From Health Lover, Ilena Rosenthal:
http://ilenarose.blogspot.com
Thanks to all who forwarded this to me ... sorry I'm getting to it so
late. Here is a link with all of our Senators contact information if
you wish to voice your opinions on this bill. I know that many of our
support group suffer from lupus and similar diseases and many have had
seizures.
Here is the link:
http://www.senate.gov/general/contact_information/senators_cfm.cfm
Contact your Senators Now! Senate to vote on Tuesday, July 8
Vote YES on HR 6331
On June 24th the House of Representatives passed H.R. 6331, the
Medicare Improvements for Patients and Providers Act. H.R. 6331
clarifies off-label drug usage, protects coverage of drugs that people
with chronic diseases use, and allows coverage of select seizure
medications through Medicare Part D.
Now we need your help to ensure the Senate ALSO approves H.R. 6331,
the Medicare Improvements for Patients and Providers Act of 2008.
The Senate is likely to vote on this bill on Tuesday, July 8 so
please contact your Senator on Monday!
Why this bill is important to people with lupus:
Clarifies off-label drug usage
- The only drugs that currently have an indication for lupus are
corticosterioids including prednisone, prednisolone,
methylprednisolone, hydrocortisone; hydroxychloroquine (Plaquenil®);
and aspirin. All other medications prescribed for lupus are considered
off-label. It is important that people with lupus continue to have
access to medications that are not currently approved for lupus.
Protects special classes of prescription drugs
- If enacted, the law would require health plans to cover under
Medicare Part D most classes of drugs for chronic diseases like lupus.
Provides coverage of the benzodiazepines and barbiturates
- These drugs are currently excluded under Part D. Coverage is
important because some physicians may prescribe these drugs for people
with lupus
who also may have seizures.
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Ilena's Health Lover Blog
<http://ilenarose.blogspot.com>
Breast Implant Awareness Blog
<http://breastimplantawareness.blogspot.com>
Mark Probert - 08 Jul 2008 21:58 GMT
> From Health Lover, Ilena Rosenthal:
>
[quoted text clipped - 8 lines]
> Contact your Senators Now! Senate to vote on Tuesday, July 8
> Vote YES on HR 6331
The Senate version is S. 3101.
> On June 24th the House of Representatives passed H.R. 6331, the
> Medicare Improvements for Patients and Providers Act. H.R. 6331
[quoted text clipped - 25 lines]
> with lupus
> who also may have seizures.
Jan Drew - 09 Jul 2008 01:39 GMT
> From Health Lover, Ilena Rosenthal:
> http://ilenarose.blogspot.com
[quoted text clipped - 60 lines]
> Contact your Senators Now! Senate to vote on Tuesday, July 8
> Vote YES on HR 6331
The Senate version is S. 3101.
> On June 24th the House of Representatives passed H.R. 6331, the
> Medicare Improvements for Patients and Providers Act. H.R. 6331
[quoted text clipped - 25 lines]
> with lupus
> who also may have seizures.
Ilena Rose - 09 Jul 2008 18:08 GMT
Ilena's Health Lover Blog
<http://ilenarose.blogspot.com>
Breast Implant Awareness Blog
<http://breastimplantawareness.blogspot.com>
Thanks to Mary Ann for this additional info ... I understand that the
Senate Bill is numbered 3101.
---------- Forwarded message ----------
From: Mary Ann
Date: Jul 9, 2008 10:37 AM
Subject: Re: US Senators Voting 7/8/2008 on "Lupus" Bill ... important
to many of you
Dear ilena, It has been a long time since we've spoken, my name is
Mary Ann
This bill regarding Lupus, as you have stated is very important to us
Lupus patients. I have had this chronic disease for approx. 15 years
and am unable to take steroids and plaquenil. I am treated with other
medications. I took the opportunity to contact Senator Chuck
Schumer's office in Washington and stated my case to his office
personell. The representative advised me that it has NOT been voted
upon yet, perhaps tomorrow. I also asked his position on this bill
but did not receive a thumbs up or down. I also took the liberty to
advise them that I speak on behalf of all women nationwide who suffer
with Lupus.
Please advise all women who have Lupus or know and love someone with
Lupus, to contact Senator Chuck Schumer's office TODAY to advise him
to vote YES! The phone number for his office in Washington is
#202-224-6542. If everyone could give a quick call advising them as
to the importance of this Bill and the lives he would be helping,
perhaps
placing a real-life personal aspect to this chronic disease will sway
Mr. Schumer in the proper direction! Time is of the essence.
Please call NOW, today's actions could be our last hope for the future
of treatment.
Sincerely,
Mary Ann
**************
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