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Medical Forum / Diseases and Disorders / Lupus / January 2004Grace C--how ya doin?
Hi Grace, I saw your post on one of the threads. Now I know you are about and reading at least. How are you doing? Do you feel well enough to give us an update. BJ-Sk. Canada Hi BJ: Thanks for asking! Hmm...I definitely feel better than right after the stem cell transplant! I still have some fatigue...but I'm not quite 3 months into the six-month recovery. I walk with a limp and my left arm/hand is significantly crippled. I have resigned myself to writing with my right hand. I am now typing 2-handed, but it's awkward and slow. I can only read this with eyedrops, and in certain light. I go for steroid-induced cataract surgery in Feb. Next week, I should have results on some lupus-related blood tests: is it in remission or could it be gone? I am off all lupus drugs now, including prednisone. Next week, I am going for another MRI. We are asking God to show those tumors have shrunken away...I should have results the following week. I have too many doctors' appointments. I am doing physio, and am taking a rehabilitative pilates class with a friend. I make dinner most nights. I go out occasionally for lunch with friends; I make it out to church and a ladies' Bible study. I have done a tiny bit of fiction writing.... Most of all, I try to spend quality time with my young son... All the best to you all, Grace. Hello Grace, Thanks for the update! I do hope the MRI shows shrinkage & the blood tests are promising. Sending Hugs & Prayers, Maggie Maggie: Thanks so much, Grace. "Grace Casselman" wrote in message | Hmm...I definitely feel better than right after the stem cell transplant! | I still have some fatigue...but I'm not quite 3 months into the six-month | recovery. I walk with a limp and my left arm/hand is significantly crippled. |I have resigned myself to writing with my right hand. I am now typing 2-handed, | but it's awkward and slow. | I can only read this with eyedrops, and in certain light. I go for [quoted text clipped - 12 lines] | All the best to you all, | Grace. Grace it is so good to see you 'talking' with us all again and to see that you seem to be carrying on with your life again, though it is still somewhat limited out of necessity! I for one, really admire your strength and courage with your ability to get up and keep on trucking, no matter what has been dealt to you. You really are a 'mentor' for alot of us here and I for one am an admirer! 'You rock'! and I pray that you can keep on going at the speed you are and better for many years to come spending tons of quality time with your son and family! Sending all the best wishes for health and happiness on the wings of angels! ((((Hugs)))) from Shelagh > | Grace. > [quoted text clipped - 11 lines] > of angels! > ((((Hugs)))) from Shelagh ((( HUGS )))) Grace :))) Shelagh covered all the my thoughts you ! You and Wes are what real heros are made of , for you better our thoughts , your virtual family. Grace please do not hire me to write with you . Looking at things backwards it took me neer 15 min. to get that one line ! I have bought an I B M voice software , where you teach it to recognize a voice and it types on the pc screen " and spell checks " Me thinks this thingy has got to be quicker than B B B " Backwards , Bruce , Browning "school nic name " that is why I left school in grade seven and did not know that it was medical till age twenty. Training as a paramedic they gave me xams verbal and I never went below 80% . Till age fifty three , each year we had full eight hours of exams " pass was 80% to requalify in order to work the next day! Grace that is a long winded way of saying it may be an avenue for you to explore , for you have so much to say to others ! Bruce On. Hi Bruce: I've definitely thought about voice recognition. I may end up upgrading my computer to go that route... right now, I'm just trying to get the typing back... Grace. > Shelagh covered all the my thoughts you ! > You and Wes are what real heros are made of , for you better our thoughts , [quoted text clipped - 14 lines] > Grace that is a long winded way of saying it may be an avenue for you to > explore , for you have so much to say to others ! Gee is that the software speaking above? If so, that's very neat, Bruce. Do you have trouble reading also? There's a program that reads text back to you. Hugs J Thanks Shelagh: I do love compliments, but I'm sure you know too that we've got to push on and make the most of any opportunity. I hope and plan to feel better in the future, but I don't feel too bad right now...so take the opportunities I know I have, right? Thanks for all the support, Grace. Hi Grace, I am so glad that you are making progress. You continue to amaze and inspire. How wonderful it would be if your lupus was gone forever. I will pray with you concerning your MRI. There is strength in numbers, and I am sure there are many others there doing the same. Let us know how you are coming along, when you feel up to doing so. Take care. BJ-Sk. Canada > Hi BJ: > [quoted text clipped - 29 lines] > > Grace. |
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