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Medical Forum / General / General / April 2007

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Provigil - what kind of doctor do I need to find?

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Jan - 02 Mar 2007 16:50 GMT
For the last ten years, actually for as long as I can remember, I have
been sleepy all the time during the days but I can't work a third
shift job because I need to be able to work when most places of
business, especially libraries, are open. I read about Provigil on the
Internet and it sounds like an ideal remedy but when I mentioned it to
one of the doctors at my HMO, an ethnic family practice doctor with
probably little experience in sleep related disorders, she said she
had never heard of Provigil and would not prescribe something she
knows little about. Is that ignorance or what? An intelligent caring
doctor would look it up on Medline, check current review literature,
then decide if a patient's suggestion is a valid one.

Okay. I think I made it clear my HMO doctor is no good when it comes
to treating a specialty disorder so I thought I'd check the
newsgroups. What kind of doctor do you think would be most likely to
recommend Provigil and what do I say to be convincing. I am sure that
saying coffee and caffeine beverages irritate my stomach would sound
kind of lame (although true) so what else can I say to make a point?

Oh, and I posted to this group (alt.support.depression.manic) because
when I searched the newsgroups for Provigil this was the first group
where I got a hit. I cross-posted to sci.med, and sci.med.pharmacy
also because those are the first NGs I would have thought of right off
the top of my head.

Thanks.

Jan
Salmon Egg - 02 Mar 2007 18:33 GMT
On 3/2/07 8:50 AM, in article
1172854224.491901.180760@h3g2000cwc.googlegroups.com, "Jan"
<c3derp0nd@gmail.com> wrote:

> For the last ten years, actually for as long as I can remember, I have
> been sleepy all the time during the days but I can't work a third
[quoted text clipped - 24 lines]
>
> Jan

I have been prescribed modafinil (Provigil) by a psychiatrist. I personally
did not find it superior to caffeine in any way. It costs at least an order
of magnitude more. There may be no significance, but doses for modafinil and
caffeine seem to be pretty much the same, 100 to 200mg.

There is a significant probability that you have an underlying condition. In
my case, I was also sleepy all the time and had difficulty concentrating.
After much pestering, my primary care physician order MRI of my head. It
disclosed normal pressure hydrocephalus which contributed to poor gait and
poor concentration. That problem was relieved with shunt surgery.

The sleepiness showed up again. Doctors did not seem to take me seriously
when I complained about orthostatic hypotension symptoms. After searching
through the internet, I was able to see a neurologist who did take me
seriously. She called the problem functional dysautonomia. Unfortunately, my
impression is that minor things can can be done for relief of the problem.

I am not suggesting that your problems are the same as mine. My point is to
be persistent in a quest for help. Find physicians working on problems
similar to yours. No matter how much professional medical help you need, you
are your own best advocate.

This gets me to my peeve about Medicare. Medicare does not pay physicians
enough for the use of their brains. They make income by doing things
(procedures) to you. AFIK there is no legal way for me to supplement
payments to physicians beyond Medicare payments. Instead, I keep on going
back short visits that do not get to the root of my problems. I do not think
this charade is cost or medically effective.

Bill
-- Fermez le Bush--about two years to go.
On the Road to Damascus - 02 Mar 2007 21:14 GMT
>On 3/2/07 8:50 AM, in article
>1172854224.491901.180760@h3g2000cwc.googlegroups.com, "Jan"
[quoted text clipped - 33 lines]
>of magnitude more. There may be no significance, but doses for modafinil and
>caffeine seem to be pretty much the same, 100 to 200mg.

Interesting. The Air Force has adopted Provigil for pilots on long
missions in preference to meth, probably because it has less side
effects like unwanted aggression leading to poor judgment.

