In message
<c33436fb-a0a8-4b72-b294-b60bafb210ef@b1g2000yqg.googlegroups.com>,
>Hi my girlfriend has been having unbearable pain in the left more
>geared towards the back of her waist area. She has been taking
[quoted text clipped - 6 lines]
>stressful. Can you please give me some advice as to what steps I
>should take.
Yes - consult a qualified medical practitioner, which nobody who posts
here is. Here you'll get sympathy and exchanges of experience; but from
what you write you need professional knowledge.
However, note that many people with lupus react badly to septrin - a
fact seemingly unknown to many medics, who prescribe it as first-choice
for urinary tract infections.

Signature
Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>
Shelagh - 15 Jan 2009 04:18 GMT
Or as we know it here in Canada, it is sulfa drugs that we are often prescribed by doctors
who don't know the illness lupus, and we 'lupines' have a sensitivity to sulfa, which is
in some antibiotics, those usually prescribed for kidney and/or bladder ailments; so
beware those names as Andy too warned.
hugs,
Shelagh
Lupus - Invisible In Plain Sight @ http://members.shaw.ca/systemiclupus
>>Hi my girlfriend has been having unbearable pain in the left more
>>geared towards the back of her waist area. She has been taking
[quoted text clipped - 13 lines]
> However, note that many people with lupus react badly to septrin - a fact seemingly
> unknown to many medics, who prescribe it as first-choice for urinary tract infections.
Curtis R Anderson - 16 Jan 2009 00:58 GMT
> Or as we know it here in Canada, it is sulfa drugs that we are often prescribed by doctors
> who don't know the illness lupus, and we 'lupines' have a sensitivity to sulfa, which is
> in some antibiotics, those usually prescribed for kidney and/or bladder ailments; so
> beware those names as Andy too warned.
SMZ-TMP is one of those. I call those "horse pills" which my late father
had prescribed to him when he had a urinary tract infection.
When Marie fell about ten days ago and broke her right wrist, she had to
tell folks in the ER and later at the ambulatory surgery facility that
she was allergic to sulfa for the reasons we mention here.

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Curtis R. Anderson, Co-creator of "Gleepy the Hen", still
Email not munged, SpamAssassin [tm] in effect.
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Sherry - 16 Jan 2009 15:38 GMT
Curtis,
I hope that Marie is recovering from her fall and that her wrist is not
causing her too much pain and was a simple break that could just be casted.
Sherry
Curtis R. Anderson - 17 Jan 2009 02:10 GMT
> Curtis,
>
> I hope that Marie is recovering from her fall and that her wrist is not
> causing her too much pain and was a simple break that could just be casted.
The removal of the cast was today. She was told that there is some
limited wrist movement which will be permanent. The wrist bones ended up
being smashed badly. That explains the tantalum plate and the eight
screws (!) to hold everything to the bones.
She no longer needs the hydrocodone, and her usual prescription NSAIDs
do the trick. All through the episode, she never compalined about her
usual lupus pains in her shoulders, hips, thighs or ankles.

Signature
Curtis R. Anderson, Co-creator of "Gleepy the Hen", still
Email not munged, SpamAssassin [tm] in effect.
http://www.gleepy.net/ mailto:gleepy@intelligencia.com
mailto:gleepy@gleepy.net (and others) Yahoo!: gleepythehen
Sherry - 17 Jan 2009 03:43 GMT
My son shattered his wrist, repaired with titanium plate and screws and lots
of physical therapy. He has regained more use of the wrist than the
specialist figured he would have. He is a professional motorcycle hillclimb
racer and auto body painter. He needs the movement in his wrists to be able
to work. The doc fixed his wrist so he can still ride and control his
motorcycle...the only part he has not totaly recovered is being able to turn
that palm up and accept change. <g>
He siad to tell her to go to therapy and work hard at it and she should
regain a good deal of her movement if she is as determined as he was.
Good to know that her NSAIDs are covering the current pain. Paul discovered
that the best thing that worked for his pain was not the oxycotin or the
vicodins they gave him but the valium (sp) that he was supposed to take with
the other. He quit the other and used the valium the longest.