I am 55 in generally good health and physical condition, except for a
large prostate (~90g) and significant post voiding urinary retention
(pvr). I ran from my former uro's office when he proudly anounced that
he would perform a TURP on my then 108g gland! I found a local uro who
is experienced in PVP as well as radical (for cancer) and open
prostatectomies. He prescribed Avodart and Uroxatral. While my gland
has shrunk in the past 6 months, my retention has gotten worse (but not
total). My current uro initially had told me that if meds could shrink
the gland to <100g he would perform a PVP but warned that I might need
two treatments. Now he is back peddling and trying to convince me that
the better procedure given the extent and duration of the pvr problem
is an open prostatectomy. I intentionally sought out a uro with
experience with the PVP on larger prostates in my area (southern
California) so as to take the most conservative approach. No mention
was previously made that the condition of my bladder would require an
open prostatectomy instead of a PVP.
Has anyone else dealth with this dual problem of a large prostate and
significant and long term pvr? Has anyone had a large gland
successfully treated by PVP such that the bladder regained its
elasticity and muscle strenght? Is there a way to test my bladder to
determine if it is functioning OK but just unable to overcome the
restriction casued by a large gland with a median lobe that is now
growing into the baldder neck? I am particularly interested in finding
a uro in the southern California area who has successfully dealt with
this compound problem using PVP. I know of Dr. Te and Dr. Lin and the
success they have had. I have to believe there is someone of their
caliber in my area. Any input would be apprecitated. I now
self-catheterize each evening and it is the pits! I need to make a
decision ASAP and would at least like to get a qualified second
opinion. Input from this group will be greatly appreciated.
Midlife - 21 Mar 2005 09:07 GMT
> I am 55 in generally good health and physical condition, except for a
> large prostate (~90g) and significant post voiding urinary retention
> (pvr).
<snip>
> Has anyone else dealth with this dual problem of a large prostate and
> significant and long term pvr? Has anyone had a large gland
[quoted text clipped - 10 lines]
> decision ASAP and would at least like to get a qualified second
> opinion. Input from this group will be greatly appreciated.
I have a similar situation, though my prostate is much larger, and the
retention is inconsistent and minimal (usually under 100cc).
Symptomatically, I am OK (quality of life-wise), but it's just a matter of
time. My own Uro (also in So Cal) does some PVP's but seems concerned that
it will likely take 2 procedures in my case, and is more in favor of TURP or
or Open Prostatectomy, but I have stood firm so far.
There is a Dr. Robert Reiter, at UCLA, who is apparently on of the
'go-to-guys' in the LA/OC area for PVP. I haven't seen him yet, but would
certainly be interested in hearing what he has to say should you see him.
outlier48 - 21 Mar 2005 16:53 GMT
Dr. Reiter is my current uro. I sought him out because of his
experience in perfroming both PVP and Open procedures. He is willing
to perform a PVP but has expressed his opinion that the Open procedure
would be better given the pvr issue and my age and overall health. I
will consult again with Dr. Reiter to pin him down on exactly he feels
the Open procedure is better for me and then I will post here with the
details. Ironically, my difficulty in urinating has increased
noticeabley since I started self-cath but the pvr is down to half of
what it was. Go figure.
Midlife - 21 Mar 2005 19:59 GMT
> Dr. Reiter is my current uro. I sought him out because of his
> experience in perfroming both PVP and Open procedures. He is willing
[quoted text clipped - 5 lines]
> noticeabley since I started self-cath but the pvr is down to half of
> what it was. Go figure.
Not really a coincidence, given the respect that UCLA has in this area. I
should probably go to see Dr. Reiter myself, but even my own local Uro
doesn't seem to think it's really necessary to do another procedure at this
point. He estimates my prostate at 170g, and I had a serious distention of
my bladder a few years ago (following an appendectomy) so our concerns are
as much over bladder viability as over the prostate itself. Frequency and
urgency are not a significant issue for me, in general, nor is difficulty in
urinating. I do have significant prostatitis attacks maybe twice a year
(lots of room for bacteria to hide in a 170g gland). This all adds up to
the inevitability or some some type of crisis occurring unless we do a
pro-active procedure at some point.
I had to self-cath, for about 90 days, following the bladder distention. It
was surprisingly easy until it suddenly became quite painful. Seems logical
that the tissue the catheter has to pass through could be irritated enough
to cause difficulty and increase retention, but the more likely explanation
I've seen here lately is that a compromised (distended) bladder develops
pockets in places where normal flow is impeded. That makes even more sense,
at least given my own symptoms.
