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Medical Forum / Diseases and Disorders / Lupus / February 2009Good news
Well, it should be at least. Tests came back negative except anemia. Am to go back to my primary care manager now. Still don't know what's wrong but apparently it's not Lupus. > Well, it should be at least. Tests came back negative except anemia. Am > to go back to my primary care manager now. Still don't know what's wrong > but apparently it's not Lupus. I know what you mean about that... the good and the bad that comes with 'no diagnosis'.... when all you want is an answer... we have all been there and believe me, we all do know that bitter sweet feel of the 'negative' results! All that can be said is, hang in there and believe that you will get your answer, maybe later than sooner but you will get it! ... also I am so glad for you that the lupus... so far... is a no go as it is a nasty dx ... time will tell all and the waiting is tough... I wish good luck to you and keep us up on whatever happens -- if you get the time?  Signaturehugs, Shelagh Lupus - Invisible In Plain Sight @ http://members.shaw.ca/systemiclupus > "cshenk" wrote >> Well, it should be at least. Tests came back negative except anemia. Am >> to go back to my primary care manager now. Still don't know what's wrong [quoted text clipped - 6 lines] > All that can be said is, hang in there and believe that you will get your > answer, maybe later than sooner but you will get it! I have a sneaking suspicion I am the false negative one but military health care doesnt run on that easily. So now, we dont know what is going on. Other than my connective tissue in the joints is slowly going bad all over. This is not the same as RA. > also I am so glad for you that the lupus... so far... is a no go as it is > a nasty dx ... time will tell all and the waiting is tough... I wish > good luck to you and keep us up on whatever happens -- if you get the > time? I like the people here so will stay and keep you all updated as time goes on. On the animea, that does worry me. I eat a very different diet from most USA folks after years in Japan. It's actually very high in iron. I should not be running aenemic at all. I mean, come on! Average meal here has as much as 1 cup after cooking or raw spinach or other similar greens (Kangkoon etc). I'm a strong believer in a good and varied diet with 75% from fresh veggies and fresh fruits and due to cholestrol, meat tends to be a garnish. Diet and health is an interest of mine since a Japanese Doc helped me and hubby feel loads better after 'right eating'. He is a simple sort of common sense nutritionist. If your ancestors didnt grow up eating high salt seafood, you probably will have problems if you eat too much of that. (that sort of advice). When I started craving bone marrow, we took a good look and upped my chronditen (sp?) and such intakes and it went away (good as I am naturally high cholestrol). Tonight's dinner was pretty standard for us. Pot of greens (a sort of asian mustard one), 3 crawfish each, a cup of rice each, and some nectarines. Rendered into simple ways, thats 1.5 cups greens, 1 cup rice, 1/4 cup *if that* of seafood once deshelled, and 1/2 cup of fruit. That really is normal for us. I aint making it up. The meat and fruit types will vary but that's pretty much how we eat. Evening noshe time and it is 1 cup split with the daughter unit of Gobo (umm, english, burdock root) braised in the cast iron skillet with sesame oil and water then dipped in a vinegar/worstershire sauce with a little wasabi added. Please forgive if I sound very asian. I am not. It's just the cooking style appeals to me and I was stationed in Japan from early 2001- late 2007. [ >On the animea, that does worry me. I eat a very different diet from most >USA folks after years in Japan. It's actually very high in iron. I should >not be running aenemic at all. Oddly, I've just been looking up The Lupus Book on that subject. He says that anemia is quite common amongst Lupies - but I don't see him saying why or what might be done about it. I know that some people have strong views for and against iron, but no medic involved with lupus finds them relevant. Thinks: high intake plus anemia could mean low absorption in digestive system; or for red blood cells low production, low lifespan, high removal ... all of which could be lupus-related or not ... just wild ideas which some clever medic could do research in to (or maybe already has!) [ >I'm a strong believer in a good and varied diet with 75% from fresh veggies >and fresh fruits and due to cholestrol, meat tends to be a garnish. Be wary of alfalfa sprouts - there is some evidence that in some people they are Bad For Lupus. SignatureAndy Taylor [Chair, N E Lupus Group]. <URL:http://www.northeastlupus.org.uk> > cshenk wrote >>On the anemia, that does worry me. I eat a very different diet from most >>USA folks after years in Japan. It's actually very high in iron. I [quoted text clipped - 7 lines] > I know that some people have strong views for and against iron, but no > medic involved with lupus finds them relevant. I think it's just too common to count? I did see it listed in a few spots. > Thinks: high intake plus anemia could mean low absorption in digestive > system; or for red blood cells low production, low lifespan, high removal > ... all of which could be lupus-related or not ... just wild ideas which > some clever medic could do research in to (or maybe already has!) Might be. I've had problems with it before but not to the point where the Doc says to make an appointment special over it. Now that I think of it, I have been eating less green stuff lately due to being tired and not shopping as much as normal. Was eating cans and frozen which were types that arent high in iron. I'll have to go hunting google also as i recall some types of foods interfere with iron absorbtion a bit. >>I'm a strong believer in a good and varied diet with 75% from fresh >>veggies >>and fresh fruits and due to cholestrol, meat tends to be a garnish. > > Be wary of alfalfa sprouts - there is some evidence that in some people > they are Bad For Lupus. I'm not the sprout type. More the mild asian mustard greens or spinachs and I love asian broccoli! Here's a fast and easy recipe I made last night. So fast, I never bothered to put it in my MealMaster software. I didnt see any really special diet for Lupus other than *some* react to a few things. Meal for 2 or a lunch leftover: 1 slab salmon (about 3/4 lb) 1/2 a medium onion 2 TB (rough guess) olive oil 3 cups spinach or 2 cabbage Heat cast iron skillet with olive oil and add onions. Let onions carmelize til a medium brown with blackened bits (about 3 mins on high in a preheated cast iron skillet). While it does that, cut cabbage or spinach in desired amounts, rinse but do not dry. At about 3 mins with the onions, add salmon and cook roughly 3 mins per side. Remove and set on a plate and add spinach or cabbage and stir about til it's as done as you like (normally 2-3 mins here). Plate with the salmon and have a fiesta! 