Medical Forum / Diseases and Disorders / Lupus / October 2008
Hospital for Mair
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Mair - 29 Sep 2008 04:07 GMT Okay, well.
when my new rheumatologist called me on Friday, she was very specific. She said "if you have pain or tightness in your chest, or have light-headed or dizzy, vertiginous feelings, get to the hospital. Well that is exactly what happened at about 3pm on Saturday when I stood up from this computer after several hours of reading and writing.
So I got my data together, (you know, like a list of the 15 meds I take everyday to keep the lupus and other side effects away), told my neighbors in the other half of this duplex that I was going to the hospital, and on the off chance that they would possibly keep me... to take care of my kitties.
A big thing I can be thankful for is that I am not afraid of hospitals or intimidated by the medical profession (it was my chosen field of work). I really felt like sh.t after getting my things together and driving myself to the ER. I told the first free person wearing a scrub that I was having cardiac symptoms. They live for that in the ER. They sucked me in like a vacuum cleaner and got me lying down with monitor and EKGs, stat labs. Shortly after they pronounced me "stabilized" Some kind of big trauma case came into the ER...multiple patients taped to back boards being run through the hall. This is when I saw Pigmet, out in the hallway, trying to get to me. I told him "Met! Go home! It was nice of you to come, but these fire-rescue guys are going to step on you!
Because of the trauma cases, they had to move me and my gurney and all my electronics into the hallway. I was finding this all both fascinating and hilarious (being in the hall, that is), but when the cardiologist came and said my EKG looked bad and I was going to be admitted, I was not quite so light hearted. I did however remind myself how many times I had been working in an ER, and was so fatigued that I would have given just about anything to be able to lie down on one of the gurneys!
So you know the whole admission process happened and they took me up to the third floor to a room that said "Oncology." "Oncology? What am I doing in oncology?" "This is the only bed we had free." "Oh. Okay. My head can be considered a tumor anyway..." Everyone at Memorial Hospital was *so* nice, I felt bad to be getting irritable. They kept stabbing me for lab tests, and doing repeat EKGs, and I just wanted to lie down and be left alone. An untalented phlebotomist left me with a big hematoma on my arm :-/
I was scared for myself, as I said, but fortune had me in that Oncology ward. How self-piteous can you be, when your roommate has metastatic ovarian cancer? She was an old German woman, who had been fighting her battle for quite a while. She was sweet. We had a few very tender conversations. She likes Johnny Cash, and I told her how my stepfather sat me down with a guitar shortly after he came into my life, and had me playing "I Walk the Line"! This story was under the subject we were having about the moments of unadulterated love that we have had in our lives. She had been in Germany during WWII, and now here she was, in her old age, just wanting to get home to her doggies.
My cardiologist came, rather late this afternoon (Sunday). and the verdict is that I have not had a heart attack. He said I may have lupus-related pericarditis, or pleurisy, or both...and that outpatient testing will begin tomorrow (that's Monday, 9/29). My brother has lupus and has had both of these conditions
I am possibly going to have an "adenosine stress test," which I have never heard of before. Have any of you (if you are still reading this letter!) ever had this? Apparently they inject contrast medium into a vein, so they can see the heart, and this procedure is in lieu of a treadmill stress test. Or he may just decide on the treadmill test. Then, the Dr. said, we will just keep going down the line, ruling out things. He didn't leave me hanging. He said we have to find out what this is.
Oh Goody,
Once the doc said I could go. I was out of there in a flash! I was exhausted. I drove home, and there was Pigmet waiting for me. He ran and gave me a hug around my knees. I told him, "Its' okay, It's fine. They are taking care of me, and now-here at home-you can take care of me, okay?" He said that the whitewater rafting season in his world is over, so he will stay here to be with me. If I am feeling well enough, I will go over to his land. It is very beautiful and peaceful there.
Oh, I wanted to mention how neat the technology is. I haven't been an acute-care hospital patient for over 8 years. I couldn't believe all the little computer gizmos they had. They use things like cell phones to keep patients on telemetry, so we are not cords to a beeping machine by the side of the bed. The laboratory now uses a thing like a "palm pilot" that is part of the computer base system in the lab, and replaces the large printers we used to have to use. The patient labels print right out of the palm pilot thingy at the patient's bedside. The phlebotomist said "Yeah this thing is great. when it works! When it doesn't, it is a nightmare!" So essentially hospital labs are still the same. part intrigue, and part nightmare! That's the nature of the beast.
