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Medical Forum / Diseases and Disorders / Lupus / November 2008

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My new Tele-Buddy

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George Parton - 08 Nov 2008 00:43 GMT
I have a new friend!

The VA has provided me with a little console station which plugs into my
phone line with which I must report daily.
It is actually called a "Tele-Buddy."

Once daily when the light flashes I sign on and answer a series of
questions about my circumstances and if need be they respond by phone or
ask me to come in.  It is awesome!  It certainly beats having to wait on
hold or for a returned call.

These folks at the VA have been wonderful to me.  I am truly blessed to
have them!

In the meantime the fungal antibiotic seems to be working very well. I
have another two weeks of meds to go but my condition has improved
dramatically.

I can breath again......   It is exciting.

Good news worth sharing,

George
Shelagh - 08 Nov 2008 05:47 GMT
>I have a new friend!
>
[quoted text clipped - 19 lines]
>
> George

Woo Hoo!!
Very good news for sure!
How very cool is that!!
You have a very high tech friend there!
It is kind of neat what all they can do in the medical world of tech these
days!
So glad it is all working out for you now George!
So glad your fungal condition is responding to your antibiotics and you can
breathe free and clear again too!  Life can be good after all hey?!
Keep on trucking!
hugs,
Shelagh
Lupus Invisible In Plain Sight @  http://members.shaw.ca/tiderington
Andy - 08 Nov 2008 10:14 GMT
[
>I can breath again......   It is exciting.

It is essential :)
Signature

Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>

William R.  Thompson - 08 Nov 2008 11:10 GMT
>>I can breath again......   It is exciting.

> It is essential :)

I won't argue with that!

--Bill Thompson
Curtis R Anderson - 08 Nov 2008 14:30 GMT
> [
>> I can breath again......   It is exciting.
>>
> It is essential :)

Breathing is always good. Then again, from talking to the woman, so is
not being tired or in pain.
Signature

Curtis R. Anderson, Co-creator of "Gleepy the Hen", still
Email not munged, SpamAssassin [tm] in effect.
http://www.gleepy.net/      mailto:gleepy@intelligencia.com
mailto:gleepy@gleepy.net (and others)  Yahoo!: gleepythehen

Mair - 08 Nov 2008 23:43 GMT
>I have a new friend!
>
[quoted text clipped - 19 lines]
>
> George

So is this something you get to keep on a long-term basis, George?  Or is it
for this particular situation?  When you live alone, it is so hard to have
both the energy and the pain come and go without warning. Breathing,
though--I am glad they are taking that as seiously as they should.  My
rheumie does e-mail which is really quite nice.  Neither of us has to wait
around for phone calls.  I also have a small furry forest piglet to watch
over me :-)

Glad to hear that you are feeling better!

Mair & Pigmet
George Parton - 10 Nov 2008 17:54 GMT
>>I have a new friend!
>>
[quoted text clipped - 31 lines]
>
> Mair & Pigmet

Good question Mair.

I suppose because so many of my infirmities are preceded with "chronic",
it is likely that I will have my little Tele-Buddy around for a while.
The beauty of this thing is the literal instant access to the health
care providers.  This is something I would have not even imagined before!

Your rheumie seems to also be an exception.  What a concept, just send
an E-mail!  So simple, why can't others do this?
Hopefully these things will catch on so more will be able to take
advantage of improved access.

My dear little wife still plods along in the private sector with the
ridiculous delays between testing and results, follow up appointments
taking weeks and even months, fighting with the insurance company about
what color pills are OK and who she may see "on her plan".  There is a
better way, maybe it will catch on.  The computer storage of one's
medical records will go a long way toward simplifying the whole thing.

Thanks for the kind words....

George
Sherry - 10 Nov 2008 21:51 GMT
> Good question Mair.
>
[quoted text clipped - 18 lines]
>
> George

George, your Tele-Buddy sounds like it is going to be great.  Gee why
haven't they been doing something like this for yrs?

We have Kaiser Ins. through my husbands employment and they have all of our
medical records, lab, x-ray, rx on computer and no matter the specialist all
of you info is available.  Works great.  Besides that we can access our test
results on line, email our doctors, schedule appointments, and refill rx
from our computers at home.  They automatically schedule an appointment for
you for "routine yearly" lab tests and other screenings.  So far we haven't
had any complaints and they don't seem to have any problem with ordering the
expensive tests.

