 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Lupus / November 2007Plaquenil, anyone?
Hi Everyone, Zinn's letter reminded me, I have a special appointment to see my ophthalmologist, for "Yellow Things" on my macula. He said he had seen them before, and he lightly reprimanded me for skipping several appointments, and said he wanted to keep a closer eye on them. I have been taking Plaquenil for such a long time, and I take so many meds, that it is hard to calculate how much help I am actually getting from the Plaquenil. Are any of you taking Plaquenil alone? Are you getting a real benefit from it? It would really help me to know. Love to all, Mair I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take it Mair. I wish you the best but good for you keeping an "eye" out for problems. SORRY the pun but could not resist that one LOL But honestly glad to see they keeping up with your exams too good luck janers > I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a > bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take [quoted text clipped - 7 lines] > good luck > janers I could never tolerate the full dose the doc wanted me on, he wanted 2 doses a day and I had to break one dose into two times a day, then down to half a pill a day, sick feeling and out of sorts on it, Are you over the reaction and back to a base line? Zinn On Nov 25, 9:07 pm, zinn.46...@yahoo.com wrote: > > I was on it for awhile and it did help with joint pain level and rashes. then sad to say I HAD a > > bad reaction to it and developed blisters and allergic reaction. boy you are lucky if you an take [quoted text clipped - 14 lines] > Are you over the reaction and back to a base line? > Zinn I've been on plaquenil for about 15 years. It was the first drug I was started on. I had great success with it. Took about a year and a half to work completely. I took it alone for probably about three years but then my Lupus got worse and over the years several other meds were added to the equation (cellcept, prednisone, methotrexate...) I've never had any problems with it other than when I first started I had horrendous headaches for about two weeks. Then they went away. I see the opthamologist once a year and he feels for now that's fine. J > On Nov 25, 9:07 pm, zinn.46...@yahoo.com wrote: > [quoted text clipped - 30 lines] > > - Show quoted text - I hear its a great med for those who can take it. I am glad it benifits more people than not. I could take it long enough to know what pain was from Lupus, I have some other things going on and could not tell what pain was caused by what woe. Now I know. take good care, Zinn Oh yes over it completely. They refused to ever put me on plaquenil ever again called it severe allery. So be it LOL. But dang it did help with pain janers > Oh yes over it completely. They refused to ever put me on plaquenil ever again called it severe > allery. > So be it LOL. But dang it did help with pain > > janers Glad to hear there was no lingering effects after the reaction. I grow weary of taking pills. In fact I have stopped several of them on my own. I see my doc once a month and risk being chastised. The worst that could happen is he will fire me. we just gotta hang on, yes! h's Zinn > Hi Everyone, > Zinn's letter reminded me, [quoted text clipped - 10 lines] > Love to all, > Mair The exams are very important, my vision dimmed in clarity, but the med did help with the pain I was having, and I only took a couple of other meds. My system will not handle medications as a rule, I am Chemical Sensitive so already overloaded to begin with. Keep your appointment and let us know how it went, ok. Zinn Hi Mair, Plaquenil at 200 mg each day has been making life less painful for about 24 years. Once in a while I stop it and about 3 weeks later pain in my joints returns. It takes about a month to get back up to speed. I also take 5mg of prednisone each day................no pain medicine ruth > Hi Everyone, > Zinn's letter reminded me, [quoted text clipped - 10 lines] > Love to all, > Mair Mair, I took P's cousin, chloroquin and at the same ratio as the 200 mg of your P, it was 250 mg of C instead; I had to go off it because of deposits in my retina, a known side effect but very RARE.... typical for me to get 'rare'; I miss it so much!! I had joint problems, hives and conjunctivitis all after the first month of going off chloroquin, cold turkey and I am still having joint problems in this 3rd year later after being off of chloroquin... I would have stayed on it forever for the amount it helped my joints and especially the knees and hips; and the fatigue now is so pervasive and it is something I had never had until I went off the chloroquin !! Stay with it if possible and just be sure to see your opth. regularly.... I was seeing my Opth. very regularly and having the field vision tests and everything else and it came on so suddenly and unfortunately it is not reversible with Chloroquin.... However, with plaquenil, any retinal involvement IS REVERSIBLE just by going off the drug.... so just listen to your doctors and go with their advice, is my advice <g>! hugs, Shelagh Hi Everyone, > Zinn's letter reminded me, > I have a special appointment to see my ophthalmologist, for "Yellow Things" [quoted text clipped - 9 lines] > Love to all, > Mair My visit to the ophthalmologist went really well. The doc said that the pattern on my macula was not indicative of anything to do with Plaquenil (Plaquenil toxicity shows a "bulls eye" effect, and I just had irregular mottling). He says that this kind of thing usually comes from having a slight macular edema during childhood, which clears on it's own, leaving a mild scarring which is what the yellow marks are. He said that "yellow marks" are always the way that scar tissue on the macula looks. He looked back through my chart: 2005...2003...1999...the yellow marks have always been there; he said he never paid much attention to them, but they have probably always been the same. He looked at my visual field tests and he said that they were "perfect"--so he was very relieved, and so was I. Hey, its nice to know that I am perfect at one thing, at least! Mair |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.