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Medical Forum / Diseases and Disorders / Lupus / May 2009

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Time for a check up (on you)

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George Parton - 05 May 2009 03:29 GMT
Hey everybody!

I am searching for good things to say and to hear....

I have a bunch of new meds, got rid of some old ones and the Lupus
experience goes on.

How about you?  Anything new and exciting to report?

Let's talk about it, you are missed!

George

(We hit triple digits again tomorrow, come on summer!)
Andy - 05 May 2009 09:34 GMT
>Hey everybody!
>
>I am searching for good things to say and to hear....

I'm going to the UK Lupus Conference next Sunday, and hope to have
something good to report.

(That's said in hope, not in prior knowledge)
Signature

Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>

Sherry - 06 May 2009 03:05 GMT
Hey back at you George and group.

Nothing new or exciting to report from my corner of the world. As always it
is one day at a time with some of them good and some not so good.

Sherry
janers - 07 May 2009 04:16 GMT
I am back from a quick trip to Missouri.  Still in PT for my ankle and refusing to have surgery.  I
will use the brace and hope for the best.

ONE question, anyone ever try glucosamine HCL for joint pain.  I can not take plaquenil and am
trying to go down on the medrol but hitting a point where the foot joints and knees and ankles are
hurting more, so what's YOUR opinion on that one

Other than that, still hobbling along as usual.  Thankfully

janers
Sherry - 07 May 2009 15:56 GMT
Janers,
My mom takes glucosamine HCL for her joint pain after her Dr suggested she
give it a try.  She said it seems to help some.  On one of my extended
visits she added some of it to my daily supply of meds...I did not notice
any change.  Maybe I didn't take it long enough <g> and give it a fair
chance.  Guess all you can do is give it a try and see if it helps you.

Hugs,
Sherry

>I am back from a quick trip to Missouri.  Still in PT for my ankle and
>refusing to have surgery.  I
[quoted text clipped - 9 lines]
>
> janers
Shelagh - 07 May 2009 20:33 GMT
>I am back from a quick trip to Missouri.  Still in PT for my ankle and
>refusing to have surgery.  I
[quoted text clipped - 9 lines]
>
> janers

Taken from  --  http://en.wikipedia.org/wiki/Glucosamine :
Glucosamine is a popular alternative medicine used by consumers for the
treatment of osteoarthritis.
Chondroitin is sometimes used in conjunction, and animal studies suggest
that chondroitin may increase its efficacy.
Clinical studies have consistently reported that glucosamine appears safe.
Since glucosamine is usually derived from shellfish, those allergic to
shellfish may wish to avoid it.
However, since glucosamine is derived from the shells of these animals while
the allergen is within the flesh of the animals,
it is probably safe even for those with shellfish allergy.

I would suggest trying it and seeing what happens over time... it sounds
safe and the efficacy has been proven in some.... worth a go I'd say.

My husband used it for his arthritis in his spine, leg <singular> and arm
<again sing.>..... and found some relief after a bit of time;   but now it
has gotten worse again and he was given tramadol SR, once daily and it works
like a charm for him.... for all his aches and pains.

I feel for your pain in your knees though, OMG I had it waking me up in the
night it was so bad!... finally got onto chloroquin and it worked a miracle
until it damaged my retinas.... irreversibly... and I had to discontinue
it... my miracle med!  Nothing else has worked on arthritis as well for me!
It is a shame for you that plaquenil isn't an option... wishing you good
luck!

hugs, Shelagh
Lupus-Invisible in Plain Sight @
http://members.shaw.ca/systemiclupus
KCat - 19 May 2009 01:00 GMT
Well, I mention it in my thread I just posted about A-fib but since
it's good news I'll restate here...

Just finished my second full semester on my MFA program and got some
incredibly kind words re: my writing. Professor recommended sending
out two of the pieces for publication - that feels really good coming
from a published author/poet. Is he right? Who knows. Doesn't matter.
Just that he thought that really gave me a high for several days.

Start summer session in two weeks-ish.

Just had probably our last cold front of the season and woke up to 59F
this a.m. Absolutely beautiful considering our temps have been hitting
90 with the usual SE Texas humidity. Triple digits, I hope and pray,
will hold off until August if they happen at all. YUCK! I miss winter
already.

KCat

> Hey everybody!
>
[quoted text clipped - 10 lines]
>
> (We hit triple digits again tomorrow, come on summer!)
Sherry - 19 May 2009 20:05 GMT
Hi KCat, sure miss having you on the group and the occasional email
exchanges.  Good to hear that school is going great and of course that you
have gotten correct dx on the A-fib and meds seem to be working.

Hear you loud and clear on the temps and humidity of SE Texas!  Hope the
weather doesn't hit those triple digits!  90's are tuff enough with the
humidity!!!!

Hugs,
Sherry
 
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