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Medical Forum / Diseases and Disorders / Lupus / July 2003Test Results
Praise the Lord! I just got my results back from my needle biopsy Tuesday on my Thyroid. It shows no cancer. It does look like I may have Hashimotos but if I just have to take Synthroid for the rest of my life. I can handle that. Thank you all for your prayers and support. I still have that weird taste in my mouth and the ears, nose and throat doctor said nothing about it. So maybe it has to do with my teeth although I only detect it when I breathe through my nose. Maybe it will go away on its own. Or maybe when I have been taking the Synthroid longer it will go away then. Again thank you all for your help, Paulette Congratulations Paulette! I'm very happy for you! :) *Hugs* Larina > Praise the Lord! I just got my results back from my needle biopsy Tuesday on > my Thyroid. It shows no cancer. It does look like I may have Hashimotos but [quoted text clipped - 8 lines] > > Paulette Good news Paulette, like BJ says it takes some time to get the thyroid meds in the system and settling down the thyroid and endocrine system. Wish I knew what that taste is. Does it remind you of "metallic" or "chemical" or "salty" or "yeasty" or "infection" or what? A few things come to mind, GERD (reflux), yeast infection somewhere in your mouth (dentist?) New formula of toothpaste? toothbrush needs throwing out? meds side effect (are you on anything else?) Hope you figure it out and let us know. Hugs J > Praise the Lord! I just got my results back from my needle biopsy Tuesday on > my Thyroid. It shows no cancer. It does look like I may have Hashimotos but [quoted text clipped - 4 lines] > through my nose. Maybe it will go away on its own. Or maybe when I have been > taking the Synthroid longer it will go away then. Actually it is like I'm smoking. Smells or tastes like an old ashtray. I do not smoke and hate being around the stuff. But I do get a lot of second-hand smoke at work. I only get it when I close my mouth and breath through my nose. Both doctors looked at my sinuses and one gave me an antibiotic thinking it might be an infection but did not make a difference. I may need a decongestant but am afraid to take just anything because of the thyroid med. I started right after I had my teeth cleaned. Which I had not had done for a long time and she had to be rough. My ears have been bothering me a little. Maybe it does have something to do with my sinuses but if the doctors wont help what do you do? Even the ear, nose and throat guy did not do anything. Just looked in my nose and ears. Guess you have to really get bad before anyone will notice anything. No fever. We have had a lot of rain here. Maybe its mold or pollen related. Interesting that this symptom lead to me finding out about my thyroid. God taking care of me? Mmmmmm..... What are the symptoms of pleurisy? I have been having some uncomfortable feelings around my diaphragm. Or have I just gained some weight!! Arg!! I have had pleurisy in the past when it hurt to breathe. Hope it's not trying to come back again. Took me about 3 months to get over that one. Thanks J Paulette > Good news Paulette, like BJ says it takes some time to get the thyroid meds in > the system and settling down the thyroid and endocrine system. [quoted text clipped - 17 lines] > > through my nose. Maybe it will go away on its own. Or maybe when I have been > > taking the Synthroid longer it will go away then. > Actually it is like I'm smoking. Smells or tastes like an old ashtray. I do > not smoke and hate being around the stuff. But I do get a lot of second-hand [quoted text clipped - 16 lines] > have had pleurisy in the past when it hurt to breathe. Hope it's not trying > to come back again. Took me about 3 months to get over that one. http://www.kitzbuhel.demon.co.uk/lupus/faqshets/faqs04.htm <http://groups.google.com/groups?q=pleurisy+group:alt.support.lupus&hl=en&lr=&ie= UTF-8&oe=UTF-8&selm=3E14A076.2592DE7A%40execulink.com&rnum=1> Sambucol ... Sambucol™ Immune System Formula Extract. ... Propolis, 0%. Sambucol, patented black elderberry extract, 0%. Vitamin C, 100 mg, 167%. Zinc Gluconate, 10 mg, 67%. ... www.lifehealthenergy.com/htdocs/TheMall/ Immune%20System/sambucol.htm - 21k - Cached - Similar pages Someone here or on the other NG stopped Zinc because of the weird taste. In addition, it's contraindicated for autoimmune disorders.http://www.sambucol.com/article_page.asp?aId=51&catId=186 which Lupus and Hashi's are. I also see it being advertised to "help thyroid function" and some places mentions has some % of alcohol in it. So who knows what's going on in you? Have you tried gargling with baking soda and warm water? I imagine maybe the smoking at work affects your lungs and sinuses. If you have your own office/area, maybe a good hepa filter would help unless you can change to somewhere where there's no smoking. Or ask if they can turn the furnace fan on to run all the time, to maybe get rid of the some of the smoke? J I do