Sorry to hear the results are in. Let us know what the next step will be for
you.
Bev

Can't tell you what stage Linda was/is at. She has had kidney involvement
since 1984 when pregnant with our younger son ( the one that is planning to
donate). Since the summer of 2000 function has been less than 20%, was
under 14% when she started dialysis. Peritoneal Dialysis, 4 times a day at
home and expecting to use a pump system at night soon.

Aww She,

I am so sorry you are out of your remission.  That stinks. I can relate to your level of fatigue.  I feel the way you feel now--all the time.  I tell people that fatigue is my worst symptom but they don't get it.  I sleep 10-12 hours every night, I still have to take "breaks" in between doing things, and then have a nap in the middle of the day.  Before I was diagnosed (even after, by those who were clueless) this fatigue became a moral issue, as in "Get off your A$$ and do something for once."  If your body is that tired, it needs the rest, although why am I telling you, you practically wrote the book on lupus,

Love to you

Mair
 I am here too!
 I was just lurking cause no time lately to post and feeling so tired and so darn sore too!!
 Oh but I had a great visit with my daughter and grandson for a whole week!
 FUN!!
 Being a nana is way more fun than being a mommy ... lol!
 Also I have CKD stage 2  Candi.... not life altering so far except for the fluid build up!!
 My bp is under control cause also have a 'stiff heart' ... also called diastolic dysfunction... Apparently going hand in hand with my kidney function <or lack thereof> <g>!!
 I just am so darn tired... all the time!! even sleeping 12 hours at night!! still tired in the am!!
 Go figure!!!
 I don't know what else can go wrong cause lupus, which for me had been in a remission for the past few years is now awake and attacking my liver functions! meaning bruising all over in a uniform pattern out of the blue and feeling nauseated instead of hungry... makes a good weight loss plan <g> ... but it is rare for lupus to do this and so unexpected! My CRP was wonky as were all my liver tests (ie: PT INR SGOT ALT ALS ... etc!!)
 I had such a good 'run' without the illness affecting my every day so I shouldn't complain
 .... it is the damage it left in it's wake apparently that caused the heart and kidney problems I have right now too....
 and then poof! out of my nice remission and back with active lupus and the painful joints and all.... so very sick of it... just in time for my grandson too!!
 How untimely can it be?!
 I am sure there are people with worse though.... so I'll shut up again and lurk some more!
 Good luck with treatment Candi... not much they can do except for immuno-suppressives and diuretics as well as diet changes.... like 'salt'.... no more of that!
 It can change too and improve; also ESRD is unlikely with lupus 'they say' as transplants are possible if you are not in active illness.... keep us updated!
 hugs,
 Shelagh
   "Candi Bowen" <reenbow@neo.rr.com> wrote in message news:46e31c12$0$6456$4c368faf@roadrunner.com...

   "Cindy" <Cindyl57nospam@nospamcox.net> wrote in message
   news:3IwEi.87365$Mu5.60310@newsfe15.phx...
   > Lurking here, but there hasn't really been much to lurk about...I guess
   > that everyone is busy with....Maybe Life..
   > Praying for you all that are having problems and those that are not..
   > As for me...Fibro and Arthritis..same ol same ol...one day I am good 4 I
   > am not...but that is life..
   > Dealing with my Bipolar Daughter right now...I think that of all the
   > Mental illness's you could have..schizophrenzia(sp?) and Bipolar have to
   > be the worst...I guess those are just the two worse ones I know about
   > because of having loved ones with them...I know that they are all bad...
   > She could use some prayers..

   Aww Cindy, I'll be praying for you & your daughter. My Mommy Dearest was
   dx'd with paranoid schizophrenia when I was 3 yrs old. I lived with a
   variety of relatives when she was in/out of the hospital. When I was 17 God
   & the angels told her I was possessed & she calmly explained to me that she
   had to burn me to save my soul. She had a pyre going in the back yard! She
   recovered from that one, but she's still pretty wacked, much more so lately,
   with dementia, probably alzheimer's, but the schizo part keeps her secretly
   changing docs as soon as she knows they have any inkling as to her bizarre
   behavior. Doesn't take long; maybe 3 minutes of conversation. Adult
   Protective Services have been no help at all, unless she starts 'wandering
   off'. I know it's very tough. You keep reminding yourself that it's a
   disease, yet it's so impossibly frustrating to deal with on a daily basis.
   My best friend is bipolar but she's been pretty stable for the past few
   years. Well, relatively so. Her manic episodes are getting fewer as the
   years pass by. God, that's so hard for you to deal with. Sorry.

   Candi