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Medical Forum / Diseases and Disorders / Lupus / April 2008Good day everyone, I want to ask a Lupus for life question..........
I have not posted in a long time. Mostly because I have been in fairly good health and then there is so busy aspect..... I have always tried to push myself as much as I can since the Lupus likes to try and limit me. however I am now realizing that the constant fatigue and joint pain is making me slow down a lot. I now find myself completely wiped out after just 8-9hrs of reqular work, I work full time as a Server administrator. I also own my own maint business and honestly it is beging to be affected by my fatigue. My question is this. How many people on this board still work 40+ hrs a week? And if you do how do you juggle the fatigue and then the time with the family? I am so tired these days all I want to do is sleep. I have backed out on going to the movies and or dinner with my family because I am so dang tired. MY side business is being put off until I feel awake enough to go do the work or I can get my partner to do it. Eitherway the response times are getting longer. Now my day job is becoming more of a chore as well. Any testimonals out there? On Mar 10, 1:05 pm, Steveo <sjarr...@optonline.net> wrote: fatigue and joint pain << The hallmark symptom of iron overload is fatigue. Arthritis is not too far behind. Lupus has been closely linked to myelodysplasic disease. Myelodysplasic disease manifests hemolytic anemia / red blood cell destruction which is KNOWN to lead to iron overload. Think about getting a competent doctor who is **able** to assess the state of oxidation / iron overload in your body. Imho .. Hemolytic Anemia: A Blood Disorder Causes of hemolytic anemia include infection, certain medications, autoimmune disorders (such as Lupus), and inherited disorders. ... http://www.itzarion.com/lupusanemia.html Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk > I have not posted in a long time. Mostly because I have been in > fairly good health and then there is so busy aspect..... I have [quoted text clipped - 13 lines] > Now my day job is becoming more of a chore as well. Any testimonals > out there? Thanks for the info. I did have mild anemia but it has passed. My iron levels are normal. My Rhumy and Kidney doc are very highly rated in their respective fields. My Rhumy is a clinical Professor at Yale, I am completely confident in both of them. I have been complaining about fatigue for a few years now and as far as I can tell that is pretty normal with Lupus. My post wasn't so much a request for possible other afflictions but rather I am looking for insight into what I can expect. Since you were nice enough to share that information with me I will indeed ask my doctor about it. Thank you for your response. -steve In article <06200f7e-af31-42d9-a3bc-bb713c3c6a0b@y77g2000hsy.googlegroups.com>, > Thanks for the info. I did have mild anemia but it has passed. My > iron levels are normal. My Rhumy and Kidney doc are very highly rated [quoted text clipped - 8 lines] > > -steve Hi Having lupus for 25 years gives my body the chance to dictate how to live. I have worked steadily except for the times that lupus sent me to the hospital and kept me in bed. From a 50 hour week to a 36 hour week seems to keep me on my feet. Luckily I do accounting and human resources that is located on the same acreage as our home. I am blessed to have a husband that can take over the duties when I have a lupus attack.....First of all you need to recognize that your body is going to call the shots for the rest of your life. Having two jobs should be in your past. When Lupus first struck me I tried to ignore it but after a few trips to the emergency room and an extended stay in the hospital that damaged my heart I learned... Men seem to have more severe symptoms than women.........You can still have a very good life but take more time to smell the roses.................ruth For Steveo Just re read my response to your question and feel like a pompous a.s. The advice given was really advice to my self. It should have been just go by what your body allows you to do. Thru the years of not listening I continued working and depended on others to pick up and continue work that needed to be done..The stress of trying to meet expenses can be tough. You are wise to be tackling Lupus head on. good luck ruth > In article <ruthtay-1CF545.11053415032...@corp-news.dsltransport.net>, > [quoted text clipped - 5 lines] > trying to meet expenses can be tough. You are wise to be tackling > Lupus head on. good luck ruth Ruth, thank you for the insight. Please do not feel bad, I appriciate any and all insight. I have be DX'd for about 4 years now and I am still learning my way through all of this. All the people here with the years of experience, you girls and guy are a lot of help to those of us that are new to dealing with this. Thank you again. -Steve Hi Steve, Fortunately for me, my husband makes enough money that I don't have to work. Frankly right now I don't think I could work full-time but maybe part-time if I had to. At this point I really don't have the endurance to live a "normal" life. I think if I had to work I would have to be creative. Do you have to work at a set time? I find there are certain times of the day when I am most tired (for me usually 3-6:30 PM) Can you break up your work day so you avoid your worst time of day and could rest or have a short nap. A short nap really can make a huge difference in how you feel. Also for me, is making sure I go to bed before midnight. If I got after that my body pays for days. Controlling my bedtime is about the one thing I feel that I do have control of with my lupus. Jeanne Hi, I am Server and network administrator and I have Lupus. Most of the day tired and I've got alopecia arealis, so I am feelng bad and I lood bad. I don't know if my family use to see me OK. But, there is no exit - only try to supres illnes and live on. Maybe my job is too stress for me? > I have not posted in a long time. Mostly because I have been in > fairly good health and then there is so busy aspect..... I have [quoted text clipped - 13 lines] > Now my day job is becoming more of a chore as well. Any testimonals > out there? > Hi, I am Server and network administrator and I haveLupus. > Most of the day tired and I've got alopecia arealis, so I am feelng bad and [quoted text clipped - 22 lines] > > - Show quoted text - Hi I have been having lupus for 15 years now. I be so stress out with my play sister. I tried to stay from the house to where I won't get sick |
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