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Medical Forum / Diseases and Disorders / Lupus / May 2008

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Has anyone tried Cellcept for their Lupus?

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moonlightonly2 - 18 May 2008 08:21 GMT
The rhem dr has mention it to think about it until my next visit in
July as it will get rid of most of my meds like the devil drug
Presidone and such,Thanks inadvance for all your suggestions,Tina
George Parton - 19 May 2008 01:19 GMT
> The rhem dr has mention it to think about it until my next visit in
> July as it will get rid of most of my meds like the devil drug
> Presidone and such,Thanks inadvance for all your suggestions,Tina

Yes, I take Cellcept in the generic form (mycophenilate), 3 grams per
day.  It seems to be working even though I still am on 25mg prednisone
daily.  I guess it does what the prednisone wasn't doing alone. (with
plaquinil, of course)

My experience has included extreme digestive tract reaction which I
control with "Beano" the wonder drug , imodium and lomotel.
You WILL need this!  The gas is hard to believe!!

My soreness, joint pain and much of the fogginess have subsided. I'm not
interested in trying to do without it.

I heartily endorse it!

Please pardon my spelling.  I am not accustomed to writing these drug
names.....

Good luck,

George
Steveo - 19 May 2008 18:09 GMT
> The rhem dr has mention it to think about it until my next visit in
> July as it will get rid of most of my meds like the devil drug
> Presidone and such,Thanks inadvance for all your suggestions,Tina

Hi Tina, I have been on Cellcept for 4 years, just about to start
tapering off of it.  I too was on Prednisone along with the cellcept
for 3.5 years.  Cellcept alone didn't work for me.  The steroids
helped with the joint pain and to keep my Kidney's in check.  I did
not have anything unusual happen.  I will add that if you do not take
priolsec or something similar you may want to start.  I like the
cellcept over the cytoxin.  For me it has worked well.  Good luck,
Steve
 
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