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Medical Forum / Diseases and Disorders / Lupus / January 2004PELL NILLY willy billy rilly: )
LOL! Hi Pell! Have you had it tested for fungus? Your toenail sounds like mine & a couple of others here also have this. It's very likely autoimmune related. Nothing has ever helped mine except lowering the immune system & waiting it out. Mine is so sore right now, I cannot wear socks *&* shoes together. Just socks around the house & shoes outside. I have been to the podiatrist & if anything would help, they would've surely told me about it. Not saying you shouldn't put something on it, for moisture, comfort, etc.., but if it's not fungal, then it's really just a waiting game. I put methiolate (sp--monkey's blood--who came up w/that, geez?!) on the corners of my toenail & it really helps the soreness, unless I hit it on something. HTH & Hugs2, Maggie Hi Maggie, I believe you and I have had this gross discussion before. I have trouble with my toenails and finger nails. They have, on occasion, grown in quite normally on their own. I don't think my problem is fungus either. It seems related to flares. My nails are best when my immune system is well suppressed. Right now my finger nails are not too bad, and the nail on my big toe is in the process of growing back. There is an OTC Lamisil cream for those interested in trying it. The tablets require a prescription here in Canada. BJ-Sk. Canada > LOL! > [quoted text clipped - 17 lines] > HTH & Hugs2, > Maggie Hi BJ! I remembered you were one, but decided to leave names out of it as I thought you'd been picked on enough for one week. <g> Now you have chook toes too, huh? : ) You know my left toenail has grown out fairly well, but the right one has taken another turn for the worse & that booger hurts like crazy, for no good reason sometimes. Just one more icky thing for the files. I'm glad yours is doing so well. I think that's a good sign as to what your immune system is doing right now, or not doing rather. : ) Hugs, Maggie > I have been to the podiatrist & if anything would help, they would've > surely told me about it. Lotronex {sp?} is a new oral med for it, but it is very hard on the liver and kidneys and can't be used by anyone who has any liver or kidney problems. My mom swears by a prescription topical ointment called LoProx. Apparently it's safe for diabetics! Don't know much more about it myself.  Signature"Did Father shoot him? I will eat Grandfather for dinner." - Helen Keller, on learning of the death of her grandfather Hi Rep! I looked up Loprox & it is for fungus. If Pell does have fungus, it may be a good one for her. I think the other's who have responded are dealing with non-fungal psoriasis though. Thanks for that info! : ) Maggie My nails looked gross for a while from nail psoriasis. Some even crumbled and fell off. I also get ingrown toenails every now and then - even in the summer when I'm wearing open-toe sandals. Anyway, I've found it helpful to put a tiny cotton roll under and around the painful nail and then some tape over it all. If the nail problems are inflammatory, it might be helpful putting liquid Betamethasone (a steroid) under the nails in order to calm the inflammation. The one thing that did really help, though, was when my methotrexate dose was bumped up (although not because of the nails). My dermatologist said sometimes inflammatory nail disease can have secondary fungus infections, so both the fungus and the inflammatory problem must be adressed in order to get things under control. This is pretty much everything I know about weird nails, Nina Hi Nina! What I find so weird about my toenails, is they feel ingrown, but they aren't. It's just sore all around the edges where it *would* grow into the toe. I often put cotton in the toes of my cheap shoes, which I buy a wee bit too big, but even that has caused more pain here recently. I am going to go check for Betamethasone at drugstore.com. Hoping it's OTC?? Yes, I think they can become fungal too. It's just the way they grow. I'd think it makes them more likey to be a magnet for germs/fungi. And frankly, I don't think the podiatrist *I* saw was very aware of the AI connection. He swore it was fungal, but wouldn't bet me his paycheck. : ) A shame too. Hugs, Maggie Excellent! Thanks Nina! Here's what I found. Lots to choose from too. I personally picked the Betamethasone Dipropionate 0.05% Cream, 45gm Tube for myself. (You do have to have a prescription.) Seemed like a good price at $11.99. **Hint: The 15mg tube was $9.99. This one is 3x's the amount for 2.00 more. If anyone has to self-pay, they are offering 10.00 off your first prescription (in upper right corner). I have used them before, btw & all went well. Not sure how Canadians would fair though. Even if you have insurance, you could get this for 2.00 + 1.95 s/h (I think) -- cheaper than any co-pay. : ) **I do not have a financial stake in this pharmacy! I just like to save where I can. : ) <http://www.drugstore.com/pharmacy/prices/drugprice.asp?ndc=00168005546&trx=1Z5006> Aug Betamethasone Dipropionate Aug Betamethasone Dipropionate 0.05% Gel, 50gm Tube Aug Betamethasone Dipropionate 0.05% Ointment, 15gm Tube Aug Betamethasone Dipropionate 0.05% Ointment, 45gm Tube Betamethasone Dipropionate Betamethasone Dipropionate 0.05% Cream, 15gm Tube Betamethasone Dipropionate 0.05% Cream, 45gm Tube Betamethasone Dipropionate 0.05% Lotion, 60ml Bottle Betamethasone Dipropionate 0.05% Ointment, 15gm Tube Betamethasone Dipropionate 0.05% Ointment, 45gm Tube Betamethasone Valerate Betamethasone Valerate 0.1% Ointment, 15gm Tube Betamethasone Valerate 0.1% Ointment, 45gm Tube Clotrimazole-Betamethasone Clotrimazole-Betamethasone 1-0.05% Cream, 15gm Tube Clotrimazole-Betamethasone 1-0.05% Cream, 45gm Tube Lotrisone Lotrisone 1-0.05%, Lotion Maggie Maggie, if you do get some cream, I have a tips for you: One other thing Betamethasone was good for was for the blisters under hands and feet. If the blisters are really bad or if you want to get rid of them quickly, put on some Betamethasone and then some kind of occlusive bandage over. The blisters disappear very quickly. My dermatologist said it was OK to do this occasionally. It's a very potent steroid (much stronger than Pred) and the occlusion boosts the effects even more, though, so be careful! Nina Hi Nina! Which strength would you recommend? I had picked the .05% as the one to tell the nurse about, but since it's so strong, should I go with the 01%? I have had a sore on my foot for awhile. It's not infected & all other cuts & dog srcatches etc. heal pretty good, but this blister just won't go away. It's a left over psoriasis blister, I'm sure of it. Also, do you recommend putting this cream on the toes, near the toenail? Thanks Hun, Maggie > Hi Nina! > > Which strength would you recommend? I had picked the .05% as the one to > tell the nurse about, but since it's so strong, should I go with the > 01%? My dermatologist prescribed 0.1%. But don't you mean the other way around? 0.1 is stronger than 0.05. > I have had a sore on my foot for awhile. It's not infected & all other > cuts & dog srcatches etc. heal pretty good, but this blister just won't > go away. It's a left over psoriasis blister, I'm sure of it. > > Also, do you recommend putting this cream on the toes, near the toenail? I used my Betamethasone scalp solution (yes, I am a walking steroid pharmacy - not to mention the 80 mg Medrol in my butt) for my nails, but my dermatologist once prescribed a cortisone/anti-fungal cream combination (although a medium-strength steroid) for my toenails, but also in case my psoriasis sometimes'd get secondary fungus. If you don't have any secondary fungus, nail polish is OK. I also got a potassium permanganate solution, since the skin around the toenail was infected and had pus. Anyway, as you already know, be careful not to use the stuff too often and not more than a couple of weeks at a time. I wish they'd come up with effective steroid-sparing creams. Good luck! Nina |
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