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Medical Forum / General / General / January 2005

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Swollen foot - medical mystery

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Abner - 03 Nov 2004 00:35 GMT
About 5 months ago I developed a swollen foot. It is the same morning and
night so it's not to usual cardio-edema deal. For far I have

Sports Medicine guy - examination and x-rays (3 views) - no joy

Regular doctor
 Echocardiogram - clean
 Leg vein doppler ultrasound - clean
 Slew of blood tests (including lyme and arthritis stuff) - clean
 3 weeks of diuretics - zero effect on foot or Me
 More blood tests - clean
 2 weeks without any NSAIDS - no effect
 Currectly trying 3 months without Lipitor - so far no effect

The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil (10mg)
and Prilosec (checked for B12 even).

So ... I and my doctor are out of ideas. Any spectulation, theory, or
other tests to try would be greatly appreciated! Thanks.

-A
William Wagner - 03 Nov 2004 01:07 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 17 lines]
>
> -A

New shoes? Or  standing more than you have in the past?  Anyone in your
extended family have similar problem?    

Does the swelling go down if you rest your foot in an upright position?  
I?m missing a vein and that position helps  me due to the usual
cardio-edema deal.
 
Hope it was a bug bite!   ;)))

William(Bill)

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Dr. Andrew B. Chung, MD/PhD - 03 Nov 2004 03:36 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 15 lines]
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated!

Would wonder about lymphedema.

> Thanks.

You are welcome.

All praises belong to my heavenly Father, Whom I love with all my heart, soul,
mind, and strength.

Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
Who is the humblest person in the universe?
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Ed Mathes - 03 Nov 2004 04:42 GMT
Why would he have lymphoedema?

> > About 5 months ago I developed a swollen foot. It is the same morning and
> > night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 43 lines]
> Is this spam?
> http://makeashorterlink.com/?N69721867
Dr. Andrew B. Chung, MD/PhD - 03 Nov 2004 13:54 GMT
Some possibilities come to mind:

(1) Sport injury - a sport medicine guy is the first doc on the scene.

(2) Insect bite - negative lyme does not exclude this.


Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
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> Why would he have lymphoedema?
>
[quoted text clipped - 48 lines]
> > Is this spam?
> > http://makeashorterlink.com/?N69721867
Kara Tyson - 04 Nov 2004 13:02 GMT
> (2) Insect bite - negative lyme does not exclude this.

_____________
Thank you, Dr. Chung!!

Kara Tyson
Lyme Disease Support Group of AL
Director
Dr. Andrew B. Chung, MD/PhD - 04 Nov 2004 14:34 GMT
> > (2) Insect bite - negative lyme does not exclude this.
>
> _____________
> Thank you, Dr. Chung!!

You are welcome.

All praises belong to my heavenly Father, Whom I love with all my heart,
soul, mind, and strength :-)

> Kara Tyson
> Lyme Disease Support Group of AL
> Director

Yours is a good cause.  You will be in my prayers, dear Kara whom I
love, in Christ's name.


Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
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What is all this about?
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Is this spam?
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Terrence Chun, MD - 04 Nov 2004 04:12 GMT
> About 5 months ago I developed a swollen foot. It is the same morning
> and night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 15 lines]
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated! Thanks.

Filariasis?  Have you travelled anywhere "tropical" in the past year?

Hearing zebras thundering outside,
- TC, md
 Pediatric cardiology, pacing and electrophysiology
Don Kirkman - 04 Nov 2004 23:05 GMT
It seems to me I heard somewhere that Terrence Chun, MD wrote in article
<Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>:

>> About 5 months ago I developed a swollen foot. It is the same morning
>> and night so it's not to usual cardio-edema deal. For far I have

>> Sports Medicine guy - examination and x-rays (3 views) - no joy

>> Regular doctor
>>   Echocardiogram - clean
[quoted text clipped - 4 lines]
>>   2 weeks without any NSAIDS - no effect
>>   Currectly trying 3 months without Lipitor - so far no effect

>> The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil
>> (10mg) and Prilosec (checked for B12 even).

>> So ... I and my doctor are out of ideas. Any spectulation, theory, or
>> other tests to try would be greatly appreciated! Thanks.

>Filariasis?  Have you travelled anywhere "tropical" in the past year?

