsy as part of the pvp as all the tissue is vapourised there is
none available for biopsy to rule out cancer which can be present even
with a low psa?
forlorn hope - 24 Apr 2005 10:33 GMT
> As a matter of interest why are you going to King's, I thought Gordon
> Muir did all his private ops at the Lister.

I was given dates to choose from for both hospitals - the earliest
convenient date was at Kings.  I could have had a date in May at Lister but
I'm off trekking in the White Mountains in Crete towards the end of May.
It's probably short sighted of me but I try and arrange things around these
holidays.

Do you know if he does a
> biopsy as part of the pvp as all the tissue is vapourised there is
> none available for biopsy to rule out cancer which can be present even
> with a low psa?

I never asked about biopsy.  It's a good point, I'll enquire and let you
know.

I never mentioned my reaction to Cipro either.  I suppose I never really
considered it because it involved a combination of extreme sun and Cipro,
but now I think about it, it would be sensible to tell him.  I'll email him
tomorrow!   He did say that retention patients who have been catheterising
are far more likely to have an infection after PVP, as the catheters
introduces some germs no matter how careful you are.  (I'm paraphrasing of
course)   He gives a course of anti-biotics as standard but even so an
infection is quite possible.  Thanks for your interest.
Huw
nambucca - 24 Apr 2005 19:43 GMT
> I took your advice and contacted Gordon Muir.  After some email
> correspondence I went down to London to see him at the Lister hospital
[quoted text clipped - 14 lines]
>
> Delighted to hear you found him as human and considerate as ever

Trust him ........I did and i will forever thank the day i did because i too
had a median lobe obstruction of 70 gms
Magna - 25 Apr 2005 07:54 GMT
Hi Folorn hope, thanks for your reply. I am considering a pvp and am
in watchful waiting mode while the nhs wheels turn slowly. Like you I
am considering private. I will be interested to see what the answer to
the cipro question is as I believe I had a reaction to it as well
although not as dramatic as yours. BTW, how do you (and nambucca?)
post to this group? I go through Google and it takes ages for the post
to appear. Looking at the timings yours appear much quicker. Good
luck, magna.
forlorn hope - 25 Apr 2005 09:08 GMT
> Hi Folorn hope, thanks for your reply. I am considering a pvp and am
> in watchful waiting mode while the nhs wheels turn slowly. Like you I
> am considering private.

Hi Magna  -  I have decided to fund my treatment from my pension lump sum.
I made this decision after being told in March that a uro-dynamics test
would take anything up to a year to arrange through NHS and that I was well
off as in some areas the waiting list was two or more years.  At that time
(March) six months had passed since my acute retention, and after six months
of self catheterising I still had no idea whether my problem (retention) was
being caused by a stretched and malfunctioning bladder or BPH or a
combionation of both.  After six months the only test I had received was a
digital rectal examination at the time of retention and a flow test four
months later.  My wife and I decided that we had better start pushing things
ahead, even though we were obviously going to be financially the poorer.
When I asked if I could pay for the uro-dynamics test I had it withing three
weeks and although there is an element of guilt that I am queue jumping, I
think I'm doing the right thing. When I saw Mr Muir he was able to show me a
scan of my prostate illustrating the exact problem within two minutes.  I
don't know if my local health authority even have such a machine.

I will be interested to see what the answer to
> the cipro question is as I believe I had a reaction to it as well
> although not as dramatic as yours.

It occurred to me after I had replied to you that when I had the AUI that
led to my acute retention, I was given Cipro by my GP.  This was because I
am very allergic to penicillin (skin peels off etc) and I had no problem
with it, possibly because I was in England and not in bright sunshine.  I
think my reaction in Nepal was exaggerated because of the altitude, sunshine
and cold wind.  I'll still mention it however.

BTW, how do you (and nambucca?)
> post to this group? I go through Google and it takes ages for the post
> to appear. Looking at the timings yours appear much quicker. Good
> luck, magna.

I use the newsgroups function of OE6 and downloaded the list of groups from
my ISP.  Posts appear within a couple of seconds of hitting the button.

Regards
Huw
nambucca - 25 Apr 2005 16:50 GMT
> > Hi Folorn hope, thanks for your reply. I am considering a pvp and am
> > in watchful waiting mode while the nhs wheels turn slowly. Like you I
[quoted text clipped - 40 lines]
>
> Out of interest did Gordon Muir give you any idea of how long his NHS
waiting list is ?

Of course the best answer is to convieniently go into retention in the area
of Kings College hospital ........you can guarantee then that you would be
in and have a PVP done pdq
magna carter - 26 Apr 2005 08:56 GMT
Folorn hope, Thanks for the info, presumably if you are on isc then you
didn't do a flow test, still be interesting to see what Mr  muir says re
the cipro & biopsy!  Regards , Magna
 
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