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Medical Forum / Diseases and Disorders / Lupus / August 2008

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She in PA - 18 Aug 2008 22:39 GMT
Hi everyone,

I have Lupus. I have been diagnosed for 18 years. In the year 2000 I woke up
with extreme burning and pins and needles in my hands and feet. I had no
feeling if someone touched them and I could no longer use my hands. I
couldn't grasp anything. My hands and feet where useless. In a few days I
started to go blind in my left eye first then my right. They diagnosed me
with Myelitis. The Doc's told me my nerves were being crushed by my
antibodies in my spinal cord. They gave me high doses of steroids by
intravenous and 2 years of chemo. Lots of therapy. I shocked all my doctors.
They told me after a few years when I was back on my feet that they thought
I would die or if I lived I would be wheel chair bound. I have had both of
my hips replaced because of avascularnagrosis due to the large doses of
steroids. I am walking driving. I got my eye sight back within 2 months of
going blind. You would never know that I have went through all that I have
if you look at me today. I have proven the Doc's wrong. If you are out there
in poor shape just remember your body and God can do amazing things. You can
come back from the edge of death and have a normal life again. Never give up
faith and hope.

She in PA
janers - 19 Aug 2008 04:08 GMT
Absolutely do not ever give up.  My you have been through some very rough times haven't you.

I hope you continue to do well and Keep God in your heart.

Good luck to you and keep us updated with your health and self.

janers your Ohio neighbor
notamythologist@gmail.com - 19 Aug 2008 20:41 GMT
> Hi everyone,
>
[quoted text clipped - 17 lines]
>
> She in PA

What a story! I was lucky in being diagnosed even before I got typical
lupus symptoms. After 8 years on Plaquenil, I can even tolerate some
sun. Last summer (summer!), I stayed healthy through a two-week
delegation to the West Bank/Palestine/Bedouin villages, where there's
lots of sun, lots of heat, and insufficient water. (There's
insufficient water for Palestinians because in this desert setting,
the illegal settlers dig deeper into the water table, using the water
for frivolous things like swimming pools. One village I visited was
working to get the UN to truck water tanks in to them. None left in
cisterns. Two weeks' worth left in the village well. The local
Palestinians couldn't even bathe -- and they're very frugal with
water.)

I might well have given up under the kind of circumstances you
describe!
 
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