>Hearing zebras thundering outside,

Thank you, Dr. Chun - I've always liked zebras, both diagnostically and
zoologically.  :-)

Is there any possibility that clotting in the legs could cause swelling
of the type the OP describes?
Signature

Don
donkirk@covad.net

Terrence Chun, MD - 05 Nov 2004 07:01 GMT
> It seems to me I heard somewhere that Terrence Chun, MD wrote in article
> <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>:
[quoted text clipped - 28 lines]
> Is there any possibility that clotting in the legs could cause swelling
> of the type the OP describes?

Although I seem to recall that venous thrombosis and obstruction leads to a
characteristic venous stasis in the limb.  And nothing obvious by Doppler in some part
of the leg.

Perhaps my adult colleagues can jog my memory, as they are closer to that than me.
:^)

- TC, md
 Pediatric cardiology, pacing and electrophysiology
REP - 05 Nov 2004 09:25 GMT
> Although I seem to recall that venous thrombosis and obstruction leads to a
> characteristic venous stasis in the limb.  And nothing obvious by Doppler in
[quoted text clipped - 4 lines]
> than me.
> :^)

Just an adult patient with venous stasis - normal Doppler in the calf
and thigh; sometimes tremendous swelling in the one leg (up to 4.5
inches). Mine is in the entire lower leg, not just the foot.

Signature

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- Helen Keller, on learning of the death of her grandfather

Dr. Andrew B. Chung, MD/PhD - 05 Nov 2004 11:44 GMT
> > It seems to me I heard somewhere that Terrence Chun, MD wrote in article
> > <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>:
[quoted text clipped - 35 lines]
> Perhaps my adult colleagues can jog my memory, as they are closer to that than me.
> :^)

Correct.  However, D-dimers should be somewhat elevated in that setting.

Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

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Is this spam?
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Cliff - 05 Nov 2004 20:43 GMT
Just throwing this in but.....are you sure your foot is swollen or is the
other one just getting smaller? lol
Hope you get well soon!
Former DVT patient

> > > It seems to me I heard somewhere that Terrence Chun, MD wrote in article
> > > <Xns9596C36928EFEdocterrycincirrcom@130.133.1.4>:
[quoted text clipped - 56 lines]
> Is this spam?
> http://makeashorterlink.com/?N69721867
lymphedemapeople@aol.com - 18 Dec 2004 16:58 GMT
I must concur with the possibility of undiagnosed lymphedema (if) every
other possible condition has been ruled out.  It is very possibly the
most mis and undiagnosed medical condition out there.  Have you
considered having a test called a lymphoscintography?  This can show
whether or not there is a blockage in the lymphatics.
Pat O'Connor
Lymphedema People
http://lymphedema.omno.org
Terrence Chun, MD - 04 Nov 2004 04:13 GMT
> About 5 months ago I developed a swollen foot. It is the same morning
> and night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 15 lines]
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated! Thanks.

Filariasis?  Have you travelled anywhere "tropical" in the past year?

Hearing zebras thundering outside,
- TC, md
 Pediatric cardiology, pacing and electrophysiology
Terrence Chun, MD - 04 Nov 2004 04:13 GMT
> About 5 months ago I developed a swollen foot. It is the same morning
> and night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 15 lines]
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated! Thanks.

Filariasis?  Have you travelled anywhere "tropical" in the past year?

Hearing zebras thundering outside,
- TC, md
 Pediatric cardiology, pacing and electrophysiology
Dr. Andrew B. Chung, MD/PhD - 04 Nov 2004 07:24 GMT
> > About 5 months ago I developed a swollen foot. It is the same morning
> > and night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 21 lines]
> - TC, md
>   Pediatric cardiology, pacing and electrophysiology

The vibrations must have caused your keyboard to stick sending your post
three times :-)

Wonder if there was eosinophilia present to support your guess.


Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
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Don Kirkman - 04 Nov 2004 23:05 GMT
It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote
in article <4189CB4B.1FC3@heartmdphd.com>:

>> > About 5 months ago I developed a swollen foot. It is the same morning
>> > and night so it's not to usual cardio-edema deal. For far I have

>> > Sports Medicine guy - examination and x-rays (3 views) - no joy

>> > Regular doctor
>> >   Echocardiogram - clean
[quoted text clipped - 4 lines]
>> >   2 weeks without any NSAIDS - no effect
>> >   Currectly trying 3 months without Lipitor - so far no effect

>> > The foot is always the same. Doesn't hurt. Oh, I am taking Prinivil
>> > (10mg) and Prilosec (checked for B12 even).