Sherry
Mair - 13 Nov 2008 00:43 GMT
>> Good question Mair.
>>
[quoted text clipped - 32 lines]
>
> Sherry

Wow, Sherry!  A glowing report from Kaiser!  I guess the only problem would
be if you lost that insurance...isn't Kaiser a self-contained kind of
medical bubble?  But perhaps they would have a way to transfer your chart.
Ten years ago we had a saying around here "Kaiser Kills!" I was carted off
in an ambulance for something or other 10 years ago and they said that
Kaiser was the nearest hospital.  "AAAAAAh!" I said "Kaiser Kills!  Kaiser
Kills!  I replied."  I think they had to give me a sedative in the
ambulance. :-)

I guess those days are over! :-p

Mair
Sherry - 13 Nov 2008 16:42 GMT
I have heard the "bad" things about Kaiser..but guess that they are the same
with any HMO type insurance.  But seriously we have had absolutely no
problems with our care or with the Dr. ordering tests or getting an
appointment within a reasonable time when we request being seen.  Since my
nephew is a Dr. and if something is going on I frequently consult with him
(he knows our medical history) and he make suggestions for what he would
check.  If that is not on the list of what our Dr. orders I will ask what
about this or that and he/she will order it.

One thing I will say they have enough doctors who are from other countries
and I would say that no one living in the US would have trouble finding a
Kaiser doctor that speaks their "native" tongue.  But again American Medical
School graduates seem to be in the minority.

They just completed and opened their new hospital in Modesto (about 20
miles) so we can be hospitalized (if needed) close to home.

We switched to Kaiser as the out of pocket expense and what they covered was
far better than the policy we had prior ..unfortunately it meant giving up
the doctor we have had for 20+ yrs.  Our pocketbook thanked us for the
decision after having an x-ray they questioned and ordered CT scans that
also was questionable so they have been doing scan every 3 months checking
for any change.  (So far none)

I don't think that any insurance is what we think it should be and everyone
will find things that need improvement.  But hey I was raised military with
military health care (that was always excellent) before they set up the
Champus and Tri Care system for dependents.  So I was used to not having a
choice in the Dr I saw etc.  <g>

Hugs,
Sherry

>>> Good question Mair.
>>>
[quoted text clipped - 46 lines]
>
> Mair
Mair - 13 Nov 2008 00:37 GMT
>>>I have a new friend!
>>>
[quoted text clipped - 54 lines]
>
> George

Yes, George,

I do hope these things catch on.  My GP does not have e-mail.  I was lucky
to be sitting here by the phone when she called.  I leave my ringer off
because I get so many hang-up calls.

I hope you have your Tele-Buddy for a long time.  Hell, let the insurance
pay for you to keep it permanently!  What are they doing with our money
anyway?  Your Tele-Buddy reminds me of something else they are trying to
institute in my area...that is needed in any "melting pot" of nationalities:
It is a link to a doctor that speaks the patient's language.  There are real
docs working on the patient of course, but then they can hear and see (they
also have sign language for the deaf) a doctor who can translate the
information to the docs.

This area where I live is so very disability-friendly.  You see folks in
wheelchairs on the go down the street, waiting at bus stops and such.  the
weather is pretty good hear year round, so I guess that is really good for
disabled people.

That's terrible about your wife.  Criminal, if you ask me.  Insurance
companies have no right doing that.  I always get a generic, but some meds
are not generic, so they have no choice.  But I always get my meds.  It's a
pain to remember to call them in all the time; I take 16 different things
every day now, and I just got back with a load of Percocet!  Yum!

I go to a clinic where most of the poor folk in this area go...probably lots
of grape-pickers. But the docs are good, and my change to a smaller campus
was really smart.  This is a part of the clinic that is not as inundated,
and is more personally oriented.  For example, I have been very sick the
past 24 hours (some kind of throw-up bug, which seems also to have pulled my
lupus out of control, hence the Percocet), but I called up there this
morning, and I got seen this afternoon.  Sometimes public healthcare is
better than private!  It's a bit hard getting a specialist, but I have done
it.  I had to have orthotics for my feet, and I was seen and got the problem
taken care of pretty quickly.  Now I only have my choice of three pairs of
shoes to wear, but I am taking care of these feet. You aren't aware certain
parts of your body exist until they are giving you pain, eh?  Maybe we
lupers are more "in tune" that way...aware of all of our body!

Electronic charting:  I had that done when I was in the hospital.  I was
only there for 24 hours, but the admission was grueling, because of the
electronic charting. She had a laptop computer with the program, and sat on
my bed and just kept the questions coming It is a great help in the long
run, but this poor nurse had to enter all my medical information, and we
were up until past midnight. But if I go back, all the info will be at their
fingertips.

The best to you and your wife

Mary

The best way to live a long and healthy life, is to get a chronic disease
and learn to take care of it--William Osler
 
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