Medical Forum / General / General / January 2005
Swollen foot - medical mystery
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Abner - 03 Nov 2004 00:35 GMT About 5 months ago I developed a swollen foot. It is the same morning and night so it's not to usual cardio-edema deal. For far I have
Sports Medicine guy - examination and x-rays (3 views) - no joy
Regular doctor Echocardiogram - clean Leg vein doppler ultrasound - clean Slew of blood tests (including lyme and arthritis stuff) - clean 3 weeks of diuretics - zero effect on foot or Me More blood tests - clean 2 weeks without any NSAIDS - no effect Currectly trying 3 months without Lipitor - so far no effect
The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil (10mg) and Prilosec (checked for B12 even).
So ... I and my doctor are out of ideas. Any spectulation, theory, or other tests to try would be greatly appreciated! Thanks.
-A
William Wagner - 03 Nov 2004 01:07 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 17 lines] > > -A New shoes? Or standing more than you have in the past? Anyone in your extended family have similar problem?
Does the swelling go down if you rest your foot in an upright position? I?m missing a vein and that position helps me due to the usual cardio-edema deal. Hope it was a bug bite! ;)))
William(Bill)
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Dr. Andrew B. Chung, MD/PhD - 03 Nov 2004 03:36 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 15 lines] > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Would wonder about lymphedema.
> Thanks. You are welcome.
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Ed Mathes - 03 Nov 2004 04:42 GMT Why would he have lymphoedema?
> > About 5 months ago I developed a swollen foot. It is the same morning and > > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 43 lines] > Is this spam? > http://makeashorterlink.com/?N69721867 Dr. Andrew B. Chung, MD/PhD - 03 Nov 2004 13:54 GMT Some possibilities come to mind:
(1) Sport injury - a sport medicine guy is the first doc on the scene.
(2) Insect bite - negative lyme does not exclude this.
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> Why would he have lymphoedema? > [quoted text clipped - 48 lines] > > Is this spam? > > http://makeashorterlink.com/?N69721867 Kara Tyson - 04 Nov 2004 13:02 GMT > (2) Insect bite - negative lyme does not exclude this. _____________ Thank you, Dr. Chung!!
Kara Tyson Lyme Disease Support Group of AL Director
Dr. Andrew B. Chung, MD/PhD - 04 Nov 2004 14:34 GMT > > (2) Insect bite - negative lyme does not exclude this. > > _____________ > Thank you, Dr. Chung!! You are welcome.
All praises belong to my heavenly Father, Whom I love with all my heart, soul, mind, and strength :-)
> Kara Tyson > Lyme Disease Support Group of AL > Director Yours is a good cause. You will be in my prayers, dear Kara whom I love, in Christ's name.
Servant to the humblest person in the universe,
Andrew
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Terrence Chun, MD - 04 Nov 2004 04:12 GMT > About 5 months ago I developed a swollen foot. It is the same morning > and night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 15 lines] > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Thanks. Filariasis? Have you travelled anywhere "tropical" in the past year?
Hearing zebras thundering outside, - TC, md Pediatric cardiology, pacing and electrophysiology
Don Kirkman - 04 Nov 2004 23:05 GMT It seems to me I heard somewhere that Terrence Chun, MD wrote in article <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>:
>> About 5 months ago I developed a swollen foot. It is the same morning >> and night so it's not to usual cardio-edema deal. For far I have
>> Sports Medicine guy - examination and x-rays (3 views) - no joy
>> Regular doctor >> Echocardiogram - clean [quoted text clipped - 4 lines] >> 2 weeks without any NSAIDS - no effect >> Currectly trying 3 months without Lipitor - so far no effect
>> The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil >> (10mg) and Prilosec (checked for B12 even).
>> So ... I and my doctor are out of ideas. Any spectulation, theory, or >> other tests to try would be greatly appreciated! Thanks.
>Filariasis? Have you travelled anywhere "tropical" in the past year?
