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Medical Forum / Diseases and Disorders / Lupus / November 2007Remember me?
I know, I have a bad habit of dissappearing and reappearing, but ya are always in my thoughts. I have moved a couple of times, and keep getting more diagnosis's. I could not tolerate the Plaquinel, and have health decline since I took it, sigh!! Anyway, having real bad ear troubles and vertigo to live with I wanted to share some of the medication info I have found. Many of you know so much more than I do, so I'd love to have your input to ototoxic <ear> poisoning. http://www.hearinglosshelp.com/articles.htm#ototoxic_drugs Hope everyone had wonderful Thanksgiving in their country. :) take good care, Zinn On Nov 24, 6:58 pm, zinn.46...@yahoo.com wrote: > I know, I have a bad habit of dissappearing and reappearing, but ya > are always in my thoughts. [quoted text clipped - 16 lines] > take good care, > Zinn Sorry, I forgot to mention that many of the meds I've taken for pain and to have relief from autoimmune problems are on the ototoxin list. Zinn Hi Zinn I remember you, because I thought that your name was for Zinfandel, and I think I waxed poetic about the Old Zinfandel vineyards, did I not? That was me! I am so sorry that you are having a hard time. Do you think the symptoms are from your lupus, or from your meds? I don't know anything about ototoxicity. Maybe Maggie is around and can help you. It is nice to hear from you again; and we *do* worry if we don't have a "check-in" from our friends from time to time. Glad you're back Mair > On Nov 24, 6:58 pm, zinn.46...@yahoo.com wrote: >> I know, I have a bad habit of dissappearing and reappearing, but ya [quoted text clipped - 21 lines] > and to have relief from autoimmune problems are on the ototoxin list. > Zinn Sorry.... Pleiades is my Superhero name. Really it is just me, mild-mannered Mair... > On Nov 24, 6:58 pm, zinn.46...@yahoo.com wrote: >> I know, I have a bad habit of dissappearing and reappearing, but ya [quoted text clipped - 21 lines] > and to have relief from autoimmune problems are on the ototoxin list. > Zinn Okay, now I should be Mair. Sorry, I was having trouble configuring my news profile. MAIR > Sorry.... Pleiades is my Superhero name. Really it is just me, > mild-mannered Mair... [quoted text clipped - 23 lines] >> and to have relief from autoimmune problems are on the ototoxin list. >> Zinn > Okay, now I should be Mair. Sorry, I was having trouble configuring my news > profile. [quoted text clipped - 31 lines] > > - Show quoted text - Hi Mair, lol, I rather like the Pleiades idenity :) and I do beleive it was you that compared me with a wine, I never quite knew if it was a fine wine, or one that is used right from a brown bag <wink> I had a bad vertigo episode, and not feeling well for about 7 months, when I started the plaquinel again, lots of tests still have a MRI to go, and so far there is some memory loss, but not dementia or altzheimers, and this word 'Nystagmus' a rapid eye movement . http://www.nlm.nih.gov/medlineplus/ency/article/003037.htm I have only just started to check this stuff out, but it sounds like the ototoxics and all of this has something to do with what is happening. This page came up in a search, and when I checked it out with the FDA and NIH it said the same things. I don't want more hearing loss or problems. <like anyone does, <yes> Some info on the ototoxics list. http://www.netprocorp.com/shhh/nys/fall98/art4.htm take good care and happy to see ya again :) Zinn Hi Zinn, welcome back and good to hear from you again. It has been a while since we have heard from you thats for sure <g>. Sorry that you had problems with Plaquinel. Too bad this danged Lupus is so Characterized by erratic changeableness or instability and its meds don't work for all of us. One of these days they will have it figured out and we won't just be "lab rats". Don't forget to check in once in a while. We worry about those you stay silent!!!! Hugs, Sherry >I know, I have a bad habit of dissappearing and reappearing, but ya > are always in my thoughts. [quoted text clipped - 16 lines] > take good care, > Zinn > Hi Zinn, welcome back and good to hear from you again. It has been a while > since we have heard from you thats for sure <g>. Sorry that you had [quoted text clipped - 33 lines] > > - Show quoted text - Hi Sherry, thanks for answering :) And you're right, sometimes I do think we are lab rats, a good way of putting it. The rhuemotologist does not know I stopped the Plaquinel, I see him after Christmas. At least for me some of the reactions to the meds have stopped, they were hard to explain, just sick and a surreal feeling while taking it, felt like I was super-imposed on a movie. <thats a loaded statement for my mental health for sure> but, back to my normal. have a great season, Zinn I used to feel like a lab rat, especially when I was in my twenties and nothing seemed to work for me; now I realize that we are ALL different. WE , each being different,are the Laboratories. The doctors are th rats! >> Hi Zinn, welcome back and good to hear from you again. It has been a >> while [quoted text clipped - 48 lines] > have a great season, > Zinn Wow, there sure are a lot of ototoxic drugs, some of which I am taking. But my hearing is so sensitive that I always wear earplugs at night and half the day, too! Regarding Zinfandel wine. It is a fine, upstanding red varietal wine with a "peppery" taste to it. I have found it good with zesty things like Chinese food, or duck, turkey, lamb. Zinfandel is a wine that stands on its own and always has, it is not like these wines that are popular today, most notable Merlot which has always been a grape grown more for mixing with Cabernet....same with some of those others... names escape me... but they are mostly mixers. Give me a good Zinfadel for red, and a good Sauvignon Blanc for white.... Of course with all the medicines.... I have not had wine in a long time. Mair >> Hi Zinn, welcome back and good to hear from you again. It has been a >> while [quoted text clipped - 48 lines] > have a great season, > Zinn > Wow, > there sure are a lot of ototoxic drugs, some of which I am taking. But my [quoted text clipped - 72 lines] > > - Show quoted text - Mair, what a great review of wine :) Yes there does seem to be alot of meds that can damage hearing, I know my ears ring all the time. I think some doctors should be lab rats <except the ones that might lurk here>, but they have the power of the pen to write what they will in our charts... with the world changing so fast they need to have some formal continuing education on what the meds are made out of and not just listen to the drug reps word on how great something is, we even have a long list of recalls to point to, yes. Take care of those yellow floaties, I have green ones when I close my eyes, like a lava lamp, anyone else have that?? its entertaining but distractive for sleep. h's, Zinn Nope. I don't have colored floaters. I have some of those gray, stringy types that you don't really see unless you are looking at something bright and plain like the sky. My yellow is just patches of scar tissue on the surface of the macula. Speaking of ears... my ears usually have a slight ringing going on, but today it sounded like little ringing bells...really pretty! Maybe cause Santa is coming soon! :-P Mair >> Wow, >> there sure are a lot of ototoxic drugs, some of which I am taking. But [quoted text clipped - 100 lines] > h's, > Zinn Little ringing bells, I bet it is entertaining. Better than my high pitch whine in ears. If Santa coming for you, what will the 'whine' signal for me, <wink> Sleep well, Zinn > Nope. I don't have colored floaters. I have some of those gray, stringy > types that you don't really see unless you are looking at something bright [quoted text clipped - 117 lines] > > - Show quoted text - Well, all I can think of is that my telephone makes a high-pitched whining sound, so maybe you need to consult the telephone company in your area :-) M > Little ringing bells, I bet it is entertaining. Better than my high > pitch whine in ears. If Santa coming for you, what will the 'whine' [quoted text clipped - 140 lines] >> >> - Show quoted text - |
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