>There is a significant probability that you have an underlying condition. In
>my case, I was also sleepy all the time and had difficulty concentrating.
[quoted text clipped - 22 lines]
>Bill
>-- Fermez le Bush--about two years to go.
Jan - 02 Mar 2007 23:18 GMT
On Mar 2, 4:14 pm, On the Road to Damascus
<my.life.starts....@REMOVETHISgmail.com> wrote:
> On Fri, 02 Mar 2007 10:33:10 -0800, Salmon Egg
>
[quoted text clipped - 71 lines]
>
> - Show quoted text -

Yes, I read about it's use by the military. Unfortunately I'm not a
vet so that route isn't available to me. It's a shame the government
is so down on medicines that promote alertness. I often think, "if I
were the monarch of the land," but the truth is I'd probably suck at
it because the majority of people don't think like me and the result
of my ordinances would probably be total societal disorder. It's
people like me whom in 1965 were thinking we'd all be riding in
hovercrafts by the year 2000. And the reality of it is when I go to
certain parts of town in the year 2007 it still looks like 1920. So
where are all the smart drugs OMNI magazine reported in 1980 that by
the year 2000 we'd all be able to control our psyche round the clock
with any number of exotic designer drugs? Truth be known the
government would probably suppress them even if they existed.

Jan (grumpy old sourpuss suffering from the probable delusion that
things can and should be different)
On the Road to Damascus - 03 Mar 2007 08:28 GMT
>On Mar 2, 4:14 pm, On the Road to Damascus
><my.life.starts....@REMOVETHISgmail.com> wrote:
[quoted text clipped - 90 lines]
>Jan (grumpy old sourpuss suffering from the probable delusion that
>things can and should be different)

Be glad you're not a vet.

Try calling some local pharmacies and asking them what doctors are
prescribing Provigil. That's not exactly top secret information
although the pharmacist may think it a strange request so you might
have to call around. Doctors tend to have favorite medicines that they
prescribe so it's no use going to one who isn't known to prescribe
what you want. If you've done your research you already know what
symptoms to complain of...lack of energy, difficulty making decisions,
apathy, etc...

I've already got my doctor picked out, I just got to get off my butt
and make an appointment...public mental health doctors don't like
prescribing stuff like that.
Salmon Egg - 04 Mar 2007 07:15 GMT
On 3/3/07 12:28 AM, in article mubiu2d67bpnaoc77gat6550s0dnc5cd3i@4ax.com,

> I've already got my doctor picked out, I just got to get off my butt
> and make an appointment...public mental health doctors don't like
> prescribing stuff like that.
Even after reading the  drug inserts, I do not understand what the big deal
is about Provigil. I would like to know why it is superior to caffeine. Why
are some physicians loathe to describe it. Other than it is an expensive and
scheduled drug, what is the big deal?

Bill
-- Fermez le Bush--about two years to go.
Charlie Perrin - 05 Mar 2007 03:10 GMT
>Even after reading the  drug inserts, I do not understand what the big deal
>is about Provigil.

Well, it's amphetamine-like.

>Why are some physicians loathe to describe it.

They tend prescribe what they know and they feel qualified to
prescribe.

>Other than it is an expensive and
>scheduled drug, what is the big deal?

You've figured out the two bugaboos of Provigil.
John Smith ® - 05 Mar 2007 17:45 GMT
> On 3/3/07 12:28 AM, in article mubiu2d67bpnaoc77gat6550s0dnc5cd3i@4ax.com,
>
[quoted text clipped - 11 lines]
> Bill
> -- Fermez le Bush--about two years to go.

Just another stimulant.  You named the 2 main reasons physicians don't want
to use it.  The 3rd reason is all the dopers that pester them day and night
to get it because they saw an add on TV or the internet and think it will
"help" them between meth runs.

Signature

"I'm quite positive [former White House associate counsel Vince] Foster was
murdered," Sarah McClendon 1995 appearance on Diane Rehm's syndicated radio
show.

Jan - 11 Apr 2007 04:34 GMT
> > On 3/3/07 12:28 AM, in article mubiu2d67bpnaoc77gat6550s0dnc5c...@4ax.com,
>
[quoted text clipped - 26 lines]
>
> - Show quoted text -

Well some people feel like they need speed or anything like it but if
they say so they are afraid people will categorize them just like they
do with meth heads. I am in this category. I need something to counter
my constant sleepiness. I just participated in a sleep study test and
the doctor was able to document that I haven't been making stuff up
all these years just to get ahold of some stimilants. They said I have
sleep apnea and restless legs and this makes it hard for me to get a
good night's sleep even if I think I have been asleep all night. They
said I don't go under deeply enough to get any deep REM sleep and this
probably is the reason I feel sleepy all the time.