>> > So ... I and my doctor are out of ideas. Any spectulation, theory, or
>> > other tests to try would be greatly appreciated! Thanks.

>> Filariasis?  Have you travelled anywhere "tropical" in the past year?

>>Hearing zebras thundering outside  

>The vibrations must have caused your keyboard to stick sending your post
>three times :-)

Dr. Chun has a massive problem, then.  The first two messages were sent
20 minutes apart, the latter two 40 minutes apart.
Signature

Don
donkirk@covad.net

Terrence Chun, MD - 05 Nov 2004 06:55 GMT
> It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote
> in article <4189CB4B.1FC3@heartmdphd.com>:
[quoted text clipped - 6 lines]
> Dr. Chun has a massive problem, then.  The first two messages were sent
> 20 minutes apart, the latter two 40 minutes apart.

It was a really big herd.  I noticed that too.  How curious.

- TC, md
 Pediatric cardiology, pacing and electrophysiology
Dr. Andrew B. Chung, MD/PhD - 05 Nov 2004 11:44 GMT
> > It seems to me I heard somewhere that Dr. Andrew B. Chung, MD/PhD wrote
> > in article <4189CB4B.1FC3@heartmdphd.com>:
[quoted text clipped - 8 lines]
>
> It was a really big herd.  I noticed that too.  How curious.

Zebras are curious animals.  A wise colleague once said to me, "We
hardly see those zebras.  However, be on guard, because when something
bites you on the rear, it will be one of those zebras."

Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
Who is the humblest person in the universe?
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Is this spam?
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Abner - 06 Nov 2004 20:31 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 15 lines]
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated! Thanks.

Thanks for the replies.

No, I haven't been in a tropical area.

No apparent eosinopllia (had 2 wbc w/diffs)

Other foot actually shrunk. :-) Oddly, that was my first thought as the
big one looks somehow healtier than the other one, but then the first time
I tried to put on my dress shoes, the small one fit fine, the swollen one
was not even close.

Lyme with negative lyme test. Then how the heck to you tell if you really
have lyme, or it easier just to suck up the couple weeks of amoxicillin?

Good thoughts though. Would the be any use in doing soft tissue imaging of
the foot (ie ultrasound or MRI)? In going thru the literature, the only other
thing I have seen that has not been discounted is "clot or mass in pelvic
region". It that what the D-Dimer would check for. Seems unlikely though as
I'm otherwise im blindingly good health.

Thanks again!

-A
Dr. Andrew B. Chung, MD/PhD - 06 Nov 2004 21:21 GMT
> > About 5 months ago I developed a swollen foot. It is the same morning and
> > night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 29 lines]
> Lyme with negative lyme test. Then how the heck to you tell if you really
> have lyme, or it easier just to suck up the couple weeks of amoxicillin?

Your physician may decide to treat you empirically if s/he suspects it.

> Good thoughts though. Would the be any use in doing soft tissue imaging of
> the foot (ie ultrasound or MRI)? In going thru the literature, the only other
> thing I have seen that has not been discounted is "clot or mass in pelvic
> region". It that what the D-Dimer would check for.

Yes for the former.

> Seems unlikely though as
> I'm otherwise im blindingly good health.
>
> Thanks again!

You are welcome.  All praises belong to my heavenly Father, Whom I love with all my heart, soul, mind, and
strength :-)

Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
Who is the humblest person in the universe?
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What is all this about?
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Outrider - 06 Nov 2004 23:10 GMT
> > About 5 months ago I developed a swollen foot. It is the same morning and
> > night so it's not to usual cardio-edema deal. For far I have...