>Hearing zebras thundering outside, Thank you, Dr. Chun - I've always liked zebras, both diagnostically and zoologically. :-)
Is there any possibility that clotting in the legs could cause swelling of the type the OP describes?
 Signature Don donkirk@covad.net
Terrence Chun, MD - 05 Nov 2004 07:01 GMT > It seems to me I heard somewhere that Terrence Chun, MD wrote in article > <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>: [quoted text clipped - 28 lines] > Is there any possibility that clotting in the legs could cause swelling > of the type the OP describes? Although I seem to recall that venous thrombosis and obstruction leads to a characteristic venous stasis in the limb. And nothing obvious by Doppler in some part of the leg.
Perhaps my adult colleagues can jog my memory, as they are closer to that than me.
:^) - TC, md Pediatric cardiology, pacing and electrophysiology
REP - 05 Nov 2004 09:25 GMT > Although I seem to recall that venous thrombosis and obstruction leads to a > characteristic venous stasis in the limb. And nothing obvious by Doppler in [quoted text clipped - 4 lines] > than me. > :^) Just an adult patient with venous stasis - normal Doppler in the calf and thigh; sometimes tremendous swelling in the one leg (up to 4.5 inches). Mine is in the entire lower leg, not just the foot.
 Signature "Did Father shoot him? I will eat Grandfather for dinner." - Helen Keller, on learning of the death of her grandfather
Dr. Andrew B. Chung, MD/PhD - 05 Nov 2004 11:44 GMT > > It seems to me I heard somewhere that Terrence Chun, MD wrote in article > > <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>: [quoted text clipped - 35 lines] > Perhaps my adult colleagues can jog my memory, as they are closer to that than me. > :^) Correct. However, D-dimers should be somewhat elevated in that setting.
Servant to the humblest person in the universe,
Andrew
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Cliff - 05 Nov 2004 20:43 GMT Just throwing this in but.....are you sure your foot is swollen or is the other one just getting smaller? lol Hope you get well soon! Former DVT patient
> > > It seems to me I heard somewhere that Terrence Chun, MD wrote in article > > > <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>: [quoted text clipped - 56 lines] > Is this spam? > http://makeashorterlink.com/?N69721867 lymphedemapeople@aol.com - 18 Dec 2004 16:58 GMT I must concur with the possibility of undiagnosed lymphedema (if) every other possible condition has been ruled out. It is very possibly the most mis and undiagnosed medical condition out there. Have you considered having a test called a lymphoscintography? This can show whether or not there is a blockage in the lymphatics. Pat O'Connor Lymphedema People http://lymphedema.omno.org
Terrence Chun, MD - 04 Nov 2004 04:13 GMT > About 5 months ago I developed a swollen foot. It is the same morning > and night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 15 lines] > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Thanks. Filariasis? Have you travelled anywhere "tropical" in the past year?
Hearing zebras thundering outside, - TC, md Pediatric cardiology, pacing and electrophysiology
Terrence Chun, MD - 04 Nov 2004 04:13 GMT > About 5 months ago I developed a swollen foot. It is the same morning > and night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 15 lines] > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Thanks. Filariasis? Have you travelled anywhere "tropical" in the past year?
Hearing zebras thundering outside, - TC, md Pediatric cardiology, pacing and electrophysiology
Dr. Andrew B. Chung, MD/PhD - 04 Nov 2004 07:24 GMT > > About 5 months ago I developed a swollen foot. It is the same morning > > and night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 21 lines] > - TC, md > Pediatric cardiology, pacing and electrophysiology The vibrations must have caused your keyboard to stick sending your post three times :-)
Wonder if there was eosinophilia present to support your guess.
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Andrew
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Don Kirkman - 04 Nov 2004 23:05 GMT It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote in article <4189CB4B.1FC3@heartmdphd.com>:
>> > About 5 months ago I developed a swollen foot. It is the same morning >> > and night so it's not to usual cardio-edema deal. For far I have
>> > Sports Medicine guy - examination and x-rays (3 views) - no joy
>> > Regular doctor >> > Echocardiogram - clean [quoted text clipped - 4 lines] >> > 2 weeks without any NSAIDS - no effect >> > Currectly trying 3 months without Lipitor - so far no effect
>> > The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil >> > (10mg) and Prilosec (checked for B12 even).
