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Medical Forum / Diseases and Disorders / Lupus / February 2009Lupus and renal failure
Hello all, My mum has been living with Lupus for about 10 years now. She is 45 years old. At the end of 2008 she was diagnosed with irreversible renal failure and will be starting dialysis jan 2009. has anyone else gone through this? can you maybe give me some info on it, share your experience or tell me what to expect?? Nadine, I just wanted to say that I read your message but don't have any experience with your mother's diagnosis of renal failure. Someone should answer you soon. Check these members pages out and see if they have any info for you. Andy Taylor [Chair, N E Lupus Group]. URL:http://www.northeastlupus.org.uk Shelagh Lupus - Invisible In Plain Sight @ http://members.shaw.ca/tiderington Sorry you have to be here looking for info but welcome to the group! Hugs, Sherry nadine.townsend@gmail.... wrote "Hello all, My mum has been living with Lupus for about 10 years now. She is 45 years old. At the end of 2008 she was diagnosed with irreversible renal failure and will be starting dialysis jan 2009. has anyone else gone through this? can you maybe give me some info on it, share your experience or tell me what to expect??" > Hello all, > [quoted text clipped - 3 lines] > gone through this? can you maybe give me some info on it, share your > experience or tell me what to expect?? There is good information for you here: <http://www.davita.com/> Look under the education section. My DW (dear wife) had a long slow slide to renal failure from lupus, (more than 20 years). She was on dialysis for nearly 6 months before a transplant. Our younger son donated. Do not expect such a short time frame. Will your mother be on a kidney waiting list or have prospects for a living donor? Do you know what type of dialysis has been chosen? Your post appears to originate from Zaire. I would have no idea what is available to you there.  SignatureTimothy > On Sat, 3 Jan 2009 10:44:15 -0800 (PST) > [quoted text clipped - 23 lines] > -- > Timothy hi Timothy. Firstly, thanx for the reply. I'm from South Africa actually. My mum didn't really get an option to choose between the permanent or semi permanent shunt for dialysis. The doctors said there's not enough time to wait for a permanent one to settle. So they're putting a semi permanent one in her chest today. The doctors have spoken about the possibility of a transplant but they want to see wheter the dialysis works first before we move onto the next step. What type of dialysis did your wife have? How did it affect her? > hi Timothy. > Firstly, thanx for the reply. I'm from South Africa actually. Well I was close. I wasn't sure you would post back here, many first time posters using googlegroups don't find their way back. > My mum didn't really get an option to choose between the permanent or > semi permanent shunt for dialysis. The doctors said there's not enough [quoted text clipped - 3 lines] > works first before we move onto the next step. > What type of dialysis did your wife have? How did it affect her? In 2000 Linda had a semi permanent shunt put in her neck. Her kidney then came back enough to remove it. Then in the early 2007 she was put on a waiting list for a kidney. It wasn't until the summer that she started peritoneal dialysis. First four times a day that took about an hour each. That didn't fit to well with our schedule so switched to a nighttime machine. After a short learning period all was done at home. It is hard to say how it affected her except for the big one (it kept her alive and functioning). She was more tired than she had been, food didn't taste good, she was depressed, etc. Much of this was caused by the chemo drugs that she was on. The biggest affect that I can point to was the rigid schedule with either method. If hemodialysis is used the diet will be very restricted and it is almost always done at a dialysis center. Linda is saying that she felt better than she had for some time. > On Tue, 6 Jan 2009 22:51:02 -0800 (PST) > [quoted text clipped - 27 lines] > diet will be very restricted and it is almost always done at a dialysis > center. Linda is saying that she felt better than she had for some time. They are going to put my mum on a doner list asap. We were advised not to go for the dialysis option that you can do it at home, because of the extreme risk of infection. So if it's going permanent we'll probably do it at the centre. Diet is a bit of a problem at the moment as my mum has never followed a healthy diet. She has always underate, eating about 1 meal a day with really small portions. Hopefully this will improve now.Did Linda also get so itchy? The itchy skin can be due to nerve endings being irritated by high blood sugar and possibly by poor circulation causing dry skin, which also can be caused by diabetic neuropathy and causes itching ... no matter the cause as for all of them the treatments are cortisone creams and lotions. Also 'they' say not to scratch too much because if there are fungal infections causing the itching, (moist red areas with blisters or scales), that can lead to bacterial infections and that is worse. From: http://www.diabetes.org/type-1-diabetes/skin-complications.jsp : "Diabetes can affect every part of the body, including the skin. As many as one third of people with diabetes will have a skin disorder caused or affected by diabetes at some time in their lives. In fact, such problems are sometimes the first sign that a person has diabetes. Luckily, most skin conditions can be prevented or easily treated if caught early.Some of these problems are skin conditions anyone can have, but people with diabetes get more easily. These include bacterial infections, fungal infections, and itching.Localized itching is often caused by diabetes. It can be caused by a yeast infection, dry skin, or poor circulation. When poor circulation is the cause of itching, the itchiest areas may be the lower parts of the legs. " FWIW, HTH, hugs, Shelagh Lupus - Invisible In Plain Sight @ http://members.shaw.ca/tiderington On Jan 8, 6:58 am, Timothy Luders <tjlud...@myrealbox.com> wrote: > On Tue, 6 Jan 2009 22:51:02 -0800 (PST) > [quoted text clipped - 27 lines] > diet will be very restricted and it is almost always done at a dialysis > center. Linda is saying that she felt better than she had for some time. They are going to put my mum on a doner list asap. We were advised not to go for the dialysis option that you can do it at home, because of the extreme risk of infection. So if it's going permanent we'll probably do it at the centre. Diet is a bit of a problem at the moment as my mum has never followed a healthy diet. She has always underate, eating about 1 meal a day with really small portions. Hopefully this will improve now.Did Linda also get so itchy? Hi Nadine I do not have lupus but was diagnosed with renal failure on the 28th of January 2009. I started with dialysis - twice a week for 3 hours - I'm 30 and it was really a shock. My moods is up and down and I'm tired when I'm finished with my dialysis. Yesterday I was seen by a Nephrologist and he changed my dialysis to 3 times a week. |
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