>snip<
> I have a patient with Cystic Fibrosis who has clotted off three
> Port-a-Cath systems in the past two years and we struggle to gain any
> venous access at all, especially access which will last for the
> required 2 week course of IV antibiotic treatment.
>snip<
Please let those interested in Cystic Fibrosis (CF) know of this free
resource:
CYSTIC-L is a free email service dedicated to the exchange of
information and support specific to cystic fibrosis. Since 1994,
CYSTIC-L has been sharing both casual banter about the varied impact
that CF has on our lives, as well as technical and medical information
exchanges that help us to overcome the more unpleasant factors that
this silly little gene imposes upon us. There are over 500 list
subscribers sending a total of around 20-60 messages per day; a digest
option is available which compiles messages and distributes them
periodically during the day. Members include people with CF and those
who share their lives: medical professionals, scientists, researchers,
parents, grandparents, spouses, siblings, friends and significant
others.
To subscribe send the following line in the *body* of an email (the
"Subject" line is ignored) to LISTSERV@PEACH.EASE.LSOFT.COM
SUBSCRIBE CYSTIC-L Your-first-name Your-last-name
Note: Listserv will send you a confirmation request for every command
you send to it. Your command will not take effect unless you respond
to the confirmation request (so be sure to wait a couple of minutes to
receive and respond to the confirmation request).
@}->- @}->- @}->-
Visit us at Http://Cystic-L.org and see our extensive Handbook on-line
(contains much CF information, and references to other CF resources),
the Photo Archives (people with CF, parents with CF, subscribers to
Cystic-L, and a memorial page), the CF Shop, the world's largest
cystic fibrosis bookstore (in the CF Shop), and much more!
@}->- @}->- @}->-