>> > So ... I and my doctor are out of ideas. Any spectulation, theory, or >> > other tests to try would be greatly appreciated! Thanks.
>> Filariasis? Have you travelled anywhere "tropical" in the past year?
>>Hearing zebras thundering outside
>The vibrations must have caused your keyboard to stick sending your post >three times :-) Dr. Chun has a massive problem, then. The first two messages were sent 20 minutes apart, the latter two 40 minutes apart.
 Signature Don donkirk@covad.net
Terrence Chun, MD - 05 Nov 2004 06:55 GMT > It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote > in article <4189CB4B.1FC3@heartmdphd.com>: [quoted text clipped - 6 lines] > Dr. Chun has a massive problem, then. The first two messages were sent > 20 minutes apart, the latter two 40 minutes apart. It was a really big herd. I noticed that too. How curious.
- TC, md Pediatric cardiology, pacing and electrophysiology
Dr. Andrew B. Chung, MD/PhD - 05 Nov 2004 11:44 GMT > > It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote > > in article <4189CB4B.1FC3@heartmdphd.com>: [quoted text clipped - 8 lines] > > It was a really big herd. I noticed that too. How curious. Zebras are curious animals. A wise colleague once said to me, "We hardly see those zebras. However, be on guard, because when something bites you on the rear, it will be one of those zebras."
Servant to the humblest person in the universe,
Andrew
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Abner - 06 Nov 2004 20:31 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 15 lines] > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Thanks. Thanks for the replies.
No, I haven't been in a tropical area.
No apparent eosinopllia (had 2 wbc w/diffs)
Other foot actually shrunk. :-) Oddly, that was my first thought as the big one looks somehow healtier than the other one, but then the first time I tried to put on my dress shoes, the small one fit fine, the swollen one was not even close.
Lyme with negative lyme test. Then how the heck to you tell if you really have lyme, or it easier just to suck up the couple weeks of amoxicillin?
Good thoughts though. Would the be any use in doing soft tissue imaging of the foot (ie ultrasound or MRI)? In going thru the literature, the only other thing I have seen that has not been discounted is "clot or mass in pelvic region". It that what the D-Dimer would check for. Seems unlikely though as I'm otherwise im blindingly good health.
Thanks again!
-A
Dr. Andrew B. Chung, MD/PhD - 06 Nov 2004 21:21 GMT > > About 5 months ago I developed a swollen foot. It is the same morning and > > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 29 lines] > Lyme with negative lyme test. Then how the heck to you tell if you really > have lyme, or it easier just to suck up the couple weeks of amoxicillin? Your physician may decide to treat you empirically if s/he suspects it.
> Good thoughts though. Would the be any use in doing soft tissue imaging of > the foot (ie ultrasound or MRI)? In going thru the literature, the only other > thing I have seen that has not been discounted is "clot or mass in pelvic > region". It that what the D-Dimer would check for. Yes for the former.
