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Medical Forum / Diseases and Disorders / Lupus / May 2009

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Atrial Fibrillation - woohoo!

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KCat - 19 May 2009 00:53 GMT
Hi all.

School keeps me busy and makes me hate being online after I get
finished with the daily class discussions which seem to go on forever
(warning, writers are prone to long long posts when discussing writing
- surprise).  So I rarely post anywhere anymore and email is even less
likely.

Just finished Spring semester which was both a blast and quite
stressful but I got some great feedback on my writing and a couple of
pieces supposedly worth sending off to lit journals. According to the
prof. anyway.

As to the title of this post.  I began having palpitations and
tachycardia not long after Ike ruined a good week or four last
summer.  I've had palpitations here and there since my mid twenties
but never for more than a few seconds four or five times a year. So
when they kicked in 24/7 last fall I was pretty miserable. Hard to
sleep when it feels like there's a hamster kickboxing inside your
chest.  Initial diagnosis was the benign "SVT" (supraventricular
tachycardia). Been rediagnosed for a little over a week with atrial
fibrillation.  I'd been on a beta-blocker but it was only helping
about six hours out of the day and sometimes not even that. So with
the new diagnosis the doc added a calcium channel blocker and that
seems to, for now, have done the trick.  I get some breakthrough
flutter a couple of times a day.

Originally (SVT dx) she wanted to do RFA and "cure it" immediately.
Well, for a-fib it's a more complex procedure she is looking at,
called PVI.  I've read enough to put that off as a last resort.

I have no underlying heart disease (valves are good, arteries are
good, etc.) so don't know why this happened. Never been on prednisone
so it's not that either.  I think it's about 10% of patients who are
"otherwise healthy" who get this.  It's a little scary so rather than
take two intense summer courses as I'd planned I'll only be taking one
intense summer course. :P  I would have had an 8-week course and an
overlapping 4-week class. Probably could have done it but stress
doesn't help this problem.  The month during which I had to go without
meds to get data to the doctor was pure hell.

On the home front, Big Dawg is doing well. Hubby is doing well. We
continue to work out and try to stay healthy in that regard. His work
is and always will be stressful and we are anxious to hear what
President Obama decides WRT the space program. As I said, I am
enjoying school and learning so much, not the least of which is that I
have some moments during which I am actually a pretty decent writer.
My writing has improved already after only two semesters.  And I've
met some other good writers in the process.

ummm...hrmmmm.  I have minimal autoimmune problems because I continue
to treat my body with care. I still get in trouble now and then when I
ignore my own lectures about sun exposure.   But overall, doing well.
Still on the plaquenil.  Eyes still healthy. (9 years now - does that
mean I can assume I won't have problems with that?)

I am curious if anyone here has a-fib or has had PVI or the other RFA
treatment (on the AV node vs. PVI).  Anyone here have a-fib without a
known cause?

much love to all!
KCat

p.s. Andy - Kemah Boardwalk is up and running again.  And it's
crawfish season. Yeehaw!
Andy - 19 May 2009 09:07 GMT
In message
<b2b5fe73-1b63-4370-b7c4-5a74b6c4b606@x1g2000prh.googlegroups.com>, KCat
<kcattx@gmail.com> wrote
[]
> email is even less
>likely.

{cough}

[]
>p.s. Andy - Kemah Boardwalk is up and running again.  And it's
>crawfish season. Yeehaw!

Yeehaw indeed: I remember it well.
Signature

Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>

janers - 20 May 2009 04:28 GMT
Hi Kcat, glad to see you post, we miss you here

I have had ATrial fibrillation since I was in my twenties.  You are right it makes you feel like
someone kicks you. I get the feeling like my breath is taken away.

I have been on beta blockers for a long time, keep my rhythm down and less likely to have the
fibrillation. they told me it would not kill me, just is uncomfortable for me. Sometimes more than
other :( too.  Scares the crap out of you sometimes too.

My sister had it so bad they had to convert her in the ER to normal rhythm. She had episodes where
it happened  too many times.  her pulse would shoot up so high that it took IV meds so slow her
down. that of course is called cardioconversion.

she had a procedure done in the hospital that she was put in a light sleep then her heart was
stimulated to beat.  Something to do with the node of the heart that causes the heart to beat, if
out of wack they can fix it with some kind of probe that comes up through the femoral artery. Much
like catherization.
HEY it works and she has never had a problem since.  It was like a God send to her to have it done.
I think what you are talking about is that procedure.  so if you get too many of those episodes
think about it and read more on it.

She has never had one episode since, that I can remember.
I tried calcium channel blockers but they didn't work for me so just beta blockers is the drug of
choice for myself.

I wish you well and hope they can get to fix this for you and not have to use so many drugs to do
so.

If your arteries and stuff is good, that is the best sign there is for you.
As far as the cause of AF?  well none that I know of but some say some food trigger it. I am not
sure of that one.

good luck and keep me informed

janers
KCat - 20 May 2009 17:50 GMT
Hi Janers!

A big meal will trigger an episode sometimes. Especially the
tachycardia.  Though the meds are keeping that in check more than the
flutter itself.  There are two kinds of catheter ablation and the
first one is the one through the femoral - that's the one she first
suggested and the one that only ablates one node as you describe. Then
she switched to this nasty one called PVI. you have several caths at
once (neck, arm, femoral) and they go in and ablate four spots near
the pulmonary veins.  It's a tight spot compared to the right atrium
so it's more ugly to me.  At any rate, hopefully like you, the meds
will keep it under control for a long time and I'll not even have to
worry about it. Just an annoyance. What she keeps asking me is "so
this just came on all of a sudden?"  Well. Yeah.  I don't know what to
tell her. I'd had them since my 20s but only a few times a year. Never
worried about it 'cause I never keeled over.  Just would catch my
breath and wait for it to calm down. Then last fall I started getting
165 bpm for 2-3 hours at a time and then it flipped out completely and
turned into the constant a-fib.  I have a weird thing that sometimes
the a-fib leads to too *low* a heart rate.  like flutter flutter
fluttter - THUD!  It feels like the heart doesn't beat at all for 3-4
seconds. She kinda looked at me like I didn't know what I was talking
about but oh well.  That only happened when I had gotten sick with
food poisoning so I'm surmising (totally without evidence) that the
nausea and near-vomiting which involves the vagus nerve triggered that
episode (since the vagus nerve is somehow involved in all this as well
but I know not how.)

:)  Well, babbling again.  Thanks for the input. It's heartening (pun
intended) to know that when she says I "may never have to deal with it
past the meds" that there is that chance.    On May 19, 10:28 pm,

best,
kCat

> Hi Kcat, glad to see you post, we miss you here
>
[quoted text clipped - 31 lines]
>
> janers
 
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