As far as the Open surgery is concerned, my Uro has said that, with a very
large prostate, any 'coring'-type procedure can be less that fully effective
because the remaining tissue can just collapse around the new channel,
making things worse. That seems logical, but posters here have suggested
it's not statistically correct. My Uro is suggesting, of course, that if you
remove the prostate entirely, that issue goes away. So...... the success of
PVP on very large prostates is of great importance to me. Not ready for the
increased likelihood or impotence just yet.
Good luck..... and please do post further as you go along.
nambucca - 21 Mar 2005 20:41 GMT
> I am 55 in generally good health and physical condition, except for a
> large prostate (~90g) and significant post voiding urinary retention
[quoted text clipped - 27 lines]
> decision ASAP and would at least like to get a qualified second
> opinion. Input from this group will be greatly appreciated.
UNDOUBTABLY PVP
absolutely no contest .........i had a 70 gram median lobe which was causing
identical problems to yours
I ran a mile from an arrogant uro who insisted TURP was the gold standard
The drugs were totally useless as they are with median lobe
You most certainly do not want or need open prostatectomy especially if you
wish to stay potent
I had PVP July 18 months ago walked in the hospital at 7.30 am walked out at
12.30 and after an hour of being driven home spent the rest of the day
sitting in the garden
Recovery proceeded by the book with slight pulling sensation lasting for
around 3 months
Retrograde corrected itself by 6 months post op and i only wish PVP had been
available here sooner and that i had not wasted 2 years messing around
before i demanded a referral
If it regrows then i will simply go back for another PVP
frank - 21 Mar 2005 21:25 GMT
2 yrs ago at age 69, had 105g pvp by dr laub in santa barbara. so far so
good. i have seen more than one posting of some with 150g glands
successfully pvp'd.
>I am 55 in generally good health and physical condition, except for a
> large prostate (~90g) and significant post voiding urinary retention
[quoted text clipped - 27 lines]
> decision ASAP and would at least like to get a qualified second
> opinion. Input from this group will be greatly appreciated.
Sol - 22 Mar 2005 00:00 GMT
>I am 55 in generally good health and physical condition, except for a
>large prostate (~90g) and significant post voiding urinary retention
>(pvr). I ran from my former uro's office when he proudly anounced that
>he would perform a TURP on my then 108g gland!
More fool you. You pay for a qualified expert consultation and then
"run" when he tells you something which you have become scared of from
reading garbage on a NG !!!!!!!!!
SNIP
> I need to make a
>decision ASAP and would at least like to get a qualified second
>opinion. Input from this group will be greatly appreciated.
And you expect to get a "qualified second opinion" from this newsgroup
?
With all due respect , your problem is not from an overlarge
prostate but from an undersize brain .
daddyo - 24 Mar 2005 03:01 GMT
The idea of doing 2 PVP's for a large prostate is new to me. Before my
op on a 135g gland,I was asked if I would agree to the extra cost of
another laser probe if necessary due to the length of the procedure.
The probe burns out eventually. Seemed reasonable to me. Never any
talk of doing it twice. I'm interested in why there is a need for
this,and what time between ops...days,months ?
My outcome is fine after 7 months. Flow much better but bladder
capacity still low.I am going to try to fix that in a few months and I
have the feeling that it's going to be harder than giving up smoking.I
might go for the pills.
Best wishes Richie
>I am 55 in generally good health and physical condition, except for a
>large prostate (~90g) and significant post voiding urinary retention
[quoted text clipped - 27 lines]
>decision ASAP and would at least like to get a qualified second
>opinion. Input from this group will be greatly appreciated.
Midlife - 24 Mar 2005 04:12 GMT
> The idea of doing 2 PVP's for a large prostate is new to me. Before my
> op on a 135g gland,I was asked if I would agree to the extra cost of
[quoted text clipped - 8 lines]
>
> Best wishes Richie
I can't say for certain, but I believe the reason for two separate
procedures is that a laser procedure does not completely vaporize the tissue
it destroys, and that the body can only be expected to safely eliminate a
finite amount of the material that remains. So, it becomes a factor of how
much material has to be removed in total, and how much can be done safely at
one time. At least that's the closest I've been able to understand the
reasoning. All additional input welcomed.
daddyo - 24 Mar 2005 06:37 GMT
>> The idea of doing 2 PVP's for a large prostate is new to me. Before my
>> op on a 135g gland,I was asked if I would agree to the extra cost of
[quoted text clipped - 16 lines]
>one time. At least that's the closest I've been able to understand the
>reasoning. All additional input welcomed.
That is interesting. It may explain the trouble some large prostate
patients have had with subsequent large clots and bleeding. A few in
this group have had severe problems causing retention.
With hindsight I still would not have personally chosen 2 ops,but
some people may benefit.
Richie