> Seems unlikely though as > I'm otherwise im blindingly good health. > > Thanks again! You are welcome. All praises belong to my heavenly Father, Whom I love with all my heart, soul, mind, and strength :-)
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Andrew
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Outrider - 06 Nov 2004 23:10 GMT > > About 5 months ago I developed a swollen foot. It is the same morning and > > night so it's not to usual cardio-edema deal. For far I have... What you describe sounds similar to the experience of many who had adverse reaction to Lipitor, Zocor and other statins. Adverse reaction from statins can linger months and years after stopping. This has been my experience, and that of many others. For those with this reaction to Lipitor (et al) no diagnostic test found any other reason for the swelling, often accompanied by pain, weakness and atrophy. Of course this may not be what is happening with you. For your further education about the drug you are taking:
People who had adverse reaction from Lipitor, Zocor et al sharing information:
http://www.rxlist.com/rxboard/lipitor.pl
http://forum.ditonline.com/viewboard.php?BoardID=38
AND:
Statin induced myopathy http://www.impostertrial.com/physician.htm
Dr. Beatrice Golomb is finishing her 5 year NIH funded (no industry money) study on the TOXIC effects of statins: http://www.coloradohealthsite.org/topics/interviews/golomb.html Dr. Golomb's cv http://medicine.ucsd.edu/faculty/golomb/
Dr. Andrew B. Chung, MD/PhD - 07 Nov 2004 14:45 GMT <snip>
> What you describe sounds similar to the experience of many who had > adverse reaction to Lipitor, Zocor and other statins. Adverse reaction [quoted text clipped - 22 lines] > Dr. Golomb's cv > http://medicine.ucsd.edu/faculty/golomb/ Welcome back, Zee :-)
You remain in my prayers, dear Zee whom I love, in Christ's name.
Servant to the humblest person in the universe,
Andrew
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Outrider - 07 Nov 2004 16:00 GMT I find the anti Muslim and anti-Jew comments and undercurrents from some on this group to be very disturbing. If anything, that is what will make me go, and next time, stay away.
Zee who loves you
Dr. Andrew B. Chung, MD/PhD - 08 Nov 2004 02:34 GMT > I find the anti Muslim and anti-Jew comments and undercurrents from > some on this group to be very disturbing. May Jesus Christ give you His peace, then.
> If anything, that is what > will make me go, and next time, stay away. Would suggest you not give Frank any ideas.
> Zee > who loves you Would suggest you love Frank too.
You remain in my prayers, dear Zee whom I love, in Christ's holy name.
Servant to the humblest person in the universe,
Andrew
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MisNomer - 07 Nov 2004 16:41 GMT >About 5 months ago I developed a swollen foot. It is the same morning and >night so it's not to usual cardio-edema deal. snipped
>So ... I and my doctor are out of ideas. Any spectulation, theory, or >other tests to try would be greatly appreciated! Thanks. > >-A Here is my speculation... my foot developed the same symptoms after a bout of dehydration brought on by an overly long bike ride, a year ago. Is it possible that dehydration can cause this? It has also made me realize that I should maintain hydration a bit better.
If I wear socks that are tight the swelling will move up the leg. So, I may try to get longer tight socks. YMMV
take care Liz
J - 18 Dec 2004 19:25 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have > <snipped unuseful tests and consults>. > > So ... I and my doctor are out of ideas. Any spectulation, theory, or > other tests to try would be greatly appreciated! Thanks. What's your age? Did a doctor physically feel your lower leg(s)? Could be start of vascular problems (which won't show up on tests), sometimes leading to varicose veins.
Prevention of worsening: Low-salt diet. Put your feet up 3 or 4 times a day, wear compression stockings. Watch how you sit and walk. You could be putting more weight on it, or cutting off circulation higher up. Don't stand or sit in same position for long periods. J
zwalanga - 18 Dec 2004 19:35 GMT This is common among those who have had serious adverse effect from statins. In some it goes away, in some it takes a long time to do so. I'm still waiting. It's been over three years. Read here. There are contact e-mails within.
http://www.impostertrial.com http://www.coloradohealthsite.org/topics/interviews/golomb.html
Zee
> About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have [quoted text clipped - 17 lines] > > -A abnerdoorman@yahoo.com - 28 Dec 2004 20:23 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have And the winner is ... :-)
My doctor referred me to a "vascular specialist". He just looked at my foot, didn't even touch it. The exchange went roughly like
VS: You have lymphedema Me: What caused it? VS: We don't know (have had no surgery or tropical diseases or diabeties etc) Me: Is it an old age thing? (in my forties) VS: No. Me: How do we treat it? VS: We can't. An artery we can fix. Maybe in 5 years, we will be able to fix veins. Lymph ... Me: Are there any tests we can do, MRI, ultrasound, etc? VS: We could, but it wouldn't change things. Me: <disgusted look> Is this a major part of your job, telling people you have no idea. VS: Well ... sometimes. And you should probably wear a compression stocking. (though he never told me what strength etc)
Thats it. Thanks to the people who made helpful suggestions! If we needed another hint that "medical science" was still in the stone age this would be it.