have a hepa filter in my office. Thank goodness. But the kitchen area is no mans land! I think it is very inconsiderate and still don't understand why they have not made our building smoke free. Oh well. I had to look up that 50 cent word "contraindicated". Did not know what it meant. Does that mean I screwed up myself by taking Sambucol? It sure made my cold's go away. Have not had any since about 1 1/2 months ago. Dang it. I thought I found a good thing! Could it be yeast? Was reading something about that and it talked about losing good bacteria in your body. However I have no yeast problems any where else in my body. But I have in the past. But not recent. Strange when I was really bad with my Lupus flairs and trying to build up my muscles again for which is my symptom, the doctor prescribed me taking a mineral supplement and to make sure I got zinc. Could the Sambucol be what triggered my Thyroid stuff? If it did I'm not going to be happy. It's a catch 22 thing with herbs/medicine isn't it. Fix one thing and screw up something else. ARGGGGGGG!!!!!!! Paulette > > Actually it is like I'm smoking. Smells or tastes like an old ashtray. I do > > not smoke and hate being around the stuff. But I do get a lot of second-hand [quoted text clipped - 18 lines] > > http://www.kitzbuhel.demon.co.uk/lupus/faqshets/faqs04.htm <http://groups.google.com/groups?q=pleurisy+group:alt.support.lupus&hl=en&lr =&ie=UTF-8&oe=UTF-8&selm=3E14A076.2592DE7A%40execulink.com&rnum=1> > Sambucol > ... SambucolT Immune System Formula Extract. ... Propolis, 0%. Sambucol, [quoted text clipped - 21 lines] > > J Paulette, Congratulations that your test results showed no cancer! Do you live in an apartment building? Maybe a tenant's smoking is "seeping" through the walls or coming under the door. I've had both experiences. The "seeping" because there were 8 or 10 people in the duplex I lived in, all except the one child who lived (poor tyke) smokers. If it was seeping through my walls, imagine what she was going through! Another apt. bldg. I lived in the smoke came in under the doors. I don't allow smoking in my apt. Nell Write a wise saying and your name will live forever. Anonymous > I do have a hepa filter in my office. Thank goodness. But the kitchen area > is no mans land! I think it is very inconsiderate and still don't understand > why they have not made our building smoke free. Oh well. > > I had to look up that 50 cent word "contraindicated". Did not know what it > meant. Sorry bout that, but I've yet to find one good "regular" word that means the same. > Does that mean I screwed up myself by taking Sambucol? Unlikely, it was just one theory (zinc) as to the strange taste, but maybe you've answered that above. However, anything that is said/claimed to "ramp up the immune system" is usually not good for a person with Lupus, but if it works for you and you only have mild Lupus (ie no organ involvement), maybe it's okay - don't know (I'm not a doctor).[] > Could the Sambucol be what > triggered my Thyroid stuff? I doubt it. > If it did I'm not going to be happy. It's a > catch 22 thing with herbs/medicine isn't it. It's always wise to know the properties of foods, herbs and medicines (anything a person ingests). My brother had sinus problems too. His doctor gave him various nasal sprays, but at last word it was much better and it's hard to say if it still is because I hear there's lots of forest fires in his area now. Anyway, hope you feel better soon and/or find solutions to your various symptoms, J Hi Paulette, I was reading some of the info I have on the thyroid. It mentions sinuses in the list of things that can be affected. I am betting that the odd smell is a result of your Hashimotos. I do recall odd odour too, before my thyroid was under control. I often thought I could smell sweaty feet. I kid you not. Sounds gross, but it is true. It will be interesting to see if the smell goes away once the synthroid kicks in. BJ-Sk. Canada > I do have a hepa filter in my office. Thank goodness. But the kitchen area > is no mans land! I think it is very inconsiderate and still don't understand [quoted text clipped - 52 lines] > > > > http://www.kitzbuhel.demon.co.uk/lupus/faqshets/faqs04.htm <http://groups.google.com/groups?q=pleurisy+group:alt.support.lupus&hl=en&lr > =&ie=UTF-8&oe=UTF-8&selm=3E14A076.2592DE7A%40execulink.com&rnum=1> > > [quoted text clipped - 27 lines] > > > > J I hope you are right. Maybe all I have to do is be patient (not easy for me to do) and it will eventually go away. I have been on Synthroid a week now. We will see. Thanks, Paulette > Hi Paulette, > I was reading some of the info I have on the thyroid. It mentions sinuses in [quoted text clipped - 69 lines] > > > > > > http://www.kitzbuhel.demon.co.uk/lupus/faqshets/faqs04.htm <http://groups.google.com/groups?q=pleurisy+group:alt.support.lupus&hl=en&lr > > =&ie=UTF-8&oe=UTF-8&selm=3E14A076.2592DE7A%40execulink.com&rnum=1> > > > [quoted text clipped - 31 lines] > > > > > > J |
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