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Medical Forum / Diseases and Disorders / Lupus / July 2008

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what happened here

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janers - 08 Jul 2008 04:16 GMT
where is everyone and what happened to the LUPUS newsgroup. No one posts and nothing going on?

Most all of the posts are junk so anyone help me out here

janers
Andy - 08 Jul 2008 10:40 GMT
>where is everyone

I'm here.. coping with a new kitchen. I'm getting tired of trying to dry
my hands on a cupboard door, which now is where the towels were :)

> and what happened to the LUPUS newsgroup.

It's rusting away :(
Signature

Andy Taylor [Chair, N E Lupus Group].
<URL:http://www.northeastlupus.org.uk>

Sherry - 08 Jul 2008 19:59 GMT
Seems like lately every time I check the group it is nothing but cross
posting and stuff that most of us try to filter out.

Just trying to survive the fires burning in CA and the smoke we get to
breathe in the now triple digit temps.

Hugs,
Sherry

> where is everyone and what happened to the LUPUS newsgroup. No one posts
> and nothing going on?
>
> Most all of the posts are junk so anyone help me out here
>
> janers
George Parton - 08 Jul 2008 21:20 GMT
I check in every day to see what is new. As for me, I try to spare
everyone hearing my ranting about the same old stuff.

Each day of this lupus experience is all new.  Last week the increased
prednisone dosage had me on cloud nine.  Last couple days have been less
than pleasant. lot's of pain. Go figure....

Anyhow, it is good to see some dialog.

Sherry, I'm sorry to hear you are affected by the fires.  It is easy to
dismiss when it is just a story on TV. We are getting our share here in
Arizona as well.  Last week we had a big one just a couple miles south
of us in the river bottom.  It took lots of effort to finally get it
under control. The smoke and soot were awful for those downwind in the path!

Keep posting!

George

> Seems like lately every time I check the group it is nothing but cross
> posting and stuff that most of us try to filter out.
[quoted text clipped - 11 lines]
>>
>> janers
Sherry - 09 Jul 2008 01:03 GMT
----- Original Message -----
From: "George Parton" <GEParton@netscape.net>
Newsgroups: alt.support.lupus
Sent: Tuesday, July 08, 2008 1:20 PM
Subject: Re: what happened here

> Sherry, I'm sorry to hear you are affected by the fires.  It is easy to
> dismiss when it is just a story on TV. We are getting our share here in
[quoted text clipped - 5 lines]
>
> George
George, it is 107 at the moment and the smoke from the fires around us is
making my breathing difficult.  But we have not had ash coming in like we
have had from fires that burned in Yosemite.  Guess the smoke is coming from
fires in the Sacramento area but I'm not sure.  I am still monitoring the
floods on the Des Moines river.  My cousin's house has been under water for
weeks...level where his house is now just 3 ft over the 10 foot flood stage
but he hasn't gotten back in and I doubt he is looking forward to what 20+
feet over flood level did to his home and property.  Course his house is not
far from the riverbank <g> was his cabin till a divorce now it was his home.

Always something!

Hugs,
Sherry
Paul T. Holland - 08 Jul 2008 20:35 GMT
hi janers

can't be sure how 'much' this is affecting the group,

but a great many of the isp's  - time warner [stopping all usenet],
verizon, aol, road runner, sprint,  

have removed access to any of the 'alt.' groups - they have left access
only to the 'big 8':

comp.*
humanities.*
misc.*
news.*
rec.*
sci.*
soc.*
talk.*

so - i know many folk either can't afford to use a 'pay  service like
easynews or the german server - and others just plain don't 'want' to
have to use the clunky google interface

all in all - i think there are quite a few folk that will migrate over
to web forums on yahoo and other such...

hth

paul

> where is everyone and what happened to the LUPUS newsgroup. No one posts and nothing going on?
>
> Most all of the posts are junk so anyone help me out here
>
> janers
J - 08 Jul 2008 21:16 GMT
> hi janers
>
[quoted text clipped - 14 lines]
>
> hth

German server is 10 EUR per year which equates to %15.00 (US) per year
http://news.individual.net/ - Now has PayPal

Free news servers
Free Access: requires registration http://news.motzarella.org/ See FAQ for
instructions.
Free Access  http://news.aioe.org/ Set up in "news" tab of your software
Add your list of newsgroups and download messages of each.

(Other)  commercial NSPs (News Service Providers),
Giganews - http://www.giganews.com
Supernews - http://www.supernews.com
NewsGuy - http://www.newsguy.com/
Prices vary from ~$5.00 a month to $50 a month, depending on what you need.
Add your list of newsgroups and download messages of each.

Handy for remote access?
http://talkaboutsupport.com/group/alt.support.lupus/ Requires
Registration
Probably can't delete nor filter posts.
http://groups-beta.google.com/group/alt.support.lupus
Can't delete nor filter posts.

Save this.

The problem is that Lupus people aren't posting.
J
Paul T. Holland - 09 Jul 2008 22:33 GMT
great info j - !!

> German server is 10 EUR per year which equates to %15.00 (US) per year
> http://news.individual.net/ - Now has PayPal
[quoted text clipped - 23 lines]
> The problem is that Lupus people aren't posting.
> J
 
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