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Medical Forum / Diseases and Disorders / Lupus / June 2007

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shingles

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Carly - 26 May 2007 17:32 GMT
I am 24 years old with lupus, on imuran, about a week ago I got a
weird rash that eventualy became fluid filled boils, doc says it is
shingles and perscribed a drug called famciclover has anyone else
gotten shingles with lupus? is it OK to take this drug when you have
less-than-perfect kidneys (the doc didnt see a problem with that, but
there was a waring about it in the information pacet that came from
the pharmacy...)
George Parton - 26 May 2007 18:27 GMT
> I am 24 years old with lupus, on imuran, about a week ago I got a
> weird rash that eventualy became fluid filled boils, doc says it is
[quoted text clipped - 3 lines]
> there was a waring about it in the information pacet that came from
> the pharmacy...)

Hi Carly,
I also had a recent bout with shingles.  My rheumy didn't say whether
this is unusual or not but prescribed a medication called "ACYCLOVIR
800MG". The instructions say to take at the outbreak of shingles. I have
never taken it.  In consideration of the copious amounts of drugs I
take, any time I can get by without adding more I will choose that path.

There was one very important lesson I learned though. When the shingles
are just starting, at some point you are contagious with chicken pox. We
found out after I had contaminated my new 3 week old grandson. I felt
awful!  Poor little guy....

As for the kidney concern.  It seems everything we do or any meds we are
prescribed carry the kidney warning. This is another reason we should
give strong consideration to adding more chemicals to our regimen.

In addition, my rheumy told me there wasn't any cure for shingles after
the outbreak. You might want to ask you Doctor about this before
beginning a new medication.

I wish you luck with managing the shingles' discomfort.

George
gazorpf@yahoo.com - 27 May 2007 11:39 GMT
> > I am 24 years old with lupus, on imuran, about a week ago I got a
> > weird rash that eventualy became fluid filled boils, doc says it is
[quoted text clipped - 27 lines]
>
> George

I know two lupus fellow lupus patients who have gotten shingles in the
past two months. You might want to read about shingles here
http://www.mayoclinic.com/health/shingles/DS00098. Shingles is a viral
infection. Lupus patients have confused immune systems that attack us
and sometimes leave the enemy to run rampant. Add to that the fact
that we take immunosuppressive drugs and we are prime candidates for
any creeyp crawlie microscopic critters that come along.

Linda
janers - 27 May 2007 15:12 GMT
I too had a bout of shingles.  It was way before I got diagnosed with lupus
and things started to happen that I got sick.

It was weird, I had unexplained fever and feelling of over all pain in
joints, no energy. Then there was a small patch of skin on my lower back
that itched and hurt.  Thought  I got into something at a motel swimming
pool. they treated me with antibiotics and no change, cortisone creams,
other creams.  Finally was admitted with fever or undertemined origin 102
and felt like Crap.

then came testing and all of a sudden some dermatologist came in cause I
mentioned my back pain all over and itch.  He said "turn over"   nice guy
LOL  and mentioned shingles.  said I will write you a script and you can go
home.
that was it. Took a long while to get over that hump of pain and fever, so
hang in there.

I have no clue if I ever had chicken pox or what. But both my kids had them
at the same time and I never got sick then. I mean them little ones had it
bad.
No more than 3 yrs or less later did I get sick again and end up with that
diagnosis of lupus....MCTD and what ever else they gave me a name for LOL.

good luck with pain management and treatment
janers
who heads to the dermy for head pain tues.  FINALLY
Carly - 27 May 2007 16:44 GMT
Well I went back to the Doc yesterday, it was just a walk-in clenc and
I had a differnt doctor. This guy was much better at alleviating my
axiaties. He said the kidney thing is not a problem because I am only
on the drug for such a short period of time (only one week) and that
my kideys have close to normal creatine levels - some people take this
drug on a regular basis to supress other herpes infections, like a
cold sore or whatever. The doc said if that was the case then he might
be concerned.

I did have the chicken pox when I was young and luckaly my partner did
too. We are not around any children, and there is not realy anyone
else that might touch the infected area on my stomach, so hopefuly I
will not pass it on to anyone. It looks like I will just have to
endure the pain for a few weeks.

Thanks for your responces - the hardest part is sometimes dealing with
the fact that I have, yet another, complcation related to my lupus or
to my medications. This anxiaty is a little less knowing there are
others who have had the same thing.

-Carly

ps - sorry for the bad spelling :)
Candi Bowen - 27 May 2007 17:50 GMT
> Well I went back to the Doc yesterday, it was just a walk-in clenc and
> I had a differnt doctor. This guy was much better at alleviating my
[quoted text clipped - 19 lines]
>
> ps - sorry for the bad spelling :)

Carly, I had shingles too - about 10 years ago. They said it was in a
strange place, on the outside of my thigh. Back then they used different
meds. I forget what it was called, but it was the same as for genital herpes
(which shingles & chicken pox are, not genital, but herpes zoster) & when I
went to the pharmacy, I stressed that it was for SHINGLES. Don't really know
why, since so many people have the other kind, it really shouldn't be
embarrassing. Even my doc has it, from his ex-wife, & I knew he was having
an outbreak when he slept in his underwear. Wait, that didn't sound good -
we dated for 2 years & almost married. Another thing that's important; stay
away from pregnant people! You can infect the unborn baby, which can cause
some serious birth defects. I know, that's difficult to do, especially when
you were probably contagious before you even knew it, & impossible to know
who in a store or other public place may be pregnant. I too had chicken pox
in high school (yeah, yeah, I also had my tonsils out then & all my buds
teased me to no end when they visited me in Children's Hospital), but I only
had 7 lesions. Keep your chin up - my shingles lasted about a week and a
half. It can be much more serious, however, I know someone who died after 2
years with it. But she was extremely unhealthy to begin with.

Candi
deepdarkhole - 11 Jun 2007 19:34 GMT
Carly:

I too have lupus and am now suffering through shingles for the second time!
It sure didn't hurt this much the first time around.  The pain is sometimes
unbearable!!  I asked the same question of my rheumatologist.  With lupus
they put you on medications and it leads to other problems......anyway, he
said it is MUCH more important to get the proper treatment than to worry that
a weeks worth of medication will cause kidney damage.  I hope you are feeling
much better now.  As for me....it only started last week, I imagine I still
have a long road to recovery, and pain-free!

>Well I went back to the Doc yesterday, it was just a walk-in clenc and
>I had a differnt doctor. This guy was much better at alleviating my
[quoted text clipped - 19 lines]
>
>ps - sorry for the bad spelling :)
George Parton - 27 May 2007 18:34 GMT
> I too had a bout of shingles.  It was way before I got diagnosed with lupus
> and things started to happen that I got sick.
[quoted text clipped - 22 lines]
> janers
> who heads to the dermy for head pain tues.  FINALLY

This web site provides a very comprehensive explanation for shingles and
why we are subject to infection.

http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/shingles.html

Enjoy,

George
 
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