Dear Dan,

I have already offered a prayer for Kelley, Kelsey and yourself that
there may be healing and comfort at this time.

Please keep us informed of the progress.

God bless you all,

George

Dan,
I know next to nothing about kidney problems but wanted to let you know that
you, your wife, and daughter are in my prayers.

the group has been pretty quiet lately but we do have some people who do
have kidney problems and they should be responding soon.

Hang in there!

sherry

Daniel, I've had lupus for 30+ years & recently discovered that I have lupus
nephritis. It's my understanding that kidney stones are a totally unrelated
problem. Your wife's protein in the urine is of more concern; many lupoids
have a problem with lupus nephritis. Where do you live? There's a much
higher incidence of kidney stones in Great Lakes region because of the
calcium deposits left from glaciers. Anyway, stones have nothing to do with
lupus. Have they biopsied her kidney(s)? That's the only way to dx
nephritis; I know because I recently went thru it. I know about the
insidiousness of lupus - I had symptoms at 12 but wasn't dx'd until I was
30. Hindsight . . . Oh, research is also underway about fibro being a
precursor to lupus, researchers know there's a link, they just can't find
it. Does she test positive for the anti-cardiolipin antibody
(anti-phospholipid syndrome)? That could explain the strokes & the bleeding
problems. Anti-phospholipid syndrome is often present with lupus. Has she
ever has a rash from the sun? NOT a sunburn, but a burny, itchy, bumpy rash.
That's often indicative of anti-phospholipid syndrome but some people, docs
included, as a 'sun poisoning'. Doesn't exist - something causes it, either
some medications or APS. Geesh, I wish you well & will be praying. Hope this
helped some.
Candi

Sorry, I went off on a tangent & forgot my point about anti-phospholipid
syndrome. If you have it you will bleed more than normal from external
wounds, skin, car wrecks, accidents, etc., or internal - weak & leaky blood
vessels, etc. But at the same time, paradoxically it internally causes your
blood to be thick & sticky, making you much more prone to clots. Again,
'they' don't understand why. It leaves a person much more susceptible to
stroke, thrombosis; anywhere in the body. In my case, what the docs thought
was maybe a stone 10 years ago because my right ureter was swollen shut
(VERY painful) was actually caused by a clot in my renal vein, causing part
of my kidney to die due to lack of oxygen ie blood flow. The test is simple
& inexpensive. My recent kidney biopsy showed stage 2 lupus nephritis so
I've been doing a lot of research.
Candi