Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Lupus / February 2004

Tip: Looking for answers? Try searching our database.

Up With The MTX

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
JDWAT@webtv.net - 26 Feb 2004 02:20 GMT
I'm going, going, went...back up to 20mg of MTX today.  This is one time
my shot couldn't possibly make me feel awful. : )

Sure didn't want to, but I knew if I didn't, then I would likely be
forced to begin prednisone again.  With that comes the eye inflammation
& I kinda need those.

So, I'm just hangin' out, starting to wonder how everyone is?  Nobody's
posting & a few are seriously awol & I'm worried about a couple of them
in particular.

And you all know what that does to people; worry causes anxiety & that
causes stress & that causes flares, oh my! <g>

Maggie
Beverley - 26 Feb 2004 03:44 GMT
Oh, Maggie I wonder out here for a few minutes and then get pulled away to
do something. Besides I've got to get some sleep.
So sorry to hear you are not doing well. So I'm sending you a big cyber hug.
((((((((((((((((((((HUG))))))))))))))))))))
Bev

> I'm going, going, went...back up to 20mg of MTX today.  This is one time
> my shot couldn't possibly make me feel awful. : )
[quoted text clipped - 11 lines]
>
> Maggie
David - 26 Feb 2004 05:03 GMT
Hi, Is MTX Methotrexate?   I take 2.5mgX4 on Wednesday and on Thursday.  I
also take 200mg Plaquenil twice a day among other things.  My rheumy advised
me against prednisome.  She said that the benefits do not justify side
effects.  Any thoughts on this?

Thanks
David

> I'm going, going, went...back up to 20mg of MTX today.  This is one time
> my shot couldn't possibly make me feel awful. : )
[quoted text clipped - 11 lines]
>
> Maggie
JDWAT@webtv.net - 26 Feb 2004 09:16 GMT
Hi David,

Yep!  That's Methotrexate.  I am doing shots at home--I do two shots
each Wednesday,10mg each.    

I'm glad you have a doctor that's so concerned about prednisone.  It's
not a good drug to rely on, but I know deep down that I may very well
have to rely on it many more times in this life.
And so will others here.  

In my opinion, each person really has to determine whether the benefits
outweigh *their* risks.  Some take prednisone for awhile & never see the
awful side effects, but it can take the next person by surprise & damage
their kidneys or cause glaucoma.   If you can keep your immune system
controlled with MTX & Planquenil, then that's always the way to go.
However, if you ever flare in such a way that the meds aren't working
anymore & you are deteriorating quickly & can barely walk etc., then
prednisone can miraculously bring you back around until you get a new
drug in your system.  

In my case, I have autoimmune hearing loss & each time I use prednisone,
or go off of it rather, my eye(s) become inflamed.  So, that's why I
avoid it at all costs.  But, if the MTX doesn't kick back in & save me,
I'd rather go ahead & take the prednisone because I know what happens if
I don't.  

Hope that helps.  We had a discussion about prednisone not too long ago
& there was a good link that Nina provided for side effects.  I'll see
if I can find it before I try to go back to sleep. : )

Maggie


 
JDWAT@webtv.net - 26 Feb 2004 09:25 GMT
Got it!

http://www.orthop.washington.edu/arthritis/medications/corticosteroids/01

There's several pages, so just keep clicking on "next" to get to the
side effects.  I think it was page 4 or 5 for side effects.  Lots of
good info though.

Maggie
David - 26 Feb 2004 16:10 GMT
Thanks Maggie, that explains a lot.

You folks are an awesome group

David.

> Got it!
>
[quoted text clipped - 5 lines]
>
> Maggie
JDWAT@webtv.net - 27 Feb 2004 06:21 GMT
Hi Nina!

I just don't know what I'm dealing with.  I can't get a dx from a single
doctor.  They just say autoimmune everywhere I go.  My eye(s) just gets
really red & it hurts like a bugger & I can't even look outside if it's
cloudy.

Mine will inflame due to foreign matter getting in the eye or it will
flare when coming off of the prednisone--no matter how slowly, it seems.
From what I've read, I think it could be Uveitis because it can also
affect the hearing.  And that bites! : )

What are your exams for?  And how's the new MTX dose working for you?

Hugs4u,
Maggie
NW - 27 Feb 2004 08:23 GMT
[...]
The light sensitivity sounds like iritis/uveitis, but it could also be
conjunctivitis.
Iritis/uveitis can cause bad damage to the eye. If you get it again, please
visit an ophthamologist right away, in order to get cortisone drops and
other drops that will help dilate the pupil. If it's really bad, you'll get
a cortisone injection into the eye (I almost passed out when I first  heard
this from a doctor). Here's some info on uveitis and other autoimmune eye
disease articles:
http://www.uveitis.net/patient_information.htm
http://www.uveitis.org/patient/articles/articles/default.html

Pics of different eye diseases:
http://www.eyeatlas.com/

> What are your exams for?  And how's the new MTX dose working for you?

They are prerequirements in order to get into the biomedicine program at
medical school next semester. The new MTX dose (25 mg) has improved my mouth
ulcers and the blood spots. Other than that, it hasn't done a thing, not
even stopped my sed rate and CRP from rising even higher. My RD has put me
on a short Pred burst, so that I'll get some energy and be able to do the
exam. Having to sit 4 hours on a wooden chair is a very strange and unusual
punishment for someone with back- and butt inflammation.

Nina
NW - 26 Feb 2004 09:50 GMT
Hi Maggie,

What's the name of that eye inflammation you've had? I have eye inflammation
too, episcleritis. Spondyloarthropathies are closely associated with
iritis/uveitis
but I hope that's not what you have?

Nina - who's having two big exams within a week - aarrgh!!
Cindy - 26 Feb 2004 14:25 GMT
Hugs Maggie
Cindy
Wesley - 26 Feb 2004 15:30 GMT
Hi Maggie!

I'm sorry you had to up your MTX.  I sure hope it is worth it, and
that you feel a lot better soon.

Hugs,

Wes

> I'm going, going, went...back up to 20mg of MTX today.  This is one time
> my shot couldn't possibly make me feel awful. : )
[quoted text clipped - 11 lines]
>
> Maggie
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.