6 mins roughly plus 2 or so as the pan heats and you rough chop some onion. Really nice sides to go with this are citrus fruits of choice, like a tangerine. Fancy version? Add Old Bay seasoning (1 TS) or chinese 5 spice (1/2 TS). In our case that time, it was a few drops of sesame oil at the spinach stage. Anyways, that was dinner last night for me and the munchkin (Charlotte, age 15). Pork loin is just as fast BTW if you arent fond of fish. >> cshenk wrote > [quoted text clipped - 65 lines] > > Pork loin is just as fast BTW if you arent fond of fish. Hi, Since when is frozen not as healthy as fresh? I have read that frozen is actually better as much frozen veggies are flash frozen very near where it is harvested. Receipe sounds great! Lou > cshenk wrote: >> Here's a fast and easy recipe I made last night. So fast, I never >> bothered to put it in my MealMaster software. I didnt see any really [quoted text clipped - 5 lines] >> 2 TB (rough guess) olive oil >> 3 cups spinach or 2 cabbage (snipped directions) > Since when is frozen not as healthy as fresh? I have read that frozen is > actually better as much frozen veggies are flash frozen very near where it > is harvested. > Receipe sounds great! Um, well, got used to really *fresh* seasonal eating. In that recipe, if the veggies were frozen, they would take longer too cook or I'd have to think about it in the morning and defrost the veggies to have them cook as fast. Seasonal eating requires a little translation. Japan isnt the only place with this 'ethic' but that is where I learned it. See, there are special fresh foods for every season, even winter. The idea is if you swap to what is naturally provided at each season, you get a better spread of nutrients (trace minerals too) than if you just eat pretty much the same things all the time. Like in early spring, the first fresh greens, later you go to snap beans, then over to summer squashes then gobo (burdock) and late squashes and so it goes around. Sure, they have hothouse stuff too out of season, but not as much of it. >> cshenk wrote: > [quoted text clipped - 29 lines] > squashes and so it goes around. Sure, they have hothouse stuff too out of > season, but not as much of it. Very interesting. BTW I cook frozen in the microwave and never add water cause water takes nutrients away. Cook for a short time and do more if it needs more time. Lou "cshenk" wrote in message > Might be. I've had problems with it before but not to the point where the > Doc says to make an appointment special over it. [quoted text clipped - 4 lines] > I'm not the sprout type. More the mild asian mustard greens or spinachs and > I love asian broccoli! The below article, posted by J, may apply to your anemia.... maybe look into it with your doctor? It is from: http://gut.bmj.com:80/cgi/content/abstract/16/3/193 <quote> The effect of tea on iron absorption was studied in human volunteers. Absorption from solutions of FeCl3 and FeSO4, bread, a meal of rice with potato and onion soup, and uncooked haemoglobin was inhibited whether ascorbic acid was present or not. No inhibition was noted if the haemoglobin was cooked. The effect on the absorption of non-haem iron was ascribed to the formation of insoluble iron tannate complexes. Drinking tannin-containing beverages such as tea with meals may contribute to the pathogenesis of iron deficiency if the diet consists largely of vegetable foodstuffs. </quote> hugs, Shelagh Lupus Invisible In Plain Sight @ htttp://members.shaw.ca/systemiclupus > Well, it should be at least. Tests came back negative except anemia. Am > to go back to my primary care manager now. Still don't know what's wrong > but apparently it's not Lupus. Glad to hear that they don't think it is Lupus at this time. Hope you get your answers soon. Sometimes there just isn't an answer and they treat your symptoms. Was your husband stationed in Japan? Both my sister and I were born there many moons ago when my Dad was stationed at Tachicawa AFB and or up in the moutains where the commisary train came in once a month. We also enjoy Japanese meals but that isn't our steady diet. Glad that you want to hang out and hang in here with us. Many members have not been officially diagnoised with Lupus but their symptoms sure look like that is what the problem is. Sherry > "cshenk" wrote >> Well, it should be at least. Tests came back negative except anemia. Am >> to go back to my primary care manager now. Still don't know what's wrong [quoted text clipped - 3 lines] > your answers soon. Sometimes there just isn't an answer and they treat > your symptoms. I may be one of those. The same tests run ruled out a grunch of other things too. > Was your husband stationed in Japan? Both my sister and I were born there > many moons ago when my Dad was stationed at Tachicawa AFB and or up in the Grin, actually I was stationed there and took the family with me. 26 years Navy here. Senior Chief for another month or so then retirement. > moutains where the commisary train came in once a month. We also enjoy > Japanese meals but that isn't our steady diet. We converted many things based on where we've lived. Oh, I still do normal 'Southern USA' cookery too, but it's apt to be adapted a bit. BTW, if any here have any special dietary needs and not sure what to cook, I;m a dab hand with such. No degree in it mind you, just an interest of mine. Run the recipes past your Doc but rarely has anyone had a Doc turn them down unless the person forgot to mention something. (Grin, one lady forgot to tell me she's iodine reactive and peanuts are off limits too. That sort of thing). > Glad that you want to hang out and hang in here with us. Many members > have not been officially diagnoised with Lupus but their symptoms sure > look like that is what the problem is. Glad to be here! Maybe I can help in some small ways with others. Like, 'gosh I have no energy to cook, got something fast and easy'? Got a zillion of those here! |
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