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Medical Forum / Diseases and Disorders / Lupus / April 2007Hi Guys
Hello Family! I have not written in so long, because I have a bug in my computer, and my guru has told me to use the machine as little as possible until he can get it on the bench and look at it. <sigh> I was still asleep this morning when I felt a tugging at my blankets, and a furry little hand started pulling on me---it was Pigmet, of course! He told me that I should not ingore my friends "cause remember how bad it feels when then are not there for you!" Okay, well I *am* here. Thus far, I have been able to pick up my mail, and keep an eye on my bank accounts (I have been a victim of credit fraud, which I will not go into, but has been very upsetting), so if you want to write me a letter, I will get it, and hopefully be able to reply as well. I tapered off Neurontin for several months. I decided to do this because I take 16 maintenance medications every day, with special goodies on the side. Anyway, we made a very slow taper, and by the time I was on the low end of the taper, I was having massive headaches. I went back to my original dose of Neurontin, and now, after several weeks, I am headache free. It is nice to know some things can actually be fixed with medication. I go to my rheumie in San Francisco next Monday. Unfortunately, I don't have someone to drive me, so I am increasing my Prednisone and preparing to drive down myself. Driving and traffic do not bother me, but I do have a fear of getting lost, or being sideswiped by one of those City busses. Ugh! Wish me well! I love all you guys and am sending many well-wishes your way. I gotta turn the machine off now. Mair > Hello Family! > [quoted text clipped - 29 lines] > > Mair Wish you could find some one in the Santa Rosa area because the trip is really hard. Then you have to find a parking space. Sending you good thoughts on the trip ruth Good luck Mair; I know a drive like that can really be exhausting so stock up on water bottles and snacks for the trip... to keep your energy up and your fluids in particular. It all helps and it is all good! Let us know how it goes -once you are home, safe and sound! .....wishing you well!! hugs, Shelagh http://clik.to/lupus "Mair" <stingo@sbcgerbil.net> wrote in message <snip> > I go to my rheumie in San Francisco next Monday. Unfortunately, I don't > have someone to drive me, so I am increasing my Prednisone and preparing to > drive down myself. Driving and traffic do not bother me, but I do have a > fear of getting lost, or being sideswiped by one of those City busses. Ugh! > Wish me well! </snip> I do not envy you the trip to San Francisco as driving in the city and all is very nerve racking...will be thinking of you and waiting to hear how the trip went and what your guru finds on your computer! Hugs, Sherry Hi again guys, Thank you so much for your notes of support. I haven't driven to The City by myself in a while. I am just going to allow myself a lot of time, and take my little cooler with some water, juice and fruit. It's really not that big a deal. Yes, driving in The City can be nerve wracking, but I'm an LA gal replanted, so I am used to most of the vehicular mayhem... with the exception of those Muni Busses! I'm going to try to find a street that they don't use this time! The increase in Pred (I went up to 25mg) has got me energized, but not to wirey or hungry. Now that I have my money, I will probably get my computer into the shop *Pronto,* and get it back in good running condition. Lots of love to all of you! Mair >I do not envy you the trip to San Francisco as driving in the city and all >is very nerve racking...will be thinking of you and waiting to hear how the >trip went and what your guru finds on your computer! > > Hugs, > Sherry "Mair" <stingo@sbcgerbil.net> wrote in message: ......<snip>so I am used to most of the vehicular mayhem... with the exception of those Muni Busses! </snip>........ Hi Mair... Can you tell me, from BC - Canadian, ... just what ARE 'Muni Busses'?... never heard the word before...'Muni' I mean, not Busses.... thanx... curiosity is all ... they don't sound 'nice'... too big and noisy by the sounds of it? <g> hugs, Shelagh http://clik.to/lupus > "Mair" <stingo@sbcgerbil.net> wrote in message: > ......<snip>so I am used to most of the vehicular mayhem... with the exception of > those Muni Busses! </snip>........ > Hi Mair... > Can you tell me, from BC - Canadian, [quoted text clipped - 3 lines] > Shelagh > http://clik.to/lupus Muni ... Municipal. The local name for the bus, trolley and cable car system in San Francisco. See the following link and check the slideshow. <http://www.pbase.com/samsast/san_francisco_muni_history> Probably want a broadband connection. Timothy "Timothy Luders" <tjluders@myrealbox.com> wrote in > Muni ... Municipal. The local name for the bus, trolley and cable car > system in San Francisco. See the following link and check the slideshow.<snip>........... I do have a broadband connection and thank you Timothy! Municipal busses, aha! we have them too... and we have very similar trolley busses as well, whereby their electricity to run on, is directed from the two shafts hooked onto 2 electric lines above them in their lanes and they run along that way, but at times the electric connection shafts disconnect delaying traffic till the driver gets out and taking his 'hook' reconnects the electrical lines to the bus carrying on....here is a pic of ours: http://tinyurl.com/2bkby7 They are smooth and quiet, also clean and nice to ride too, which is nice for the city! Your Munis are what we call 'cable cars' or 'street cars' when we see them in 'the movies' ....so now I know! ... thanks again for your explanation and link! ~Shelagh http://clik.to/lupus <sign our guest map!> The "Muni" Busses are rail cars and they are real nice... they are not real big, but rather slimlined for the places they need to go... which is my beef with them... they run down the middle of regular streets, and one must keep an eye out for them. If I was taking the bus I wouldn't mind, but as is, I don't relish the idea of being squished by one. I had fine luck when I went down on monday... there were no parked cars in the street, so it was just me and the bus, and my car is little. My doc seems concerned that I have a tremor. I never know what he is going to find of significance. When I first go in, he sits there reading my chart like I am not even in the room, and then without even looking up he says "you have a tremor. I need to check..[and he then crossed off almost every box on the test request]. Also I am now part of a genetic study being done at the university. I don't know much about it yet... I have not really read the paperwork. I was okay on Monday to get to The City, but then halfway back home I started getting really tired. Yesterday and most of today I have spent in bed. Twyla has what appears to be an allergy. She had a sneezy night, and that interrupted both our sleep. Finally she fell asleep right over my arm at about 8am, and stayed there for a couple of hours! I have not gotten my computer fixed yet. I just fire it up and look at what I need to see every 2-3 days. I just don't know how best to spend my "extra" money yet this month. With love and Devotion from Mair and Pigmet "Mair" <stingo@sbcgerbil.net> wrote in message: ......<snip>so I am used to most of the vehicular mayhem... with the exception of those Muni Busses! </snip>........ Hi Mair... Can you tell me, from BC - Canadian, ... just what ARE 'Muni Busses'?... never heard the word before...'Muni' I mean, not Busses.... thanx... curiosity is all ... they don't sound 'nice'... too big and noisy by the sounds of it? <g> hugs, Shelagh http://clik.to/lupus Mair, Good news about the Meds that really work...glad that your headache is gone again... Hope your Great Adventure to the city will be just that and not to hard on you... Maybe Pigmet would like to go and give you directions... Oh and I hate when our beloved Computers get sick..my hard drive finally gave up the ghost about a week ago..so I lost alot as I couldn't even get my cd rewriter to recognize a cd...So I didn't get to save my pictures or graphics...address's either...DARN it... But the good news...We found out that because we had a builder's version of Window's XP Professional, you can put that on up to 10 computers...and so I am now running XP as opposed to Win 2000.... Cindy > Hello Family! > [quoted text clipped - 30 lines] > > Mair |
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