Welcome to alt.support.lupus
alt.support.lupus has a photo-sharing site so posters here can upload or
view photos
that other members have uploaded to this site (the photos are varied of
members, their family,
their pets, their projects, anything goes within reason)
It is passworded, so you would have to contact one of the members who
would advise
you of the login and password or post a message to the newsgroup and
someone will
contact you (as long as your e-mail isn't munged/spam-proofed).
http://atlantic.photoisland.com/photosharing/
If you need assist once you've acquired the instructions, post a
request, someone here will help
you or Shelagh will set things the way you want them.
Please do NOT post the login and password to the newsgroup.
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Shelagh also maintains a map of posters, so you can see where each is
located (approximately)
in the world.
http://members.shaw.ca/tiderington/index.htm
Click on "View My Guest Map" there (Sidebar down the left side).
The instructions are on the Welcome box when the map opens.
Once you select "Post", click near where you live which positions you on
the map,
then an information box comes up, enter as much or little info as you
wish, keep it short
and confidential because anyone can have access to the info that you
post in your message.
(and the map).
Point your cursor at some of the others' there first and you'll see the
kinds of messages they've
posted (to give you some ideas).
In the info box, you may select gender and hair color and country map,
but not the clothing color.
If you don't select a gender/hair color, you'll be shown as a little
green figure.
There's an example of one there. If you want to be green, so be it. <g>
If you record it in the wrong place or have any other difficulty contact
Shelagh and she
will help you with this, or make the desired change(s) or post to the
newsgroup, that you are
having difficulty.
While you're on Shelagh's web site, there's lots of good information
about Lupus,
take your time and have a read.
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In addition, KC (kcat) maintains a private list of posters and
circulates it at various times,
so posters can keep in touch privately, behind the scenes, if they so
wish.
Contact: kcattx a t sbcglobal*net
where the "a t" represents the proper email symbol and the * represents
a dot.
In the subject line of your e-mail to KC, type "The alt.support.lupus
Private List of Who's Who"
She will e-mail you back the url in order to access and fill out the
form.
Adobe Acrobat is required to open and read the list that she will e-mail
back to you.
To download Adobe Acrobat Reader try one of the following:
http://www.adobe.com/support/downloads/main.html
http://cgim.adobe.com/acrobat/reader19/download.cgi
http://www.adobe.com/products/acrobat/alternate.html
These are all free services of alt.support.lupus :-)
If at any time, you change your mind and want to remove/change
something, that can be easily done.
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If there are any errors in the above, please direct your complaints to
the Complaints Department - me !
J
Mercy - 23 Dec 2003 05:43 GMT
I would love to see the pictures if somebody wants to write me privately. I
might add mine to the group as well if that would be ok.....
Nettie
> Welcome to alt.support.lupus
>
[quoted text clipped - 83 lines]
>
> J
Leanne - 24 Dec 2003 08:37 GMT
I would love to join this as well.
Leanne
> Welcome to alt.support.lupus
>
[quoted text clipped - 83 lines]
>
> J
J - 24 Dec 2003 09:26 GMT
Shelagh will e-mail you the password and login at lstutsky at mts dot net
(fix the obvious)
since your current/posting e-mail seems to be a "real" one.
By the way, some people "spam proof" their e-mails, so the "bots" don't pick
up our e-mail addresses from newsgroupsand send us advertising e-mails about
enlarging body parts...<g> That's part of why KC keeps the "private" list. I
think you are new to newsgroups? After years on newsgroups, the
advertisements in my e-mail box daily were too much work so I started
"munging" my e-mail too.
I'm copying this post to her and I'm sure she'll get to you as soon as she can
(being Christmas).
Hugs
J
PS the other two ..the map and being on the list, you do yourself, k?
> I would love to join this as well.
>
[quoted text clipped - 16 lines]
> > you or Shelagh will set things the way you want them.
> > Please do NOT post the login and password to the newsgroup.