THANK YOU to Sherry and Jay for your posts of care and concern. J, any friend I know is also a fiend, so I know what you mean. I am your fiend, too.
I will keep you all apprised, as my testing continues.
If you have an extra prayer, or whatever, you can send it to my roommate Gudrun, who has ovarian cancer. So many people withdraw (in fear of their own vulnerability?) from a person who is about to cross over in to our next lives. I hated to leave her there.
Okay, enough rambling from me,
Love to you,
Mair
P.S: and your Devoted Nephew, Pigmet
janers - 29 Sep 2008 04:36 GMT Holey crapoley Mair, could you have just waited for me to respond to your first post that you had to go rush to the ER?
Wow and so glad it was not a heart attack but pleurisy can very well mask that to make it look like one. Did they put you on antibiotics as well? The test name is one I am not familiar with right now but there is a test that they give meds so the heart works and you monitor the muscle and arteries to see if they work under stress. Cardiolyte it is called and that too is injected so the contrast lights up the heart. and you don't have to run on the treadmill either they give you a drug, there are two but you only get one LOL and it is then checked with eKG readings. I will have to research this adenosine stress test now :(
I am so glad you have a good doctor following you and keeping tabs on you, after all SOMEONE has too besides pigmet right?
So stay out of trouble and keep us informed of you goings on too LOL I wish you the best and you know what, you have a way with words and that indeed spells out a WRITER IN disguise hehe. NOW it didn't take a rocket scientist to find that out did it hehe hugs janers
janers - 29 Sep 2008 04:41 GMT OH shoot Mair, I just looked that up about the tset, the adonosine stress test. HECK lady, I beat you to it. It is also called a DOLBUTAMIDE stress test and I had it done few years ago in Cleveland clinic.
there was nothing to it. I laid on the table more to my left side, they did a IV with fluid running and started a EKG machine with all the fancy wires :) and off it went, then came the med and I noticed nothing. My heart rate did drop but only because I was on so much of a drug called a beta blocker that made my pulse so slow the test had to be stopped cause my bp dropped but I felt nothing or no weird effects. So lay back enjoy the good lookind young dudes hehe giving it and yak away. THey never told me to shut up and after all, you know by my writing here talking a lot is a thing that I usually do.....
good luck and let me know hugs janers
Mair - 29 Sep 2008 21:07 GMT don't give me holycrapoly girfriend!
I put new headings so that *I* can find what I have written, okay? And then I try to remember to check all the headings.
Yes when you described it, I knew you were talking about the adenosine test. It is going to take 3 hours, I have to go off the beta blocker I was put on last Friday <sigh> for how long...
Well, I am heading OUT THE DOOR-- for the ECHO right now, so have not addressed all your stuff.
When I come back I'll be able to tell you more, and hear more... so WRITE ME AGAIN if you want to.
The caps here (holycrapola-lady), are for my benefit as well.
Love to you
Mair
> OH shoot Mair, I just looked that up about the tset, the adonosine stress > test. [quoted text clipped - 19 lines] > hugs > janers Mair - 30 Sep 2008 01:41 GMT See? I'm back and still alive. I had to write another detailed e-mail to my rheumie at UCSF first.
The echocardiogram was fun. I am like a duck in water when it comes to medicine. I love technology and procedures (though I don't seek them out unnecessarily!), and always ask as many questions as the tester and the procedure itself will allow for. This lady was great. I asked her all about her personal training to work in such a high-tech office, handling ECHO for a whole group of 5 cardiologists. I did not know that Echocardiography was a full separate program of it's own, and not a subset of a regular radiology license.
I saw my own heart from several interesting angles. My heart is there! No one can ever acuse me of being heartless! We all know we have these things, we depend on it every minute of every day, but we never (or rarely) get to see them for ourselves. Some of my questions she said she had never been asked, and some she said she had never even thought of herself. Whaoao!
My other comments will be interspersed below.
Janers wrote:
> Holey crapoley Mair, could you have just waited for me to respond to your > first post that you had to > go rush to the ER? NO.
> Wow and so glad it was not a heart attack but pleurisy can very well mask > that to make it look like > one. I did not know that. Thanks for that info.
> Did they put you on antibiotics as well? No. Why would they do that?