-A
zwalanga - 28 Dec 2004 20:38 GMT Why? Because he did not run you through one medication after another, subject you to surgical procedures and whatever else he could throw at you, which would not have made things better but might have further compromised your health and not cured the original problem. Try a few different stengths and types of stockings. Lose weight. Start daily aerobic exercise if you do not already do so. And be grateful for an honest, honourable physician. Zee
> > About 5 months ago I developed a swollen foot. It is the same morning > and [quoted text clipped - 26 lines] > > -A abnerdoorman@yahoo.com - 08 Jan 2005 21:15 GMT > Why? Because he did not run you through one medication after another, > subject you to surgical procedures and whatever else he could throw at [quoted text clipped - 3 lines] > aerobic exercise if you do not already do so. And be grateful for an > honest, honourable physician. Zee Agreed. I was not mocking the doctor, but rather the feeble state of "medical science". :-)
Anyway, my doctor prescribed these compression stockings for me (20-30mm). They left these amazing red indentation/welts on my foot at the bend between the ankle and the instep. I checked the socks for wrinkles a couple times during the day so thats not the problem. Not clear that it is a net win healthwise. I also have a pair of the 15-20mm Jobst ones and they only slightly cause the creases but the doctor and the med supply place both was firm that 20-30 was what was needed for lymphedema. Guess I'll have to crank up the process of losing weight! -A
lymphedemapeople@aol.com - 10 Jan 2005 14:02 GMT Hi "A"
If what you have is lymphedema, you might want to see about geting a referral to a lymphedema therapist. After you receive therapy and the foot sweeling is reduced, you would be measured for a foot garment specifically designed and customized to your foot.
My concern also is that if you don't see a specialist trained in lymphedema, that it will get worse and you will have additional complications.
By the way "hard" rubbing is not good and really will not help with the swelling, nor will things like diuretics.
Good Luck to You - will be happy to help with any questions on lymphedema
Pat Lymphedema People http://lymphedema.omno.org
William Wagner - 28 Dec 2004 21:13 GMT > > About 5 months ago I developed a swollen foot. It is the same morning > and [quoted text clipped - 4 lines] > My doctor referred me to a "vascular specialist". He just looked at my > foot, didn't even touch it. The exchange went roughly like
> -A Consider self inflicted foot massage. Rub the hurt! I?ve been know to wear sandals will lots of bumps to massage that region and use strong hands elsewhere. Birdenstock company has some. Do not be gentle... as always ask your doc if this is OK. This from a Swedish massage type of guy.
I always rub the hurt .
Hope all improves!
Bill
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abnerdoorman@yahoo.com - 28 Dec 2004 21:05 GMT > About 5 months ago I developed a swollen foot. It is the same morning and > night so it's not to usual cardio-edema deal. For far I have And the winner is ... :-)
My doctor referred me to a "vascular specialist". He just looked at my foot, didn't even touch it. The exchange went roughly like
VS: You have lymphedema Me: What caused it? VS: We don't know (have had no surgery or tropical diseases or diabeties etc) Me: Is it an old age thing? (in my forties) VS: No. Me: How do we treat it? VS: We can't. An artery we can fix. Maybe in 5 years, we will be able to fix veins. Lymph ... Me: Are there any tests we can do, MRI, ultrasound, etc? VS: We could, but it wouldn't change things. Me: <disgusted look> Is this a major part of your job, telling people you have no idea. VS: Well ... sometimes. And you should probably wear a compression stocking. (though he never told me what strength etc)
Thats it. Thanks to the people who made helpful suggestions! If we needed another hint that "medical science" was still in the stone age this would be it.
-A
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