 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Lupus / August 2008Doing Good!!!!!!!!
Well, it has been a very long time since I posted here but I wanted to let everyone know that Finally after 5yrs of treatment My lupus is completely undercrontrol. Not only that but the Kidney desease that came along with it is finally stopped. I guess the 8 rounds of Retuxin and all the Cellcept finally did what it was suppose to. Althought my Kidneys are down to 45% they are currently clean and there is no desease activity. So I am starting to taper off the cellcept and all the other meds. I have been off steroids since Feb. so I am flippin happy. 18months of treatment that went to 5 years.......... Man, I just need to tell some people that can understand. -Steve Steve, I am so happy for you! Good news is always refreshing. Thanks for the bright spot in my day..... George > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve Congratulations Steveo!! I completely 'feel' you about the steroid thing.... Now THAT is just too cool!! And so now after 5 years you have made it! Just keep on walkin that walk....talking that talk cause it sounds so darn good coming from a new and healthier you! And good luck with the tapering on the other meds... I know you'll have no problems cause you've already beat the 'mother' of all meds lol!! If you can beat steroids? .... well, enough said! hugs, Shelagh http://members.shaw.ca/tiderington - Lupus ~ Invisible in Plain Sight > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve Great news Steve! Sherry > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve Happy to hear it, Steve! Way to go, and just keep on! Mair > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve Rah, rah! Thanks everyone, I appriciate. I love the fact that I can post on this board and everyone here can relate. When I tell my wife or my friends they look at me like "Big Deal, you look fine". It is frustrating sometimes but I am very happy and already my celllcept is cut in half. So everyone have faith it can be fought, but it takes a lot of work. :) In message <08fd1694-f538-48c1-bc54-21c97b5be838@e39g2000hsf.googlegroups.com>, >Thanks everyone, I appriciate. I love the fact that I can post on >this board and everyone here can relate. When I tell my wife or my >friends they look at me like "Big Deal, you look fine". It's one of the symptoms ;)  SignatureAndy Taylor [Chair, N E Lupus Group]. <URL:http://www.northeastlupus.org.uk> > In message > <08fd1694-f538-48c1-bc54-21c97b5be838@e39g2000hsf.googlegroups.com>, [quoted text clipped - 3 lines] > > It's one of the symptoms ;) Oh yes it is *!* .... and the real fun starts when it becomes the symptom you probably already know as: 'hypochondria' *?*, which you will be labeled with for a fair period of time by doctors and friends and family until they finally come to realize that 'the looking so well, while feeling like utter shyte' is just all part and parcel of the same diagnosis: Lupus! / the great imitator! / disease of 1000 faces! (hateful really when you consider all that we try to do daily, regardless of the aches and pains and inflammation that seemingly never ends .. so that we are seen as normal or as typical as our peers ... and still get hung with that mouthful anyhow !!) 'Lupus / Invisible in Plain Sight' @ http://members.shaw.ca/tiderington hugs, Shelagh Well done, Steve. So very pleased for you. yes, having someone who "gets it" helps a great deal. I've got supportive family but it wasn't always that way. Makes a world of difference. > Well, it has been a very long time since I posted here but I > wanted to let everyone know that Finally after 5yrs of treatment My [quoted text clipped - 9 lines] > > -Steve |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2009 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.