What you describe sounds similar to the experience of many who had
adverse reaction to Lipitor, Zocor and other statins. Adverse reaction
from statins can linger months and years after stopping. This has been
my experience, and that of many others. For those with this reaction to
Lipitor (et al) no diagnostic test found any other reason for the
swelling, often accompanied by pain, weakness and atrophy. Of course
this may not be what is happening with you. For your further education
about the drug you are taking:

People who had adverse reaction from Lipitor, Zocor et al sharing
information:

http://www.rxlist.com/rxboard/lipitor.pl

http://forum.ditonline.com/viewboard.php?BoardID=38

AND:

Statin induced myopathy
http://www.impostertrial.com/physician.htm

Dr. Beatrice Golomb is finishing her 5 year NIH funded (no industry
money) study on the TOXIC effects of statins:
http://www.coloradohealthsite.org/topics/interviews/golomb.html
Dr. Golomb's cv
http://medicine.ucsd.edu/faculty/golomb/
Dr. Andrew B. Chung, MD/PhD - 07 Nov 2004 14:45 GMT
<snip>
> What you describe sounds similar to the experience of many who had
> adverse reaction to Lipitor, Zocor and other statins. Adverse reaction
[quoted text clipped - 22 lines]
> Dr. Golomb's cv
> http://medicine.ucsd.edu/faculty/golomb/

Welcome back, Zee :-)

You remain in my prayers, dear Zee whom I love, in Christ's name.


Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

**
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Outrider - 07 Nov 2004 16:00 GMT
I find the anti Muslim and anti-Jew comments and undercurrents from
some on this group to be very disturbing. If anything, that is what
will make me go, and next time, stay away.

Zee
who loves you
Dr. Andrew B. Chung, MD/PhD - 08 Nov 2004 02:34 GMT
> I find the anti Muslim and anti-Jew comments and undercurrents from
> some on this group to be very disturbing.

May Jesus Christ give you His peace, then.

> If anything, that is what
> will make me go, and next time, stay away.

Would suggest you not give Frank any ideas.

> Zee
> who loves you

Would suggest you love Frank too.

You remain in my prayers, dear Zee whom I love, in Christ's holy name.

Servant to the humblest person in the universe,

Andrew

--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/

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MisNomer - 07 Nov 2004 16:41 GMT
>About 5 months ago I developed a swollen foot. It is the same morning and
>night so it's not to usual cardio-edema deal.

snipped

>So ... I and my doctor are out of ideas. Any spectulation, theory, or
>other tests to try would be greatly appreciated! Thanks.
>
>-A

Here is my speculation... my foot developed the same symptoms after a bout of
dehydration brought on by an overly long bike ride, a year ago.    Is it
possible that dehydration can cause this?   It has also made me realize that I
should  maintain hydration a bit better.  

If I wear socks that are tight the swelling will move up the leg.   So, I may
try to get longer tight socks.  YMMV

take care
Liz
J - 18 Dec 2004 19:25 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have
> <snipped unuseful tests and consults>.
>
> So ... I and my doctor are out of ideas. Any spectulation, theory, or
> other tests to try would be greatly appreciated! Thanks.

What's your age?
Did a doctor physically feel your lower leg(s)? Could be start of vascular
problems (which won't show up on tests), sometimes leading to varicose veins.

Prevention of worsening:
Low-salt diet.
Put your feet up 3 or 4 times a day, wear compression stockings.
Watch how you sit and walk. You could be putting more weight on it, or cutting
off circulation higher up.
Don't stand or sit in same position for long periods.
J
zwalanga - 18 Dec 2004 19:35 GMT
This is common among those who have had serious adverse effect from
statins. In some it goes away, in some it takes a long time to do so.
I'm still waiting. It's been over three years. Read here. There are
contact e-mails within.

http://www.impostertrial.com
http://www.coloradohealthsite.org/topics/interviews/golomb.html

Zee

> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have
[quoted text clipped - 17 lines]
>
> -A
abnerdoorman@yahoo.com - 28 Dec 2004 20:23 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have

And the winner is ... :-)

My doctor referred me to a "vascular specialist". He just looked at my
foot, didn't even touch it. The exchange went roughly like

VS: You have lymphedema
Me: What caused it?
VS: We don't know (have had no surgery or tropical diseases or
diabeties etc)
Me: Is it an old age thing? (in my forties)
VS: No.
Me: How do we treat it?
VS: We can't. An artery we can fix. Maybe in 5 years, we will be
able to fix veins. Lymph ...
Me: Are there any tests we can do, MRI, ultrasound, etc?
VS: We could, but it wouldn't change things.
Me: <disgusted look> Is this a major part of your job, telling people
you have no idea.
VS: Well ... sometimes. And you should probably wear a compression
stocking. (though he never told me what strength etc)

Thats it. Thanks to the people who made helpful suggestions! If we
needed another hint that "medical science" was still in the stone age
this would be it.