Until the sleep study test I didn't have any idea why I'm always
sleepy. I just knew that stimulants make me feel alert enough to get a
day's work done in a day's time. Why are some people so quick to call
people druggies when they have no idea what makes a person crave the
medications they crave just to feel somewhat normal? Just because some
people are just out for kicks doesn't mean we all are.
kooljerk - 12 Apr 2007 07:00 GMT
in re:
news:1173116812_12723@sp6iad.superfeed.net

The reason that it's so expensive is that it's the first stimulant that
doesn't have the "spillover effect," tremor, distorted thinking,
nervousness, et cetera, associated with all of the commonly-used
stimulants. As far as I know, it is the first truly effective stimulant
unrelated to amphetamines or caffeine.

It is truly, dramatically effective. I took it until my pdoc ran out of
samples.

It augmented my antidepressant dramatically.

It virtually eliminated the apathy that is the result of brain damage
among individuals who have suffered from multiple severe clinical
depressions.

It virtually eliminated the cognitive distortions resulting from my
depressions and the medications used to treat them: dysnomia,
paraphasia, stammering, excessive daytime sleepiness and  other
indeterminate problems.

My apathy, "amotivational syndrome," is extreme enough to rob me of any
motivation whatsoever,  I'm very intelligent but my cognitive
distortions make me feel like an idiot.

I thought that it was a life-saver. To say that it isn't superior to
caffeine or amphetamines is pure, unadulterated, b*llsh*t.

---

?

The Earth is one country.
REP - 02 Mar 2007 23:33 GMT
> Okay. I think I made it clear my HMO doctor is no good when it comes
> to treating a specialty disorder so I thought I'd check the
> newsgroups. What kind of doctor do you think would be most likely to
> recommend Provigil and what do I say to be convincing. I am sure that
> saying coffee and caffeine beverages irritate my stomach would sound
> kind of lame (although true) so what else can I say to make a point?

You need to be seen by an ENT or other doctor with a specialty in sleep
disorders. You may have sleep apnea, a very common sleep disorder, or
another problem. No doctor in his/her right mind will prescribe Provigil
without testing to determine what is causing the problem and if it is
the appropriate drug to treat it (or if drugs are needed at all).

Signature

"Did Father shoot him? I will eat Grandfather for dinner."
- Helen Keller, on learning of the death of her grandfather

email: aripee at inanna . com

On the Road to Damascus - 03 Mar 2007 08:30 GMT
>> Okay. I think I made it clear my HMO doctor is no good when it comes
>> to treating a specialty disorder so I thought I'd check the
[quoted text clipped - 8 lines]
>without testing to determine what is causing the problem and if it is
>the appropriate drug to treat it (or if drugs are needed at all).

Show me a psychiatrist in his/her right mind.
kooljerk - 12 Apr 2007 06:10 GMT
in re:
news:1172854224.491901.180760@h3g2000cwc.googlegroups.com

The company that manufactures it extended its patent by adding a new
"Indication for use." It was originally only indicated for use in the
treatment of narcolepsy, but now it's also indicated for the treatment
of "Shift-related sleep disorder." A doctor who has worked with sleep
disorders will prescribe it, but your HMO will almost certainly NOT pay
for it because it's one of the most expensive pharmaceuticals that I've
encoutered.

The indications for use should read " for the treatment of persons with
 prodigious incomes suffering from (whatever)."

---

?

The Earth is one country.
Salmon Egg - 12 Apr 2007 06:41 GMT
On 4/11/07 10:10 PM, in article
gbjTh.320026$8a4.269270@fe03.news.easynews.com, "kooljerk"

> The company that manufactures it extended its patent by adding a new
> "Indication for use."

How long can such an extension last?

I know that if a variation of the drug is being developed there are special
rules that allow extension for about 1-1/2 or 2 years. For example when a
drug is converted into and extended release form.

Bill
-- Fermez le Bush--about two years to go.
kooljerk - 12 Apr 2007 07:19 GMT
in re:
news:C24314A7.6F3BE%salmonegg@sbcglobal.net

The FDA is, for all intents and purposes, a wholly owned subsidiary of
"Big Pharma," the multinational pharmaceutical companies.

They are consistently among the most profitable industries in this country.

---

?

The Earth is one country.
 
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