> The test name is one I am not familiar with right now but there is a test > that they give meds so the [quoted text clipped - 6 lines] > checked with eKG readings. I will have to research this adenoside stress > test now :( There are both of those words written on the same test by him. "Cardiolyte Treadmill or Adenoside."
I don't know if that was a choice of two tests or three...but the lady who scheduled the tests this morning told me it would be Adenosine. The ONLY thing I know about "adenosine" is what I learned in biology in high school... about the cycle of adenosine triphospate--to adenosine diphosphate as being the way that the mitochondria (the "batteries" of each individual cell of our bodies) produce energy for our bodies. This may be totally unrelated...just like both Sodium and Chlorine are nothing at all like table salt.
> I am so glad you have a good doctor following you and keeping tabs on you, > after all SOMEONE has too > besides pigmet right? oooh. Pigmet will get over that, but you are right. However, I am never alone in that sense. Geo is most often here as well, and there are a host of other folk and strange phenomena in my immediate vicinity. There are visible, touchable people in the other half of my "duplex" and I presciently gave them my key on Friday and swapped phone numbers with them. I had no idea at that time that I would end up in the hospital for real; I was just covering my bets.
So I hope that relieves you.
Also, the hospital is about a one-minute drive from my house, as is the cardiologists' office, and just about any other medical thing you can think of: Labs, Radiology, etc. It is kind of a whole small medical city.
> So stay out of trouble and keep us informed of you goings on too LOL > I wish you the best and you know what, you have a way with words and that > indeed spells out a WRITER > IN disguise hehe. NOW it didn't take a rocket scientist to find that out > did it hehe In disguise... oh don't insult me :-p As a "Medical Language Specialist" for the Other Huge Hospital here in Santa Rosa, and for the Patholgy Group I worked for, I was a technical writer and editor (and several other things) rolled into one. That's not what you are talking about, though. But I also have tons of stories in the process. I have not submitted much anywhere, but that will change. I had my own Blog several years ago and yuh-all can look at that here:
http://radio.weblogs.com/0114986/2002/10/20.html
I rolled it all the way back to the first day, so you don't have to read it backwards. I don't remember all that is there...but you'll meet Geo and I forget who else from Deep River. The reason you guys met Pigmet is because he was having trouble with his legs that required surgery, so he came on for support and to share his experiences. And then he went from there.
Also I am still a "guest poet" on poetsforum.com, though I have not contributed for several years, and think only one of my poems is of any worth.
I stopped publishing my stuff on the Internet, because I don't want it stolen by someone else. I don't think a lot of people realize that can happen to the stories that are precious to their hearts.
Okay, I'm gonna go jogging
Just kidding
hugs back to you
Mair
ironjustice@aol.com - 01 Oct 2008 15:39 GMT told the first free person wearing a scrub that I was having cardiac symptoms. They live for that in the ER.(it was my chosen field of work) <<
Sooo .. with "cardiac symptoms" .. she drives herself to the ER ..
WHEN they mass mobilize BECAUSE she **says** .. "just the right thing" / "cardiac symptoms" / "They live for that in the ER". they are almost immediately innundated by a virtual bloodfest of ACTUAL .. sick people.
They diagnose her with anxiety and send her home after many anxious moments .. because OF her **knowing** how to say .. "just the right thing" ..
And the expense .. ?
She drives herself home.
Now .. I don't know about anyone ELSE .. but I find her actions the PERFECT example of a .. medical .. professional.
She should actually be charged.
She has fully admitted to driving a motor vehicle when SHE HERSELF .. **knew** it was **unsafe** to dooooo .. so / "cardiac symptoms" ..
Who loves ya. Tom
Jesus Was A Vegetarian! http://tinyurl.com/2r2nkh
Man Is A Herbivore! http://tinyurl.com/a3cc3
DEAD PEOPLE WALKING http://tinyurl.com/zk9fk
Andy - 01 Oct 2008 18:42 GMT In message <7d311b27-c7ae-4fc1-9ea8-2c408cdb3862@a1g2000hsb.googlegroups.com>, "ironjustice@aol.com" <ironjustice@aol.com> wrote []
Have you ever thought that one simple action on your part would make an immeasurable improvement to the lives of dozens, nay hundreds, of people?
 Signature Andy Taylor [Chair, N E Lupus Group]. <URL:http://www.northeastlupus.org.uk>
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