-A
zwalanga - 28 Dec 2004 20:38 GMT
Why? Because he did not run you through one medication after another,
subject you to surgical procedures and whatever else he could throw at
you, which would not have made things better but might have further
compromised your health and not cured the original problem. Try a few
different stengths and types of stockings. Lose weight. Start daily
aerobic exercise if you do not already do so. And be grateful for an
honest, honourable physician. Zee

> > About 5 months ago I developed a swollen foot. It is the same morning
> and
[quoted text clipped - 26 lines]
>
> -A
abnerdoorman@yahoo.com - 08 Jan 2005 21:15 GMT
> Why? Because he did not run you through one medication after another,
> subject you to surgical procedures and whatever else he could throw at
[quoted text clipped - 3 lines]
> aerobic exercise if you do not already do so. And be grateful for an
> honest, honourable physician. Zee

Agreed. I was not mocking the doctor, but rather the feeble state
of "medical science". :-)

Anyway, my doctor prescribed these compression stockings for me
(20-30mm).
They left these amazing red indentation/welts on my foot at the
bend between the ankle and the instep. I checked the socks for wrinkles
a couple times during the day so thats not the problem. Not clear that
it is a net win healthwise. I also have a pair of the 15-20mm Jobst
ones and they only slightly cause the creases but the doctor and the
med supply place both was firm that 20-30 was what was needed for
lymphedema. Guess I'll have to crank up the process of losing weight!
-A
lymphedemapeople@aol.com - 10 Jan 2005 14:02 GMT
Hi "A"

If what you have is lymphedema, you might want to see about geting a
referral to a lymphedema therapist.  After you receive therapy and the
foot sweeling is reduced, you would be measured for a foot garment
specifically designed and customized to your foot.

My concern also is that if you don't see a specialist trained in
lymphedema, that it will get worse and you will have additional
complications.

By the way "hard" rubbing is not good and really will not help with the
swelling, nor will things like diuretics.

Good Luck to You - will be happy to help with any questions on
lymphedema

Pat
Lymphedema People
http://lymphedema.omno.org
William Wagner - 28 Dec 2004 21:13 GMT
> > About 5 months ago I developed a swollen foot. It is the same morning
> and
[quoted text clipped - 4 lines]
> My doctor referred me to a "vascular specialist". He just looked at my
> foot, didn't even touch it. The exchange went roughly like

> -A

Consider self  inflicted foot massage.  Rub the hurt!  I?ve been know to
wear sandals will lots of bumps to massage that region  and use strong
hands elsewhere.  Birdenstock  company has some.  Do not be gentle... as
always ask your doc if this is OK.  This from a Swedish massage type of
guy.

I always rub the hurt .

Hope all improves!

Bill

Signature

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abnerdoorman@yahoo.com - 28 Dec 2004 21:05 GMT
> About 5 months ago I developed a swollen foot. It is the same morning and
> night so it's not to usual cardio-edema deal. For far I have

And the winner is ... :-)

My doctor referred me to a "vascular specialist". He just looked at my
foot, didn't even touch it. The exchange went roughly like

VS: You have lymphedema
Me: What caused it?
VS: We don't know (have had no surgery or tropical diseases or
diabeties etc)
Me: Is it an old age thing? (in my forties)
VS: No.
Me: How do we treat it?
VS: We can't. An artery we can fix. Maybe in 5 years, we will be
able to fix veins. Lymph ...
Me: Are there any tests we can do, MRI, ultrasound, etc?
VS: We could, but it wouldn't change things.
Me: <disgusted look> Is this a major part of your job, telling people
you have no idea.
VS: Well ... sometimes. And you should probably wear a compression
stocking. (though he never told me what strength etc)

Thats it. Thanks to the people who made helpful suggestions! If we
needed another hint that "medical science" was still in the stone age
this would be it.

-A
 
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